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Thread: 4 years

  1. #11
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    Default New York

    New York...

    loved it loved it loved it.........
    Colloid cyst removed from 3rd ventricle endoscopically oct 07 shunt inserted late oct 07.

  2. #12
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    Default Ts

    9 Years

    9 Years anniversary

    So how am I doing now ?

    pretty good I have to say. A lot of my symptoms [as mentioned in my previous updates] have minimised at last and don't concern me so much. They are still there but don't concern me as much as they used to,now I would consider them just minor irritations.

    I still keep a diary,but its mainly for work (drug & alcohol testing) which keeps me busy ,too busy on some occasions but I use the busy times to test my self to see what I am capable of still,but then usually pay the price of some fatigue after but I use this as a barometer of my healing.

    Still don't feel 100% me but close enough.Roll on to my next update which will be a decade, which I still can,t believe, 10 years......wow...

    But at least I have all my diaries,mine and others post on this forum and my annual updates to help me reflect on and to give some perspective of my progress and how far I have come since those dark early post-op days.

    Hope everyone is doing good

    Bill[uk]
    Last edited by Bill[uk]; 10-06-2016 at 01:49 PM.
    Colloid cyst removed from 3rd ventricle endoscopically oct 07 shunt inserted late oct 07.

  3. #13
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    Default

    Quote Originally Posted by Bill[uk] View Post
    This quote is hidden because you are ignoring this member. Show Quote
    9 Years

    9 Years anniversary

    So how am I doing now ?

    pretty good I have to say. A lot of my symptoms [as mentioned in my previous updates] have minimised at last and don't concern me so much. They are still there but don't concern me as much as they used to,now I would consider them just minor irritations.

    I still keep a diary,but its mainly for work (drug & alcohol testing) which keeps me busy ,too busy on some occasions but I use the busy times to test my self to see what I am capable of still,but then usually pay the price of some fatigue after but I use this as a barometer of my healing.

    Still don't feel 100% me but close enough.Roll on to my next update which will be a decade, which I still can,t believe, 10 years......wow...

    But at least I have all my diaries,mine and others post on this forum and my annual updates to help me reflect on and to give some perspective of my progress and how far I have come since those dark early post-op days.

    Hope everyone is doing good

    Bill[uk]
    Congratulations Bill! I've just read through your yearly updates for the first time...I'm on year 15 since my open craniotomy in 2001. I experience a similar journey - took a while for my brain to settle down and get focused, and keeping myself challenged with "thinking" (but not overdoing it) did help me too. I went back to school and kept learning. Routines and jobs became my touchstones. I would say now I'm smarter and sharper than my pre-op self.

    Unfortunately my CC grew back, but we are monitoring it. I'm appreciative of seeing your reflections today because I have been weighing whether I advocate to have the cyst removed electively to prevent the risks of hydrocephalus. My main concern is getting treated quickly enough, by a seasoned CC surgeon. Your yearly posts have reminded me it is a long journey back to 100%, even with a minimally invasive approach, and not to take the post-op work ahead lightly.

    Thank you for sharing. Glad you are doing well!

    All the best,

    CCSurvivor.

  4. #14
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    Default

    "I'm appreciative of seeing your reflections today because I have been weighing whether I advocate to have the cyst removed electively to prevent the risks of hydrocephalus.

    Your yearly posts have reminded me it is a long journey back to 100%"




    Glad to help, this is the precise reason I post annually,

    good luck with your journey.....


    Bill[uk]
    Colloid cyst removed from 3rd ventricle endoscopically oct 07 shunt inserted late oct 07.

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