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  1. Replies
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    ((((((Hugs to All)))))) ~ agate ~ Our...

    ((((((Hugs to All)))))) ~

    agate ~

    Our entire neighborhood has problems with ants. Many residents have exterminators spray around the outside of their homes periodically. We don't, because we...
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    ((((((Hugs to All)))))) ~ funnylegs4 ~ ...

    ((((((Hugs to All)))))) ~

    funnylegs4 ~

    Prayers going up that the new option will work out perfectly for you. You're a strong, determined woman, so hold your head high and persevere!

    Donna...
  3. ((((((Linda)))))) ~ Jim uses an Albuterol...

    ((((((Linda)))))) ~

    Jim uses an Albuterol inhaler, and it's very easy, which I hope you've now discovered. He also has a nebulizer for Albuterol breathing treatments as needed. He uses the...
  4. ((((((Hugs to All)))))) ~ nuthatch ~ I saw...

    ((((((Hugs to All)))))) ~

    nuthatch ~

    I saw that story too. It is scary, and mountain lions are prevalent in California wilderness areas and parks. As far as I know, we don't have any mountain...
  5. ((((((Jeanie)))))) ~ We're sending prayers for...

    ((((((Jeanie)))))) ~

    We're sending prayers for peace and comfort for you and for your dear friend's family and loved ones.

    *forgetmenot

    Love & Light,

    *heart
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    Transfusion Tomorrow at Ten, Film at Eleven

    ((((((Hugs to All)))))) ~

    Donna ~

    Prayers that all goes well with Nick's caregivers, while you and Jim are on Cat Island. I'm happy that his caregiver has returned, and I'll keep praying that...
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    ((((((jingle)))))) ~ Jim and I are sending...

    ((((((jingle)))))) ~

    Jim and I are sending healing prayers your way and are here to support you. You're not alone, as you know, from your BT friends.

    If you have any questions about chemo,...
  8. ((((((Lazarus)))))) ~ The steroids are...

    ((((((Lazarus)))))) ~

    The steroids are probably keeping you alert and happy, so please be prepared for a possible let down in energy. I'm sorry to tell you this, but it can happen.

    I know...
  9. ((((((Hugs to All)))))) ~ Having vast...

    ((((((Hugs to All)))))) ~

    Having vast experiences with various styles of wheelchairs (we have 4 of Jon's in our garage waiting to donate), I would not consider this thing a "wheelchair." If it's...
  10. Replies
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    ((((((Donna)))))) ~ One of the first things in...

    ((((((Donna)))))) ~

    One of the first things in the "Mom's Manual" is "you will worry all of the time about everything related to your child. Everything. All the time."

    Of course, you want Nick...
  11. ((((((Hugs to All)))))) ~ We have lots of...

    ((((((Hugs to All)))))) ~

    We have lots of coyotes in our area, and I suspect a couple of the stray cats I adopted in the late 1980s were snatched by them. In the late '90s, Jim was walking our...
  12. ((((((Hugs to All)))))) ~ Is MS more prevalent...

    ((((((Hugs to All)))))) ~

    Is MS more prevalent in areas, where there is less sun, than where there is abundant sunshine? Could that be a factor, along with avoiding the sun due to heat...
  13. Replies
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    Plans Interrupted

    ((((((Hugs to All)))))) ~

    Because we just can't have enough things go awry this week, Nancy texted last night that her Sister in Law is in the hospital in Nevada, where they went for a few days on...
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    ((((((Donna)))))) ~ Thank you so much. ...

    ((((((Donna)))))) ~

    Thank you so much. Perfect.

    The author, Angela Miller, beautifully and articulately discusses and addresses every topic I covered in my on line column for grieving...
  15. Replies
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    ((((((Hugs to All)))))) ~ Chris ~ Thank you...

    ((((((Hugs to All)))))) ~

    Chris ~

    Thank you for your prayers, and please know that you are in our prayers.

    When Jim started his radiation treatments, he took a Tylenol with Codeine an hour...
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    No Transfusion Today

    ((((((Hugs to All)))))) ~

    Jeannie ~

    Thank you for sharing your momís experience with Fentanyl and morphine. How wonderful that it worked so well for her and reduced her paranoia.

    Jimís...
  17. Replies
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    Transfusion Confusion

    ((((((Hugs to All)))))) ~

    callyflower ~

    My mom was addicted to Vicodin for diabetic pain. At that time, patients required a Compassionate Use waiver, as it was restricted. She had renal...
  18. Replies
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    Lab Results

    ((((((Hugs to All))))) ~

    I emailed Dr. K on the health portal today that we haven't received the results of Jim's blood work on 1/7/20, a week ago tomorrow.

    By the end of the day, the results...
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    Thank You

    ((((((Donna)))))) ~

    Thank you so much, dear friend.

    So often, people may think, "Well, it's been 9 months, she should be over it by now." Yes, people do think that, as many grieving parents...
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    Nine months

    5351
    OUR BELOVED JONATHAN


    ((((((Hugs to All)))))) ~

    Tomorrow, it will be 9 months since Jonathan passed. The same amount of time I carried him under my heart.

    I recall so vividly my 89...
  21. Replies
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    ((((((Hugs to All)))))) ~ callyflower ~ How...

    ((((((Hugs to All)))))) ~

    callyflower ~

    How wonderful that your are volunteering in Hospice! I do recall you mentioning this in another post. Your patients and their families are blessed to...
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    ((((((Hugs to All)))))) ~ callyflower ~ ...

    ((((((Hugs to All)))))) ~

    callyflower ~

    PAIN, URINE AND BOWELS

    I also considered referred pain as a cause, particularly because his pain is all on the left side, where his tumor is located. ...
  23. Replies
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    ((((((Hugs to All)))))) ~ callyflower ~ ...

    ((((((Hugs to All)))))) ~

    callyflower ~

    Thank you for the reminders about the Fentanyl patch and constipation. We'll discuss both with Nancy tomorrow.

    Jim's pain was a bit debilitating this...
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    Does Anyone Have a Pedal Exerciser?

    ((((((Hugs to All)))))) ~

    Recently, Jim mentioned to me that he would like to try using a pedal exerciser, which sits on the floor and can be used sitting in a chair or the side of the bed. I...
  25. Replies
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    Thank You!

    ((((((Hugs to All)))))) ~

    callyflower, Mary Grace, and Donna ~

    Thank you all so very much. I'm in tears too right now.

    I've just communicated with two friends. One was about the passing...
  26. Replies
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    Thank You!

    ((((((Hugs to All)))))) ~

    callyflower ~

    Thank you for your expert advice.

    We started the 20 mg Lasix this afternoon, in addition to his morning 40 mg. With Potassium, of course. Jim is...
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    ((((((Hugs to All)))))) ~ Donna ~ Oh, I'm...

    ((((((Hugs to All)))))) ~

    Donna ~

    Oh, I'm crying. Thank you so much for your lovely words of support and praise. Imagine me ... speechless ...

    But not for long ... *smile

    From the...
  28. Replies
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    ((((((Hugs to All)))))) ~ Jeanie ~ Oh, that...

    ((((((Hugs to All)))))) ~

    Jeanie ~

    Oh, that is great news that your Shingles are gone! YAY! I will be praying for your insurance to cover PT, because I know how very important it is to...
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    Thank You & Happy, Healthy New Year To All

    ((((((Hugs to All)))))) ~

    Virginia ~

    Thank you so much for your prayers, and you know you are in our prayers too.

    Like you, Linda has seen me through many dark days and crises with her...
  30. Amen. Love & Light, *heart Rose

    Amen.

    Love & Light,

    *heart

    Rose
  31. Replies
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    Our New Year's Eve

    ((((((Hugs to All)))))) ~

    Hey, guess what I've got?

    A giant, blazing red, neon stress rash all over my face and torso! Now, there's a surprise, eh? Why in the world would I get a stress rash?...
  32. Replies
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    ((((((Hugs to All)))))) ~ For any Linda...

    ((((((Hugs to All)))))) ~

    For any Linda Rondstadt fans here, CNN is showing "The Sound of My Voice," a documentary about her life. It airs tomorrow, New Year's Day, at 9:00 p.m. Eastern.
    ...
  33. ((((((Sunshine)))))) ~ Hang Ten!!!! May it...

    ((((((Sunshine)))))) ~

    Hang Ten!!!! May it be a perfect day in every way for you. Great way to start the New Year!

    Love & Light,

    *heart

    Rose
  34. Replies
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    Happy Healthy New Year!

    ((((((Hugs to All)))))) ~

    Torn between throwing a big party for our friends and neighbors (most of whom we don't know) or painting the town red, Jim and I opted for a quiet evening at home.
    ...
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    Waiting and Wandering

    ((((((Hugs to All)))))) ~

    Donna ~

    Prayers that you are all safe in the storm! It sounds like a good time to stay inside under comfy blankets. I hope you still have your power. How is...
  36. Replies
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    Eyes

    ((((((Hugs to All)))))) ~

    Well, the Buckeyes lost last night. We did so well in the first half, and Jim and I were ecstatic. Second half, the Buckeyes lost focus. A very close game until the...
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    ((((((Hugs to All)))))) ~ Virginia ~ I hope...

    ((((((Hugs to All)))))) ~

    Virginia ~

    I hope that you have your script for your UTI, and it is kicking in. Be good to yourself.

    Sunshine ~

    I'm so sorry that you're in pain. Will the...
  38. ((((((Richard Brown)))))) ~ *Welcome TO...

    ((((((Richard Brown)))))) ~

    *Welcome TO BRAINTALK!

    I'm sorry that you're enduring pain and vision issues. I'm not sure whether I have anything to offer you in the way of help, but I did want...
  39. Replies
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    ((((((callyflower)))))) ~ Thank you for...

    ((((((callyflower)))))) ~

    Thank you for sharing this with me. Yes, I can relate to every word "the old guy" wrote. Grief does come in waves, and we never know when we're going to be able to ride...
  40. Replies
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    ((((((Donna)))))) ~ I hope we don't have to be...

    ((((((Donna)))))) ~

    I hope we don't have to be out of our home for 24 hours for the mold removal! We have nowhere to go, unless we go to a hotel. Jim needs all of his meds, supplies, O2 just in...
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    ((((((Hugs to All))))) ~ Virginia ~ Sending...

    ((((((Hugs to All))))) ~

    Virginia ~

    Sending healing prayers that the meds work quickly to cure the UTI. I'm so very sorry that your Christmas was ruined by someone's thoughtless words. ...
  42. Replies
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    ((((((Hugs to All)))))) ~ Donna ~ What a...

    ((((((Hugs to All)))))) ~

    Donna ~

    What a wonderful family photo! The love, the bond, the understanding between all of you is so visible to me in this photo, Donna. You have all been through...
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    ((((((Hugs to All)))))) ~ agate ~ I don't...

    ((((((Hugs to All)))))) ~

    agate ~

    I don't know the statistics associated with jaw necrosis from Fosamax and its clones. I know that it is listed as a known serious side effect. I know that...
  44. Replies
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    ((((((Hugs to All)))))) ~ agate ~ Thank you...

    ((((((Hugs to All)))))) ~

    agate ~

    Thank you so much for posting for Ralph and keeping us informed. My heart goes out to him. It is so difficult after a loved one passes to manage all of the...
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    ((((((Hugs to All)))))) ~ Howie ~ Here are...

    ((((((Hugs to All)))))) ~

    Howie ~

    Here are the icons to prompt us to change font, color, size, or insert photos or videos:


    5345

    The second to the last one on the right hand side is the...
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    ((((((agate)))))) ~ I recall responding to the...

    ((((((agate)))))) ~

    I recall responding to the thread about Fosamax, because I researched it extensively for Jonathan. There were so many reasons why we couldn't give it to him, and our ICU...
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    ((((((Hugs to All)))))) ~ Thank you so much...

    ((((((Hugs to All)))))) ~

    Thank you so much Jeanie and Donna ~

    RANDY TO THE RESCUE

    At 8:15 a.m., I called our plumber and told the office manager, who is always so nice to me, our sad story....
  48. Replies
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    No Merry Here

    ((((((Hugs to All)))))) ~

    Thank you so much ANN, Jeanie, and Virginia. I wish I could say your wishes for us came true. But here is the story of our Christmas Day:

    What began as a lovely day...
  49. Replies
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    Joyful, Peaceful, Beautiful Holidays!

    ((((((Holiday Hugs to All)))))) ~

    HAPPY HANUKKAH!


    MERRY CHRISTMAS!


    HAPPY KWANZAA!
  50. ((((((Hugs to All)))))) ~ agate ~ Thank you...

    ((((((Hugs to All)))))) ~

    agate ~

    Thank you so much for sharing these photos. They are all amazing and wonderful in every respect. Truly works of art.

    Thank you.

    Love & Light,
  51. Replies
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    *cg23 ((((((Hugs to All)))))) ~ I just want...

    *cg23

    ((((((Hugs to All)))))) ~

    I just want you all to know that I love each one of you so very much, and I am so grateful that you are walking beside us on our journey. Thank you for reading...
  52. ((((((Virginia)))))) ~ It's unfortunate that...

    ((((((Virginia)))))) ~

    It's unfortunate that your SIL can't understand how physically strenuous and stressful it would be for you to travel and attend this reunion. It sounds like she is...
  53. Replies
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    ((((((funnylegs4)))))) ~ Congratulations on...

    ((((((funnylegs4)))))) ~

    Congratulations on being on track with your gifting!

    I waited too late, and now the few gifts I ordered for John's family won't be delivered until Christmas Eve. ...
  54. Replies
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    ((((((funnylegs4)))))) ~ Thank you so much for...

    ((((((funnylegs4)))))) ~

    Thank you so much for wishing us a Merry Christmas, and we wish the same for you and your loved ones.

    Jim could always change his mind, but he stands pretty firm...
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    ((((((Donna)))))) ~ You have supported me for...

    ((((((Donna)))))) ~

    You have supported me for nearly 20 years in so many incredible ways. Although we are thousands of physical miles apart, I feel you close to me at all times. I cannot thank...
  56. Replies
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    Real Life

    ((((((Hugs to All)))))) ~

    Thank you funnylegs4 and Donna ~

    We have had an assortment of hectic things happening in the past several days, which is why I havenít posted.

    HOUSEHOLD PROBLEMS
    ...
  57. ((((((Hugs to All)))))) ~ Of all of the many...

    ((((((Hugs to All)))))) ~

    Of all of the many types of surgery we may face in our "senior years," I think cataract surgery is probably the safest. There are many appointments associated with the...
  58. Replies
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    ((((((Hugs to All)))))) ~ Jeanie and Joan ~ ...

    ((((((Hugs to All)))))) ~

    Jeanie and Joan ~

    That is so unfortunate that the participants were having problems with the sound and video. It was a wonderful concept to gather Ann's friends and...
  59. Replies
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    ((((((Hugs to All)))))) ~ Oops! I apologize! ...

    ((((((Hugs to All)))))) ~

    Oops! I apologize! I must have been focused on 4:00 from the other posts about the time. So, the correct times would be:

    Pacific: 12-3

    Mountain: 1-4

    Central:...
  60. Replies
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    ((((((Hugs to All)))))) ~ Here are the times...

    ((((((Hugs to All)))))) ~

    Here are the times for the teleconference:

    Pacific: 12-2

    Mountain: 1-3

    Central: 2-4
  61. Replies
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    ((((((Hugs to All)))))) ~ If the...

    ((((((Hugs to All)))))) ~

    If the teleconference is from 2 to 4 p.m. Central Time, then it would be 3 to 5 p.m. Eastern Time. For Pacific Time, it would be from noon to 2 p.m.

    I hope everyone...
  62. ((((((Hugs To All)))))) ~ Chris ~ Thank you...

    ((((((Hugs To All)))))) ~

    Chris ~ Thank you for posting this.

    While I do not have MS, as a Senior with RA and a few things on my mind each day, I found that these recommendations applied to...
  63. Replies
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    Food and Future Talk

    ((((((Hugs to All)))))) ~

    callyflower ~

    Thank you for telling me that other things, besides blood, can cause a black stool. A dear friend mentioned that Tums, which Jim does take in lieu of...
  64. Replies
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    ((((((callyflower)))))) ~ Great news that your...

    ((((((callyflower)))))) ~

    Great news that your daughter is scoring A's in her microbiology courses! That is just awesome! I'm sure she'll appreciate a break over the holidays from the stress. ...
  65. Replies
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    ((((((callyflower)))))) ~ Yes, Jim is quite...

    ((((((callyflower)))))) ~

    Yes, Jim is quite nostalgic, and we take trips down Memory Lane every day. He's actually been this way since we first met 27 years ago, but it's more pronounced now. ...
  66. Replies
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    ((((((funnylegs4)))))) ~ Thank you so much! ...

    ((((((funnylegs4)))))) ~

    Thank you so much!

    I do want Jim to go to his Dr. K appointment, because we have to talk to Dr. K about what is going on and what Jim's choices are and what his...
  67. Our Precious Angels

    5342

    OUR PRECIOUS ANGELS


    Forever in Our Hearts



    Augie
  68. ((((((Tamie)))))) ~ Oh, I am so very sorry for...

    ((((((Tamie)))))) ~

    Oh, I am so very sorry for Helene, and my heart goes out to her. Please tell her that I'm praying for her strength, peace, and comfort. I know only too well what she is...
  69. Happy Birthday Howie!

    5341

    Happy Birthday Howie!

    Have a Happy Healthy Year!

    Love & Light,

    *heart
  70. Replies
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    ((((((Hugs to All))))))) ~ Thank you so much,...

    ((((((Hugs to All))))))) ~

    Thank you so much, Jeanie, ANN, agate, and funnylegs4 for your candles, thoughts and prayers. It means so much to us to know that you care for us and support us on this...
  71. Replies
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    ((((((Hugs to All)))))) ~ Thank you so much,...

    ((((((Hugs to All)))))) ~

    Thank you so much, Virginia and Donna. We truly appreciate your love and support. As you light your candles, please remember all of our Precious Angels and their...
  72. Replies
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    ((((((Hugs to All)))))) ~ funnylegs4 ~ ...

    ((((((Hugs to All)))))) ~

    funnylegs4 ~

    Thank you so much.

    Because we haven't had the opportunity to have a Celebration of Life service for Jonathan, it would be wonderful if everyone...
  73. Replies
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    ((((((Jeanie)))))) ~ Many healing prayers on...

    ((((((Jeanie)))))) ~

    Many healing prayers on the way for you.

    Love & Light,

    *heart

    Rose
  74. Replies
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    ((((((Hugs to All)))))) ~ Donna ~ Since...

    ((((((Hugs to All)))))) ~

    Donna ~

    Since we've had torrential rain, I haven't been walking, so I haven't see the lady. I pray that she's okay and wasn't injured.

    Jim is feeling and eating...
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    ((((((SaraEve41)))))) ~ *Welcome TO BRAINTALK!...

    ((((((SaraEve41)))))) ~

    *Welcome TO BRAINTALK!

    So glad that you found us!

    Why is there a need to titrate up to a therapeutic level of CBD? It doesn't have the assorted evil side effects...
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