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  1. Use it on forehead?

    Use it on forehead?
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    The swimming aggravated my back problem to the...

    The swimming aggravated my back problem to the point I wasnt able to walk on one leg about 10 days ago. So, I stopped doing that, rested days, then started up by ďswimmingĒ 10-12 minutes 4 times this...
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    On my SPS forum, when I post something new on a...

    On my SPS forum, when I post something new on a thread, or start a thread, the count immediately rises usually. Although this past week, the count remains at 30 and hasnít dropped despite my poor...
  4. Worth asking about. There may be a type that is...

    Worth asking about. There may be a type that is formulated so as to not harm eye if stray amount gets there? Or try it on a very small patch of the burning area first? Or is it on the eyeball, not th...
  5. This happened to my good friend with cancer. She...

    This happened to my good friend with cancer. She went in due to a large lump. Big city Doc didnít do any testing other than manual exam and said, donít worry, its a cyst. It turned out to be a deadly...
  6. In Men its Parkinsons. In women its hysteria

    https://www.propublica.org/article/in-men-its-parkinsons-in-women-its-hysteria

    I think a lot of us can relate here. 3 doctors told me it was stress...lazy doctoring.

    It happens to men too, but...
  7. View Post

    https://www.propublica.org/article/in-men-its-parkinsons-in-women-its-hysteria

    Boy do I see myself in this article. You?
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    Great job ******. I have been doing a lot of...

    Great job ******. I have been doing a lot of walking around the house on Ativan
  9. She is a very caring person and has taking a...

    She is a very caring person and has taking a liking to me as a patient because she is also a surfer and also lived where I had lived.

    I tried the cream last night immediately the moist skin begin...
  10. Gabapentin Cream , ointment or lotion compounded

    So, I went to the GYN due to all kinds of pain, itching pressure sensations . Exam showed no signs of infection or yeast, although she did do a culture today. All tissues looked healthy on exam....
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    I am sorry I have been MIA: lots of medical...

    I am sorry I have been MIA: lots of medical issues. Seems like I spend a lot of time on the phone with doc offices trying to communicate, waiting for phone backs, back and forth blah blah blah. On...
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    Kittyanne: I am intrigued by the pump. What are...

    Kittyanne:
    I am intrigued by the pump. What are the downsides to it?
    Any concern about infection.
    Can you swim in a pool with it?
    Could I surf in the ocean with it, lying down on the board.
    What...
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    Baclofen is longer acting, and you cannot just...

    Baclofen is longer acting, and you cannot just stop it once you are on higher doses. You have to gradually reduce it.

    I started on low doses of each one when I first began to have spasms 2 years...
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    Welcome bburk64... My friend had to use the pump...

    Welcome bburk64...
    My friend had to use the pump due to very very high Baclofen levels created bad side effects. It was better than using the pills, but he had issues: when they did the procedure ,...
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    I am not doing so well, at all. Continued pain...

    I am not doing so well, at all.
    Continued pain in the urogenitary tract (sp) whether urinating or not. Trying all kinds of remedies.
    Thats the easy part.
    Awoke last week unable to stand at all on...
  16. So glad you both made it home...very glad.

    So glad you both made it home...very glad.
  17. Laz, this is very upsetting. Are you too far away...

    Laz, this is very upsetting. Are you too far away to go back to where John is?..Will they talk with you on the phone?
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    View Post

    Thank you for your ideas. If the VNA doesnít work out, theses are other things to try. My area is rural, so the options are not going to be too vast.
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    How do you get a driver

    I need another source for a driver on days I cannot drive, or I can drive, but the parking is way too far from the buildingís wehhlchairs. I am unable to lift my chair out of my small car...

    I...
  20. Bless you Ikoiko for helping Laz out!! I hope you...

    Bless you Ikoiko for helping Laz out!! I hope you stay and post moreó !
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    The IVIG went very well. As we approached the...

    The IVIG went very well. As we approached the only access to the highway to go, the entire highway was blocked off. WE thought maybe due to flooding but at night we found out it was shut down becasue...
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    I am having a significant health event. I might...

    I am having a significant health event. I might be thin around here for several days...not to worry. Could end up in a health care facility. Or not. Also, supposed to get IVIG all day tomorrow and...
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    I am having a significant health event. I might...

    I am having a significant health event. I might be thin around here for several days...not to worry. Could end up in a health care facility. Or not. Also, supposed to get IVIG all day tomorrow and...
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    I think we all have different levels of comfort...

    I think we all have different levels of comfort in terms of what we put on the forum. I tend to be more worried about what is in the digital world than someone else might feel. So worried about cyber...
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    Today I swam 800 yards, 23 minutes. Felt pretty...

    Today I swam 800 yards, 23 minutes. Felt pretty good. ... cooking and resting today...
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    Today I swam 800 yards, 23 minutes. Felt pretty...

    Today I swam 800 yards, 23 minutes. Felt pretty good. ... cooking and resting today...
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    Here is an article today from NYT on Surfing,...

    Here is an article today from NYT on Surfing, written by a severely disabled woman , could be anyone of us actually:


    The Surferís Secret to Happiness
    They donít seem to regret all that time...
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    meant to post this link on Surfing with MS...

    meant to post this link on Surfing with MS virtual reality. Trusty Scout Agate saw link wsnít there...OOPS

    https://m.youtube.com/watch?v=T_VUJUBIpQ4
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    Today I swam 800 yards in 23 minutes. Lots of...

    Today I swam 800 yards in 23 minutes. Lots of pain before the swim, but swam anyway...
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    Today I swam 800 yards in 23 minutes. Lots of...

    Today I swam 800 yards in 23 minutes. Lots of pain before the swim, but swam anyway...
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    Love dis 2 minute clip of surfing with virtual...

    Love dis 2 minute clip of surfing with virtual reality. Both men in the video haveMS. The younger one, Robert weaver, aka WIngnut, no longer can compete, but he still can surf and teach surfing etc.
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    I am making my favorite and easy dish today: It...

    I am making my favorite and easy dish today: It is walnut encrusted fish. So easy to make, so delicious. Living in Florida, we can get fresh fish right off the boat at the fish market.

    Today will...
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    In many states, someone can call the DMV and ask...

    In many states, someone can call the DMV and ask them to recall the driver for a driver exam. They keep it an anonymous. My sister had to do that for my father. He wasn’t driving much anyway. But it...
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    You def got in some walking today Virginia....

    You def got in some walking today Virginia.
    Today I took an ativan for pain and spasm relief after a tough several days of spasticity. Itís nice to be able to walk, despite, the drugged up feelingó...
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    I swam 800 yards in 24 minutes today. About to...

    I swam 800 yards in 24 minutes today. About to cook dinner. Resting a lot..
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    I swam 800 yards in 24 minutes today. About to...

    I swam 800 yards in 24 minutes today. About to cook dinner. Resting a lot...
  37. Happy Birthday...

    Happy Birthday Nuthatch!*boogie*gift*mm1*mm2*sparkle
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    Howie, I am really glad to hear you will be able...

    Howie, I am really glad to hear you will be able to get out and live a little.
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    Wish I could wake up later. The disease makes it...

    Wish I could wake up later. The disease makes it hard to stay asleep past about 3:30am ish....
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    Such interesting family posts. Glad Howie is...

    Such interesting family posts.
    Glad Howie is okay.
    Glad Agate found a way out of her building
    Virginia, that sounds miserable. Hoping restarting the neurotin will help.
    Hello Rose..I read your...
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    Today I swam 22 minutes 800 yards, right after...

    Today I swam 22 minutes 800 yards, right after watching the space launch around 6:30am from my back yard. So much of Florida can see these launches. You can see it north of WPB, in Orlando, in...
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    Today I swam 22 minutes 800 yards, right after...

    Today I swam 22 minutes 800 yards, right after watching the space launch around 6:30am from my back yard. So much of Florida can see these launches. I bet Jeanie can in WPB: they arc to the south as...
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    Good Job Ann. The problem will be that if you...

    Good Job Ann.
    The problem will be that if you plant food for self, there will be gangs of hungry people at your home. So, either be ready to lose all your stores of food, or arm yourself (which it...
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    https://wwl.radio.com/articles/louis...l-pot-produ...

    https://wwl.radio.com/articles/louis...l-pot-products

    https://www.nola.com/news/healthcare...996ca6444.html

    These are articles about MMJ and its use for medicinal reasons. They use the example...
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    https://wwl.radio.com/articles/louisiana-patients-...

    https://wwl.radio.com/articles/louisiana-patients-hopeful-about-legal-pot-products

    https://www.nola.com/news/healthcare_hospitals/article_c3286750-b890-11e9-b600-c36996ca6444.html

    These are...
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    Jeanie, that is so fantastic!!! And,...

    Jeanie, that is so fantastic!!! And, inspirational :)

    We had that storm too. It was unreal!
    I read an article in the paper that said lightning exploded a Florida Womanís toiletó it struck the...
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    Today I swam 22 minutes, 800 yards in a cold 79F...

    Today I swam 22 minutes, 800 yards in a cold 79F pooló all that rain chilled down the pool. I had a brief spasm at 3 am, 4 hours before the swim. I just wanted to get into the pool, so I put aside...
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    Today I swam 22 minutes, 800 yards in a cold 79F...

    Today I swam 22 minutes, 800 yards in a cold 79F pooló all that rain chilled down the pool. I had a brief spasm at 3 am, 4 hours before the swim. I just wanted to get into the pool, so I put aside...
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    So glad all is well Cat. Better than well! Two...

    So glad all is well Cat. Better than well!
    Two new cats for you and TCó double trouble, double blessings!
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    That sounds like a great goal Jeanie :) Would...

    That sounds like a great goal Jeanie :) Would Andy be able to take you?
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    But 10 days is a long time...

    But 10 days is a long time...
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    Oh Laz, Thank you so much for sharing this....

    Oh Laz,
    Thank you so much for sharing this.
    More than a witness are you...
    You are a central figure in so many of the lives you touch...
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    View Post

    Where is Cat?
    Did I miss something?
    Havenít seen her for about 10 days...
  54. Replies
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    So, as I said before, I had a most excellent surf...

    So, as I said before, I had a most excellent surf adventure Saturday. Came home, still on ativan, so I was walking without a problem and zero pain. Like before SPS came to live in me. So, I was...
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    There is so much hate right now. And I see it...

    There is so much hate right now. And I see it spilling over in to people who usually were not hateful. ...

    So, as I said before, I had a most excellent surf adventure Saturday. Came home, still on...
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    https://www.dailymail.co.uk/news/article-7321053/I...

    https://www.dailymail.co.uk/news/article-7321053/It-saved-life-Calls-cannabis-legalised-Australia.html
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    https://www.dailymail.co.uk/news/article-7321053/I...

    https://www.dailymail.co.uk/news/article-7321053/It-saved-life-Calls-cannabis-legalised-Australia.html
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    https://7news.com.au/sunday-night/medical-cannabis...

    https://7news.com.au/sunday-night/medical-cannabis-debate-australians-left-in-pain-by-expensive-and-limited-access-to-drug-c-378990
  59. Replies
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    Ok. That makes sense. So there is some light at...

    Ok. That makes sense. So there is some light at the end of the tunnel? How many more days?
  60. Replies
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    Oh man ANN. How demoralizing for your mom. And...

    Oh man ANN. How demoralizing for your mom. And scary. Was it a premature release, or did she indeed seem stable enough?
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    Hi Helen, Welcome home :) Doctors are often a...

    Hi Helen,
    Welcome home :) Doctors are often a source of stress in their dismissiveness, lack of curiosity etc.
  62. Replies
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    An hour after taking an Ativan early morning, I...

    An hour after taking an Ativan early morning, I went surfing with my crew. The Wheelchair was there as planed for!
    I lasted two hours surfing until the stiffening began to creep in. So, I got plenty...
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    An hour after taking an Ativan early morning, I...

    An hour after taking an Ativan early morning, I went surfing with my crew. The Wheelchair was there as planed for!
    I lasted two hours surfing until the stiffening began to creep in. So, I got...
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    Today I swam 800 yards in 22 minutes. Then the...

    Today I swam 800 yards in 22 minutes. Then the skies opened up anyway. I checked my raised porch planters as they have a water well underneath it at the bottom of the box. (From SAMs CLub) The gauge...
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    Thatís amazing ANNó how are you able to do so much walking?

    Today I swam 800 yards in 22 minutes. Then the skies opened up anyway. I checked my raised porch planters as they have a water well...
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    Today i swam 22 minutes, 800 yards. Rested....

    Today i swam 22 minutes, 800 yards. Rested. Cooked supper. Resting.

    Might surf Sat depending on lightning and wheelchair availability.
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    That fungus and Johnís sound amazing!

    Agate, can you wear ear plugs or headphones? I wear headphones at public places as certain noises like radios trigger spasticity, It doesnt eliminate the...
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    Today i swam 22 minutes, 800 yards. Rested....

    Today i swam 22 minutes, 800 yards. Rested. Cooked supper. Resting.

    Might surf Sat depending on lightning and wheelchair availability.
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    Nice job agate! TY Ann. I want to try the ones...

    Nice job agate!

    TY Ann. I want to try the ones tat wont trigger shin spasms.

    Today i swam 22 minutes, 800 yards. Rested. Cooked supper. Resting.

    Might surf Sat depending on lightning and...
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    That is excellent news ANN! Virginia, I hope...

    That is excellent news ANN!

    Virginia, I hope you feel better soon. If you have ginger it settles the stomach...My doc also said Red Bell Pepper does the same. Ginger works fast: you just chew on...
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    I plan to go surfing Saturday if there is no...

    I plan to go surfing Saturday if there is no lightning. If we get skunked by lightning, will go out for a beachside brunch with DH instead....I Have started the packing: The car seats are...
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    Keep on Moving Thread: August 2019

    MS creates some real challenges to keep on moving. It helps to inspire each other on how to find ways to move.

    Did you stretch in your bed, swing your arms, roll side to side today? Or perhaps...
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    What type of exercise do you do to build up your...

    What type of exercise do you do to build up your seat muscles?
  74. Replies
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    Today I swam 1/2 mile in 25 minutes. That last...

    Today I swam 1/2 mile in 25 minutes. That last minute was unwise. Will be more careful. And forgot to take my asthma rescue inhaler, another mistake, but no consequences. Went to grocery store, baked...
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    Today I swam 1/2 mile in 25 minutes. That last...

    Today I swam 1/2 mile in 25 minutes. That last minute was unwise. Will be more careful. And forgot to take my asthma rescue inhaler, another mistake, but no consequences. Went to grocery store, baked...
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