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Thread: I managed to copy one small Gleason description of his life with MS...wonderful

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    Distinguished Community Member Lazarus's Avatar
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    Default I managed to copy one small Gleason description of his life with MS...wonderful

    One night over the winter, a small group of overwatered lads tossed a rock through an old, thick, and very large shop window in our little town. This plate of glass was wider than the span of my outstretched arms. It was a shame to see it replaced with a more modern, three-pane window.

    As with so many other experiences, though, it got me thinking about living with multiple sclerosis (MS).

    Many of us were living lives of large-pane glass windows when the drunken hooligan we’ve come to know as MS chucked a rock through our crystal existence. A sudden rain of shards showered down on some, while others found cracks in their window expanding, until one day it all fell in.

    Reglazing With Smaller Panes
    We’ve all learned to reglaze our lives with new windows, but like my neighborhood shopkeeper, we’ve learned to do so with smaller panes rather than broad expanses of plate glass.

    Those who started with fewer symptoms and recovered fully from them may have imitated the shopkeeper and replaced the broken window with only a few panels. Most of us, however, have rebuilt our window with small, tidy, even panes of glass. In doing so, we prepare for the next time MS chucks a rock and breaks something else. This time, we hope, the damage will affect a smaller pane — a smaller part of our lives.

    The longer I live with this disease, the more I find myself reducing the size of those panes.

    Sometimes I feel my life’s windows now resemble those of Hagrid’s hut in the Harry Potter films. They’re now a hodgepodge of small and often damaged, salvaged pieces of glass that I’ve been able to cobble together to keep the damage from incoming rocks to a minimum. Allowing me to see the wonderful world of which I am still a part, and letting that world’s light in when getting out into it, is just more than I can manage.

    Unique Beauty in the Imperfect
    The funny thing about these small-paned windows that I’ve had to continually repair and replace is that they have their own unique beauty.

    Gone from my life are the wide expanses of fragile plate-glass windows. In their place, I have leaded together bits of glass from my former life, lessons gleaned from others who live in my community, and the discarded shards for which no one else saw a use.

    My windows are more resilient now. The rocks still go through now and again, and I’ve had to board up some panes until I find just the right piece of glass to fit. Some of those holes are still boarded up … but I refuse to close the shutters altogether and abandon the light to reduce the burden of maintenance.

    I suppose, now that I think of it, that the light reflecting from the faceted and often uneven panes of our lives’ windows may be quite beautiful to behold from the outside, too. Perhaps the work we do even inspires those who still have the fortune of viewing the world through vast expanses of unbroken glass.

    I thank our entire community for helping me see the beauty of life through my imperfect windows.

    Wishing you and your family the best of health.

    Cheers,

    Trevis

    My book, Chef Interrupted, is available on Amazon. Follow me on the Life With MS Facebook page and on Twitter, and subscribe to Life With
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

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  3. #2
    Distinguished Community Member SalpalSally's Avatar
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    Linda, who is this?
    Love, Sally


    "The best way out is always through". Robert Frost







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    Distinguished Community Member renee's Avatar
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    Life is more relaxed when you have an appreciation for non-matching plates.

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    Distinguished Community Member Lazarus's Avatar
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    Quote Originally Posted by SalpalSally View Post
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    Linda, who is this?
    Oops....Trevis Gleason...he is / a chef in Seattle. I googled his name and got lots of stuff. He has lots of material on what he is doing for his MS....he is Irish.
    Last edited by Lazarus; 02-11-2016 at 10:47 AM.
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

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    Distinguished Community Member Lazarus's Avatar
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    Quote Originally Posted by SalpalSally View Post
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    Linda, who is this?
    About Trevis
    Trevis L. Gleason is a food journalist and published author, an award-winning chef and culinary instructor who has taught at institutions such as Cornell University, New England Culinary Institute and California Culinary Academy (CCA). Mr. Gleason holds degrees from Regents College in New York and New England Culinary Institute in Vermont. Recently retired from a distinguished career in the culinary field and living in Seattle, Wash., Mr. Gleason has taken on an even larger challenge. He was diagnosed in 2001 with secondary-progressive multiple sclerosis and volunteers for the National Multiple Sclerosis Society.
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

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    Yes, Sally I would like to know who it is also. Guess we could go to his FB page.
    Virginia

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  13. #7
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    Thanks Linda, we posted at the same time.
    Virginia

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    Distinguished Community Member Lazarus's Avatar
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    Another paragraph about this man, Trevis Gleason....his writings on MS are interesting.

    "Trevis Gleason is now a leading voice for people with MS and a multitude of chronic illness. His Blog, Trevis L Gleason’s Life With MS, is one of the longest running, most widely read and respected on the topic. He also writes regular blog posts for the MS Society of the United Kingdom (A Yank’s Life With MS) as well as for the National (US) Multiple Sclerosis Society (The Unspeakable Bits; From A Life With MS). His opinions are sought by elected officials and non-profit leaders. He stirs a national conversation about MS the way he once might have an elaborate consommé and while MS has stopped him from doing much he formerly found “important” there is no greater work for him, than being a voice for those who live with MS just like he does"
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

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