Results 1 to 3 of 3

Thread: Know of pediatric (infant) epilepsy support groups?

  1. #1
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    Atlanta, Georgia
    Posts
    139

    Default Know of pediatric (infant) epilepsy support groups?

    Do you know of any active Pediatric epilepsy support groups?

    Linnie

  2. #2
    Distinguished Community Member Earth Mother 2 Angels's Avatar
    Join Date
    Oct 2006
    Posts
    3,047
    Blog Entries
    1

    Default

    ((((((Linnie)))))) ~

    Unfortunately, I don't know of any pediatric epilepsy support groups. Of course, we qualify under that umbrella, but those of us, who remain here and participate have older children ~ teens to adulthood.

    But that doesn't mean that we can't support the parent of an infant. So please feel free to refer anyone who needs support to our forum, and we'll do our best to help. We can offer wisdom and experience.

    Love & Light,

    Rose
    Mom to Jon, 48, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.

  3. #3
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    So. Calif.
    Posts
    318

    Default

    Check Face Book. There are a lot of support groups there.
    grandmother of Tyler (22): Ohtahara Syndrome/SCN2a gene mutation, cortically visually impaired, quadriplegic, severely developmentally delayed, no speech, severe intractable seizures, frontal and temporal lobe atrophy, progressive scoliosis/kyphosis, chronic kidney stones & UTI's, gastroparesis, 100% tube fed, autonomic dysreflexia, but what a precious gift from God. "Lord, grant me the serenity to accept the things I cannot change."

Similar Threads

  1. Replies: 12
    Last Post: 12-17-2014, 11:36 PM
  2. Replies: 0
    Last Post: 11-08-2014, 06:26 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •  


BTC Inc's Disclaimer and Privacy Policy

The material on this site is for information & support purposes only, and is not a substitute for medical advice provided by a licensed health care provider. Always consult your doctor before trying anything that you find online.