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  1. Replies
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    I don't have any real suggestions (except...

    I don't have any real suggestions (except pharmacists can be a great resource-maybe try to get one to explain the importance of both of you getting treatment and a realistic description of the...
  2. Actually, not all pharmacies are likely to stock...

    Actually, not all pharmacies are likely to stock the brand name when there is a generic, as most patients will get generic. However they may be willing to order it. There is a possibility they...
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    Alex: Could you have been switched from...

    Alex: Could you have been switched from Methadone to Morphine or something else to taper down? Thankfully Methadone is a great med for my pain...the only one to significantly consistently help. ...
  4. I would definitely try a hospital pharmacy. I've...

    I would definitely try a hospital pharmacy. I've always known them to be open to the public. Often they are used by folks picking up prescriptions when being discharged from the hospital, but often...
  5. Thread: why?

    by tortoisegirl
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    From my own experience I can say that alcohol...

    From my own experience I can say that alcohol really helps my pain. Its an immediate dramatic difference. However, my pain is a constant headache, so that may be why (a vascular thing). I...
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    Sorry you are going through this all. Yes, in my...

    Sorry you are going through this all. Yes, in my area as well they are restricting and even cutting off opioid pain meds for non-cancer chronic pain patients. It depends who you ask as far as what...
  7. Quite ridiculous. Can you get in to see your...

    Quite ridiculous. Can you get in to see your primary doctor ASAP? Otherwise, you may just want to go to urgent care. Bring in your last prescription bottles for the two meds and tell them your...
  8. Sorry you are dealing with this. Did you ask why...

    Sorry you are dealing with this. Did you ask why the refills were refused? Were you actually on the phone with someone and they said no, or is it your pharmacy telling you the refill was refused? ...
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    Here is an FDA website page describing a study...

    Here is an FDA website page describing a study where from 12 years of bioequivalence data they found on average the absorption differences between generic and brand varied by 3.5%: ...
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    Thanks for the idea, but I've had the constant...

    Thanks for the idea, but I've had the constant headache (singular not plural by the way) for 9 years, and it is the reason I started the Methadone, not the other way around.

    I also see posts...
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    Sorry you are dealing with this. I hadn't paid...

    Sorry you are dealing with this. I hadn't paid attention to what brand my Methadone is, but I looked now and it is Ascend. I believe I've had this brand for the last couple years. I previously had...
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    Welcome! Sorry you are dealing with chronic...

    Welcome! Sorry you are dealing with chronic migraine. I have had the chronic migraine protocol for Botox injections, although for a different headache condition (New Daily Persistent Headache, a...
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    I've never heard of being able to fill it even 2...

    I've never heard of being able to fill it even 2 days early. Maybe you can try to accumulate two extra days of meds so you have some of your own leeway? Some extra meds are something very good to...
  14. Replies
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    Its good timing that this thread was resurrected,...

    Its good timing that this thread was resurrected, as I had another sleep study and got much different results this time (almost two years later). This time I was diagnosed with moderate-severe...
  15. Yes I've heard of that device. There was some...

    Yes I've heard of that device. There was some chatter on a migraine forum I go to; I think two people tried it and one got no relief and the other had it make their pain worse in the short term. I...
  16. No I didn't notice any relief. I'd question the...

    No I didn't notice any relief. I'd question the use of any botulinum toxin injection with the reaction you had before. Also, I don't know of any data showing that if your migraines didn't respond...
  17. I have tried Botox injections, although I have a...

    I have tried Botox injections, although I have a constant headache, not migraines, but they had to bill it as chronic migraine. If I was in your case, I would be skeptical. I don't see a reason to...
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    Update: I got really lucky. The pharmacist in...

    Update: I got really lucky. The pharmacist in charge made an exception as my doctor was closed. She said she would just call when they opened up again, and filled the prescription. Also, she...
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    Things are starting to get crazy again here. My...

    Things are starting to get crazy again here. My pharmacy had a new rule start last week where they verify each Schedule II pain med prescription with the doctor, as well as require diagnosis codes. ...
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    I have luckily finally found a good pharmacy. ...

    I have luckily finally found a good pharmacy. Its a chain, but local only. They have been really great. Currently I only take pain meds which are stocked, but in the past, worse case scenario was...
  21. I'm also in WA state. Oddly enough, nothing has...

    I'm also in WA state. Oddly enough, nothing has changed for me. I'm shocked how little trouble I have with my insurance. Best wishes.
  22. Wow that crazy. Thats Steve.

    Wow that crazy. Thats Steve.
  23. Sadly enough your Exalgo cost doesn't shock...

    Sadly enough your Exalgo cost doesn't shock me...I'm numb to those costs now. No wonder they are now pushing the high deductible plans now, as it makes the patient accountable for costs. Your share...
  24. Thanks as always for your input Steve. I'm...

    Thanks as always for your input Steve. I'm curious on your example: What was wrong about how it was written and why would the insurance care more than the FDA?
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    I'm not doing too bad. My headache pain is...

    I'm not doing too bad. My headache pain is pretty stable on the methadone now that I'm taking it 4 times a day, but we're having a tough time controlling my breakthrough pain episodes, especially at...
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    I thought Kadian went to generic in Nov 2011? I...

    I thought Kadian went to generic in Nov 2011? I read that at least Watson was making a generic for it.

    Sounds like you need to get more detailed info on your insurance coverage.

    Confirm that...
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    Thats great your doctor is understanding and...

    Thats great your doctor is understanding and would allow that. I know some folks would not have that option, or at least not more than once. I have taken care in choosing a pharmacy which meets my...
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    Ketamine is a rarely used med, but there is some...

    Ketamine is a rarely used med, but there is some data and anecdotal evidence that it can be quite helpful for some intractable pain. Its actually a NMDA receptor antagonist. Its actually also used...
  29. I don't think withdrawal should be a factor in...

    I don't think withdrawal should be a factor in choosing a med as most folks stay on these indefinitely. If not, then you can switch to a different med to taper down from if necessary. Although I...
  30. I've also gone straight over, but my doctor...

    I've also gone straight over, but my doctor usually started me on a lower dose than suggested on the conversion chart (50% lower is typical). Without that, there is a risk of overdose symptoms as...
  31. When I've switched meds (methadone to morphine to...

    When I've switched meds (methadone to morphine to fentanyl to methadone) I went straight over, but my doctor used the rule of thumb that I was started on half my expected dose for the new med...ie. I...
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    Each patient responds different. I only had this...

    Each patient responds different. I only had this issue on fentanyl and morphine, but not on methadone. I haven't been on long acting versions of the others, so I'm not sure. Since morphine has...
  33. It could be the Beneadryl (which can cause...

    It could be the Beneadryl (which can cause sedation or loopiness), the Macrobid (which can cause dizziness), or the alka-seltzer (which includes Dextromethorphan, which can potentiate opiates). I...
  34. I would be surprised if the substitute doctor...

    I would be surprised if the substitute doctor wouldn't continue for current treatment for this one appointment...much different than transferring to a new clinic/doctor. Seems like that is your only...
  35. Replies
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    Do they have multi use vials in a dose you could...

    Do they have multi use vials in a dose you could use? Sounds silly they are limiting a quantity but not the dose? If its 20/month, it doesn't sound like you can do 20 / 20 days. Thankfully the new...
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    So if we do need to visit an alternate pharmacy,...

    So if we do need to visit an alternate pharmacy, is it in our best interest to then only have one alternate pharmacy? Its easy to have a couple times a year where you need to use an alternate...
  37. So sorry you are dealing with this. Yes this is...

    So sorry you are dealing with this. Yes this is quite a tough road to travel. My doctor also has the forms to fill out about my pain every visit (and I was going every 2 weeks for awhile)...what...
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    I agree how under recognized and under treated...

    I agree how under recognized and under treated headache is as chronic pain. There are so many doctors out there who would never consider narcotics for head pain, no matter what the situation (even...
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    Yeah I saw that...I don't think it'll change...

    Yeah I saw that...I don't think it'll change anything, at least not quickly. I have a feeling that their point wasn't as much focused on the dose/time limit in that article, but to ask that the long...
  40. Why can't your wife pick up the script? At least...

    Why can't your wife pick up the script? At least in my state, pharmacies will let you pick up for a spouse/family member, even a neighbor/friend if you have their birthday, which is concerning for...
  41. I agree. Its also why they request confirmation...

    I agree. Its also why they request confirmation of something such as your birthday before giving you any information when you call. I am surprised though that a lot of doctor's offices will leave...
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    Until they change the law on the federal level,...

    Until they change the law on the federal level, we'll have these sorts of problems. For example, there is no employment protection with a medical marijuana card. I'd try it in a heartbeat if I...
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    Why not get it compounded with the filler of her...

    Why not get it compounded with the filler of her choice? What med is this? Yes there is a glucose intolerance test. I would think she would have had this turn up with food though? I think they...
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    I'd just call around to different pharmacies for...

    I'd just call around to different pharmacies for this fill. When I've had to call about a rx stock, I have had better luck not sounding like a druggie by saying something like, "I have a...
  45. Thread: Suboxone

    by tortoisegirl
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    I so know of some people who get pain relief on...

    I so know of some people who get pain relief on Suboxone, but yes I agree that high dose opiate patients shouldn't be pushed onto it as its likely they will reach the dose ceiling, have uncontrolled...
  46. Thread: Suboxone

    by tortoisegirl
    Replies
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    3,623

    Yes Alex you are right. The dose "ceiling" for...

    Yes Alex you are right. The dose "ceiling" for Suboxone is 32 mg...you can take more than that but apparently the studies show it doesn't do anything more above that for pain or addiction.

    The...
  47. Yeah I always check that the right number and...

    Yeah I always check that the right number and type of pills is there (plus that they visually look right), but I just can't be counting hundreds of pills sitting there. Thankfully things have gone...
  48. Replies
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    Oh yeah I believe it. Its happened to me with...

    Oh yeah I believe it. Its happened to me with meds...I've been given stuff that I shouldn't take with what I already take, not been informed on potentially dangerous effects (such as a medication...
  49. Thread: Suboxone

    by tortoisegirl
    Replies
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    3,623

    I have heard a lot about Suboxone but haven't...

    I have heard a lot about Suboxone but haven't tried it as it doesn't seem a good fit for me, between the dose "ceiling" (after a certain dose more doesn't help pain more...I believe the conversion...
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    Welcome to the group!

    Welcome to the group!
  51. Replies
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    Have you talked to your doctor about the pain? ...

    Have you talked to your doctor about the pain? Have they recommended anything such as physical therapy, massage, muscle relaxers, etc? If your pain is in your legs only at night when laying down,...
  52. The FDA quotes the average difference between...

    The FDA quotes the average difference between generic and brand bioavailability is 3.5%...
  53. I can't chime in from personal experience so...

    I can't chime in from personal experience so hopefully someone does that soon, but my first guess was that they didn't take enough into consideration your opiate tolerance (for the Demerol dose). ...
  54. Replies
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    They often give a sleeping medication to help...

    They often give a sleeping medication to help folks be able to complete a sleep study (and it doesn't interfere with the results). If you suspect sleep apnea, definitely get it checked out. ...
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    RE: Sleep Study

    I just had a sleep study so its fresh in my mind and I can answer some. But, I don't get the results until Wed.

    1. How in the world do you fall asleep in the sleep lab with all the wires, etc...
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    A sleep study can also diagnose about 70 sleep...

    A sleep study can also diagnose about 70 sleep disorders (assuming they do the full one)... definitely beneficial if you have any sleep related problem.

    Leealle-Have you tried some of the newer...
  57. Replies
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    Yeah I need meds to sleep. I've been on a muscle...

    Yeah I need meds to sleep. I've been on a muscle relaxer (Tizanadine) for the last few years as my doctors don't want me on sleep meds in combo with the narcotics. It helps me. Unfortunately the...
  58. I have been able to call pharmacies and ask if...

    I have been able to call pharmacies and ask if they have a certain CII in stock, and they did tell me. I did however start with something like my doctor gave me a prescription for X of X mg X and X...
  59. Most pharmacies are so overworked that you need...

    Most pharmacies are so overworked that you need to be the one responsible for calling at the certain time to remind them to order the meds. If that still doesn't work, if it was me, I would find...
  60. Yeah agreed I haven't heard of partial fills. ...

    Yeah agreed I haven't heard of partial fills. Steve has great advice on how to work with the pharmacy. When I had a problem with finding a med at one time, I finally figured out (and made a plan)...
  61. Its awesome you find yourself close to pain free...

    Its awesome you find yourself close to pain free during the day--that is way better than many of us can hope for. That is definitely a positive. So I assume the night pain keeps you from sleeping? ...
  62. I think its made me mentally stronger...like I...

    I think its made me mentally stronger...like I can make it through this so I can make it through most anything else. Its exposed me to folks on the forums that are worse off than I am so it gives me...
  63. Replies
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    You need a new doctor! Unfortunately so do I...

    You need a new doctor! Unfortunately so do I (I've been looking for a year...having a hard time getting appointments, and when I do, they don't have any ideas for me) and lots of others in CP. ...
  64. Diedra-That is the same test I did. I got the...

    Diedra-That is the same test I did. I got the Small Intestinal Bacterial Overgrowth diagnosis from it, which exacerbates my IBS and causes cramp & nausea & bloating attacks. Supposedly increasing...
  65. Hi! I'm doing ok...could be worse. I have 24/7...

    Hi! I'm doing ok...could be worse. I have 24/7 headache plus other chronic pain problems like fibro, IBS, etc. Still having high pain levels since I have become tolerant to my pain meds and my...
  66. I'm in the greater Seattle area. I'm pretty...

    I'm in the greater Seattle area.

    I'm pretty stuck right now unless I convince my doctor to increase my dose or try a different med, or can find another doctor. I'm going to try my neuro again...
  67. Wow! Why could you not wean yourself? Say you...

    Wow! Why could you not wean yourself? Say you are continuing but decrease your dose slowly. Cold turkey can cause serious problems. I know someday I may have to face getting cut off so I have a...
  68. I don't seem to get any more relief when adding...

    I don't seem to get any more relief when adding Tylenol, Ibuprofen, etc. Back in the day I was on Percocet but when I needed to go up in dose we took out the added Tylenol. Doctor and I are happier...
  69. Thanks Eva! I also have a daily chronic headpain...

    Thanks Eva! I also have a daily chronic headpain condition. I did rather well at first on the meds but have become tolerant. Its sad to know that with the right med and dose tweaking I could...
  70. Thanks Steve. Agreed. We already have a...

    Thanks Steve. Agreed. We already have a shortage of pain docs in general. The majority of them are anti-opiates to begin with. It will be hard for these primary docs and such to find someone to...
  71. Article about WA State Doctors Dumping Pain Patients

    Sad article about chronic pain treatment with opiates in my state: http://seattletimes.nwsource.com/html/localnews/2016035307_pain28m.html

    "Over the last several months, an effort in Washington to...
  72. Replies
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    Not to side with the pharmacy, but I can see how...

    Not to side with the pharmacy, but I can see how they cannot fill it early if its a 28 day script. I don't have this issue because I have to pick up one from my doctor monthly (either call and pick...
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