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Thread: Know of pediatric (infant) epilepsy support groups?

  1. #1
    Distinguished Community Member
    Join Date
    Oct 2006
    Atlanta, Georgia

    Default Know of pediatric (infant) epilepsy support groups?

    Do you know of any active Pediatric epilepsy support groups?


  2. #2
    Distinguished Community Member Earth Mother 2 Angels's Avatar
    Join Date
    Oct 2006
    Blog Entries


    ((((((Linnie)))))) ~

    Unfortunately, I don't know of any pediatric epilepsy support groups. Of course, we qualify under that umbrella, but those of us, who remain here and participate have older children ~ teens to adulthood.

    But that doesn't mean that we can't support the parent of an infant. So please feel free to refer anyone who needs support to our forum, and we'll do our best to help. We can offer wisdom and experience.

    Love & Light,

    Mom to Jon, 49, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful Dad.

  3. #3
    Distinguished Community Member
    Join Date
    Oct 2006
    So. Calif.


    Check Face Book. There are a lot of support groups there.
    grandmother of Tyler (22): Ohtahara Syndrome/SCN2a gene mutation, cortically visually impaired, quadriplegic, severely developmentally delayed, no speech, severe intractable seizures, frontal and temporal lobe atrophy, progressive scoliosis/kyphosis, chronic kidney stones & UTI's, gastroparesis, 100% tube fed, autonomic dysreflexia, but what a precious gift from God. "Lord, grant me the serenity to accept the things I cannot change."

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