Results 1 to 10 of 10

Thread: Worldwide Candle Lighting 12/13/15

  1. #1
    Distinguished Community Member Earth Mother 2 Angels's Avatar
    Join Date
    Oct 2006
    Posts
    3,037
    Blog Entries
    1

    Default Worldwide Candle Lighting 12/13/15

    Screen Shot 2015-12-09 at 3.07.08 PM.jpg

    The 19th Annual Compassionate Friends Worldwide Candle Lighting

    In Memory of Children, Who Have Died

    Sunday

    December 13, 2015

    7:00 p.m. your local time

    Please light a candle and remember all children, who have died at any age from any cause.
    You will be joining hundreds of thousands of people in creating a virtual 24 hour wave of light across the globe ...

    "... that their light may always shine."

    For more information, please visit The Compassionate Friends website.

    https://www.compassionatefriends.org..._Lighting.aspx

    Thank You ~

    Love & Light,

    Rose

    Mom to Jon, 48, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.

  2. The following user says "thanks"


  3. #2
    Distinguished Community Member Earth Mother 2 Angels's Avatar
    Join Date
    Oct 2006
    Posts
    3,037
    Blog Entries
    1

    Default Our Precious Angels

    Screen Shot 2015-12-09 at 4.06.55 PM.jpg

    OUR PRECIOUS ANGELS


    Forever in Our Hearts

    Augie



    Bubba



    Lauren



    Tessa



    Kole



    Alexandria



    Bekah



    Bobby



    Matthew



    Ira



    Jaden



    Jenna Nicole



    Lucas



    Jacob



    Carly



    Ruben



    Noah



    Brianne



    Andrew



    Kaylee



    Michael



    Kaitlyn



    Jagger



    Ronan



    Elise



    Morgan



    Danny Jr.



    Carlie Jae



    Zachary



    Amanda



    Lydia



    Nathan



    Blaze



    Bryan



    Anna-Marie



    Megan



    Kate



    Griffin

    Last edited by Earth Mother 2 Angels; 12-10-2015 at 09:06 PM.
    Mom to Jon, 48, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.

  4. The following user says "thanks"


  5. #3
    Distinguished Community Member
    Join Date
    Jan 2009
    Posts
    1,211
    Blog Entries
    17

    Default

    This is beautiful Rose! Are those the names of children on the forum? I will be honoring my friend's miscarried baby who died in 2010.
    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
    My website for my original short films! http://cripvideoproductions.com/cripsnotcreeps.php

  6. #4
    Distinguished Community Member Earth Mother 2 Angels's Avatar
    Join Date
    Oct 2006
    Posts
    3,037
    Blog Entries
    1

    Default

    ((((((funnylegs4)))))) ~

    Yes, Our Precious Angels are CN children, with the exception of Bryan, who was Michael's best friend and classmate, and his mom is one of my very closest friends. I posted about Bryan's illness and passing here on CN, and they received tremendous support from all of you. I placed his name on the list as an Honorary Member.

    The list begins with the inception of CN. From Matthew (Mama Sue's son, as is Bobby) on, the list incorporates our Precious Angels during the past 15 years. I know this, because I joined in 2000, at Mama Sue's urging, while Matthew was struggling with his very rare condition. Donna, Tamie and I were members and knew all of these children and their parents well, because our forum was extremely active in those days, and we were a tight group with a huge membership. Imagine our CN forum then ~ not unusual for 3 or 4 pages of new posts every day.

    Megan is Tracy Sheppard's daughter, who received her wings in August this year.

    I'm so very sorry that your friend lost her baby. I'm sure your friend will be touched deeply to know that you are lighting a candle for her baby. It means so much to grieving parents to know that their children are remembered and honored by others.

    Thank you.



    Love & Light,

    Rose
    Mom to Jon, 48, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.

  7. #5
    Distinguished Community Member
    Join Date
    Jan 2009
    Posts
    1,211
    Blog Entries
    17

    Default

    Ah how wonderful they are all being remembered. I'm so sorry these beautiful children passed away! I would have loved to see what the forum was like back then. Glad you understand about my friend's sweet baby Rose. Except for her family and me nobody brings her up or even seems to care, even though losing her tore my friend apart. I wrote about what happened during the miscarriage in 2010 in the Cerebral Palsy forum archive under something like "pray..sad post". That baby will always be my little angel friend no matter what anybody says!!
    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
    My website for my original short films! http://cripvideoproductions.com/cripsnotcreeps.php

  8. #6
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    So. Calif.
    Posts
    318

    Default

    Remembering the stories and lives, parents and siblings for each of these names. So much joy, so much heartache, so much history. Another name to be added is Carly's sister, Anna-Marie. She lost her battle with brain cancer at 21 after five years of fighting. Helene lost two daughters. Still in touch with her after all these years. This site was my lifeline; my infusion of support and understanding. Miss all those who used to post here.
    grandmother of Tyler (22): Ohtahara Syndrome/SCN2a gene mutation, cortically visually impaired, quadriplegic, severely developmentally delayed, no speech, severe intractable seizures, frontal and temporal lobe atrophy, progressive scoliosis/kyphosis, chronic kidney stones & UTI's, gastroparesis, 100% tube fed, autonomic dysreflexia, but what a precious gift from God. "Lord, grant me the serenity to accept the things I cannot change."

  9. The following user says "thanks"


  10. #7
    Distinguished Community Member
    Join Date
    Oct 2006
    Posts
    954
    Blog Entries
    9

    Default

    I remember many of these children, Rose. Thank you so very much for being our memory keeper. I will be lighting a candle on Sunday after coming home from Kate's memorial service. I'll be remembering all our CN children, but especially Megan and Michael.
    Donna, Mum to Natalie (22), ablebodied, kind and beautiful and Nicholas(26), severe CP, non-verbal, tube fed, multiple surgeries, chronic pain, happy kid except when the Liverpool football club or the Ottawa Senators Hockey Team are losing!
    Check out my blog: http://www.donnathomson.com


  11. #8
    Distinguished Community Member Earth Mother 2 Angels's Avatar
    Join Date
    Oct 2006
    Posts
    3,037
    Blog Entries
    1

    Default

    ((((((HUGS TO ALL)))))) ~

    ((((((funnylegs4)))))) ~

    One of the most loving things you can do for grieving parents is remember their child, particularly on special occasions, holidays, Angelversaries. It's wonderful that you are there for your friend, and I'm sure that she is very grateful for your kindness and support. And, yes, I'm sure that you have an angel on your shoulder.

    ((((((Tamie)))))) ~

    Thank you for sharing with us that Helene's daughter Anna Marie has passed. I've added her to the list of Our Precious Angels. How wonderful that you and Helene are still in touch. Please tell her that my prayers are with her for peace, strength and comfort. And please let her know that we are honoring her two beautiful daughters.

    I miss the old days too, Tamie. We had so many members, yet, we were all tight and close. I miss hearing about everyone's journey, their ups and downs, their families, their children, grand children.

    But, we're still here, and our arms are open to welcome back everyone at any time. We're still close and tight.

    How is Tyler? How are you and your husband? Prayers for you continuing ~

    ((((((Donna)))))) ~

    I added Kate and Griffin to the list of Our Precious Angels. I'll be thinking of you, Kate and her family on Sunday.

    Love & Light,

    Rose
    Mom to Jon, 48, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.

  12. The following user says "thanks"


  13. #9
    Distinguished Community Member
    Join Date
    Oct 2006
    Posts
    954
    Blog Entries
    9

    Default

    Hi Rose, I'm going to Kate's memorial service tomorrow. I will tell you all about it. It will be a celebration of her rich, but short life. xo
    Donna, Mum to Natalie (22), ablebodied, kind and beautiful and Nicholas(26), severe CP, non-verbal, tube fed, multiple surgeries, chronic pain, happy kid except when the Liverpool football club or the Ottawa Senators Hockey Team are losing!
    Check out my blog: http://www.donnathomson.com


  14. #10
    Distinguished Community Member Earth Mother 2 Angels's Avatar
    Join Date
    Oct 2006
    Posts
    3,037
    Blog Entries
    1

    Default

    ((((((Hugs To All)))))) ~

    Candles are still glowing in Michael's room to honor all of our Precious Angels.

    Donna ~ I was thinking of and praying for you and Jim, and Kate's family today. I'm sure that Kate's celebration was beautiful.

    A year after Michael passed, a dear friend sent me a collection of songs to help me with my grief journey. This one touched me deeply:

    https://www.youtube.com/watch?v=UsDji3Z7t3s

    "And you'll be here in my arms ...
    Just sleeping ..."

    For all parents, who feels as I do tonight, missing their beautiful child, I weep. May we all find comfort in experiencing our children's spiritual presence and knowing that we will be reunited someday.

    Love & Light,

    Rose
    Mom to Jon, 48, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.

Similar Threads

  1. SPECIAL ALERT The OIE recommends strengthening animal disease surveillance worldwide
    By flatfish in forum Creutzfeldt Jakobs Disease (CJD)
    Replies: 0
    Last Post: 12-05-2014, 08:56 AM
  2. Worldwide Candle Lighting: 12/09/12
    By Earth Mother 2 Angels in forum Child Neurology
    Replies: 1
    Last Post: 12-05-2012, 07:21 PM
  3. Replies: 0
    Last Post: 11-25-2012, 09:17 AM
  4. Worldwide Candle Lighting: 12/11/11
    By Earth Mother 2 Angels in forum Child Neurology
    Replies: 5
    Last Post: 12-10-2011, 06:43 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •  


BTC Inc's Disclaimer and Privacy Policy

The material on this site is for information & support purposes only, and is not a substitute for medical advice provided by a licensed health care provider. Always consult your doctor before trying anything that you find online.