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Thread: orthopedic appointment

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    Default orthopedic appointment

    Kathleen saw her orthopedic Dr. today. She hasn't complained about itching or burning hands an feet in over a month. But her leg is still very tight so she isn't wearing her KAFO still and her mobility is still poor. He's still concerned with her neck instability. And worried that a fall or jarring of her neck could be serious. She's scheduled for an orbital MRI on the 22nd of this month so he added to that another neck MRI to check for any changes. It's been 6 months since her last one. He also wants her to wear the neck collar. I do hope we get some clear cut answers soon. Nothing with Kathleen is "by the book" , it takes a lot of putting pieces of a puzzle together. We're lucky to have some very patient persistent, and understanding Dr.'s.
    Mary Grace

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    Got a call from the imaging department an they have to reschedule the MRI. She needs sedation and she will need 2 time slots in order to do both MRI's so it won't be until Feb. 19th. So much waiting... This means I have to reschedule 3 other appointments with the Dr.'s who will want to see the MRI. I need a secretary...
    Mary Grace

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    ((((((Mary Grace))))))

    I volunteer to be your secretarial assistant! I have a lull of 2 days next week, between phone calls to resolve issues related to Jon's services and scheduling home improvement activities. Send me your calendar and the list of doctors! You know that I would if I could, Mary Grace.

    You and Kathleen are both in waiting mode now. How frustrating for you. Prayers for patience. May the time go by quickly for you both.

    Continuing to pray for answers for Kathleen's issues. I will hope for the orbital MRI to provide the clues needed to help her, and I will give thanks for the physicians, who are caring for her so compassionately and thoroughly.

    And healing prayers for you too, Mary Grace.

    Love & Light,

    Rose
    Mom to Jon, 48, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.

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    Hi Mary Grace, Oh I am sorry that the MRI was rescheduled - what a pain! It's so complicated and so much work for you. I think you need TWO secretarial positions and I volunteer to be the other one. And Feb. 19 seems such a long time to wait. sigh. I wish you and Kathleen a safe wait (no falls) and all the best for the day with the sedation (that's always more of a worry, even though I'm sure it will be light sedation and all will be just fine). I send you a Mom to Mom hug xoxo Donna
    Donna, Mum to Natalie (22), ablebodied, kind and beautiful and Nicholas(26), severe CP, non-verbal, tube fed, multiple surgeries, chronic pain, happy kid except when the Liverpool football club or the Ottawa Senators Hockey Team are losing!
    Check out my blog: http://www.donnathomson.com


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    Donna an Rose, Thank you for all the support and prayers! I know you would both be right here to help if possible but I hope you know that just coming here an being able to vent or look for advice is a tremendous help. It's something that's difficult to get in real life because I don't personally know others who have walked this path. Even though I have great family and friends you both know what this level of understanding is like. I try to live in the moment as best I can an enjoy the moment but the worry does creep up once in a while. The sedation will be light but more lengthy than usual since it will be two separate MRI's.
    My sestamibi test will be Monday praying that this give the surgeon a very clear picture for an uncomplicated surgery. The test is about 2 1/2 hours they said.
    It has been extremely cold here this past week two days with a school delay because of he wind chill temps. I'm looking forward to a little warm up into the 20's this weekend.
    Mary Grace

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    ((((((Mary Grace)))))) ~

    As loving and caring as family and friends can be, no one can understand the challenges of caring for a child with a disabling condition as well as another parent, who has the same experiences. That's why we're all here, and I'm so glad that we are all here to support each other.

    Just remember that you have two qualified secretaries waiting in the wings to assist you!

    When so much is awaiting you, worry is bound to surface. It's a lofty ambition to live in the moment, I know, because I try to do the same thing. Not fret over the past, not fear the future. All we can do is try to do our best. And I know you are, Mary Grace.

    You will be in my thoughts and prayers on Monday during your test. (I need to look it up, because I haven't heard of it before.) Two and a half hours seems like a long time! But it's better to be thorough, of course. Practice breathing, in through your nose, out through your mouth, and consciously relaxing your body starting at the top of your head, and slowly working down to the tips of your toes. Think about each body part and realize any tension and consciously relax it, then move on to the next body part. This works for me for dental procedures, some which lasted 3 hours.

    If you need some TLC and distraction, the smoothies are being served on our sunny tropical oasis ~



    See you there soon!

    Love & Light,

    Rose
    Mom to Jon, 48, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.

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    Rose thank you... I needed that great reminder. I read this last night before I went to be and did exactly what you said. It is relaxing and I was able to fall asleep quickly. I will remember this tomorrow. I also started a book so I'll be bringing that with me too. I believe the test involves waiting while what they inject leaves the parathyroids, leaving the good ones first and the bad one/ones last. This group isn't large in numbers, but it's large in experience and caring support.

    I can sooooo use that smoothie on our sunny tropical oasis. I just look at that beautiful picture, and close my eyes and breath... I'm there...
    Mary Grace

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    ((((((Mary Grace)))))) ~

    I'm so glad that you practiced the breathing/relaxation suggestion, and that it worked for you. It absolutely got me through 6 solid months of weekly dental work in 2013. I'd start and get to my neck and could feel my shoulders hunched up, so I relaxed them, then got to my hands, and they were clenching the armrests of the chair. I moved them to my lap and relaxed each finger. And down to my toes, which were actually tense! It really does help. Do it again tonight, so that you're well rested for your test tomorrow.

    You're so right about CN ~ what we lack in quantity, we more than make up for in quality. I would love to see a return of our former members, but alas and alack, that seems to be something that will not happen. Since former members didn't return to remember and offer tributes to Pansy ~ Liz, then I guess that they'll never return here. At least that is how I feel these days, and it saddens me.

    Here's your smoothie! We have a comfy lounger for you, with a fluffy organic cotton towel, and there is a marvelous breeze wafting, as the waves gently kiss the shore. The sand is soft and warm beneath our feet, and the sun is in just the right location in the azure sky to give us our needed Vitamin D, but no burn or harmful rays. It is so exquisitely peaceful here. Come ~ sit down with us ~



    Prayers for you all day tomorrow, ((((((Mary Grace)))))), and I'll check in for your update on your test ~

    Love & Light,

    Rose
    Mom to Jon, 48, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.

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    So glad my test is over. You were in my thoughts all through it Rose. I heard you telling me "relax... relax you fingers and your toes" And I did and I got through. During 2 of the tests I got a "tickle" in my throat YIKES. I needed to be completely still for several more minutes. But I closed my eyes and saw the picture of our tropical oasis, lying in a lounge, I pretended my feet were in sand and the noise of the machine was the ocean. It relaxed me and the tickle went away. Other than being tired and stiff from lying still, it went well and now I wait to hear from the dr.
    Mary Grace

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    Ohhhh Bless you, Mary Grace!!! I am so glad that Rose and her beach and lounge chair kept you from coughing!!! I am so happy that our Rose inspired you to feel peaceful at such a stressful time. We are all sisters and I'm so glad that we're connected here. I will be praying for good results from your tests. I send you peaceful thoughts ( yes, of tropical oases and pina coladas) and the test results you hope for.
    Donna
    Donna, Mum to Natalie (22), ablebodied, kind and beautiful and Nicholas(26), severe CP, non-verbal, tube fed, multiple surgeries, chronic pain, happy kid except when the Liverpool football club or the Ottawa Senators Hockey Team are losing!
    Check out my blog: http://www.donnathomson.com


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