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    ((((((Donna)))))) ~ Thank you so very much,...

    ((((((Donna)))))) ~

    Thank you so very much, dear friend. I am adrift in a sea of crisis, and my mind is turning to mush. I need your help to set me on course, point me in the right direction,...
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    ((((((Donna)))))) ~ Bless your heart, and...

    ((((((Donna)))))) ~

    Bless your heart, and thank you so much.

    You've done so much and helped us in so many ways, dear friend. But, there might be something you could assist me with, because I...
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    ((((((Marcie)))))) ~ My prayers will be with...

    ((((((Marcie)))))) ~

    My prayers will be with you tomorrow as your son and your new daughter-in-law wed. I can only imagine how bittersweet it will be. Please know that my thoughts will be with...
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    ((((((Hugs to All)))))) ~ callyflower ~ ...

    ((((((Hugs to All)))))) ~

    callyflower ~

    Thank you so much for your concern.

    Jim fully recognizes how blessed he is to be as healthy as he is, and as functional as he has been throughout most...
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    ((((((Hugs to All)))))) ~ Thank you so much...

    ((((((Hugs to All)))))) ~

    Thank you so much funnylegs4 and ANN.

    We started processing it last night. Jim had trouble sleeping, and he's usually so tired after his infusion that he sleeps...
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    Dr. K's Scan Interpretation

    ((((((Hugs to All)))))) ~

    Dr. K gave Jim some deflating news today.

    THE TUMOR

    In 5 months, since Jim’s last scans, there has been no improvement in the reduction of the tumor. It isn’t...
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    ((((((Donna)))))) ~ Thank you so much! I...

    ((((((Donna)))))) ~

    Thank you so much! I guarantee you that I'm not superhuman! *biggrin

    I like Denise's advice. I do struggle in many ways, and there are times, when I feel that I've...
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    ((((((Donna)))))) ~ You've found your coping...

    ((((((Donna)))))) ~

    You've found your coping tool, and that's wonderful. Allowing the good memories to rise to the top and letting the rest drop to the bottom is perfect. I'm very glad that...
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    ((((((Hugs to All)))))) ~ Thank you all so...

    ((((((Hugs to All)))))) ~

    Thank you all so much for your support, love, and prayers!

    Jeanie ~

    Yes, prayer is mighty powerful, and we are so grateful for every prayer we receive. Dr. K's...
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    MRI/CT Scan Results

    ((((((Hugs to All)))))) ~

    Drum Roll Please …

    BRAIN MRI

    NO Metastasis! Aside from sinus problems, Jim’s brain is just fine.

    We are so relieved.
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    ((((((callyflower)))))) ~ Thanks for sharing...

    ((((((callyflower)))))) ~

    Thanks for sharing your opinion and advice. I couldn't agree with you more!

    When I explain to Jim that doing too much increases his pain after the steroids wear...
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    ((((((Marcie)))))) ~ Thank you for checking in...

    ((((((Marcie)))))) ~

    Thank you for checking in with us. Jim is feeling much better, thank you for asking.

    He was still having some RA pain yesterday and was trying to manage it with 5 mg...
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    Infusion Cancelled Today

    ((((((Hugs to All)))))) ~

    Jim was all ready for his infusion this morning. I cut his hair yesterday and washed his “chemo clothes” (which I should change to “Opdivo clothes," I guess).

    All...
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    ((((((Donna)))))) ~ Grief is all over the...

    ((((((Donna)))))) ~

    Grief is all over the place, and what you're experiencing is very natural and common. Your relationship with your mom is complex, and you don't need to figure it out all at...
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    ((((((Donna)))))) ~ How well I understand what...

    ((((((Donna)))))) ~

    How well I understand what you're going through. Grief is exhausting. You need to take time to feel all of your feelings. Don't repress anything, because that is unhealthy...
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    ((((((Marcie)))))) ~ Jim and I are so very...

    ((((((Marcie)))))) ~

    Jim and I are so very sorry to hear of Mike's prognosis. Our hearts and love go out to you and Mike and Nick, Brian, and Jon. We understand. It's so very very hard.

    You...
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    ((((((Hugs to All)))))) ~ Thank you...

    ((((((Hugs to All)))))) ~

    Thank you callyflower, funnylegs4, and ANN for clarifying DNR and Advanced Directive. I had forgotten about the Advanced Directive, which dictates what the patient wants...
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    ((((((Hugs to All)))))) ~ Steve ~ I'm so...

    ((((((Hugs to All)))))) ~

    Steve ~

    I'm so sorry that you've been diagnosed with Diabetes, and that, as usual, the VA is not helping you. I suspect that there is a ton of information about...
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    ((((((Hugs to All)))))) ~ funnylegs4 ~ I'm...

    ((((((Hugs to All)))))) ~

    funnylegs4 ~

    I'm so glad that you are healthy and your family is healthy. Not many people can affirm that, so it's a true blessing for all of you.

    Yes, you are so...
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    ((((((Donna)))))) ~ Even when a loved one's...

    ((((((Donna)))))) ~

    Even when a loved one's passing is expected, it's still a shock. Time is the only true healing balm. In some ways, we don't actually stop grieving. We just learn to be at...
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    What Now?

    ((((((Hugs to All)))))) ~

    So …

    Jon scratched his thigh, and since he’s filled with water, it is weeping excessively. I mean, it’s gushing! Another wound!

    Jim has been headache free for a...
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    ((((((Donna)))))) ~ Grief is exhausting, as...

    ((((((Donna)))))) ~

    Grief is exhausting, as well as all of the preparations for your mom's service and reception and the social interaction involved. That's a lot of stress hormones, and now your...
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    ((((((callyflower)))))) ~ Thank you for your...

    ((((((callyflower)))))) ~

    Thank you for your observation. I read it, before you deleted it. It's okay, but I was afraid you were going to tell me something like this. I have to know these things....
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    ((((((Hugs to All)))))) ~ funnylegs4 and...

    ((((((Hugs to All)))))) ~

    funnylegs4 and Marcie ~

    Thank you for the prayers!

    Another headache this morning. Comes and goes on its own.

    I made an appointment for Jim to see our...
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    Headaches Return

    ((((((Hugs to All)))))) ~

    Jim had a headache early last week, and another headache this morning. They go away on their own, without Tylenol. He doesn’t have the same symptoms as he did last...
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    ((((((Jeanie)))))) ~ Thank you so much for...

    ((((((Jeanie)))))) ~

    Thank you so much for your prayers. Bless your heart.

    We haven't put the tables and CD tower together. There's been so much else happening, with the water tank, and now...
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    ((((((Marcie)))))) ~ Thank you so much for...

    ((((((Marcie)))))) ~

    Thank you so much for checking in on us, Marcie. I pray for you and your family every day.

    So far, we're all doing fairly well here. The weather is atrocious, and there...
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    A Positive Day for Jim!

    ((((((Hugs to All)))))) ~

    funnylegs4 ~

    Last year, when I lost our Mac Mail, I spent hours on the phone with Spectrum and Apple. and I still got nowhere. The Apple rep offered to help me strip...
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    ((((((Hugs to All)))))) ~ ANN ~ The Dummies...

    ((((((Hugs to All)))))) ~

    ANN ~

    The Dummies books were helpful to us as computer/internet beginners. The missing manual for El Capitan is gigantic. A friend sent it to us a few years a go to...
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    ((((((Hugs to All)))))) ~ funnylegs4 ~ ...

    ((((((Hugs to All)))))) ~

    funnylegs4 ~

    Thank you for the reminder about Apple contact. It's been awhile. I hope you're right about not needing a router.

    agate ~

    Thank you for your...
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    ((((((funnylegs4)))))) ~ We received an email...

    ((((((funnylegs4)))))) ~

    We received an email from Apple offering support, so we're going to take them up on it! It's just a matter of when we have time, and when Jim feels up to dealing with it....
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    On The Right Path ---->

    ((((((Hugs to All)))))) ~

    Marcie ~

    Thank you so much for asking about Jim.

    His infusion went smoothly, and he was able to walk through the medical building to the overhead street crossing to...
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    ((((((Hugs to All)))))) ~ Well, I ordered a...

    ((((((Hugs to All)))))) ~

    Well, I ordered a refurbished iPad for Jim, which arrived today. He was gleeful! He wanted the iPad (or some similar device), so that he can access the internet, while...
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    ((((((funnylegs4)))))) ~ It's okay. You're...

    ((((((funnylegs4)))))) ~

    It's okay. You're friend's passing evoked many feelings, including end of life decisions. Your friend had cancer. Both of those topics are appropriate to Jim's thread. ...
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    ((((((funnylegs4)))))) ~ Your friend's...

    ((((((funnylegs4)))))) ~

    Your friend's circumstances were completely different than those depicted in "Me Before You." She was in the end stage, with very little promise for a full recovery.
    ...
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    ((((((funnylegs4)))))) ~ Perhaps your friend...

    ((((((funnylegs4)))))) ~

    Perhaps your friend made the decision to refuse life support, because she understood the gravity of her illnesses, the pain and trials of battling all of them, and she...
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    ((((((Hugs to All)))))) ~ Virginia ~ Yes,...

    ((((((Hugs to All)))))) ~

    Virginia ~

    Yes, our love grows stronger with every day. We know how precious and fragile life is. We know how old we all are, and how we've defied the odds. We take...
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    ((((((funnylegs4)))))) ~ I'm so very sorry...

    ((((((funnylegs4)))))) ~

    I'm so very sorry that your friend passed. Cancer is an insidious disease, and any number of complications can lead to death, including ones generated by treatment. ...
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    ((((((Hugs to All)))))) ~ 4993 Thank you...

    ((((((Hugs to All)))))) ~


    4993

    Thank you all so much for your good wishes for us.

    We were married in our backyard, which Jim had transformed into a beautiful deck and stage. He built an...
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    In Sickness and In Health

    ((((((Hugs to All)))))) ~

    Today is our 26th Anniversary!


    4984

    We knew that the future would be filled with crises, pain and sorrow. And we were determined to ensure that it was infused...
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    ((((((Steve)))))) ~ Thank you for stopping by...

    ((((((Steve)))))) ~

    Thank you for stopping by and for your prayers and continuing support.

    I'm sorry to hear that life is throwing you curve balls. You are in my prayers always too.

    Be good...
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    ((((((Hugs to All)))))) ~ Thank you ANN,...

    ((((((Hugs to All)))))) ~

    Thank you ANN, Marcie, and funnylegs4!

    Yes, we danced! We were in Jon's room, and I can't recall the song, but we were singing along and dancing. Jon is so happy...
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    Winning!

    ((((((Hugs to All)))))) ~

    Jim and I are overjoyed with the results of his CT scan and brain MRI. Dr. K is thrilled and refers to Jim’s progress as “unbelievable.”

    BRAIN SCAN

    All clear! ...
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    ((((((Marcie))))))) ~ Thank you so much! How...

    ((((((Marcie))))))) ~

    Thank you so much! How are you, your husband and your sons? You're always in my prayers!

    Love & Light,

    *heart

    Rose
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    ((((((funnylegs4))))))) ~ Thank you for the...

    ((((((funnylegs4))))))) ~

    Thank you for the link. Very helpful, and probably something that would be beneficial for us.

    OUR UPDATE

    Long weekend for us. HOT! 115 on Friday, today was 97,...
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    ((((((Hugs to All)))))) ~ funnylegs4 ~ You...

    ((((((Hugs to All)))))) ~

    funnylegs4 ~

    You have a good point, and we should probably have 2 cell phones. Our cell is so old, it's practically an antique. We only use it so that we can stay in...
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    ((((((Hugs to All)))))) ~ Donna ~ Jim and I...

    ((((((Hugs to All)))))) ~

    Donna ~

    Jim and I talk about Nicholas every day, as Jim's watching the World Cup. England is really doing well! What does Nick think of the officiating? Jim says it...
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    ((((((Hugs to All)))))) ~ callyflower ~ I...

    ((((((Hugs to All)))))) ~

    callyflower ~

    I suspect that the results will be delayed due to the holiday. The waiting can be treacherous, but we're just trying to ignore it.

    I'm sorry that...
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    ((((((Hugs to All)))))) ~ funnylegs4 ~ ...

    ((((((Hugs to All)))))) ~

    funnylegs4 ~

    Thank you. I do appreciate your advice, suggestions and understanding.

    My prayers are with you always that you continue to be well. Thank you for...
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    ((((((Hugs to All)))))) funnylegs4 ~ Please...

    ((((((Hugs to All))))))

    funnylegs4 ~

    Please don’t apologize! I don’t expect anyone to remember all of the details of our complicated lives! I barely can.

    Dr. P and Dr. K have not...
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    ((((((Hugs to All)))))) ~ callyflower ~ ...

    ((((((Hugs to All)))))) ~

    callyflower ~

    Thank you, as always, for your suggestions.

    Over the past 18 months, Jim has tried a variety of THC options, like edibles and tinctures, but none of...
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    ((((((Hugs to All)))))) ~ Jeanie ~ Thank...

    ((((((Hugs to All)))))) ~

    Jeanie ~

    Thank you so much for your suggestions. I will get to that eventually, but right now things have been very chaotic, scary and exhausting here.

    Jim has...
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    ((((((Hugs to All)))))) ~ Jeanie ~ Bless...

    ((((((Hugs to All)))))) ~

    Jeanie ~

    Bless your heart! I am in awe of your many talents and skills! You might find the rotating CD/DVD/BluRay Tower to be a bit of a challenge:

    4970
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    ((((((Hugs to All)))))) ~ callyflower~ Your...

    ((((((Hugs to All)))))) ~

    callyflower~

    Your vacation plans sound like lots of fun, although ziplining would scare the wits out of me (fear of heights). I had to look up “daith!” I learned...
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    ((((((callyflower)))))) ~ Oregon is a...

    ((((((callyflower)))))) ~

    Oregon is a beautiful state. I hope that you have good weather on your vacation and that you find beneficial medicine.

    I voted for legalization, so I'm fine with...
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    ((((((Hugs to All)))))) ~ Jim had an Opdivo...

    ((((((Hugs to All)))))) ~

    Jim had an Opdivo infusion today, and all went well.

    He now parks the van at the Medical Office building and uses the above ground tunnel to walk to the hospital. ...
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    Happy Father's Day!

    ((((((Hugs to All)))))) ~


    4961

    HAPPY FATHER'S DAY
    TO ALL OF OUR CN/BT DADS!

    As you know by my signature, Jonathan, Michael, and I believe that Jim is “the world’s most wonderful Dad.” ...
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    ((((((Hugs to All)))))) ~ callyflower ~ ...

    ((((((Hugs to All)))))) ~

    callyflower ~

    Seizures do complicate everything. EVERYTHING. And his seizure meds just add to the complications.

    Thanks for your good thoughts about Jon's...
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    ((((((callyflower)))))) ~ We gave Jon lasix at...

    ((((((callyflower)))))) ~

    We gave Jon lasix at home in 2009, and he had several seizures. It interacts with Dilantin, as do most drugs, including antibiotics.

    Even with a potassium “chaser,”...
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    ((((((Hugs to All)))))) ~ ANN, funnylegs4, and...

    ((((((Hugs to All)))))) ~

    ANN, funnylegs4, and Mary Grace ~ Thank You!

    Yes, the difference between Dr. P and Dr. K is stark and reminds us that we should have left Dr. P a long time ago. But...
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    Jim's Visit with Dr. K 6/6/18

    ((((((Hugs to All)))))) ~

    Donna ~

    Prayers everyday for Nick’s health to remain Rock Solid!

    Goldie was a rascal, for sure! I guess the first thing Nick will teach Daisy is to stay away...
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    ((((((Hugs to All)))))) ~ agate ~ Thanks...

    ((((((Hugs to All)))))) ~

    agate ~

    Thanks for your suggestion. The saltiest food Jim eats these days is soup. I eat "lower sodium" soup, which isn't low enough, but I only eat half a can at a...
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    Jim's Infusion: Wednesday 6/6

    ((((((Hugs to All)))))) ~

    Donna ~

    Great photo! Looks like they're all having a great time, despite Liverpool's loss! Would love to see a photo of Nick's room. That's wonderful that he's...
  64. Replies
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    ((((((callyflower)))))) ~ Now that Jim's RA...

    ((((((callyflower)))))) ~

    Now that Jim's RA flare has calmed a little, I think we've figured out that it's plantar fasciitis. His symptoms are identical to mine, when I had it many years ago. ...
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    ((((((Hugs to All)))))) ~ callyflower ~ ...

    ((((((Hugs to All)))))) ~

    callyflower ~

    Thank you for that recipe! That is much easier and neater than deep frying (and healthier). And thank you for your suggestion to store the avos in the...
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    ((((((callyflower)))))) ~ Thanks. I just did...

    ((((((callyflower)))))) ~

    Thanks. I just did a search for RSO. I found one site, which stated that Rick has never sold his oil. Others concoct it and call it RSO then sell it. I'm a bit...
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    ((((((Hugs to All)))))) ~ Donna ~ Bummer...

    ((((((Hugs to All)))))) ~

    Donna ~

    Bummer that you’ve shrunk 2 inches too! If there is another Hobbit film, perhaps we should all audition! I pray that the physio helps you, and please let us...
  68. Replies
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    It's Long!

    ((((((Hugs to All)))))) ~

    funnylegs4 ~

    Are you working on a new film? How did the New Mexico showing go?

    What are the ingredients in Choconuvo? I’ve been able to find nutrition...
  69. Replies
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    ((((((Hugs to All)))))) ~ callyflower ~ I...

    ((((((Hugs to All)))))) ~

    callyflower ~

    I hear you!! Jim’s British, and I’m German, both known for having a sweet tooth! Jim grew up on Christmas cakes full of fruit and sugar, eclairs, cream...
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    ((((((Hugs to All)))))) ~ callyflower ~ At...

    ((((((Hugs to All)))))) ~

    callyflower ~

    At Jim's infusion today, I asked him to ask his nurse about using a humidifier, and she said, "It might help."

    When he told her about the hard globs...
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    ((((((Donna)))))) ~ Thank you so much! I...

    ((((((Donna)))))) ~

    Thank you so much! I figured that they would be sold on line somewhere! Thanks for tracking them down for me.

    Our multivitamins are Mother's brand, so unfortunately,...
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    ((((((Hugs to All)))))) ~ callyflower ~ ...

    ((((((Hugs to All)))))) ~

    callyflower ~

    Congratulations and Happy Birthday to your daughter! How nice that you were able to celebrate together. It's only fitting that your daughter's birthday...
  73. Replies
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    ((((((callyflower)))))) ~ Thank you for the...

    ((((((callyflower)))))) ~

    Thank you for the suggestion! Good idea! Our air is very dry, because we have low humidity weather-wise, and we run the heater quite a bit, because Jim is always cold. ...
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    ((((((Hugs to All)))))) ~ Mary Grace ~ ...

    ((((((Hugs to All)))))) ~

    Mary Grace ~

    Thank you for your prayers and understanding. "Run, cry and scream" ~ yes, that's when I have what I call my mini-breakdowns. Thankfully, they do not...
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    ((((((Hugs to All)))))) ~ Donna ~ So glad...

    ((((((Hugs to All)))))) ~

    Donna ~

    So glad that you had a nice Mother's Day, visiting with Nick and Skyping with your mom and Natalie. Hope all goes well tomorrow. Safe travels!

    MY...
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