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Thread: Good Morning- glad to find this site

  1. #1

    Default Good Morning- glad to find this site

    I had my confirming Angiogram yesterday, and fully expected to hear that I would have a coiling for my unruptured right cerebral aneurysm or I would be told that we would watch and see( This second option was causing me more worry as I just wanted Malificent( I named it) gone. I was not really prepared for my Neurosurgeon to tell me after the procedure that I would need to have Clipping because my aneurysm stem was too broad for coiling. I also have PKD so not sure what to do next. they are already scheduling my surgery. Should I get a second opinion and if it's wide then it's wide so why would I risk coiling if it may not work? Looking for some feedback from anyone who has been where I am and willing to suggest next steps. Also, I have a well recommended Surgeon out of Tufts, Boston and can get a second opinion from Another top guy at Beth Israel- Both are top Aneurysm specialists. Thanx in advance...
    Mary D.

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  3. #2
    New Community Member
    Join Date
    Apr 2009


    Welcome to the forum! Hope you get LOTS of support from the members here.

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  5. #3
    New Community Member
    Join Date
    Feb 2015
    Saint Louis


    Hey Mary, I'm having an angiogram tomorrow to confirm what my Doc already suspects... That my Annie is going to need clipped. After researching a bit it seems like the invasive surgery is the better option in the long run? IDK.. I go back and forth, one minute I'm ready; the next I'm terrified. Anyway, just thought I'd reach out and let you know you're not alone. Take care, John

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  7. #4
    Distinguished Community Member Earth Mother 2 Angels's Avatar
    Join Date
    Oct 2006
    Blog Entries


    ((((((Mary)))))) ~

    Welcome to BrainTalk!

    While I don't have any experience to offer you with insight, I am sending you healing, positive energy.

    If you can get a second opinion, then I suggest you do so. Just to rule in/rule out and put your mind at ease. Make a list of questions to take with you to your appointments, and if something is unclear, don't hesitate to ask the doctor for further explanation.

    Also for you and for John, I recommend checking out the Archives from our old BrainTalk forums for the Aneurysm forum:

    You can search for posts relevant to your concerns in our archives, when our forums were more active.

    Hope that you'll keep us posted and let us know your decision.

    Love & Light,

    Mom to Jon, 49, and Michael, 32, who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003. Our Angel Jon received his wings April 2019. April 2020, Jim, the world's most wonderful Dad, joined them. Now, they all watch over me.

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  9. #5


    Didn't see this until today. Hope your procedure went great. Have they scheduled your surgery yet John?

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  11. #6
    New Community Member
    Join Date
    Feb 2015
    Saint Louis


    Hey, that's ok I've been down a few days anyway... The angiogram was more difficult than I expected! I see my NS this Friday the 13th... Good thing I'm not superstitious! Yikes. How are you holding up? Well I hope. I know the toll it's taking on me mentally is exhausting. Hope you've found some peaceful moments. Take care and keep in touch, John

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  13. #7


    Mamasalvo, My prayers are with you. keep in touch!

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