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  1. Oh! That was me last night too! Went to bed at 8...

    Oh! That was me last night too! Went to bed at 8 and slept heavily. Woke up at 11 and thought for sure it was morning. Long night...watched a decent movie on Amazon (Madame). Listened to more of a...
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    I need to start moving...pants are getting tight...

    I need to start moving...pants are getting tight and legs are getting stiff....two things going in the wrong direction!
  3. Help in walking....a friend sent me this from PubMed

    Effect of a passive hip exoskeleton on walking distance in neurological patients

    F A Panizzolo 1 , S Cimino 2 , E Pettenello 3 , A Belfiore 3 , N Petrone 2 , G Marcolin 4
    Affiliations ...
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    It is remarkable how joyous the day was and the...

    It is remarkable how joyous the day was and the future is!
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    Oh Renee what a mess! It is obvious from the way...

    Oh Renee what a mess! It is obvious from the way you tell us your story that there is something special about you. I hear your humor through the telling of your disaster. That is a way of thinking...
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    OUCH! Interesting how pain sort of travels. I...

    OUCH! Interesting how pain sort of travels. I once described such a situation to my doctor as the pain was roaming around inside me while it looked for a way out.
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    I am trying again .... ...

    I am trying again ....
    ...
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    Sorry ! I clicked on it here and it opened.

    Sorry ! I clicked on it here and it opened.
  9. Same with me....about stretching. It was an old...

    Same with me....about stretching. It was an old farmer who showed me what he does every day who made me realize how important it is to stretch.
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    A chuckle for all.....

    https://www.facebook.com/photo/?fbid=10219469799637813&set=gm.3903297423088532&__cft__%5B0%5D=AZWGwOV01IpiTDRDFls9gp-CzZEil0SI9q5CdmVNZqdrH-DAENj_k2PJiDY-NysvCkj8ye3MbPCb717AxCATJslLPn56ul6n5CPb8R6kRy...
  11. DAve Bexfield from active MSers has a 25 page exercise handout. I copied the link.

    Hope this link works....it did for me.

    https://files.constantcontact.com/0b1744ba101/683ccf79-cb2b-4c0a-8b1c-d59b1fad50f8.pdf
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    Joan, The post I made was from an MS friend. I...

    Joan,
    The post I made was from an MS friend. I will copy your response about the shingles vaccine and forward it to her.
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    A friend sent me this article and questions. I...

    A friend sent me this article and questions. I thought some of you might have thoughts.

    “ See this NYT article on how the Johnson & Johnson vaccine works:
    ...
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    Take care of yourself....we have had an easy time...

    Take care of yourself....we have had an easy time of it here in western MA in terms of snow. One very big storm that melted within a couple of days. Recently we have had very heavy rain storms. My...
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    Right Howie! I watch reruns of Barney Miller and...

    Right Howie! I watch reruns of Barney Miller and of Soap and of Murphy Brown! And Colombo.
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    Thanks! My brain has been lazy lately. I must...

    Thanks! My brain has been lazy lately. I must have mixed up a whole bowl of information ingredients. My soufflé of misinformation has deflated!
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    Hi Ann....I was trying to tell someone about your...

    Hi Ann....I was trying to tell someone about your mother and realized I could not repeat the details. She lives in MA too? Who arranged for her to get the shot? Sorry I am lazy and did not go back to...
  18. Me too! And I saw the Mickey Mouse club every...

    Me too! And I saw the Mickey Mouse club every day. I got dressed up each day with my mouse ears and tee shirt and skirt.
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    Ok! It is Saturday morning and around 8:30 am. I...

    Ok! It is Saturday morning and around 8:30 am. I am getting way too used to sleeping on Saturday mornings. Usually I am up at 4:00am to get ready to go to farmers market. We do markets all year long....
  20. So, I am reading the new book by George Saunders...

    So, I am reading the new book by George Saunders (Lincoln in the Bardo author). This new book ( A Swim in a Pond in the Rain) this new book is very exciting to me. He is explaining how he teaches a...
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    You inspire me to get up and work! Thanks for...

    You inspire me to get up and work! Thanks for that. This pandemic has given me the luxury of having time to do farm chores without having to do them immediately. Soon enough I will be wondering how I...
  22. We are in western MA and do farmers’ markets in...

    We are in western MA and do farmers’ markets in Northampton, Amherst and Florence.....just in case your brother is nearby! We used to participate in 6-7 markets a week but, it is such an enormous...
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    I just subscribed to the Guardian. I really enjoy...

    I just subscribed to the Guardian. I really enjoy wandering in that paper.
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    I bought it and found it a good tool but....I was...

    I bought it and found it a good tool but....I was thinking.....you might have to have hand ability enough to use it. Turning the knob on top and then moving the long handle counter clockwise to open...
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    I got the original can opener mentioned in this...

    I got the original can opener mentioned in this thread...thanks random thoughts! It works. I will keep testing!
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    Very clever. I posted it on my Facebook page...to...

    Very clever. I posted it on my Facebook page...to give friends a chuckle. The first person to write a comment was my student in the 1970’s. I love being friends with about a dozen former students.
  27. Thread: News of Jeanie

    by Lazarus
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    “John's mother lived out her final years in a...

    “John's mother lived out her final years in a house in a neighborhood, with 5 other Seniors. The home employed caregivers, who tended to all of their needs, fed them home cooked meals, and kept in...
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    Thanks Sunshine. I ordered it and will post my...

    Thanks Sunshine. I ordered it and will post my experience with it soon! It is just the type of minimalist design I like.
    Linda
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    Take a look at Robo Twist 1014 Automatic Jar...

    Take a look at Robo Twist 1014 Automatic Jar Opener As Seem On TV (Pack of 2)…
    Brand: Robo Twist

    Amazon's
    Choice
    for "robot jar opener as seen on tv"

    Rob twist adjusts to any jar size. Just...
  30. We are in sync! We are searching and maybe have...

    We are in sync! We are searching and maybe have located a new starter for our farm truck...a 1948 Willy's jeep. My husband and I used to plow with it when we were first married (52 years ago) it has...
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    Ann, Thank you so much for the information about...

    Ann,
    Thank you so much for the information about the vaccine distribution. John’s team of cardiologists’s are at Deaconess (sp) in Boston. He is 84 now. So I read him what you wrote and suggested we...
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    Rose, I love that idea that you have a friend who...

    Rose, I love that idea that you have a friend who would move a mountain for you.
    John has a friend like that who is also someone who can fix all our old tractors and cars. He also can help John...
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    Yes, we are reading seed catalogues. It is very...

    Yes, we are reading seed catalogues. It is very life affirming ! We buy most seeds from Johnny’s.
    After walking a mile that other day I have been busy all day each day but my walking has been...
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    Thanks. I did a test. Took my own sample and sent...

    Thanks. I did a test. Took my own sample and sent it to a lab. In less than a week I had the results. They used FedEx to deliver the test and I needed to send it back. (Shipping was all free...but...
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    We had a pleasant day also. I made a soup from...

    We had a pleasant day also. I made a soup from fresh tomatoes and corn and onions and added heavy cream and orange juice at the end. Sounded odd to me also but the oj was fantastic. Soup was really...
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    Happy 2nd day of the year! Here in western MA...

    Happy 2nd day of the year!
    Here in western MA we have not been hammered with bad weather. One big snow storm that has already melted. We had big piles of snow that I thought would be here until...
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    Happy New Year...your posts always remind me that...

    Happy New Year...your posts always remind me that life is infinitely interesting. Thanks
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    I use Peapod (Stop and Shop) and have never seen...

    I use Peapod (Stop and Shop) and have never seen price gouging. In fact, if they are out of something I ordered and they are substituting a similar item they charge me the lower price even if the...
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    Virginia, When I realize I am going to fall, at...

    Virginia,
    When I realize I am going to fall, at the moment I realize, it is tough to do anything but roll with it. Hard to do but helps sometimes to make the damage less severe. I fall a lot so am...
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    Virginia, what is the high dose your brother in...

    Virginia, what is the high dose your brother in law takes? I remember that I used to take one that had a very high amount but can not remember. I am curious.
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    Here in usually cold Massachusetts, I woke up to...

    Here in usually cold Massachusetts, I woke up to 61° this morning. Christmas! And all the 14” of snow we had last week has melted away.
  42. We raised geese for years. They knew us and...

    We raised geese for years. They knew us and followed us like puppies. They would come if I called and eat out of my hand or nuzzle into my pockets looking for crumbs. If a stranger arrived they would...
  43. Thanks. This is good info. I had thought about...

    Thanks. This is good info. I had thought about the watch but can not imagine doing anything on it! My fingers are old and gnarled and how can I text on it! Or read anything for that matter. Isn’t it...
  44. Just wanted to say how much I am enjoying this...

    Just wanted to say how much I am enjoying this thread. Interesting. Thanks to everyone for this gift!

    P.s.
    I am in western MA and farmers around here are having problems with missing bees. Lots...
  45. I was thinking of using it in place of getting a...

    I was thinking of using it in place of getting a smart phone. We would also keep out flip phones and our iPads. This would simply occupy the space of a smartphone to use in emergencies or when we...
  46. Yes. That is what I heard him saying but, as they...

    Yes. That is what I heard him saying but, as they gather new information their advice will probably adjust. I bet even my farmers market next spring will consider making vaccination a requirement for...
  47. Grandpad....a device for seniors....off topic

    So, today I discovered this tablet ( grandpad) through consumer cellular. I have my flip phone through consumer cellular so that is the service I would use. It seems to me that this device acts like...
  48. Thanks! I was getting my rituxan the day before...

    Thanks! I was getting my rituxan the day before it snowed. What luck! We got about a foot of snow and it was very light. It is almost gone from the farm’s roadways now but there are huge piles all...
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    Excellent. Perfectly said.

    Excellent. Perfectly said.
  50. Thread: News of Jeanie

    by Lazarus
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    Virginia, What is the Lifeline you mentioned?...

    Virginia,
    What is the Lifeline you mentioned? One of John’s doctors must have mentioned it to him because he commented on it. Thanks.
  51. I was hoping Howie would spot it!

    I was hoping Howie would spot it!
  52. Especially for cat people..how to give a cat a pill. And a dog too!

    How to give a cat a pill ... and a dog, too


    How to give a cat a pill:

    1.
    Pick up cat and cradle it in the crook of your left arm as if holding a baby. Position right forefinger and thumb on...
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    All my nurses during my infusion the other day...

    All my nurses during my infusion the other day wore masks and I heard them reminding any patient who had slipped mask to put it up again whenever the nurse had to approach the patient. Where I go we...
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    Crocheting is just beautiful. I did rituxan...

    Crocheting is just beautiful.
    I did rituxan yesterday which was good planning with the big storm. Thought I was all set because I hired someone to plow since John and I are both having trouble. Guy...
  55. Thank you very much! I am getting rituxan...

    Thank you very much! I am getting rituxan tomorrow. I had no idea about the antibody problem. I will call to ask about the second infusion.
  56. Anyone know about this drug...like Ocrevus but you can inject under the skin at home.

    This drug approved for relapsing remitting and primary progressive use. SSusan asked me about it. I think I will ask my neuro about it.
    Linda

    Novartis set to take on Roche as FDA clears first...
  57. Thanks for this information. It is just what I...

    Thanks for this information. It is just what I was seeking. Do you know anything else about how you get set up for the shot?

    I am getting rituxan tomorrow and hope to feel stronger immediately...
  58. Ann, In Northampton MA there is a wonderful...

    Ann,
    In Northampton MA there is a wonderful Indian restaurant. The owner’s father was Galbraith’s chef! I do not remember all the details but I think I have the main one right!
  59. I forgive you and thank you too!

    I forgive you and thank you too!
  60. I taught Critical and Analytical writing and...

    I taught Critical and Analytical writing and World Literature. My brother is the research physicist. He ran a lab at the National Labs . ( the fusion project)

    Here’s a random memory.....I packed...
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    Well, I am trying to move and stretch...now that...

    Well, I am trying to move and stretch...now that the outdoor farm work is over. So far I have been only partially successful although I am paying attention to what I am doing and paying attention...
  62. Hey Agate, I taught in a public high school...

    Hey Agate,
    I taught in a public high school called Enrico Fermi High School.
  63. View Post

    Medical Bills – Sites with advice on rectifying overcharges


    1. From vox.com, see

    https://www.vox.com/2019/3/22/18261698/how-to-fight-expensive-medical-bill
    This article from vox.com gives...
  64. All very interesting. I remember our family...

    All very interesting. I remember our family doctor coming to the house when one of us was sick. I remember he had small round tins with creams inside.

    Not sure what medicine the cream contained...
  65. I remember them...I think John even had some...

    I remember them...I think John even had some ....many years ago. I think Sunshine is right about mostly men shoes.
  66. An MS friend sent me the link to this research site...looks interesting

    https://www.neurologylive.com/clinical/multiple-sclerosis


    https://neurosciencenews.com/
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    Hey, happy day Howie! To celebrate your birthday...

    Hey, happy day Howie! To celebrate your birthday I will spend the day eating cake. Thanks for having a birthday today and for being here. You are a nice neighbor.
  68. Replies
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    The first year we grew poinsettias I had no idea...

    The first year we grew poinsettias I had no idea that the green leaves turned red. I kept waiting for the red leaves to emerge from the green plant. It was quite a surprise when the leaves turned...
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    Good luck Agate. I remember raising an arm and...

    Good luck Agate. I remember raising an arm and putting my hand on the back of my head to inject on the underside of my arm. (In those days I had a lot of chubby padding so it was easy). My favorite...
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    Today I started early and made a delightful,...

    Today I started early and made a delightful, light soup. I cut up and steam veggies in water for 20 minutes and then drain the veggies to sauté them while saving the liquid to use as the broth....
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    I have read a lot about the baclofen pump. I...

    I have read a lot about the baclofen pump. I think it is made by Medtronic and I read their news. When it works for a patient it is really helpful and I hope you are a good candidate.
  72. Replies
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    Long day...still putting farming materials away...

    Long day...still putting farming materials away for winter and getting everything organized. Almost every tractor is under cover..all trailers are put away..and I think I remember where I put the...
  73. Hi Agate, Novantrone was my favorite chemo. But...

    Hi Agate,
    Novantrone was my favorite chemo. But when I still had 2 doses left ( there was a limit of 2 years placed on how much you could get) with 2 doses left the government pulled the plug. The...
  74. Replies
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    Yes! My body loves the cold weather. I have...

    Yes! My body loves the cold weather. I have actually been walking with my walker...about 1/2 mile...maybe more. I have not done that in a long time.
  75. Welcome. I too can not speak to the diet you...

    Welcome. I too can not speak to the diet you asked about. I remember researching lots of diets but that was many years ago. Unrelated to trying to control my MS I have been a vegetarian for 52 years....
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