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Thread: Edwards syndrome; fressreflex loss

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  1. #1

    Default Edwards syndrome; fressreflex loss

    Hello, our 7 month old son being diagnosed with edwards syndrome have lost his fressreflex though on his 4th month it slightly started to develop, but in a month after that dissapeared again. Can someone give an answer or advise: is it possible to get it back somehow? Maybe there are some methods to develop a fressreflex again?

  2. #2
    Distinguished Community Member Earth Mother 2 Angels's Avatar
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    To BrainTalk!

    We're glad that you found us!

    I am unfamiliar with the term "fressreflex," so I Googled it. I found this definition:

    Sucking and chewing movements elicited by stimulation of the face and lips.

    My first thought is that your son would benefit from an Early Childhood Intervention (ECI) program. ECI programs offer a multi-disciplinary approach to assisting children with developmental delays, including speech therapy. Speech therapists have assorted techniques to improve oral aversions, swallowing, chewing, etc. Try Googling Early Childhood Intervention to see whether there are any programs offered in your area. Or ask your son's Pediatrician for a referral.

    I invite you to join our Child Neurology forum, where you will meet moms of children with special needs, and adults, who have cerebral palsy. We have lots of experience, and we are here to support you and your son on your journey.

    Just post a new thread in the Child Neuro forum. We're a bit slow right now, as we're still in the holiday season. But, we'll pick up again soon.

    Looking forward to getting to know you and your son.

    Love & Light,

    Mom to Jon, 49, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful Dad.

  3. #3
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    I'm not sure what the fressreflex is but I had PT via early intervention for my reflex issues. A therapy called CME is supposed to be good for reflexes. I'm not sure how early in age a baby can start CME. Edwards Syndrome is Trisomy 18 yes? I follow this blog about Trisomy 18 here Look at the older posts where they mention Nora's development etc. It might provide some answers.
    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
    My website for my original short films!

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