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  1. Replies
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    Sticky: Hi Everyone Thought I'd update you, as not been...

    Hi Everyone
    Thought I'd update you, as not been on here for a while, Although not completely healed and sealed over the last 8 months I have got definate improvement with the headaches, I even get...
  2. Hi EvaEva Myself Ive had a leak for the last 5...

    Hi EvaEva
    Myself Ive had a leak for the last 5 years but it only got offically found last year, Ive had numerous MRI's which did not show the leak, the only sign of it was my brain was lying...
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    targeted blood patch, update

    Hi Guys
    Went to see neurosurgon at Frenchay last week, saw the scans from radoncisternogram, clearly shows like a bubble of fluid at T7. and MRI's the venous malformation in that area is pretty...
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    how they found the leak

    Hi, they found the leak with a radon cisternogram, was done at Frenchay in Bristol. Im not very up with all the terminology but basically ,injected radio active dye into my spine and then took...
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    sorry only just read the last few post hav'nt...

    sorry only just read the last few post hav'nt checked in braintalk for a while. Turns out I have misinturpreted my scan result, although it says my leak does not have the appearance of a Tarlov...
  6. sorry you have all this hassle

    Sorry you,re going through all this, Im not familiar with Dr Gray as like you im in the uk. Im not getting anywhere either even though my leak has now been confirmed. Hope someone here can give you...
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    They found the leak

    :D its now confirmed I am a confirmed Leaker only taken nearly 5 years to get here. I been told its rebound headache, migraine, etc and even been told that they could not see how it possibly could be...
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    Hi Guys Thanks for all your comments, I had a...

    Hi Guys
    Thanks for all your comments, I had a Radionuclide scan, lumbar puncture with radioactive injected fairly low down. No tampons in the nose but had scans done over 2 days total period had to...
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    My vascular malformation is now quite large...

    My vascular malformation is now quite large covering most of the right side of my back but I have quite a large swelling over my spine which is over the thoracic area which is part of the...
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    Scan Results!!

    Hi Guys, finally got my scan results only took 7 weeks to get them!! No definate answers but the results say:-

    There is an abnormal accumulation of isotope on the right in the mid-thoracic...
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