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  1. Replies
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    It’s time to stop this. Past time. ANN

    It’s time to stop this. Past time.

    ANN
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    Good morning, Linda. I woke up and couldn’t...

    Good morning, Linda.

    I woke up and couldn’t get back to sleep. It’s 47 here now and the house is 64. I have a heating pad on.

    Happy market day. Bring us a story. :-)
    ANN
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    It is 52 degrees here at almost 11 PM. Brr. I...

    It is 52 degrees here at almost 11 PM. Brr. I have to close some windows.

    ANN
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    That’s an awesome accomplishment! ANN

    That’s an awesome accomplishment!
    ANN
  5. Thank you Linda and Devin. Very powerful. ANN

    Thank you Linda and Devin. Very powerful.

    ANN
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    Good luck with the IVIG, Sunshine. I’m glad you...

    Good luck with the IVIG, Sunshine. I’m glad you are getting it on schedule.

    Good work, Agate.

    Husband is safely home from Austin. Color me happy!
    ANN
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    If the pill were something like an antibiotic to...

    If the pill were something like an antibiotic to take on a schedule (like every 6 hours) or something like that and it fell in my own house, yes, I would and I have taken it.

    There’s wind tonight...
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    I did laundry yesterday that involved lots off...

    I did laundry yesterday that involved lots off stairs and today worked on the fall garden.

    ANN
  9. A very Happy Birthday, Cherie! ANN

    A very Happy Birthday, Cherie!

    ANN
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    Longer than many cats!

    Longer than many cats!
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    Haricots verts are French green beans - like...

    Haricots verts are French green beans - like those skinny ones you can buy at Trader Joe’s for steaming.

    Virginia, that was a great start to September and a good remembrance of Peg. I hope you...
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    Doing grocery stores and lunch with MIL. ANN

    Doing grocery stores and lunch with MIL.

    ANN
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    Constant, slow, small steps mean plenty,...

    Constant, slow, small steps mean plenty, Virginia. Glad you felt in a mood to go out.

    ANN
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    I am also in the antenna only club. I get 6 PBS...

    I am also in the antenna only club. I get 6 PBS flavors. I have never had cable.

    ANN
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    Now interrupting this thread —- to say the...

    Now interrupting this thread —-

    to say the cookies sound great to me, Mary Grace!

    ANN
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    The MS Society or similar or the Dept on Aging or...

    The MS Society or similar or the Dept on Aging or Elder Affairs for you city might be able to suggest psych help for elders w disabilities.

    Elder Affairs. That’s another good idea. ;-)

    ANN
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    Virginia, I am sorry to hear that you have no one...

    Virginia, I am sorry to hear that you have no one close to share this with. I think sharing your feelings does help. There are counselors who work exclusively in geriatrics. That might be a place to...
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    Agate, those cardboard boxes are gold here and...

    Agate, those cardboard boxes are gold here and the long streams of brown paper that come in them. It gives the cats weeks of fun.

    ANN
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    I did not go to Albany. It’s one of those...

    I did not go to Albany. It’s one of those trade-off decisions we have to make. I realized that it was like driving to the tip of Cape Cod and back in one day. I can’t sit that long even with breaks....
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    I was watching a Good Will (shopgoodwill.com)...

    I was watching a Good Will (shopgoodwill.com) auction online. They were selling someone’s frog collection. I thought of our Vicky.

    Tomorrow, if I think I can sit most of the day, we are driving...
  21. I have had four women MS Specialists over the...

    I have had four women MS Specialists over the past 30 years. Three were each my doctor for at least two years or as many as 16. One was a specialized MS consult that I only saw twice. Many of the...
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    Steven JSPR.

    Steven JSPR.
  23. I hear you, Sunshine, about needing to eat for...

    I hear you, Sunshine, about needing to eat for calories. I’m sorry that you are in that situation.

    ANN
  24. Such a good Gyn to know about Gabapentin cream,...

    Such a good Gyn to know about Gabapentin cream, Sunshine.

    ANN
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    Howie, I just had tea with TRader Joe’s Ginger...

    Howie, I just had tea with TRader Joe’s Ginger Snaps. Lily Cat loves them broken up like tiny kibble.

    ANN
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    Jeanie, sorry to hear this. You were a good...

    Jeanie, sorry to hear this. You were a good friend.
    ANN
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    Hi Parsi! ANN

    Hi Parsi!

    ANN
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    Hi, Kittianne 54!

    Hi, Kittianne 54!
  29. Replies
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    Ah,it took chocolate to wake Howie up. Just...

    Ah,it took chocolate to wake Howie up. Just reading your favorites provoked me to get up and get a Justin’s Milk Chocolate PB cup. I have tried their dark chocolate ones but prefer the milk...
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    It’s hot. Yesterday was a record for the day at...

    It’s hot. Yesterday was a record for the day at 95 officially which is at the airport, on the water. It was hotter in the actual city. And very humid.

    I went out early for an 11 AM haircut. My...
  31. I am on baclofen and tizanidine in much smaller...

    I am on baclofen and tizanidine in much smaller doses than I suspect you would need. The tizanidine works more immediately and can be used as needed. Baclofen works long term. However, even 1mg (half...
  32. Welcome bburk64, I have no experience w...

    Welcome bburk64,

    I have no experience w baclofen pumps. Sorry.
    ANN
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    Sunshine, you have so very much to deal with. I...

    Sunshine, you have so very much to deal with. I hope your burden gets lighter. I wish I could think of a single helpful thing. Just know that I care.

    ANN
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    Thank you, Rose and Virginia. Mom has a home care...

    Thank you, Rose and Virginia. Mom has a home care nurse 3 times a week and a PT 2- 3 times a week. She also has my niece staying there until sometime tomorrow. My brother may go up from North...
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    I’m home in my own bed. Very happy to be here....

    I’m home in my own bed. Very happy to be here. Mom had a good day and has two more nights with my niece. Niece will help Mom decide if my brother should come next.

    ANN
  36. Glad John is back with you.

    Glad John is back with you.
  37. Replies
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    Glad the IVIG went well, Sunshine. Mom is...

    Glad the IVIG went well, Sunshine.

    Mom is doing well. She has had some emotional breakdowns but brief ones. So much happened to her in a short time.

    The OT evaluated her yesterday and asked her...
  38. So sorry I am still in PA, Linda. Can you call...

    So sorry I am still in PA, Linda. Can you call the hospital and ask for the nurses’ station for the floor that he is on. Ask his nurse your questions and explain your dilemma.

    Best to you both,...
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    View Post

    I don’t know if you are asking the question, “How to get a driver?”

    Most states have an access program for people w disabilities. In MA it’s called The Ride. In PA it’s Access or maybe Axis. These...
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    I grew Lemon and Minature White cucumbers. Both...

    I grew Lemon and Minature White cucumbers. Both are thin skinned and not bitter. I’ll do them
    Both again next year.

    ANN
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    Sunshine, take care of yourself and do what you...

    Sunshine, take care of yourself and do what you need to do. I know without asking that All our prayers and best thoughts are with you.

    ANN
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    Peter went back to Boston this afternoon. He...

    Peter went back to Boston this afternoon. He arrived and took pictures of an overgrown garden full of tomatoes and cucumbers before he went into the house.

    Mom had a good day. I am manning the...
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    Glad you are feeling good and thank you for that...

    Glad you are feeling good and thank you for that essay.

    ANN
  44. Replies
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    Mom is home! ANN

    Mom is home!

    ANN
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    Send some to me at my Mom’s, please and thank...

    Send some to me at my Mom’s, please and thank you.

    ANN
  46. A very Happy Birthday to you, Joan! Enjoy your...

    A very Happy Birthday to you, Joan! Enjoy your day and tell us about it please!
    ANN
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    Agate, I hope you can use your windows and patio...

    Agate, I hope you can use your windows and patio soon.

    Virginia, I hope you are more comfortable today.

    Susan left early this AM and I went to the hospital at 11 AM. I took clothes for Mom as...
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    Hi Chris, Sorry, I have never heard of it,...

    Hi Chris,

    Sorry, I have never heard of it, either. I hope it helps and isn’t too pricey.

    ANN
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    Extra points for being able to get out of bed...

    Extra points for being able to get out of bed that early!
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    I understand what you are saying. I choose to...

    I understand what you are saying.

    I choose to share and trade. I choose to not be armed.
    ANN
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    Sunshine, it’s a great time to think permaculture...

    Sunshine, it’s a great time to think permaculture and food forest. Planting things that are edible: nut and fruit trees, berry patches and bushes, veggie gardens. Chickens for eggs if possible.
    ...
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    I hope Howie is OK. I saw Mom for several...

    I hope Howie is OK.

    I saw Mom for several hours today. She’s alert and cheerful and looks like herself. She sees both PT and Cardio Rehab people each day. Today the O2 came off and the catheter...
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    Congratulations, Cat, on being adopted my Smudge...

    Congratulations, Cat, on being adopted my Smudge and Maggie!

    ANN
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    I did packing yesterday and this AM (stairs...

    I did packing yesterday and this AM (stairs involved) and airport walking today w luggage.

    ANN
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    I’m flying back to PA this evening. Peter will...

    I’m flying back to PA this evening. Peter will follow on Friday thru Monday if we get the cat/garden sitter.

    Susan plans to leave Weds or Thursday.

    It will be good to see Mom.
    ANN
  56. It is good to see the web of life and to be able...

    It is good to see the web of life and to be able to say, “I am useful to my community.” Thanks for this, Linda.

    ANN
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    MS is a different kettle for sure, Agate. Good...

    MS is a different kettle for sure, Agate. Good work!

    ANN
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    Yes, Virginia, I asked on Monday or Tuesday about...

    Yes, Virginia, I asked on Monday or Tuesday about Lasix and asked Susan to follow up and she did on Wednesday. They definitely know she’s on it. She’s resting tonight on a cardiac floor.

    ANN
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    It was premature release do to not giving her her...

    It was premature release do to not giving her her Lasix for the entire 10 days. She has Congestive Heart Failure. Mom is so glad to feel better that she’s OK w staying in the hospital.

    ANN
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    Glad it was a good day, Linda. And, don’t tell...

    Glad it was a good day, Linda. And, don’t tell but I may be developing an addiction to buying seeds!

    Mom came home from the hospital today - but wait - she’s back there. At home she could hardly...
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    Helen, welcome back to BT. I’m glad you were...

    Helen, welcome back to BT. I’m glad you were finally validated!

    ANN
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    Today I walked to and from my usual hair salon -...

    Today I walked to and from my usual hair salon - six blocks total.

    This evening we went to Home Depot for some potting soil and then to Savers, a really large resale shop. During the winter I...
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    Mom was about to go home this afternoon but the...

    Mom was about to go home this afternoon but the medical people stopped it because her INR (clotting) is too high. She’s bummed but eating a tasty supper and has had some Vitamin Coffee!Yeah, Mom!
    ANN
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    Most of my deficits are brain and cranial nerves....

    Most of my deficits are brain and cranial nerves. I’ve never had a spinal lesion show on MRI. I must have some as I have the hug and other paresthesias though some of that could be from spinal...
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    Jeanie, the biggest problem with most plants is...

    Jeanie, the biggest problem with most plants is overwatering.

    Did you drive yourself to the hairdresser? That is a big accomplishment.

    Mom was up to a chair yesterday and had a walk w a...
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    Rose, my sister and I loved the Blob. It was the...

    Rose, my sister and I loved the Blob. It was the 5 O’clock movie several times. Fond memories.

    ANN
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    Good work, Sunshine. Today I walked a block...

    Good work, Sunshine.

    Today I walked a block to the bus and went to Centre Street. I shopped at 3 stores and checked my app and saw that the next bus homeward was in 24”. So I walked. :-)

    Doing...
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    Interesting, Linda. It is a life form and acts as...

    Interesting, Linda. It is a life form and acts as a collective. Ten years!

    ANN
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    I almost forgot, Rabbit Rabbit!

    I almost forgot, Rabbit Rabbit!
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    This morning I saw a large irregular creamsicle...

    This morning I saw a large irregular creamsicle colored blob in my garden. I researched it and here’s what I found out and it is so fascinating. I think you’ll be fascinated, too, especially Howie:
    ...
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    For strength: Sit to stands Glute bridge with...

    For strength:
    Sit to stands
    Glute bridge with hamstring curl
    Glute bridge w exercise ball
    Glute bridge, banded (I don’t remember what this one is)
    Front step ups
    Side step ups
    Banded side...
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    I’ve been doing neighborhood walking, airport...

    I’ve been doing neighborhood walking, airport walking hospital walking and stair climbing. I need to do my PT homework, though. Gotta get on that. I still have very little muscle to sit on.

    ANN
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    Sorry you are not feeling well, Virginia. I hope...

    Sorry you are not feeling well, Virginia. I hope things improve.

    I had my derm appointment. One biopsy and one lesion frozen. No obvious melanoma which was the concern because it could have...
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    I am home. :-) Susan has arrived and visited Mom....

    I am home. :-) Susan has arrived and visited Mom.

    Mom is about the same today but Susan said that the tube might come out tonight.

    The husband, cats and garden are awesome. Tomorrow morning I...
  75. A blood pressure reading should be taken at every...

    A blood pressure reading should be taken at every visit regardless of the reason for that visit. It’s an opportunity to save a life. High blood pressure is a “silent killer.”
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