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Thread: New and completely lost

  1. #1

    Default New and completely lost

    Hey all I am a 35 year old male. I recently had a bout with diverticulitis in the hospital and they decided to do an MRI on my brain as I complained about some strange tingling in my feet which has since gone away. They discovered a "2 to 3mm conical shape prominence arising from the right aca at the a1 a2 junction compatablie with a vessel infundibbilum versus a small aneurysm" I'm absolutely devistated, I saw a neurosurgery interventionist and he said it is definitely something there but it could be a infundibbilum or a small aneurysm. He said normally he would tell someone to have another MRA in a year but since I'm so young he's willing to do a cerebral angiogram. Of course that has its own risks and I'm not sure it's worth it yet. What should I do? I already scheduled a second opinion but this is the most scared of been in my life. I have a one year old who I want to have a dad for a long time..

  2. #2
    Distinguished Community Member Earth Mother 2 Angels's Avatar
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    ((((((Annexedwa)))))) ~

    To BrainTalk!

    I'm glad that you found us, but I'm sorry that you need to be here.

    You are wise to get a second opinion. Perhaps you could try making a list of all of your questions to take with you to the appointment, so that you don't forget anything. Ask about the risks/benefits of the angiogram. Ask about other options and treatment possibilities. Ask for detailed information on surgery, including recovery.

    After you've received the answers from both neurosurgeons, make another list of Pros and Cons, to help you decide what is the best choice for you. Scour the internet for information about your condition, because knowledge is power.

    Unfortunately, this forum isn't as active as it once was, and I do hope that other members, with experience (which I don't have), will see your post and respond. Perhaps you could peruse the Archives of this forum to see whether there is any information there, which might help you.

    I can only imagine how frightened you are, particularly when you are uncertain about what is the best path for you to follow. If you can find ways to help you relax, such as meditation, deep breathing, prayer, etc., then by all means, employ those techniques now.

    I'm sending healing positive energy your way, with a prayer that you will be diagnosed and treated properly, so that your precious one year old has a long life with you.

    Love & Light,

    Rose
    Mom to Jon, 47, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.

  3. #3

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    Rose,

    Thank you so much for reaponding. I'm so sad to hear it isn't as active as it once was. I've been talking with family and friends who are doctors which has helped but I do hope to hear from people like me too. I wonder why it's not as active as it once was? Is there another forum you'd recommend? Thanks again.

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    ((((((Annexedwa)))))) ~

    To BrainTalk!

    I'm glad that you found us, but I'm sorry that you need to be here.

    You are wise to get a second opinion. Perhaps you could try making a list of all of your questions to take with you to the appointment, so that you don't forget anything. Ask about the risks/benefits of the angiogram. Ask about other options and treatment possibilities. Ask for detailed information on surgery, including recovery.

    After you've received the answers from both neurosurgeons, make another list of Pros and Cons, to help you decide what is the best choice for you. Scour the internet for information about your condition, because knowledge is power.

    Unfortunately, this forum isn't as active as it once was, and I do hope that other members, with experience (which I don't have), will see your post and respond. Perhaps you could peruse the Archives of this forum to see whether there is any information there, which might help you.

    I can only imagine how frightened you are, particularly when you are uncertain about what is the best path for you to follow. If you can find ways to help you relax, such as meditation, deep breathing, prayer, etc., then by all means, employ those techniques now.

    I'm sending healing positive energy your way, with a prayer that you will be diagnosed and treated properly, so that your precious one year old has a long life with you.

    Love & Light,

    Rose

  4. #4
    Distinguished Community Member agate's Avatar
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    Hi Annexedwa and WELCOME!

    I can't add much to the welcoming message from Rose but so far as I know there are no other message boards to recommend. Of course people here hope that you might decide to stay with us and try to make this place more active.

    I'm usually on the MS board and don't often say much in the other departments but I do know that doctors often come up with worst-case scenarios and scare people unnecessarily. From their standpoint it's necessary because they're under an obligation to tell you what all of the possibilities are. What they might not tell you is the likelihood of possibility A or B. They might not know but it wouldn't hurt to ask.

    If it turns out to be an aneurysm, many aneurysms can be corrected.

    Of course you're very concerned, but the old saying about not troubling trouble until trouble troubles you is worth thinking about.

    A second opinion by all means, but you'll need to be calm and alert if you need to make decisions about what tests to have or what course of action to choose. I hope that you can avoid panic, maybe by telling yourself that this could turn out to be nothing to worry about, and if that's wrong, you'll worry about it when you know for certain.
    If you don't know where you are going, any road will get you there.
    --Lewis Carroll

    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07-5/15/10. Member of MS forum here since 2001.

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  6. #5
    Distinguished Community Member Earth Mother 2 Angels's Avatar
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    ((((((Annexedwa)))))) ~

    Unfortunately, when BrainTalk crashed a few years ago, some members left and didn't return. Many of our forums were affected. Some folks went to FaceBook. Some may have found other forums. Some may have recovered and didn't need a forum any longer.

    I am not a member of the Aneurysm forum, so I can't lead you to another forum or discussion group. However, I can provide you with the link to our Aneurysm forum, when it was active, so that you can scroll through the threads and perhaps find something relevant to your situation.

    http://www.braintalkcommunities.org/...splay.php?f=85

    Meanwhile, I will certainly be here for you on your journey with encouragement and positive energy. I have a wide range of experience with my two sons, so I might be able to assist you with any ancillary issues to your aneurysm. Right now, you've added two more people on your side, agate and me, than you had before you posted here. Hopefully, others will also respond.

    Please let us know about your second opinion.

    Sending you healing energy ~

    Love & Light,

    Rose
    Mom to Jon, 47, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.

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  8. #6

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    Thank you ladies, it's been hard to find a good dr where I live so I have to wait another week for a second opinion. I'll keep you posted!

  9. #7
    Distinguished Community Member Earth Mother 2 Angels's Avatar
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    ((((((Annexedwa)))))) ~

    I'm sorry that you have to wait for the second opinion. It would be wonderful if you lived near a university hospital, where there are more resources/specialists.

    As you wait for this appointment, try to keep a positive attitude, and get rest and eat properly. Stress can really do a number on our bodies and immune systems, so do all that you can to reduce your anxiety and stress.

    I hope that all goes well with your second opinion appointment, and I'll be looking forward to your update.

    Sending healing prayers and energy your way ~

    Love & Light,

    Rose
    Mom to Jon, 47, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.

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