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  1. It's been forever, hi to all I know. Please ask your dr about this!

    Hi to all I know, sorry for being a stranger! If you don't remember fmy story and all my "issues" I am panhypopituitary, csf leak, hydrocephalic and MS. Hopefully thats all. In 2003 I was prescribe...
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    Mike, I know how you feel... I need a vacation. I...

    Mike, I know how you feel... I need a vacation. I am a second year nursing student... I guess I couldn't get enough of hospitals...
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    No, the headache is unmistakable.. I really hope...

    No, the headache is unmistakable.. I really hope a leak isn't your problem...
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    I use something called a "Walk Aid" it is an...

    I use something called a "Walk Aid" it is an electric device that stimulates the nerve to lift your foot every time u lift your heel... It was developed in Alberta and is in trials... I have one,...
  5. Hi, as with any concerns about children, if it...

    Hi, as with any concerns about children, if it concerns you get it checked out. It's better to say "well I just wanted to make sure "and get a negative result than to say " I should have" and find...
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    I was wondering what happened to all of the...

    I was wondering what happened to all of the former members, I wonder if the issue is that Brain Talk seems to move a lot and people may have difficulty finding it or finding their old Brain talk...
  7. I'm sorry your leak wasn't resolved.. however I...

    I'm sorry your leak wasn't resolved.. however I have seen posts about headaches after the leak being resolved. Some think it's from our bodies adjusting the amount of CSF it creates to compensate for...
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    Hi, I'm glad you found this place.. unfortunately...

    Hi, I'm glad you found this place.. unfortunately the posting on the forums has declined greatly since the move/update... I wonder if the old site is still going.. Thank you for your kind words, I...
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    I know that often there is a lot of blood loss...

    I know that often there is a lot of blood loss during this surgery however I have no personal experience with it. Have you and your family been asked to donate blood if you are indeed a match? If not...
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    Thank you and good luck... I hope they figure it...

    Thank you and good luck... I hope they figure it out for you... however I have been on hydromorph contin 24mg bid...( 2 x per day) for 9 years and it hasn't brought on any mysterious head aches. I...
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    what is your ICP? ( intracranial pressure?) I...

    what is your ICP? ( intracranial pressure?) I often wonder if our pressure raises because it is trying to equalize the ICP in the presence of a CSF leak and once the leak is healed the pressure...
  12. Thread: Frustrated

    by dagaz
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    4,052

    Many of us have tried to "see" if we are leaking....

    Many of us have tried to "see" if we are leaking. If your leak "stops" suddenly do NOT try and force it out. Our bodies have a way of trying to repair themselves, let it... don't test to see if your...
  13. Thread: Frustrated

    by dagaz
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    4,052

    First of all Hi, all leaks are from tears in the...

    First of all Hi, all leaks are from tears in the Dura or membrane as you put it. They can be very frightening... My advice to you since your tear is obviously new. Rest as much as possible, no...
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    I had one for two weeks I think... I couldn't...

    I had one for two weeks I think... I couldn't stand up without switching it off. The pain was terrible however the lumbar shunt I had was to take pressure off of my surgery/leak sites which are/were...
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    :frown: double post sorry:moody:

    :frown: double post sorry:moody:
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    Hey Keltie, good to see that your still lurking...

    Hey Keltie, good to see that your still lurking around. I am too...
    :single_eye:
  17. Thread: spasticity meds?

    by dagaz
    Replies
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    Hey Meow, Meow... how are you... it's been a long...

    Hey Meow, Meow... how are you... it's been a long time. Sorry your having more issues... I try to avoid thinking or talking about my MS as it seems to be worse any time I do. I have a prescription...
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    Happy new year... and positive thoughts of NO...

    Happy new year... and positive thoughts of NO shunt failures!!!
  19. Thread: Hello

    by dagaz
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    Hey Laz... good to know I'm not the only one...

    Hey Laz... good to know I'm not the only one M.I.A....
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    Hi guys, I'm still kicken around...

    I just wanted to say Hi....
  21. We must take the time to remember all lost on DEC14,2012

    What a sad sad day...
  22. I accidentally put on CNN this morning... cried...

    I accidentally put on CNN this morning... cried all day for all of the people affected. I'm in Canada and because the US is our neighbour it feels like it was at home. My love and prayers go out to...
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    Thanks guys I've noticed the pain behind my eyes...

    Thanks guys I've noticed the pain behind my eyes but thought that was one of my MS symptoms as Optic Neuritis is similar pain. I have a ct booked for the 4th ... I know great speed on that one hey?...
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    When your shunt is blocked....

    When your vp shunt is blocked where does the pain start?
    My pain has been off the charts again along with vomiting and severe pain... The pain seems to start at the back of my head... It went on...
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    Tiffany I'm going through much the same thing.....

    Tiffany I'm going through much the same thing.. today the headache is off of the charts... after my dh got home from work he said press your shunt reservoir see how long it takes to refill.. 20mins...
  26. I'm in Northern Alberta and here in Canada we...

    I'm in Northern Alberta and here in Canada we have the highest number of MS sufferers out of all surveyed countries... so the Theory about the lack of Vitamin D seems to make sense since our summers...
  27. Thread: Leaker Roll Call

    by dagaz
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    Sticky: Wow did Brain Talk slow down...snif*

    Wow did Brain Talk slow down...snif*
  28. Thanks guys... I haven't had a lot of luck with...

    Thanks guys... I haven't had a lot of luck with pregnancies in the past so I'm not getting my hopes up... Thanks for the link Lizard... I will let you guys know how it goes... So far the H.A.'s are...
  29. Scared.... I have hydro with VP shunt and I'm Pregnant..

    Yes complete shock because I am panhypopituitary but a change in my meds surged ovulation obviously... I'm a in my 40's and have read things about women needing shunt revisions because of hydro. Does...
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    Very Bad week-end...

    :apologetic: I woke up Monday morning with the feeling like a head ache was on the verge. My husband and I left his sister's place for a 5 hour trip home by the time I was in our vehicle the headache...
  31. I don't have any answers yet but I'm hoping soon....

    I don't have any answers yet but I'm hoping soon. Thanks... How are you?
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    I think you need to get to your NS asap.. it...

    I think you need to get to your NS asap.. it sounds like high pressure to me... I have hydro and a leak so I get both... low and high... obviously at different times. We should remember that this is...
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    Yeah it sounds like it possibly could be a leak....

    Yeah it sounds like it possibly could be a leak. AVOID lifting, Straining ( bathroom), blowing your nose, bending over etc, etc, etc.... First try to lay flat as much as possible, since your leak is...
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    I too have both... a leak and Hydrocephalus......

    I too have both... a leak and Hydrocephalus... you have a broken either shunt line or your shunt line connection to the reservoir or pump what ever it's called... I don't think I have ever known....
  35. Thread: Post-op Issues

    by dagaz
    Replies
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    So sorry about your complications

    :eek: I for one would get another opinion about your eye BULGING! For one this is your eye sight... Questions I would be asking... WHY ??? Doesn't that mean that something is applying pressure?...
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    I've been with BT since 2006 and I'm a newbie...

    I've been with BT since 2006 and I'm a newbie again... snif*
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    Hi and welcome... sorry that you find yourself...

    Hi and welcome... sorry that you find yourself here. I've been leaking since 1993 and have had 16 Brain Surgeries. I don't sleep either however I have a host of medical issues and when I am finally...
  38. Thanks guys...

    Thanks guys...
  39. Thread: Help please

    by dagaz
    Replies
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    Hey Leaky Laura... I hope you remember me... I'm...

    Hey Leaky Laura... I hope you remember me... I'm so sorry that your leak came back however it's good to hear from you even though it's not the best circumstances...

    Welcome back... Dagaz
  40. I was wondering if anyone else has had their growth hormone checked?

    I have numerous medical issues, I am panhypopituitary, SPMS, hydrocephalus, multiple brain surgeries and more... Well I went to my endocrinologist because even with SPMS I just felt something wasn't...
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    I would love to add my fur babies... but I can't...

    I would love to add my fur babies... but I can't remember how...sorry... anyone
  42. Thanks, I hate when we loose our distinguished...

    Thanks, I hate when we loose our distinguished member status... I been a member since 2006... A very long time...I'm fairly certain my shunt is partially blocked... It takes approximately 1-2 hours...
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    Your not going to like what I say or well you may...

    Your not going to like what I say or well you may like it.... to me it doesn't read like a csf leak. for one the salty fluid is like water unless mixed with mucus. I've been leaking since 1993. What...
  44. :confused: Sorry guys... what happened to the...

    :confused: Sorry guys... what happened to the signatures and how do I edit it?
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    I'm glad we're back... I love the new board!! :D

    I'm glad we're back... I love the new board!! :D
  46. Welcome everyone to our new home... ( off subject)

    Hi guys I'm glad were back... yah we all look like newbies but we know who we are.....:D
  47. Thread: Leaker Roll Call

    by dagaz
    Replies
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    24,515

    Sticky: Hi guys... still leaking... I think I'm one of...

    Hi guys... still leaking... I think I'm one of the longest leakers out there... I am thinking of giving up on Canadian NS and going to see Dr. Schvink... Any advice would be greatly appreciated... by...
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