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Thread: "As I Am"--music video for MS Awareness Month

  1. #1
    Distinguished Community Member agate's Avatar
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    Default "As I Am"--music video for MS Awareness Month

    A music video has been made for this MS Awareness Month. The leader of the group called Project Diagnosis has MS. You'll see quite a few instances of the kinds of mobility problems you're probably familiar with.

    https://www.youtube.com/watch?v=R0Po...ature=youtu.be

    About Project Diagnosis, which appears to have a connection with the National MS Society:

    http://www.theprojectdiagnosis.com/
    Last edited by agate; 03-22-2015 at 07:59 PM. Reason: adding link
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  3. #2
    Distinguished Community Member agate's Avatar
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    It would be interesting to have some opinions about the way MS is represented in this video. Do you think it's accurate?
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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    Distinguished Community Member SalpalSally's Avatar
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    I didn't like watching it, but it was a good realistic presentation.
    I hope it gets things moving towards s cure.

    Thanks Joan.
    Love, Sally


    "The best way out is always through". Robert Frost







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  7. #4
    Distinguished Community Member agate's Avatar
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    It definitely was hard to watch, but I thought it was also a bit comforting to see real people having the same kinds of problems I have.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  9. #5
    Distinguished Community Member Jeanie Z's Avatar
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    :) I have mixed feelings about it. It did show a few MSers with problems but many have even bigger ones than were shown. They are the ones who do not get to leave their homes or who are in nursing homes.

    Having led a weekly MS support group for eleven years I saw all levels of MS. Many of the group members have died from complications of MS. Even one young mother of a 7 and 9 year old who joined the group after diagnosis and within 3 months was in a wheelchair. Within 6 months she was in a hospital bed in the living room and her husband had to quit working to care for her and the children. A little over a year later she died.

    I personally have no energy and have to really push myself to grocery shop. I eat all the food in the house until I can no longer wait to shop and drag myself to the store. I try to buy a lot so I can postpone shopping too. Jeanie :)

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  11. #6
    Distinguished Community Member agate's Avatar
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    Good point, Jeanie. I've personally known several people who were very severely afflicted with MS. All are dead now.

    The more severe situations weren't shown.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  13. #7
    Distinguished Community Member Lazarus's Avatar
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    Quote Originally Posted by agate View Post
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    Good point, Jeanie. I've personally known several people who were very severely afflicted with MS. All are dead now.

    The more severe situations weren't shown.
    This was not a professional effort...it seemed to be a very caring effort by friends trying to support friends with MS. So, it must be judged as that remarkable effort to write music, stage the performance and include visuals of MSers in daily life situations.

    I also thought there were serious difficulties shown...the torturous effort of the young woman walking down the stairs within her house made me wince. One of the members of my first support group died doing exactly what tht woman was doing. Since that death, 25 years ago, three other members have died due to MS complications. But the rest of us still meet and we all keep trying and keep laughing together. Still, nice to have non MS friends who do what they can.
    That video made me happy.
    Last edited by Lazarus; 03-24-2015 at 04:09 AM.
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

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    Distinguished Community Member renee's Avatar
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    Enh... BUT anything that promotes awareness of MS to the general public is a.o.k.

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