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Thread: Hi fellow fibro victims

  1. #1
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    Default Hi fellow fibro victims

    Hi. I registered on this board awhile ago but never really spent much time on here.....but I am back. I have fibromyalgia and I believe I am currently having a flair-up......Even on a regular basis it takes a big toll on me. It definitely makes it hard to hold down a full-time job...which I somehow am still managing to do. I think it's because of where I work and who I work with. I can get away with resting alot and stuff....

    Oh, I am 29 yrs old, single mother of one. Unfortunately I don't feel anywhere near my age, I haven't for years now....I feel about 80 yrs old instead... :(

    looking forward to talking with everyone

  2. #2
    Distinguished Community Member Jo6's Avatar
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    hello hkaga. Welcome to Brain Talk . You are very welcome to the Fibro Forum! I noticed the other night that nobody had posted here so I started a post. I'm glad you started a new thread. Maybe you can tell us a bit about yourself.

    I'm so sorry you have Fibro. It will take every ounce of energy and can cause you much pain. I'm sorry about the flare. that is when it gets really hard.

    I'm 69 yrs. old, besides Fibro I have a bunch of spinal problems. I am currently in a heated flare and I have a hard time sleeping when it gets this bad. I have pain meds. but they don't seem to touch the fibro.

    I've only got a few min. to sit here so I'll make this short. I wanted to welcome you and hope you have some info that we can all share. I do know a lot of people on the Forums have Fibro, so maybe others will come by.

    You take care, don't do anything to make it worse. I'm glad you can still work but I know that is hard and being a mother is added stress. No matter how much we love our families if it gets stressful the Fibro flare's up. Many other things will cause you to flare. I'm sure you know this by now.

    Look forward to getting to know you better, Jo aka Julia
    Did you ever know that you're my hero and every thing I would like to be I can fly higher than an eagle
    'cause you are the wind beneath my wings

    for my brother Ben

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    Thanks for the welcome....I have a good bit of trouble with headaches that come from the occipital nerves (which i figure is the muscles pinching the nerves)....I take excederin tension headache for them....for the most part it works, or at leasts calms it down pretty well. I do take a muscle relaxer at night sometimes to help me relax and sleep better. Other than that everything they have tried doesnt work on me. I have always been like that though too.....alot of meds never affect me the way they should. Most prescription pain meds won't even touch me at all, its like taking nothing. Percocet is the only thing that is even worth trying, but last time i had some it was a crap shoot....either it would work, wouldn't work, or made me sick....for the most part they werent knocking me out anymore though. It's an endless hunt for relief.... :(

    Anyway....as I said above i am 29 yrs old, have a 10 yr old son, i'm a single mother, stuck living at home with my dad (who stresses me out big time, which doesn't help things) because I can't afford my own place and refuse to give up all my animals to get a place....my animals are my life (other than my son). I do work full-time as an optician. I have a certificate in information technology and an associates in computer information science and web design. I haven't gotten into working in the field though....at least i don't hate the job i am at now, so im just waiting and seeing what happens. With the way I am doing anymore i can see me ending up on disability within the next 5 years or so :( It's really sad that people 20-30 yrs older than me can do ten times as much as I can. Most days I feel like im 90 yrs old....Of course all this doesn't help my bipolar situation...its very depressing, as Im sure you know.

  4. #4

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    Hi, I'm a new member and happy there is a fibro area for members. I started with fibro years ago, it was mild and manageable until a fall three years ago. So...I am now disabled. My plan has been to improve enough to get back to work, but so far that isn't possible. I am 55, divorced and my children are grown, so it's only my cat that has to listen to my moans and groans.Thankfully I do have some good days, and I try to keep as active as I can. I am beginning to think I have something neurological happening and that is how I found this site. I haven't seen a doctor yet so time will tell. Anyway, I hope to find some friends here. Marj1

  5. #5
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    welcome to BT! and please check out the Emotional Support forum so many of us rely on.

    I cannot imagine working everyday. many days I do nothing beyond daily tasks. other days I feel energetic & do housework or whatever in spite of the pain.

    I'm 62,divorced for many years with 2 grown sons. it's sad to read someone in their 20's feels like they are 90! I feel that way also but it's too depressing to accept as reality for rest of my life ya know? my parents are in their 80's & sure didn't suffer like this. what genes did I inherit I wonder? HA

    this used to be an active forum so maybe we can get it going again?

    lots of wonderful people on BT so glad you found this site & hope y'all will benefit from it.

    if you suspect neurological issues you will need to begin the saga of seeking an answer by seeing your PC first then get a referral to a neuro & hope for the best. you should make a list of every single symptom you have. hope you have good insurance cause neuro's do alot of testing!

    good luck to all......

  6. #6
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    Hi and thanks for the welcomes....

    I have been having a rough time lately, i'm so sore and tired and just mentally exhausted. I am bipolar and have had trouble for many years getting it under control...slowly starting to now, but not 100% yet....I have been so irritable lately i want to rip someone's head off just cause i feel like it. I have had trouble with going through periods of this before....i just hate everyone and everything for no reason. Anyway.....feeling 90 at before ur 30 is very depressing in itself....i don't even want to think about how I am going to feel in another 5 or 10 years, let alone what I may be like when i am 80-90 yrs old. :( I have seen about 4 neuro's already....they are freaking idiots! Most wouldn't even try to figure anything out or even check....another had the biggest god complex i have ever seen! I actually got down from the exam table and stood there yelling at him lol. I am going to see another neuro later this month. My doc said this guy is to be really good and is the type of doc that will sit and talk to you and explain things.....go im keeping my fingers and toes crossed on this one. I am mainly looking for his opinion on all the symptoms and if he thinks something else besides fibro is going on or not. Also the headaches I have been dealing with for years are impossible to control at all unless i live on Excedrin tension headache.....so i need to see what he thinks can be done. My pain specialist I was seeing actually ran out of ideas....he did figure out they are occipital headaches but that is it. Fortunately I have state insurance (medicaid/access), so I don't pay much if anything at all for my visits and tests. My meds are never more than a buck or two also....thank god....I would be in bad shape if I had to pay for all or most of the stuff......It is really nice to have others to talk to that understand what I am going through and feeling. Other people just don't understand the scope of it all.....so it's hard for them to truly understand.

  7. #7
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    hkaga,I managed to refrain from my opinion of neuro's yesterday. seems you've already been enlightened! well maybe the next one will be OK. hope so!

    there are several people on BT with bi-polar disorder. not sure if the forum is active these days? I know if you join in on the Emotional Support thread you will connect with one or more.

    everyone needs support! and we have figured out other people cannot understand how it feels to be in constant pain or not able to do things we once took for granted.

    hope for better days ahead! ((((hugs)))) Pati

  8. #8

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    I understand how you are feeling, I not only try to control fibro but also I have had depression for many years. At times, both are overwhelming. I am just starting testing for neurological symptoms with my general practitioner, and then she will send me to the specialist. I don't know why the doctors haven't picked up on my symptoms before. I find more and more that we have to be our own doctor. I welcome friendship with everyone here, we can help and support each other. Marj

  9. #9
    Distinguished Community Member Jo6's Avatar
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    lol @ kaga at your take on Neuro's. Or maybe it was Marj1 ? My shrink even tells me they are a rare breed and that wasn't a nice breed either. lol He said when he was in Med School Everybody tried to get as far away from their housing as possible.

    I was lucky with the last one I have. He would sit down and talk and try to figure out how to help me. When he had done all he could with my problems he kindly refered me to a Pain Management Dr. It's too bad for me that my problems were so old, had gotten to the point where surgery was out. I would not hesitate to go see him again.

    Welcome to you both, Marj1 and kaga. I also invite the both of you to use the Emotional Support Forum. It's a good place to vent when you need to.

    take care and hope to see you both soon, Jo aka Julia
    Did you ever know that you're my hero and every thing I would like to be I can fly higher than an eagle
    'cause you are the wind beneath my wings

    for my brother Ben

  10. #10

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    Thank you for the welcome. I plan use the Emotional Support Forum also. Outside of my general practitioner, the real help I have had with fibro has been my psychiatrist. He has several patients with fibro and so has done research on his own and is treating me for both depression and fibro. He is at the university hospital here and the beauty of that is that they seem to be aggressive in gaining knowledge and treatment. I saw a rheumatologist there who agreed with my psych and so I only see him as I experience changes. I don't have alot of confidence in many specialists I have seen, from my experience they take little time with patients and could not possibly know the complete story. I will be having an MRI next week that has been ordered by my GP. Then I will see a neurologist but, like others I have seen, I will get the diagnosis and go back to my psych with it. I totally trust him, and he stays with a problem until there is an answer. For now, I feel good about my treatment with doctors...but who knows what happens next. Being a member of a group like this is a big plus I think. Take care, Marj

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