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  1. Thread: June Chit Chat

    by Cherie
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    248
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    4,814

    They actually got married the next afternoon for...

    They actually got married the next afternoon for real and in a more traditional ceremony at the same site. This was a fun way to rehearse for the ceremony and merge two theater families and their...
  2. Thread: Haiku

    by Cherie
    Replies
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    493

    A wedding today On the patio downtown For Chris...

    A wedding today
    On the patio downtown
    For Chris and Maggie.

    Fam-i-ly and friends
    Gathered to support the two.
    We all were quite blessed.

    Our Community
    Is richer by far for them.
  3. Thread: June Chit Chat

    by Cherie
    Replies
    248
    Views
    4,814

    https://www.facebook.com/jay.cady.9/videos/1021909...

    https://www.facebook.com/jay.cady.9/videos/10219093494718901/ has an 11 minute video of the clown wedding with the bride's father (a vaudevillian from Kansas) officiating. The groom's father is the...
  4. Thread: June Chit Chat

    by Cherie
    Replies
    248
    Views
    4,814

    Went to my first "clown wedding" tonight. We...

    Went to my first "clown wedding" tonight. We have a wonderful small community theater that does some very professional performances just two blocks from our house. For those of you who follow my...
  5. Thread: Haiku

    by Cherie
    Replies
    30
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    493

    Raining all day long. This is the sixth day in a...

    Raining all day long.
    This is the sixth day in a row.
    Sun came out at 6.
  6. Thread: June Chit Chat

    by Cherie
    Replies
    248
    Views
    4,814

    It does entirely depend on the contract that the...

    It does entirely depend on the contract that the infusion center or the home infusion service has with the company that provides the IVIg or Gammagard. And it is true that the shortage of donors...
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    Steadily progressing with no MRI changes in 3-5...

    Steadily progressing with no MRI changes in 3-5 years. Inactive progressive. This is what we heard at the Consortium this year. They are advocating spinal taps now in all forms of mS to see if...
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    FDA issued HUGE cautions last week. Not the hope...

    FDA issued HUGE cautions last week. Not the hope that it was thought to be and potentially life threatening. "Fa-Ged-A-Bod-it!"
  9. Thread: Haiku

    by Cherie
    Replies
    30
    Views
    493

    Instructions in the first post in this thread. ...

    Instructions in the first post in this thread.

    The rain falls softly.
    It's sixty degrees outside.
    Windows are open.
  10. Thread: Haiku

    by Cherie
    Replies
    30
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    493

    Virginia, Love that you're here contributing. ...

    Virginia,
    Love that you're here contributing. Haiku has an exact format: Three lines only. 5 syllables in first and third line and 7 syllables in second line so 5/7/5.
  11. Thread: Haiku

    by Cherie
    Replies
    30
    Views
    493

    Monday laundry day Here too! Clean sheets on the...

    Monday laundry day
    Here too! Clean sheets on the bed.
    Rhubarb harvested.
  12. Replies
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    208

    I have seen this happen at least 6 or 7 times...

    I have seen this happen at least 6 or 7 times over the past 15 +/- years. Hoping this resolves for you quickly. People do not generally realize that IVIg is a human blood product. It is NOT a...
  13. Thread: Haiku

    by Cherie
    Replies
    30
    Views
    493

    Headache is now gone. Company has not yet come ...

    Headache is now gone.
    Company has not yet come
    and may not show up

    In some ways relieved
    This person's a lot of work
    Expectations gone!

    He's an old colleague
    Who comes and sleeps away time
  14. Thread: June Chit Chat

    by Cherie
    Replies
    248
    Views
    4,814

    The house they bought from us last summer is on...

    The house they bought from us last summer is on almost two acres and abuts university athletic fields. They have built bike trails all round the back of the property with planks over swampy areas...
  15. Thread: Haiku

    by Cherie
    Replies
    30
    Views
    493

    Feeling a bit down. I have a headache today....

    Feeling a bit down.
    I have a headache today.
    Company sick too.
  16. Thread: June Chit Chat

    by Cherie
    Replies
    248
    Views
    4,814

    I think the busy weekend is working on me today. ...

    I think the busy weekend is working on me today. I slept well and woke refreshed but am dragging now three hours after getting going for the day. Out of State company coming either today or...
  17. Thread: Haiku

    by Cherie
    Replies
    30
    Views
    493

    Father's Day it is! Took Dave to eat at UNOs....

    Father's Day it is!
    Took Dave to eat at UNOs.
    Happy guy is he!

    Lobster roll, chowder,
    Roasted veggies, coleslaw too.
    Brownie sundae, yay!

    I had a sirloin
    Mashed potato too.
  18. Thread: Haiku

    by Cherie
    Replies
    30
    Views
    493

    The wind brought some rain. Today everything is...

    The wind brought some rain.
    Today everything is green.
    Still cool and breezy.
  19. Thread: June Chit Chat

    by Cherie
    Replies
    248
    Views
    4,814

    You all certainly have been a chatty group today!...

    You all certainly have been a chatty group today!

    Nuthatch,
    What a lovely photo.

    Virginia,
    You should feel flattered but I am glad you are erring on the side of caution taking your own...
  20. Thread: Haiku

    by Cherie
    Replies
    30
    Views
    493

    A very long day. Research and wellness program...

    A very long day.
    Research and wellness program
    Dinner theater.

    Home now and resting.
    Comfortably cool, windy
    The air smells so good!
  21. Thread: Haiku

    by Cherie
    Replies
    30
    Views
    493

    Today I woke up. Got up. Got dressed. Smelled...

    Today I woke up.
    Got up. Got dressed. Smelled fresh air.
    Enjoying the sun.

    Not so much aching
    As when I was traveling.
    More comf-'terble now.
  22. Thread: June Chit Chat

    by Cherie
    Replies
    248
    Views
    4,814

    Haiku thread is now up here: ...

    Haiku thread is now up here: http://www.braintalkcommunities.org/showthread.php/103129-Haiku?p=89012#post89012
    Have fun!
  23. Thread: Haiku

    by Cherie
    Replies
    30
    Views
    493

    Haiku

    Several years ago, we had a Haiku thread here. Thought some of you might like to have some fun with it again. This is the starter writing from that old thread cut and pasted here:

    Haiku is a...
  24. Thread: June Chit Chat

    by Cherie
    Replies
    248
    Views
    4,814

    I am thinking now... We should start a Haiku...

    I am thinking now...
    We should start a Haiku Thread
    Like we did before.
  25. Thread: June Chit Chat

    by Cherie
    Replies
    248
    Views
    4,814

    Springtime Haiku... I knew Howie would answer....

    Springtime Haiku...
    I knew Howie would answer.
    It is a given.
  26. Thread: June Chit Chat

    by Cherie
    Replies
    248
    Views
    4,814

    Jeanie, Perhaps it's time to reach out to the...

    Jeanie,
    Perhaps it's time to reach out to the home care program at MSF to see if they can help you with aides. Probably would not be a 12 hour time block like you currently have but they do send...
  27. Replies
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    Your description of the breathing problem with...

    Your description of the breathing problem with sleep certainly sounds like sleep apnea which can also cause high BP, elevated heart rate, fatigue and severe anxiety. It is possible with something...
  28. Thread: June Chit Chat

    by Cherie
    Replies
    248
    Views
    4,814

    You know, I think that what bit me and what they...

    You know, I think that what bit me and what they call No see 'ems in NH are the chiggers we grew up with on the farm. Tiny little black flying insects slightly larger than a flee but without the...
  29. Thread: June Chit Chat

    by Cherie
    Replies
    248
    Views
    4,814

    It is very breezy here and they are biting up a...

    It is very breezy here and they are biting up a storm. Rained last night and it seems to have slowed them down. David got back in the car yesterday afternoon after a hike and said there must've...
  30. Thread: Bad fall

    by Cherie
    Replies
    6
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    283

    I agree. Sounds like a shoulder and possibly...

    I agree. Sounds like a shoulder and possibly writs fracture. Very common in those of us who have had steroids.
  31. Thread: June Chit Chat

    by Cherie
    Replies
    248
    Views
    4,814

    Getting eaten alive up here in the mountains. ...

    Getting eaten alive up here in the mountains. The No-See-'ems are out in force. I react so very strongly to insect bites. One bit me on the eyelid and eye swelled shut within an hour. By then ,...
  32. Thread: June Chit Chat

    by Cherie
    Replies
    248
    Views
    4,814

    Agate, I have no doubt you will be ready for...

    Agate,
    I have no doubt you will be ready for this. Afterall, unless they have changed protocols, this is something you have done before and should ace it again.

    77 and sunny here today. Nice...
  33. I've seen the InterStim demonstrated at several...

    I've seen the InterStim demonstrated at several conferences and it is amazing!
  34. Welcome home!

    Welcome home!
  35. Thread: June Chit Chat

    by Cherie
    Replies
    248
    Views
    4,814

    And the first installment article on what came...

    And the first installment article on what came out of the Consortium in Seattle has been sent to MS Focus magazine. Phew. Tomorrow we have a reception and dinner to go to after church then off to...
  36. Thanks for sharing.

    Thanks for sharing.
  37. Thread: June Chit Chat

    by Cherie
    Replies
    248
    Views
    4,814

    Slides are done and sent off for review and...

    Slides are done and sent off for review and loading! Not going to try and tackle more today as I have to go out for the evening in three hours so am going to just wash hair and rest till then.
    ...
  38. Replies
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    I was so very, very tired by the time of this...

    I was so very, very tired by the time of this interview that I felt like my speaking was in slow motion and I sounded "blotto" but as we moved through it, I think I "woke up " a bit. I appreciate...
  39. Thread: June Chit Chat

    by Cherie
    Replies
    248
    Views
    4,814

    Jeanie, Sounds like you are making progress...

    Jeanie,
    Sounds like you are making progress which means Medicare should still be paying for your care as your rehab is progressing.

    Glad to see Mark back with us and HootsWithOwls joining us...
  40. Replies
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    Mark! Welcome back! I, for one, have missed...

    Mark! Welcome back! I, for one, have missed you. Lots has changed for me since we last communicated. Treatment is working. Depression has been reined in . My energy levels and diet and...
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    ANN, I was thinking that I had not seen Mark...

    ANN,
    I was thinking that I had not seen Mark (XO) in at least 5 years, maybe more and the link you posted is 7 years old. I hope he is OK.


    HWO,
    Welcome back! I do remember you. 1.5 T...
  42. Thread: June Chit Chat

    by Cherie
    Replies
    248
    Views
    4,814

    Virginia. In a session at the Consortium...

    Virginia.
    In a session at the Consortium meeting, they were saying that the 1.5 Tesla machines that we have used from the beginning are NOT ok any longer to diagnose or track active disease and that...
  43. Replies
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    Mental Health Co-Morbidities in MS

    I had the privilege of attending the Consortium of Multiple Sclerosis Centers annual meeting in Seattle last week where 2200 Clinicians from around the world met to share research, rehab, treatment...
  44. Thread: June Chit Chat

    by Cherie
    Replies
    248
    Views
    4,814

    Seems we have two June Chit-Chats going. Howie...

    Seems we have two June Chit-Chats going. Howie started this one at 12:02 am on June 1st and Lazarus started the other a little over 4 hours later.

    As to no contrast on MRI: In relatively stable...
  45. Thread: June Chit Chat

    by Cherie
    Replies
    248
    Views
    4,814

    Nuthatch, How lovely! Thanks for sharing. ...

    Nuthatch,
    How lovely! Thanks for sharing.

    As far as the horse, I believe that one of Peg's profile pics was a photo of her on a horse. That may be what folks are thinking of. I don't think...
  46. Thread: June Chit Chat

    by Cherie
    Replies
    248
    Views
    4,814

    Actually, I think I started Chit Chat and when I...

    Actually, I think I started Chit Chat and when I stepped off the Board for a while Peg started the monthly threads. I have no problem with it being renamed but there may be folks who might cross...
  47. Thread: Peg

    by Cherie
    Replies
    30
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    1,004

    Just got back from Seattle and can't sleep...

    Just got back from Seattle and can't sleep because my body is still on Pacific time. So very sorry to hear this. I sent a message to Gary's wife Trish. I think he may have Peg's address and phone...
  48. Replies
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    We have an "Alternative Food Co-op" here that...

    We have an "Alternative Food Co-op" here that functions in the same way. I used to shop there when the kids were little as they sold a lot in bulk. We always had to take our own containers. I...
  49. Replies
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    Chili is simmering in the crock pot for this...

    Chili is simmering in the crock pot for this afternoon's cookout. David has gotten the two largest and heaviest A/C units into the windows. I am packed and ready for Seattle and boarding passes are...
  50. Replies
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    Off on Tuesday to Seattle for the annual meeting...

    Off on Tuesday to Seattle for the annual meeting for the Consortium of MS Centers. Home Saturday the 1st in time to have dinner with Dave to celebrate our 44th wedding anniversary. Laundry is...
  51. Replies
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    Soy is not generally a good protein alternative...

    Soy is not generally a good protein alternative for men as it produces progesterone (a female hormone) in those who eat it. For many men this can cause problems such as ED and breast development if...
  52. Replies
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    451

    Gluten is not the problem. It is an...

    Gluten is not the problem. It is an individual's sensitivity to it. Try eliminating it for a week and see if you feel differently. If you are not sure, add it back and if, within a couple of days...
  53. Replies
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    I eat it by prescription due to chronic anemia. ...

    I eat it by prescription due to chronic anemia. When I don't eat it or eat less than a couple of meals a week, my anemia worsens.
  54. Replies
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    Levaquin is very similar to Cipro (same drug...

    Levaquin is very similar to Cipro (same drug class) and it is recommended that PWMS not take that class of drug (fluroquinolones) as it induces a relapse in 1 out of every three people with active MS...
  55. Replies
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    5,948

    My catheters are lubricated. I now use...

    My catheters are lubricated. I now use Speedicath by Coloplast. They are the size of a lip gloss and easily go in a pocket or purse and no one knows what they actually are. My Dr (neuro, PCP,...
  56. Thread: News re jeanie

    by Cherie
    Replies
    47
    Views
    1,796

    Rose, What a sweet and faithful response! Thank...

    Rose,
    What a sweet and faithful response! Thank you. Please know that many of us (Jeanie included) feel like you are extended family and hold you regularly in our thoughts and prayers. We care!
  57. Replies
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    You cannot cath without pulling down your pants. ...

    You cannot cath without pulling down your pants. It may be that there was an indwelling catheter in place that was clamped off and could be unclamped and the bladder emptied.
    I was scheduled to...
  58. Thread: Phones

    by Cherie
    Replies
    29
    Views
    879

    They are up to iPhone 10 now so these are older...

    They are up to iPhone 10 now so these are older technology and likely refurbished. If new, they may do well but even at this price are well over the cost of the android smart phones we have...
  59. Thread: News re jeanie

    by Cherie
    Replies
    47
    Views
    1,796

    Jim was on speaker phone with her when we spoke...

    Jim was on speaker phone with her when we spoke the other day. He has seen all of the X-Rays and said initially the picture was of shattered bone with many pieces. The last X-Ray a couple of weeks...
  60. Replies
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    I cathed for years with no infections resulting. ...

    I cathed for years with no infections resulting. It is a clean, not a sterile procedure. Wash your hands, open the catheter and insert and empty. Far fewer UTIs when the bladder is fully emptied. ...
  61. Thread: Phones

    by Cherie
    Replies
    29
    Views
    879

    iPhones start at around $700 each unless you buy...

    iPhones start at around $700 each unless you buy into a plan where you pay for it over time on your monthly bill. My daughter got an iPhone 2 years ago after years with Android smart phones so that...
  62. Replies
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    5,948

    The nasal spray being used is Flonase. Singulair...

    The nasal spray being used is Flonase. Singulair is not something I would suggest except as a final option after all else has been tried. It took us 2 years to find the right combo of...
  63. Replies
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    Rose, I called Jeanie Z today and she...

    Rose,
    I called Jeanie Z today and she specifically asked me about you and Jim. She is concerned and wants you to know that you are in her daily prayers. Just wanted to let you know.
  64. Thread: News re jeanie

    by Cherie
    Replies
    47
    Views
    1,796

    Spoke with Jeanie at length this afternoon. She...

    Spoke with Jeanie at length this afternoon. She is making progress. Jim was there and we had a three way conversation. It does not look like she will be back reading or posting until she is able...
  65. Replies
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    5,948

    Macy's has a plain old Black and Decker Toaster...

    Macy's has a plain old Black and Decker Toaster oven (not convection) for about $30.

    My sister Jean (the one who lives near me of the 6 sibs) (the one with the brain tumor) fell today and broke...
  66. Thread: News re jeanie

    by Cherie
    Replies
    47
    Views
    1,796

    I just checked and I have Jeanie's mailing...

    I just checked and I have Jeanie's mailing address and email but I can't find her ph # altho' I know I have called it before when we were in Hollywood and met her for lunch at the Cheesecake factory...
  67. Replies
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    5,948

    Who is grumpy cat? ANN, great news on both the...

    Who is grumpy cat?

    ANN, great news on both the MRI and decreased injections.

    Brother Neil now has 7 day a week nurses for dressing changes and has moved to a daily IV antibiotic from the every...
  68. Thread: Speech

    by Cherie
    Replies
    44
    Views
    1,063

    I find that when I am tired (on a travel day or...

    I find that when I am tired (on a travel day or strenuous prep day for a get together) I have to talk around a subject to find my words. It is not easy. Especially as I age into true "older...
  69. Replies
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    Thoughtlessness was stated , not about an...

    Thoughtlessness was stated , not about an individual's words, but about the way we take our environment for granted and do not think about how we waste. Sorry if you mistook the meaning.
  70. Replies
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    5,948

    Thank you all. He does need a nursing home and...

    Thank you all. He does need a nursing home and all of us but Neil agree to that. He is living well below the poverty level for income but Medicaid would cover the care. He will not let someone...
  71. Replies
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    Folks, if you don't mind, I could use some space...

    Folks, if you don't mind, I could use some space to vent about my birth family. None can see my words here which is mightily important right now.

    Baby Brother Neil has always been difficult. I...
  72. Replies
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    ANN, Sounds like you have seen some results but...

    ANN,
    Sounds like you have seen some results but have not yet had the chance to fully discuss with your Dr or maybe not fully process the implications. I am grateful some of the worst things have...
  73. Replies
    5
    Views
    229

    Pollution does kill. And thoughtlessness does as...

    Pollution does kill.
    And thoughtlessness does as well.
    Time to be mindful.
  74. Thread: News re jeanie

    by Cherie
    Replies
    47
    Views
    1,796

    I am grateful that Jeanie is able to be home on...

    I am grateful that Jeanie is able to be home on her terms and is happier than she was in rehab. Our Church is huge, very active, and has lots of volunteers for things like lawn care and grocery...
  75. Replies
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    324

    I use Benadryl only rarely now as it raises my...

    I use Benadryl only rarely now as it raises my BP. Maybe Howie that is one of the underlying causes of your high blood pressure. Does your doc (or NP) know about the long term benadryl use?

    I...
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