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Thread: Surviving a power outage with your medically complex child

  1. #1
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    Default Surviving a power outage with your medically complex child

    Hi Everyone,
    I know Rose is prepared, but I wasn't in 1998 when had the biggest ice storm in history and we lost power for 3 days!

    This is a good article to share :)
    Donna, Mum to Natalie (22), ablebodied, kind and beautiful and Nicholas(26), severe CP, non-verbal, tube fed, multiple surgeries, chronic pain, happy kid except when the Liverpool football club or the Ottawa Senators Hockey Team are losing!
    Check out my blog:

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  3. #2
    Distinguished Community Member Earth Mother 2 Angels's Avatar
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    Thumbs up Thank You!

    ((((((Donna)))))) ~

    Thank you for sharing this with us, Donna.

    With the blizzard looming over the Eastern seaboard, this is quite timely information! Prayers for all to be safe.

    I learned something from this article about "gravity bags" for G tube feeding. I'm going to mention this to our formula supplier to see whether she has any to send us, just in case. Thank you!

    All of the suggestions are excellent. I would add to the list of emergency supplies: LED candles and a flashlight in every room of the house. I have the phone # of the electric company taped to our flashlights. And it might be helpful at night, with a power outage, to have solar lamps outside to illuminate walkways, patios, gates, etc.

    In this era of continuous catastrophic events, I think a generator is a very sensible investment/form of insurance, especially for persons with disabilities or medical conditions. When I freaked, as the power went off after our earthquake last year, Jim calmed me by reminding me, "We have a generator. It's okay."

    We're not as prepared as we'd like to be. We haven't identified area wide hotels/motels with handicapped rooms, in case we needed to evacuate. We don't have a central bag or bin full of everything we'd need in an emergency. But we know where everything is, and we could assemble it all in less than an hour.

    Let's pray that none of us ever has to put these emergency preparations to use! But if we do, it's wise to be prepared. Thanks again, Donna.

    Love & Light,

    Mom to Jon, 49, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful Dad.

  4. #3
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    Good article for today since we have snow coming. My power may go out for 3 to 4 days but we have everything ready in case it does. I learned well from Hurricane Sandy. Luckily my CP does not require complex equipment. I'll be fine. Thanks for any prayers though.
    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
    My website for my original short films!

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