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  1. Hi lisalailey Good Luck! I hope this BP works...

    Hi lisalailey

    Good Luck! I hope this BP works for you.

    LeakingnHissinginPotomac
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    I had my sitting up brain MRI. My neurologist...

    I had my sitting up brain MRI. My neurologist told me that the radiologist's report said that there was no difference from prior MRI.
  3. You're welcome. Regarding blood patch...

    You're welcome. Regarding blood patch information, you may want to go to the archives and do a search for "blood patch." You will find many threads and posts that provide helpful information...
  4. In response to your question/comment about...

    In response to your question/comment about anything online regarding CSF leak causing dementia, I found:

    “Dementia is a rare complication of spontaneous intracranial hypotension, but subtle...
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    Marianne, I thought your suggestion was a...

    Marianne,

    I thought your suggestion was a great idea so I made the same suggestion to my neurologist. He agreed that it is worth trying even though I have had two brain MRIs while lying down in...
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    It is very confusing. I still get some relief...

    It is very confusing. I still get some relief from the headaches when lying flat and occasionally I get relief when reclining slightly. I have not heard of New Daily Persistent Headache (NDPH) so I...
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    Low vs High CSF Pressure

    Response to your questions and a few additional comments:

    Did your brain MRI show any evidence of low or high pressure?

    My neurologist and neuroradiologist here said that they saw mild or low...
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    Low vs High CSF Pressure

    I am interested in advice, thoughts etc. about my situation. Sorry for the length of this post.

    My headaches began last December. Shortly after that I started experiencing tinnitus. The severity...
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    Thia, I have a spontaneous CSF leak. I...

    Thia,

    I have a spontaneous CSF leak. I previously had some hearing loss in my left ear. I experienced increased hearing loss in my left ear at about the same time that I began to have headaches....
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    Dear Laura, That was quite a scare you had. A...

    Dear Laura,

    That was quite a scare you had. A 104.7 fever is very high. Last month one of our girls, who is 24, spent a few days in the hospital with a high fever and stomach pains. Eventually,...
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    I am here. For convenient reference and to...

    I am here. For convenient reference and to facilitate continuing conversations, I imported from the archive several threads that I started.

    bstone,
    I tried to send you a private message. It...
  12. Dear TXCINDA, I think being scared and anxious...

    Dear TXCINDA,

    I think being scared and anxious before a surgery or other procedure is normal. Keep in mind that your surgery is being done by a world-class surgeon, who is generally regarded as...
  13. I have a slow leak too. I was very happy that my...

    I have a slow leak too. I was very happy that my leak was located. But the two blood patches I've had did not fix me. I still have headaches and tinnitus. The headaches are reduced when I am...
  14. CT Myelo

    Lumbarlady,

    Yes. The neuroradiologist that did my CT Myelo saw some evidence of my leak on a spinal MRI that had been previously done. With the CT Myelo, the neuro located my leak at T9-10. The...
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    CSF Leak and Tinnitus

    Importing this thread from archive:
  16. Dr. Schievink at Cedars - - Blood Patch Procedure

    Importing this thread from archive:
  17. Dr. Linda Gray (Leithe) at Duke - Request Info

    Importing this thread from archive:
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    Exercising with Leaks

    I have copied from the archive and pasted this thread. Hopefully, it works.
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    Mr. Hosobuchi, Would you please provide...

    Mr. Hosobuchi,

    Would you please provide detailed instructions on how to copy from the archive a thread of posts, which can be on multiple pages, and paste it into a new thread here. The "Quote"...
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