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    Jim's Journey: New Thread

    ((((((Hugs to All)))))) ~

    For those, who may visit this thread automatically for Jim's updates, I just wanted to let you know that I've started a new thread for Jim.

    Here's a link to Jim's new...
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    ((((((Hugs to All)))))) ~ funnylegs4 ~ ...

    ((((((Hugs to All)))))) ~

    funnylegs4 ~

    Jonathan's and Michael's urns are safe. Nothing fell over during the 6.4 or 7.1 quakes. And during our 5.2 quake in 2014, Michael's urns stood...
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    ((((((Tamie)))))) ~ I'm so glad that you...

    ((((((Tamie)))))) ~

    I'm so glad that you didn't feel the 6.4 foreshock. Did you feel last night's 7.1 quake? I guess it depends upon which way the waves travel.

    How wonderful that you have...
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    We Are Okay

    ((((((Hugs to All)))))) ~

    Thank you Tamie, Virginia, funnylegs4 and Donna ~

    At 8:19 last night, Jim and I were watching the Dodgers, when the house started rolling. I go completely tense now,...
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    An Exciting Fourth

    ((((((Hugs to All)))))) ~

    funnylegs4~

    Actually, I was injured in the accident and spent a week in the hospital. That's what happens without a seat belt (Rambler didn't have them). No, the...
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    ((((((funnylegs4)))))) ~ The car accident...

    ((((((funnylegs4)))))) ~

    The car accident happened when I was a young woman, and I was driving a 1959 Rambler. Nothing at all like my basic 1980 Toyota, which was like a luxury car compared to...
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    ((((((Hugs to All)))))) ~ Today began with a...

    ((((((Hugs to All)))))) ~

    Today began with a call from a police department about 2 hours drive from us. I was told that our checks were stolen. They were recovered, when they were found in a car...
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    ((((((callyflower)))))) ~ Awww ... what a...

    ((((((callyflower)))))) ~

    Awww ... what a sweet story about Sheepie. The cows protecting the sheep from coyotes is just amazing. That's nature. Amazing. I think Sheepie's skull is a great...
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    Lab Results And More, Of Course

    ((((((Hugs to All)))))) ~

    callyflower ~

    Thank you for the directions for the vinegar wash. I did look up vinegar wash, and most sites mentioned rinsing the fruit, after they come out of the...
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    ((((((callyflower)))))) ~ I'm so happy that...

    ((((((callyflower)))))) ~

    I'm so happy that you are getting so much excellent exercise!

    My gardening days are long gone, but it's a great feeling to work the soil and watch the fruit of your...
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    ((((((callyflower)))))) ~ Thank you for...

    ((((((callyflower)))))) ~

    Thank you for sharing your experiences with us. We truly appreciate your insight.

    My Instacart order today included an English cucumber, and Jim was over the moon...
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    ((((((Hugs To All)))))) ~ callyflower ~ ...

    ((((((Hugs To All)))))) ~

    callyflower ~

    Thank you for your reply. I guess there could be a variety of reasons why Jim has purpura, such as steroids, low platelets, low WBC.

    Jim tries to...
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    View Post

    ((((((SuzE-Q)))))) ~

    Iím so sorry that you are contending with asthma. Unfortunately, I donít know anything about asthma or treatments for it.

    I asked Jim what the difference is for him...
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    ((((((Donna)))))) ~ The basement looks...

    ((((((Donna)))))) ~

    The basement looks wonderful! A victrola? How cool! Do you ever use it? What a very special place your cottage is, with all of its incredible history and memories. Iím so...
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    ((((((callyflower)))))) ~ Thank you for...

    ((((((callyflower)))))) ~

    Thank you for mentioning purpura. Unfortunately, I think youíre correct. When Nancy is here tomorrow, sheíll examine him, and then weíll inform Dr. K.

    Jim finally...
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    ((((((SuzE-Q)))))) ~ I hope my day tired you...

    ((((((SuzE-Q)))))) ~

    I hope my day tired you out enough to get some solid sleep! *wink I figure that my posts can have one of two effects: 1) wear out the reader to the point of sleep, or 2)...
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    ((((((Virginia)))))) ~ I'm so sorry that I...

    ((((((Virginia)))))) ~

    I'm so sorry that I missed your post!

    Thank you! You are so very right. Jim trusts me to make decisions, and while he also appreciates having input, he has to be in...
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    The Past, Present, and Future

    ((((((Donna)))))) ~

    Thank you so much for your ideas and loving support.

    I have begun creating an outline for our Will. It is daunting, but it needs to be done. I've tried discussing it...
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    A River Runs Through It

    5236

    ((((((Hugs to All)))))) ~

    Yesterday, I wrote a lengthy, rambling response, and, after reading it, decided not to post it. I thought I should give your eyes a rest. Well, hereís my feeble...
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    Cancer, Grief, and the Gift of the Magi

    ((((((Hugs to All)))))) ~

    Today was enlightening. I learned from Jim that heís had back pain for most of the week, after he sat down too hard on the toilet. He didnít want to tell me, because he...
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    A Father's Day Gift for the World's Best Dad

    ((((((funnylegs4)))))) ~

    Actually, Jim recanted on taking 20 mg instead of 10 mg last week. But he can become easily confused, as he did when he took 17.5 mg. We're back to 10 mg now for a few...
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    ((((((funnylegs4)))))) ~ You are definitely...

    ((((((funnylegs4)))))) ~

    You are definitely not ignorant! And I can certainly understand why you have that question.

    Steroids are typically used to reduce inflammation. Steroids are given to...
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    ((((((Hugs to All)))))) ~ Thank you, Mary...

    ((((((Hugs to All)))))) ~

    Thank you, Mary Grace and funnylegs4 ~

    Today, as we were discussing Jimís weaning down on steroids, he informed me that heíd been taking twice his dose last week, from...
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    Day Three Off of O2

    ((((((Virginia)))))) ~

    Thank you.

    Jonathan loved cars too. We have an adorable photo of him about 5 years old peering into the driver's side of our 1969 FIAT, reaching for the steering...
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    Day Two Off of O2

    ((((((Hugs to All)))))) ~

    Thank you so much ANN, Marcie, SuzE-Q, Virginia, and funnylegs4! *hsmile

    DAY TWO off of O2, and Jim continues to hold SATS in the mid 90s.

    This morning, he was...
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    Fantastic New!

    ((((((Hugs to All)))))) ~

    Are you ready for some fantastic news? Not just good. Fantastic.

    Jim is off of O2!

    When I came down this morning to start our day, I noticed that his cannula was...
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    ((((((Hugs to All)))))) ~ SuzE-Q ~ Please...

    ((((((Hugs to All)))))) ~

    SuzE-Q ~

    Please know that you have no reason to apologize to me. I certainly didnít feel abandoned or anything of the sort.

    The MS forum is very active, and you...
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    Another Long Reply

    ((((((Hugs to All)))))) ~

    Caution: This is lengthy. Iíve been composing it on and off for the past couple of days. Iím just trying to process everything. And take extra good care of Jim. Thank...
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    Standing At the Crossroad

    ((((((Hugs to All)))))) ~

    Prepare. This is lengthy.

    We managed to be ready by 11:30 this morning, with our assortment of bring-along-just-in-case items stuffed in the pockets of Jimís...
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    ((((((Hugs to All)))))) ~ houghchrst ~ ...

    ((((((Hugs to All)))))) ~

    houghchrst ~

    Thank you so much for the charitable links. Some of the charities are out of state for me. I'm going to ask Nancy what she can use for her patients....
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    ((((((Hugs to All)))))) ~ Donna ~ Jim's...

    ((((((Hugs to All)))))) ~

    Donna ~

    Jim's appointment with Dr. K is on Friday, 5/31 at noon Pacific. Thank you so much for your prayers.

    When John was here on Friday, we talked about Jim's...
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    Nagging

    ((((((Hugs to All)))))) ~

    ANN ~

    Thank you so much for your continuing support and for your blessings.

    Jim seems to be at a plateau now. I noted this evening that his urine is rusty, and I...
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    ((((((HUgs to All)))))) ~ Thank you Donna,...

    ((((((HUgs to All)))))) ~

    Thank you Donna, Tamie, and Mary Grace for your positive energy and prayers and for continuing to lift us up.

    In the past few days, Jim has been taking off his O2...
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    Improvements

    ((((((Hugs to All)))))) ~

    Today, I scheduled an appointment for Jim with Dr. K on 5/31 at noon. If he needs ambulance transportation, Dr. K's nurse said that would be fine.

    I asked about his...
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    Remembering

    ((((((Hugs to All)))))) ~

    funnylegs4 ~

    I appreciate your suggestions. Jim can't figure out how to work our new TV/Cable remote, so I doubt that a digital notepad would be of use for him.
    ...
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    Memory, Medicare, and Meanwhile

    ((((((Hugs to All)))))) ~

    funnylegs4 ~

    Thank you for the suggestion. I have tried getting Jim to write notes to help him remember. He forgets to write notes. He forgets where the pad and pen...
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    ((((((Hugs to All)))))) ~ Mary Grace ~ ...

    ((((((Hugs to All)))))) ~

    Mary Grace ~

    Thank you for your prayers. It is a challenge for me to find humor and a glass half full right now. I am depressed, and Jim is running me ragged.
    ...
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    Maintaining, But What Is Next?

    ((((((Hugs to All)))))) ~

    Thank you, Donna and Mary Grace for checking in on us and for your love and prayers for us.

    THE GOOD STUFF

    Sats are in the mid 90s; heart rate is normal; temp is...
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    Making Progress

    ((((((Hugs to All)))))) ~

    Jim had a thorough assessment by Nancy yesterday, so weíre staying on top of everything.

    Just think of how much money weíre saving Medicare:

    Me: Unpaid 24 hour...
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    ((((((Hugs to All)))))) ~ Virginia ~ I...

    ((((((Hugs to All)))))) ~

    Virginia ~

    I ordered a caregiver's pager and call buttons today. It will be delivered tomorrow, along with more briefs, Cavilon skin prep, and Optifoam pads.

    I've...
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    ((((((Mary Grace)))))) ~ I haven't tried...

    ((((((Mary Grace)))))) ~

    I haven't tried bathing Jim on the toilet yet. So many other things happening every day.

    Jim goes to ER via ambulance, because he's on O2 and not strong enough to...
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    ((((((Hugs to All)))))) ~ Donna ~ I know...

    ((((((Hugs to All)))))) ~

    Donna ~

    I know youíre in Montreal now. I just wanted to respond to your post, so I donít forget. And yet, I thought I posted this last night! So, I did forget!
    ...
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    ((((((Hugs to All)))))))~ funnylegs4 ~ ...

    ((((((Hugs to All)))))))~

    funnylegs4 ~

    Thank you for your suggestion. I'm not really confident that Jim can maneuver getting in and out of the tub/shower, regardless of what adaptations we...
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    Thank You Donna

    ((((((Donna)))))) ~

    Thank you so much for all of your research and suggestions! I can't tell you how much I appreciate your efforts to improve our situation.

    Bed Rails: The constraint is...
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    Blood Results, Bath, and Beyond

    ((((((Hugs to All))))))~

    Dr. K's assistant called today with orders from the doctor. Increase potassium dose, as his potassium was low. Keep 40 mg Lasix dose. Increase Prednisone from 5 mg to...
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    Some Progress

    ((((((Hugs to All)))))) ~

    Tamie ~

    Itís so wonderful to see you posting here again. I have missed you. Please post an update about Tyler, you, Jerry and your beautiful family.

    Thank you...
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    How We Spent Our Saturday

    ((((((Hugs to All)))))) ~

    funnylegs4 ~

    Thank you for your suggestions.

    Jon's chairbed opens into a single bed, but the mattress is quite thin, and there isn't enough room in his bedroom to...
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    One Minute At A Time

    ((((((Hugs to All))))))~

    Jim didnít pee for 12 hours last night.

    He slept soundly, and I hated to wake him up. Occasionally, he would come to enough to take a swig of water.

    Meanwhile,...
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    The Root of the Problem

    ((((((Hugs to All)))))) ~

    nuthatch (Joan) ~

    Thank you so much for your prayers.

    We know from giving Jon Lasix that Jim needs a potassium ďchaser.Ē But the hospital doc, who discharged him,...
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    ((((((SuzE-Q)))))) ~ I was writing my post, as...

    ((((((SuzE-Q)))))) ~

    I was writing my post, as you posted yours.

    Jim's appetite is only affected, when his belly feels too full with fluid. He enjoys all of the food I make for him, even the...
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    Normal!

    ((((((Hugs to All)))))) ~

    At 4:00, we changed Jim's briefs, and then he got up and walked to the bathroom to pee! Back to bed, I took vitals: SATS: 94 Heart Rate: 82 Temp: 98.6

    NORMAL!
    ...
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    ((((((Hugs to All)))))) ~ I wrote a long...

    ((((((Hugs to All)))))) ~

    I wrote a long reply, lost my internet connection and every word I wrote. Grrr ...

    funnylegs4 ~ I don't think Jim's having a stroke. It's dehydration. It has...
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    Crisis?

    ((((((Hugs to All)))))) ~

    Nancy visited this morning to draw Jim's blood via his port. It's ordered STAT. Results should be available in 4 hours.

    Jim was okay, until I took my shower a half...
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    ((((((Hugs to All)))))) ~ SuzE-Q ~ Jim's...

    ((((((Hugs to All)))))) ~

    SuzE-Q ~

    Jim's peeing did slow down, and then when I woke him up for hydration at 3 a.m., he climbed back in bed, and I went to bed upstairs. At 7 a.m., he told me...
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    ((((((Hugs to All)))))) ~ Mary Grace ~ I’m...

    ((((((Hugs to All)))))) ~

    Mary Grace ~

    I’m so sorry your mom is having such a difficult time. I completely understand why she doesn’t want to be back in the hospital, but it is the best place...
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    Temp Normal Much Better At Home

    ((((((Hugs to All)))))) ~

    Jim's temp is normal, and he's holding SATS in the mid 90s on 2.5 liters, a big drop from 4 liters. He's been up to the bathroom for a BM and a huge pee. No ER tonight,...
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    Dehydration Deja Vu

    ((((((Hugs to All)))))) ~

    Thank you all for your love, advice, insight, prayers, and friendship. I wish I had time to respond to you each individually.

    Despite my repeated requests of Jim that...
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    Spilling It

    ((((((Hugs to All)))))) ~

    I apologize for the length. So much is going on at once.


    Jim arrived home at 10 last night, delivered by very sweet young EMTs. Jim wanted them to stop at the...
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    Discharge Nightmare

    ((((((Hugs to All)))))) ~

    Jim was discharged from the hospital today. He was going to be sent home with home health nursing to administer antibiotic via his port. I havenít prepared Jonís bed...
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    The Next Step

    ((((((Hugs to All)))))) ~

    As always, thank you all so much for your prayers and loving support.

    I slept for 4 hours this morning. I felt more rested, although I am tired right down to the...
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    ((((((Hugs to All)))))) ~ Jim was admitted to...

    ((((((Hugs to All)))))) ~

    Jim was admitted to the Cancer Unit at 4:30 a.m. We spent 6 hours in the ER. He had: chest x ray, CAT scan (no dye), mega saline drip (2 bags at once) via his port,...
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    Jim Has A Fever. ER Bound

    ((((((Hugs to All)))))) ~

    Just taking this moment to sit and collect myself and think of all of the things I need to pull together for an ER trip for Jim. His fever is 103, normal yesterday,...
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