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  1. Replies
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    Hi Rose, No worries! To answer your...

    Hi Rose,

    No worries! To answer your questions, yes Apple should totally be able to help you. You may have to order a small white attachment to connect the ethernet to the laptop but it can be...
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    Hi Rose, Thanks for the COVID19 info. Re:...

    Hi Rose,

    Thanks for the COVID19 info. Re: Chicken. Chicken when it is by itself is one of the blandest, easiest meats to have digested which is why vets put dogs on chicken and rice diets when...
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    Hi Rose, I ABSOLUTELY ADORED “A Beautiful Day...

    Hi Rose,

    I ABSOLUTELY ADORED “A Beautiful Day In The Neighborhood” when I saw it in theaters! Fred Rogers has the compassion and patience I wish I had! Watching the film brought back so many...
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    Hi Rose, Thanks for the update! I just saw this...

    Hi Rose,
    Thanks for the update! I just saw this "lockdown" news on TV and immediately thought of you and Jim and your friends. I would think some deliveries will continue. Perhaps just delivered...
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    Hi Rose, Thanks so so much for your concern!...

    Hi Rose,

    Thanks so so much for your concern! I really appreciate it! I think I have been on this forum since 2009 but I’m not even sure anymore LOL. You are right. It depends on the Cerebral...
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    Hi Rose, I’m so sorry if this article scared...

    Hi Rose,

    I’m so sorry if this article scared you for my safety. I’m perfectly healthy aside from the CP itself. It is my understanding that folks with CP are not that super super high risk...
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    Hi Mary Grace, Yes, stroke is one of the risks...

    Hi Mary Grace,
    Yes, stroke is one of the risks so I posted this same link on the stroke forum here. The virus is much more dangerous to my teacher friend with the stroke, as he is somewhat...
  8. Ableist murderer in Japan sentenced to death...

    Ableist murderer in Japan sentenced to death penalty https://www.japantimes.co.jp/news/2020/03/16/national/crime-legal/japan-verdict-sagamihara-murder-disabled/#.XnAzYS2ZNmA May this evil (bleep) rot...
  9. Thanks for the heads up! What do I do if I have...

    Thanks for the heads up! What do I do if I have trouble signing in to the new version of BT??? Let me know???
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    Stroke is major risk for COVID19

    Stroke Survivors at major risk of contracting and having complications of Coronavirus particularly if they are already diabetic...
  11. Replies
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    Cerebral Palsy is COVID19 risk

    Cerebral Palsy listed as CDC risk for Coronavirus...
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    Hi Rose, I agree with everything you wrote....

    Hi Rose,

    I agree with everything you wrote. Disney in CA is closed now last time I checked. As for Tom Hanks, I believe one of my local news outlets mentioned that Tom Hanks is immune compromised...
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    My guess is people think we will end up like...

    My guess is people think we will end up like Italy and stuck inside without any way to wipe our bums. Colleges in NYC are shut down now too...
  14. Replies
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    Yes this is the story about CUNY and SUNY....

    Yes this is the story about CUNY and SUNY. https://www.nydailynews.com/new-york/education/ny-cuny-suny-classes-coronavirus-20200311-f65rooi5vrflphblcun5y7yuym-story.html All my work is either online...
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    Thanks so much!!! I wear a watch too but use the...

    Thanks so much!!! I wear a watch too but use the time on my phone to reset it. iPads should reset like computers do but I do not own an iPad so I have no idea for sure.
  16. You're very welcome!! Um swallowing issues would...

    You're very welcome!! Um swallowing issues would show up during eating so I don't know why they would say its rare. Does he stutter, stammer, slur words or drool? Those can be signs of physical...
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    On which day? Sunday? Luckily my phone changes...

    On which day? Sunday? Luckily my phone changes automatically so I just re set everything to the time my phone is on LOL.
  18. Sorry it took me so long to respond to this....

    Sorry it took me so long to respond to this. Looks to me like there's something in his field of vision. It looks like what my friend who has a stroke and glaucoma does right before he starts to feel...
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    I had never heard of this film and will recommend...

    I had never heard of this film and will recommend to a friend who loves French movies.
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    I generally think ending political discussion...

    I generally think ending political discussion here is the better option. I think the people who discussed politics here did it very respectfully though so well done to us. My apologies if anything I...
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    The corona Virus spreading made me worry for you...

    The corona Virus spreading made me worry for you and Jim so much too. I would have to basically stay home all the time if it hits here.
  22. Old Neuro is so annoying. So Sorry old Neuro...

    Old Neuro is so annoying. So Sorry old Neuro refuses to explain anything of value. Glad EEG was normal though.
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    I don't mean to scare you but this definitely...

    I don't mean to scare you but this definitely sounds like a nervous system problem, and honestly it sounds like your son may be having strokes or mini strokes. All I could think of when I read this...
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    Awesome! So pretty!!!

    Awesome! So pretty!!!
  25. Hi Lost Parent, How are you? How are the boys?...

    Hi Lost Parent,

    How are you? How are the boys? I’m glad he’s only had one seizure, that seems like a big improvement! The wording of that is extremely confusing. It would seem to me that they mean...
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    BEAUTIFUL! Glad Kathleen had such a blast!

    BEAUTIFUL! Glad Kathleen had such a blast!
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    Happy Valentines Day BT!

    Happy Valentines Day BT!
  28. Replies
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    Thank you so much for your prayers Rose! He's...

    Thank you so much for your prayers Rose! He's doing okay but I'm still paranoid about his health. So sorry for the set back with Jim. Perhaps something about Jon's bed is causing gas. Can Jim sit in...
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    YES! YES! AMEN! I think if simple accommodations...

    YES! YES! AMEN! I think if simple accommodations are made STEM could make such great progress with disabled scientists at the helm. Disabled people are surrounded by STEM our whole lives and in the...
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    Rose, Neat article about the state of Disability...

    Rose,
    Neat article about the state of Disability depiction in movies that just came out...
  31. Replies
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    Hi Rose, Yes the same is true for me with...

    Hi Rose,

    Yes the same is true for me with BMs. I have to eat to “go”. I’m so sorry Jim has a UTI. But so so glad the bed ladder worked out!!! Yay!

    Update on my diabetic friend in case you are...
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    I completely agree on every level! You're very...

    I completely agree on every level! You're very welcome!
  33. Replies
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    Hi Rose, I’m so glad the overall depiction of...

    Hi Rose,

    I’m so glad the overall depiction of disability was decent as that is the most important thing at the end of the day. I was so glad to see your opinion. Thank you so much to both you and...
  34. Replies
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    Hi Rose, I think moving Jim into Jonathan’s...

    Hi Rose,

    I think moving Jim into Jonathan’s room was absolutely the right thing to do! GREAT THINKING! I’m sure being in Jonathan’s bed will help Jim’s bones and joints and he gets to feel closer...
  35. Replies
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    Hi Rose, I'm glad Jim is doing better. Is it...

    Hi Rose,

    I'm glad Jim is doing better. Is it possible to sign Jim up for a wheelchair transport service like we have in my city if Jim ever needs it? Lots of cancer patients use it here. Would...
  36. Replies
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    Hi Rose, Huge HAPPY HAPPY BIRTHDAY wishes to...

    Hi Rose,

    Huge HAPPY HAPPY BIRTHDAY wishes to wonderful Jim!!! So glad he got to have this birthday!!! Especially with you! I’m so glad Jim is starting to feel better! You rock Jim!

    Thanks so...
  37. I'm all for new science and technology but this...

    I'm all for new science and technology but this is far from being ready for use.
  38. Replies
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    Hi Rose, I’m so sorry Jim was weak and had so...

    Hi Rose,

    I’m so sorry Jim was weak and had so much anxiety as he left the house but I’m so glad John was there when Jim needed him and that the transfusion appears successful. I’m so sorry the...
  39. Replies
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    Hi Rose, So Sorry Jim needs the transfusion....

    Hi Rose,
    So Sorry Jim needs the transfusion. Good luck and my prayers. The thing that I got yelled at for was a schedule thing that they messed up but blamed me for. I removed myself from that...
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    Weed use and stroke risk

    marijuana use and stroke study https://www.yahoo.com/lifestyle/heavy-weed-use-linked-to-higher-risk-of-stroke-in-young-people-says-new-study-005307634.html
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    Thank you so much! It worked!

    Thank you so much! It worked!
  42. Replies
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    The fact that they didn't see the blood result...

    The fact that they didn't see the blood result for an entire week is disturbing. Perhaps the lab made an error and not Dr K himself? That's happened to me. I feel your frustration because I'm in...
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    Ow! That's awful. I had a teacher once with a...

    Ow! That's awful. I had a teacher once with a similar problem. She would have to pull over and throw up on the way home too. She said her horrendous migraines made her more likely to have a stroke...
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    I certainly read your political posts agate. I...

    I certainly read your political posts agate. I just talk about politics so often when I'm NOT online that I may not have anything to add to the discussion because my politics quota in my brain is...
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    Stayed home. Ate lots of food. Found out some of...

    Stayed home. Ate lots of food. Found out some of my friends get hyper when drunk...LOL. Nothing new really. Happy New Year to Everyone at BT!
  46. Replies
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    So sorry about the rash Rose! Just wanted to let...

    So sorry about the rash Rose! Just wanted to let you know I told my family about Jonathan and Michael as we were celebrating tonight and they told me to tell you they were sad your precious children...
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    Merry Christmas! My plans are just spend time...

    Merry Christmas! My plans are just spend time with family, open gifts and eat.
  48. Replies
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    Hi Rose, You’re very welcome! Thanks! I’m...

    Hi Rose,

    You’re very welcome! Thanks! I’m sorry you are tired and unable to accomplish what you wanted. Excuse me if we discussed this in the past, but my blind friends use their iPads completely...
  49. Any surgery has risk. Even the most simple one.

    Any surgery has risk. Even the most simple one.
  50. Replies
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    Hi Rose, Thanks! If you ordered John’s gifts...

    Hi Rose,

    Thanks! If you ordered John’s gifts via amazon I think they will get there in the nick of time but I also know that John is the type of friend who wouldn’t care if he got the gift on...
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    You’re welcome! Thanks Rose! For once I’m pretty...

    You’re welcome! Thanks Rose! For once I’m pretty on track with my gifting schedule for Christmas. I usually send gifts late LOL. Thanks so much for answering my question. I was just curious. Just...
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    View Post

    Hi Rose,

    Iím so SO sorry the DNR talk has to happen at all, but since it has to happen Iím glad you are addressing it early enough that Jimís wishes are made clear. You wouldnít want an outside...
  53. Very true.

    Very true.
  54. I'm so glad your husband's foot was saved. You...

    I'm so glad your husband's foot was saved. You never know how you feel about surgery or disability until it happens. My friend who is diabetic had eye surgery age 64. I know it's more risky for...
  55. Keep an open mind that when the time comes you...

    Keep an open mind that when the time comes you may want a surgery. Sometimes people don't realize that they want a treatment or to live with a certain condition/disability until it actually happens....
  56. Very interesting. The questions they mentioned...

    Very interesting. The questions they mentioned seemed like questions all patients should consider before having surgery, not just older patients. In my case I would rather be functional. It seems the...
  57. Replies
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    Thanks for the update Rose! When having "Big...

    Thanks for the update Rose! When having "Big Picture" talks remember how good Jim's blood work still is, and yet be realistic. Impossible Whoppers are vegan but they are not health food at all. One...
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    2 cute little kids with CP on Broadway

    2 of the cutest kids with CP I have ever seen https://twitter.com/NBCNightlyNews/status/1205978269893320704 in a Broadway show.
  59. I don't know anything about MS but I do know the...

    I don't know anything about MS but I do know the left side of the brain is considered to be the side that controls speech. Speech is a complicated function because you have to process it to...
  60. Tamie, I'm so sorry to hear about this! How...

    Tamie, I'm so sorry to hear about this! How heartbreaking for Helene. Prayers to her!

    Thanks for adding Heather to the list Rose.
  61. Replies
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    You're very welcome Rose! Anything for you dear!...

    You're very welcome Rose! Anything for you dear! I'm so sorry about the black stool and Dr visit fatigue. That totally sucks. I would come socialize with you and Jim to keep you company if I could. I...
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    Happy Birthday!!!

    Happy Birthday!!!
  63. Replies
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    I lit a candle for your boys last night Rose, as...

    I lit a candle for your boys last night Rose, as promised. I have never seen frozen rice before. I learned how to cook "Forbidden Rice" in a pot for 50 mins. It's healthier. Saffron rice is wonderful...
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    Thanks for the update Rose! When I saw Jonathan's...

    Thanks for the update Rose! When I saw Jonathan's name on the Angel list I cried for you. I promise I will light a candle for Jonathan and all the others. Ah yes the "what to gift to who" feeling....
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    Welcome back! I probably wasn't here the last...

    Welcome back! I probably wasn't here the last time you were part of the group. I have Cerebral Palsy which is a bit like a stroke and I wrote a film based on a teacher friend of mine who survived a...
  66. Hi Lost Parent, Thanks so much for the...

    Hi Lost Parent,

    Thanks so much for the update! It really bothers me when doctors like your current neurologist can’t admit when they are wrong. Yes.Please, please go with the new neurologist who...
  67. Replies
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    Happy Thanksgiving Rose! Your thanksgiving dinner...

    Happy Thanksgiving Rose! Your thanksgiving dinner sounds fabulous! I was with my family but we had meat Turkey instead of Tofurkey this time.
  68. So Sorry for my delay in posting as well. While...

    So Sorry for my delay in posting as well. While I'm not happy your son has focal seizures I'm glad you are finally getting somewhere with figuring out what your son needs. That is definitely...
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    Happy Thanksgiving to all at BT!!!! ...

    Happy Thanksgiving to all at BT!!!!

    houghchrst, I learned that in PT too!
  70. Wow!!! I have heard stories like this before on...

    Wow!!! I have heard stories like this before on "Animal Planet" channel and will be sure to have a chip made for my pets when I have pets again. Thanks so much for sharing!
  71. Replies
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    Hi Rose, So sorry for my delay in replying. I...

    Hi Rose,

    So sorry for my delay in replying. I was busy traveling and working. Congrats to Jim on radiation “graduation”! I love that Jim got a “graduation certificate”. Again I love your waiting...
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    Something like this could save the lives of...

    Something like this could save the lives of people with strokes. Awesome! I wonder if a scan like this could diagnose Cerebral Palsy.
  73. I'm sorry for my delayed reply. Like Rose said,...

    I'm sorry for my delayed reply. Like Rose said, I'm so so sorry your son has seizures and I'm so so very sorry the first Neurologist completely ignored what seemed pretty obvious, to even someone who...
  74. This is a cool article. Because I have Cerebral...

    This is a cool article. Because I have Cerebral Palsy many others have shared about their disabilities and chronic conditions with me and this has led to some of my deepest friendships so I am always...
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    I'm so sorry to hear of the blood in Jim's urine!...

    I'm so sorry to hear of the blood in Jim's urine! I pray that goes away ASAP!!! But I'm so touched by hearing more stories of the beautiful folks at the treatment center and I'm so glad Dr S is a...
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