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  1. Replies
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    Emotional Support

    Hi Everyone,
    bk-janae has had increased pain issues lately. She has pain daily. She now gets oxycodone 5mg twice a day. Lyrica 75mg twice a day and liquid Lortab for break thur pain.If she gets the...
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    1,931

    Hi Everyone

    BK's surgery did not work. Her NeuroSurgeon consulted with other doctors at Boston Childrens before the last surgery. A stent was placed successfully but it did not fix the problem. The Syrnix...
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    Surgery Update for bk_janae

    Hi Everyone,
    Bk_janae had surgery on July 3 2012. It was the 4 th one to fix her Syrnix. It goes the entire length of her spine. Her Neurosurgeon
    contacted Childrens Hospital in Boston to figure...
  4. Thread: Hi Everyone

    by bk_janae
    Replies
    2
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    2,439

    Hi Everyone

    Have a teenage daughter with a Syrnix. 3 repairs done ( Fossa Decompression, Duraplasty and a Syringo-plueral shunt) Procedures dld not fix the problem. Had a VP shunt helped with the Hydocephlus....
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