Results 1 to 5 of 5

Thread: CP and using your accommodations

  1. #1
    Distinguished Community Member
    Join Date
    Jan 2009
    Posts
    1,217
    Blog Entries
    18

    Default CP and using your accommodations

    I recently had to start going to a campus for something(can't go into detail why for privacy reasons). The campus is large and spread out. The kind of environment where I need a scooter to get around. I do not have a scooter yet but am in the process of trying to find a suitable one which is small enough to fit in the car. We have to make special parking accommodations now and I have to have a special seating arrangement so my alignment doesn't go completely out of whack. A little advice to spastic CP people out there: Sitting in a metal chair for 3 hours makes spasticity go through the roof and once you stand up the high spasticity can lead to some really embarrassing falls. :P I have very mild Cerebral Palsy so we are used to just toughing things out(I'v been making do with crutches) but we learned that if I need an accommodation I should take it despite my pride or anything else. Don't use your disability as an excuse but don't deny yourself accommodations if you need them. They exist for a reason. I also think campuses and other public places need to do a better job following the ADA after this experience. Even if I had a scooter the heavy snow here would make it impossible to use and there were way too many steps. This can really apply to anyone with a physical or mental disability but I thought I should post it here since it is related to my specific experience with spastic diplegia and I wanted to make things more active here.
    Last edited by funnylegs4; 02-05-2014 at 10:15 AM.
    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
    My website for my original short films! http://cripvideoproductions.com/cripsnotcreeps.php

  2. #2
    Distinguished Community Member Earth Mother 2 Angels's Avatar
    Join Date
    Oct 2006
    Posts
    3,047
    Blog Entries
    1

    Thumbs up

    ((((((funnylegs4)))))) ~

    "Don't use your disability as an excuse but don't deny yourself accommodations if you need them. They exist for a reason."

    Excellent and wise advice!

    I think you need to write a letter to the head honcho of the campus, with a cc to others, who might be interested (eg., if it is a state funded facility, send a copy of your letter to your state legislators and governor). In your letter, outline the obstacles you encountered today, how they impacted you, and how they would impact you, if you were in a chair or scooter.

    If you can research the ADA and determine whether the campus is out of compliance with the law, then I would state that and give examples (cite the law for each example, if possible).

    Copy your letter to any disabilities rights organizations in your area and in your state.

    The only way that things change is if we advocate and make them change. Otherwise, you and everyone else, who needs accessible and safe accommodations at that campus will be forced to suffer with the way the campus is now.

    Write that letter, sister friend!

    Love & Light,

    Rose
    Mom to Jon, 48, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.

  3. #3
    Distinguished Community Member
    Join Date
    Jan 2009
    Posts
    1,217
    Blog Entries
    18

    Default

    Quote Originally Posted by Earth Mother 2 Angels View Post
    This quote is hidden because you are ignoring this member. Show Quote
    ((((((funnylegs4)))))) ~

    "Don't use your disability as an excuse but don't deny yourself accommodations if you need them. They exist for a reason."

    Excellent and wise advice!

    I think you need to write a letter to the head honcho of the campus, with a cc to others, who might be interested (eg., if it is a state funded facility, send a copy of your letter to your state legislators and governor). In your letter, outline the obstacles you encountered today, how they impacted you, and how they would impact you, if you were in a chair or scooter.

    If you can research the ADA and determine whether the campus is out of compliance with the law, then I would state that and give examples (cite the law for each example, if possible).

    Copy your letter to any disabilities rights organizations in your area and in your state.

    The only way that things change is if we advocate and make them change. Otherwise, you and everyone else, who needs accessible and safe accommodations at that campus will be forced to suffer with the way the campus is now.

    Write that letter, sister friend!

    Love & Light,

    Rose
    Thank you for the advice! Working on it Rose!
    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
    My website for my original short films! http://cripvideoproductions.com/cripsnotcreeps.php

  4. #4
    Distinguished Community Member
    Join Date
    Jan 2009
    Posts
    1,217
    Blog Entries
    18

    Default

    Quote Originally Posted by Earth Mother 2 Angels View Post
    This quote is hidden because you are ignoring this member. Show Quote
    ((((((funnylegs4)))))) ~

    "Don't use your disability as an excuse but don't deny yourself accommodations if you need them. They exist for a reason."

    Excellent and wise advice!

    I think you need to write a letter to the head honcho of the campus, with a cc to others, who might be interested (eg., if it is a state funded facility, send a copy of your letter to your state legislators and governor). In your letter, outline the obstacles you encountered today, how they impacted you, and how they would impact you, if you were in a chair or scooter.

    If you can research the ADA and determine whether the campus is out of compliance with the law, then I would state that and give examples (cite the law for each example, if possible).

    Copy your letter to any disabilities rights organizations in your area and in your state.

    The only way that things change is if we advocate and make them change. Otherwise, you and everyone else, who needs accessible and safe accommodations at that campus will be forced to suffer with the way the campus is now.

    Write that letter, sister friend!

    Love & Light,

    Rose
    Thanks again for the advice Rose! I spoke with the disability office on the campus sometime after posting this thread and luckily I found out that they offer a ton of accommodations for getting around and testing and classes(I'v never even heard of half the accommodations they offer so it was really cool). The people we were in touch with originally just had no idea what they were doing and weren't connected with the disability office in any way so they directed us to the non accessible areas by mistake and it has been much easier ever since then to do everything on campus. That being said I'm still considering getting a scooter.
    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
    My website for my original short films! http://cripvideoproductions.com/cripsnotcreeps.php

  5. #5
    Distinguished Community Member
    Join Date
    Jan 2009
    Posts
    1,217
    Blog Entries
    18

    Default

    Finally got a scooter and I love it!
    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
    My website for my original short films! http://cripvideoproductions.com/cripsnotcreeps.php

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •  


BTC Inc's Disclaimer and Privacy Policy

The material on this site is for information & support purposes only, and is not a substitute for medical advice provided by a licensed health care provider. Always consult your doctor before trying anything that you find online.