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  1. Replies
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    Prayers for you and your family Rose

    Dearest gentle Rose,

    Alison and Grant the champ, and I are so sorry and saddened to hear about Jon.

    We will always remember with fondness all your encouraging and uplifting posts about Jon, the...
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    Hey Tyler. That is incredible. Hard to believe. ...

    Hey Tyler. That is incredible. Hard to believe.

    We are sure you had a super duper birthday full of love and care and some presents as well.

    God bless you Tyler and keep up the great work.
    ...
  3. GRANT's 25th BIRTHDAY BASH YOUR ARE INVITED TO CONTRIBUTE AND OTHER INFO

    GRANT’S 25th BIRTHDAY BASH AND YOURU CAN CONTRIBUTE

    G’day neuro buddies old and new.

    Grant’s news is that he turns 25 this week and on Saturday we are having the birthday bash of the century....
  4. ANNOUNCING. Grant's super duper blockbuster video of him on Boxing Day 2012

    G'day neuro buddies old and new :)

    Goodness, I have been trying to get onto the old neuro forum that is down because that is what I had bookmarked = oops. Senior's moment again *wink

    ANNOUNCING...
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    Our thoughts go out to you at this time for year....

    Our thoughts go out to you at this time for year.

    Regarding ABA there are folk that do the program and it can be very beneficial.

    Best wishes in your decision making.

    Paul, Alison and Grant...
  6. Hey Donna. Great tree there. Especially the...

    Hey Donna.

    Great tree there. Especially the empty plonk on the top :) Hmm who drank it? :)

    We know you had a great Christmas.

    God bless and seeya,

    Paul, Alison and Grant the champ.
  7. Hey there you go. Send me a private PM or send...

    Hey there you go.

    Send me a private PM or send me an email at paulcopelandzzz (at)hotmail.com and I will tell you ALL I know about the Institutes and their incredible work, and we do know a lot...
  8. Hi. The oldies here know that I could rave on...

    Hi.

    The oldies here know that I could rave on and rave on and rave on about the Institute's work. In fact I could rave on so much that I could be banned from the site.

    We know ALL about the...
  9. Hey Donna. The institute's do a phenomenal job...

    Hey Donna.

    The institute's do a phenomenal job at reprogramming the brain of a brain injured person.

    As the organisation also publishes the 'Teach your baby to......' series of books which are...
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    Goodness, poor miss Caitlin. I reckon to go...

    Goodness, poor miss Caitlin.

    I reckon to go more than three days without a bowel movement needs some intervention.

    Hopefully there are some natural foods (prune juice or something like that)...
  11. Grant the champ turned 24 today. Here are two photos; video tomorrow.

    G'day neuro buddies old and new.

    Grant the champ turned 24 today.

    Isn't that amazing. More amazing when you realise that just after birth the senior neurologist at the children's hospital said...
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    Dear Lisa, We hope that the new med helps miss...

    Dear Lisa,

    We hope that the new med helps miss Caitlin. Bless her heart.

    God bless and seeya,

    Paul, Alison and Grant the champ.
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    Dear Rose. You did the right thing in trusting...

    Dear Rose.

    You did the right thing in trusting your gut.

    You know know that the Synthroid is not right for Jon.

    We will pray that the right drug comes along.

    God bless and seeya,
  14. Great photo. Nick looks very happy and so much...

    Great photo.

    Nick looks very happy and so much older.

    Paul, Alison and Grant the champ.
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    Dear Rose praying now for stability in all areas...

    Dear Rose praying now for stability in all areas and sleep.

    God bless.

    Paul, Alison and Grant the champ.
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    Home :)

    Hey Jon, Rose and Jim

    What exciting news to be home at last. It has certainly been a stressful time for you.

    Now it is time for you all to rest and strengthen up and enjoy being home on the...
  17. hooray!

    Hi Rose, Jim and Jon

    How exciting that Jon will be coming home soon. That is great news and a testimony to God's presence with you during this distressing time.

    You will be fine with the IV...
  18. Hi Mike. Child neuro forum 8.09 EST Best...

    Hi Mike.

    Child neuro forum 8.09 EST

    Best wishes to all the moderators and keep up the great work. Braintalk is the best community to be in. End of story!

    Seeya,

    Paul, Alison and Grant the...
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    Dear Rose. As I said previously I know nothing...

    Dear Rose.

    As I said previously I know nothing about blood transfusions, but I also said that it may be a good idea for Jon to have one and he did, so I guess that is a good outcome :)

    Praise...
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    Dear Rose, How wonderful that Jon is improving...

    Dear Rose,

    How wonderful that Jon is improving and going in the right direction.

    You need to congratulate Jon with his breathing sats at 100. That is unreal. Grant's is generally around 97% on...
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    Dear Rose, It really is a positive sign isn't...

    Dear Rose,

    It really is a positive sign isn't it that Jon is well enough to go to the Step Down today. How wonderful that all the nurses are so supportive of you and you got the largest room and a...
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    Dear Rose, Jim and Jon ((((( HUGS)))) Rose you...

    Dear Rose, Jim and Jon ((((( HUGS))))

    Rose you have certainly been through a lot on day 5! Boy oh boy.

    In ICU you would certainly hope that the nurses are able to get their act together....
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    Dear Rose, Thank you for the day 4 update. It...

    Dear Rose,

    Thank you for the day 4 update. It is always a lot of help to get daily updates, so that John's fans can cheer him on and pray for him.

    It is always so comforting to have staff that...
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    Praise God for answered prayers Rose. We will...

    Praise God for answered prayers Rose.

    We will continue to pray of course for Jon to be home where he belongs.

    With all our love,

    Paul, Alison and Grant the champ.
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    Dear Rose and Jim, We are so sorry to hear...

    Dear Rose and Jim,

    We are so sorry to hear that Jon is in ICU.

    Tonight we will specifically pray for a very quick recovery and for all the meds to work perfectly without any negative side...
  26. Thank you Donna and accepted :) Seeya, ...

    Thank you Donna and accepted :)

    Seeya,

    Paul, Alison and Grant the champ.
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    Hi Llisa. Very good decision to have every...

    Hi Llisa.

    Very good decision to have every thing in place if there ever was a major emergency. With miss Caitlin, we pray of course that there never will be that type of emergency. It sounds as...
  28. Hi Lisa. I new you would want to go on the...

    Hi Lisa.

    I new you would want to go on the POTGIF list :applause:

    Once I get your email I will fill you in with Grant's latest medical news, all very interesting.

    Regarding a chirpractor, in...
  29. Joint Guardian requested limited information regarding Grant. Here's why! our news

    G'day neuro buddies old and new.

    Thank you Rose and Donna for asking after Grant and for everyone else who will be reading this post with interest.

    GRANT

    Grant is doing very well. He is...
  30. Bek the liver transplant kiddo has been diagnosed with idiopathing myoclonic epilepsy

    Hello neuro buddies.

    Well the news for Bek is not good as she has now been diagnosed as having idiopathing myoclonic epilepsy (I think her mum means idopathic)

    Bek is 14 years old.

    The...
  31. Bek the liver transplant kiddo has had another seizure Tacrolimus. Advice neded.

    Hi neuro buddies old and new.

    Bek the Good Friday liver recipient is doing well in many areas. She is out of ICU. Her 'angel' liver is behaving itself. Bek is now at last breathing much better....
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    Dear Yvonne. I with I could give some words of...

    Dear Yvonne.

    I with I could give some words of advice.

    Hopefully someone here will be able to assist you.

    Best wishes for a much calmer time with Travis.

    Paul, Alison and Grant the champ.
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    Grant the champ's latest news.

    G'day neuro buddies old and new. :)

    Here is our family news.

    GRANT

    Grant remains in championship mode regarding the seizures. In fact he is again in record territory. It is sooo exciting....
  34. OT: Come and listen to Bek the liver transplant kiddo singing :)

    G'day everyone.

    As many of you know God gave Bek a brand new liver on Good Friday! Bek was on the liver waiting list for 17 months before this happened and had been in the children's hospital for...
  35. OT. Celebrate this miracle liver transplant story on Good Friday (Christian content)

    G'day neuro buddies old and new.

    As we celebrate Christ's miraculous resurrection over Easter, here is a heart warming story of God's awesome power on Good Friday.

    At Alison's school, Mt....
  36. How can we keep Grant warm at the pool in winter. Brainwaves needed :)

    G'day everyone.

    Well it is not a g'day here it is wet, cold and windy.

    SWIMMING

    Today I planned taking Grant to his olympic swimming training. Early this morning it was quite humid and...
  37. Joint medical guardians requests about Grant's videos on youtube.

    G'day neuro buddies anticipating the latest installment of Grant's video spectaculars :)

    Here is the goss.

    We arrived about 10 minutes early to enter some very posh offices; even the toilets...
  38. Hi Rose. There are certanily laws in Australia...

    Hi Rose.

    There are certanily laws in Australia regarding access for the disabled.

    I don't think that the two JMG's were particularly happy.

    If we need to go back to the JMG office we are to...
  39. The funny and amusing JMG carpark adventure today :)

    G'day neuro buddies.

    You will find this amusing.

    Today when we went to the joint medical guardian's (JMG) office near the city, we parked in the new carpark underneath the new building.

    Now...
  40. We might have to remove Grant's videos :( Meeting with joint guardian today PRAYERS

    G'dy neuro buddies.

    Monday 19/03/2012

    The joint medical guardian (JMG) has contacted us saying that they are concerned that

    quote This is to discuss the You Tube footage of Grant on the...
  41. time for champaigne. AWESOME meeting with neuro. Change of drugs = escape time :)

    G'day neuro buddies both oldies and youngies.

    Thank you for your thoughts and prayers for the neuro meeting last Friday.

    What can I say? Where can I start? What words are sufficient to describe...
  42. Important meeting with neuro this Friday. Prayers please.

    G'day to all our special neuro buddies.

    This Friday we have a special meeting with Grant's neurologist. The meeting is important because I want to propose a slightly different protocol regarding...
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    Don't know anything about a brace. If Benj...

    Don't know anything about a brace.

    If Benj needs to have one we hope that he is not uncomfortable and gets used to it.

    Best wishes as always and seeya,

    Paul, Alison and Grant the champ.
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    Hey Lisa. Miss Caitlin looks so pretty in...

    Hey Lisa.


    Miss Caitlin looks so pretty in the photo. She is such a sweetie.

    Hmm, sometimes she gets ornery. Can't be. You must be thinking of someone else :D Of course on a more serious note...
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    Hey Cpchick, Of course we remember you. Good...

    Hey Cpchick,

    Of course we remember you. Good to see you back :)

    Congratulations on all the sstudy that you are doing.

    We are in Australia, well of course :)

    What state are your parents...
  46. Dear Rebecca, Congratulations on your...

    Dear Rebecca,

    Congratulations on your university achievements. That is fantastic!

    As we live in Australia, there is not much we can offer except to say best wishes with your plans and may your...
  47. G'dy everyone. Thank you for your quick...

    G'dy everyone.

    Thank you for your quick responses.

    It did sound a bit too good to be true didn't it. I was getting ready to use the money to fly out and see you :)

    Best wishes to all the...
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    Hi Rose. Well for all neuro stuff, or almost...

    Hi Rose.

    Well for all neuro stuff, or almost all neuro stuff, I come right here. Having been with Braintalk for over 18 years (I think that is right), braintalk is very much part of the family. I...
  49. OT: Help with IRS tax return. Do you think this is legitimate? HELP. I might be rich

    G'day neuro buddies.

    Hmm,

    I received an email and I don't know if it is letigimate. The email was supposed to have come from the IRS! Wow, are they about to arrest me? :) No, believe it or not,...
  50. hey Nicholas old buddy :) Great that you won...

    hey Nicholas old buddy :)

    Great that you won the competition. Well done indeed.

    We hope you get exactly what you want for a prize.

    Best wishes as always and keep up the great work.

    Paul,...
  51. OT: Time to publish some music, including the famous 'twinkle variations' text help.

    G'day neuro buddies.

    My news is that I am now getting back to serious music publishing.

    My first publication will be a fascimile score of a piano piece that I wrote at the height of my kidney...
  52. Voted for Nick. Great to see him 'live' ...

    Voted for Nick.

    Great to see him 'live'

    didn't know Nick had fair hair :)

    Best wishes Nick for the competition.

    Seeya,
  53. Hey Donna, I don't know how to vote because I...

    Hey Donna,

    I don't know how to vote because I don't know where the link is :)

    Please give me/us the link so I/we can vote :)

    Seeya, here soon with the link.

    Paul, Alison and Grant the...
  54. Grant is still putting on weight and we don't know why?

    Hello neuro buddies.

    Grant continues to put on weight, and we don't really know the reason why he is doing this.

    One week ago Grant weighed 51.4 kg which is the same as 113 lbs.

    This week...
  55. hey Donna. Can you give me a link so that I...

    hey Donna.

    Can you give me a link so that I can subscribe and vote for Nick?

    Thank you.

    Paul, Alison and Grant the champ.
  56. Should we get an iPad 2 for Grant. What do you reckon?

    Hello neuro buddies.

    We are looking at the possibility of purchasing and iPad 2 for Grant the champ.

    Grant's skills are very limited.

    He has almost 0 skills in hand movements, but of course...
  57. Hey Donna, I can chime in to say that no we...

    Hey Donna,

    I can chime in to say that no we haven't had any experience in that area.

    But I'm sure that there will be folk around who can help.

    Best wishes for your wonderful project, which...
  58. Hi Rose. Thank you for your response to my...

    Hi Rose.

    Thank you for your response to my question.

    Grant is currently on 33 mls of Dilantin liquid twice a day. My understanding is that that is a reasonably large dose. He has been on this...
  59. Dear Tamie. Very sory to hear that Tyler is...

    Dear Tamie.

    Very sory to hear that Tyler is not well. We will pray for him later today.

    How are you know? Much better and back to optimum health.

    God bless and seeya,

    Paul, Alison and...
  60. Hey Donna. Good for Nicholas being such a...

    Hey Donna.

    Good for Nicholas being such a hockey fan. Great that the hockey stories are part of his PATH. Updating hockey news will keep him very busy indeed and of course he will enjoy every...
  61. Grant is putting on weight and we don't know why

    G'day neuro buddies, old, new, recent and past, and inbetween :)

    Grant has put on some weight recently and we really don't know why.

    A few months back Grant weighed in at 50 kilos = 110 lbs,...
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    Dear Lucinda. Of course we will pray for Noah....

    Dear Lucinda.

    Of course we will pray for Noah.

    In Australia the public school's are not that crash hot from a Christian perspective.

    God bless and let us know how things are going.

    Paul,...
  63. OT: Alicias ABBA video and Alicia and the disabled

    G'day neuro buddies, all all buddies.

    Some folkd have asked about Alicia, so here is the latest goss.

    She is very active in music activities; so active in fact that it is a bit difficult to...
  64. Hey Rose, Yes it is a beautiful place. We did...

    Hey Rose,

    Yes it is a beautiful place. We did meet the placement person, but not any of the senior staff. Before Grant goes to stay, we will certainly want to meet with one or more of the nurses...
  65. Hey Rose. I think you might have missed...

    Hey Rose.

    I think you might have missed something or perhaps I have also :)

    The doctor generally does not phone a pharmacy for ordering scripts. There are at least three receptionists at the...
  66. The mysterious case of the undelivered government confirmed script = oops!

    G'dy neuro buddies, old, new, in between and not sure :)

    Today we had an appointment for Grant at the family doctors. Just a routine visit as Grant has 3 days respite next week and we need forms...
  67. Hey Paula, Great to see you again and ABOUT...

    Hey Paula,


    Great to see you again and ABOUT TIME :)

    Teigan is certainly doing well at the big 14. Wow a geenager plus one. Way to go Teigan.

    Please hang around and visit and post to keep...
  68. Hi Tamie. The only place that Grant can go is...

    Hi Tamie.

    The only place that Grant can go is where there are nurses, and that is a nursing home. Nursing homes, generally only take older adults, over 55 years of age, but there are a handful of...
  69. Caring and information

    Thank you Donna for the reminder and wake up call for us at least in the sense that we must always be pushing for the recongition of the rights of children and adults with disabilities.

    Without...
  70. Absolutely awesome news regarding Grant's respite this year

    G'day neuro buddies both old and new and some inbetween :)

    It just amazes us how God looks after us even in crisis situations. At the time of the crisis we do not know what is happening and then...
  71. Three cheers for miss Caitlin and the shunt...

    Three cheers for miss Caitlin and the shunt anniversery. She is very brave with the shunt and it is wonderful that she is doing well.

    Great to hear about the wheelchair. That is cool and miss...
  72. We have Dragon on the Desktop computer. It is...

    We have Dragon on the Desktop computer.

    It is a great program, but takes a bit of getting used to.

    Definitely worth getting if you have issues in typing.

    Seeya,

    Paul, Alison and Grant the...
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    Dear Mary Grace, We are very sorry that it...

    Dear Mary Grace,

    We are very sorry that it seems that the medication is not helping with the pain.

    Hopefully the GI doc will be able to resolve the problem with different medication.

    Best...
  74. OT: Fantastic videos. One 65 years old of me as a baby and the other one, must watch

    G'day neuro buddies, both old an new.

    To celebrate my 65th birthday on the 3rd Jan, I put together a video of me as a baby 65 years ago, up to the age of about 10 !

    My parents were 8mm film...
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    Dear Rose, Thank you for your very...

    Dear Rose,

    Thank you for your very enlightening story about the Trache. It is most inspiring to read a very positive story.

    I am sure many folk here who have read the story have been encouraged...
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