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  1. Replies
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    ((((((Hugs to All)))))) ~ Thank you agate and...

    ((((((Hugs to All)))))) ~

    Thank you agate and Donna.

    Nancy visited today and the flush went well. Before she left, Jim asked me to ask Nancy to cut the canteloupe. She did. I gave Jim a...
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    ((((((Hugs to All)))))) ~ ((((((David)))))) ~...

    ((((((Hugs to All)))))) ~

    ((((((David)))))) ~

    You have taken on a big responsibility as BTís President, and I appreciate all of the effort you have put into rebuilding BT at your own expense. ...
  3. Replies
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    ((((((Hugs to All)))))) ~ Virginia ~ Yes,...

    ((((((Hugs to All)))))) ~

    Virginia ~

    Yes, it was great until today, when he was full with no appetite. I think he's filling up with fluid again. He's dehydrating again, because plain water...
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    ((((((Hugs to All)))))) ~ agate ~ What a...

    ((((((Hugs to All)))))) ~

    agate ~

    What a wonderful picture of you and William! I'm so happy for you that you had this great experience. Such beautiful memories were made on your expedition. ...
  5. ((((((David)))))) ~ Thank you so much for...

    ((((((David)))))) ~

    Thank you so much for your dedication and hard work on behalf of our BT family.

    I look forward to the new BT and many years of wonderful communication and support.
    ...
  6. Replies
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    Jim Is Eating!

    ((((((Hugs to All)))))) ~

    JIM IS EATING! JIM IS EATING!

    SHOUT IT FROM THE ROOF TOPS! JIM IS EATING!

    The first thing Jim said to me about dawn this morning, after we'd both slept soundly...
  7. Replies
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    ((((((Hugs to All)))))) ~ Thank you ANN,...

    ((((((Hugs to All)))))) ~

    Thank you ANN, Virginia, and Donna ~

    Yes, this is very good news indeed. And we are grateful for everything that is working for us right now.

    This morning, John...
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    ((((((jingle)))))) ~ While I'm so sorry that...

    ((((((jingle)))))) ~

    While I'm so sorry that you have a defect, I'm grateful that the remedy is a stent placement. We have a few friends, who have had stents placed, and they are all doing very...
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    Dehydration Is The Culprit

    ((((((Donna)))))) ~

    Welcome Home!

    Ah ... I'll bet that Daisy was thrilled to have you home. What a wonderful welcoming! Dogs do shed, that's for sure. I remember. But they bring us so...
  10. Replies
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    ((((((InsaneMother)))))) ~ *Welcome TO...

    ((((((InsaneMother)))))) ~

    *Welcome TO BRAINTALK!

    I'm so very sorry that your son has these symptoms, but I am glad that you found us for love and support.

    If you have options with your...
  11. Replies
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    ((((((Hugs to All)))))) ~ I was surprised that...

    ((((((Hugs to All)))))) ~

    I was surprised that I got 100%, as I guessed on a couple of questions, using logic, but still guessing.

    Congratulating us as "RNs" at the end of the quiz bothered...
  12. Replies
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    ((((((Jingle)))))) ~ I'm so sorry you've...

    ((((((Jingle)))))) ~

    I'm so sorry you've received this news and are facing so many tests and surgery. I know it is overwhelming, and Jim and I send you our love and prayers.

    What can you do...
  13. Replies
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    ((((((Hugs to All)))))) ~ nuthatch ~ Your...

    ((((((Hugs to All)))))) ~

    nuthatch ~

    Your grandchildren are pure sweetness and light. Such lovely photos. Thank you for sharing them with us. They lift my heart.

    UNO ~

    We first started...
  14. Replies
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    Post Paracentesis

    ((((((Hugs to All)))))) ~

    Mary Grace & Virginia ~

    Thank you for your love and prayers. We are so grateful to have you walking beside us.

    Jim slept soundly for 5 hours. It was an...
  15. ((((((Hugs to All)))))) ~ I am a confessed...

    ((((((Hugs to All)))))) ~

    I am a confessed germaphobe. Here is why I don't want to use an Uber of Lyft as transporation:
    ...
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    ((((((Mary Grace)))))) ~ Oh, more wonderful...

    ((((((Mary Grace)))))) ~

    Oh, more wonderful pictures of joyous Kathleen! I just love them! And everyone attending appears to be having a fantastic time. I love that all of the ladies have tiaras...
  17. ((((((lostparent)))))) ~ So good to see you...

    ((((((lostparent)))))) ~

    So good to see you posting again, and I'm pleased that Evan's seizures are being controlled by Keppra.

    There are many ways to interpret that EEG reading. One reading...
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    Success!

    ((((((Hugs to All)))))) ~

    Well, Jim had 7.7 liters of fluid removed, which is equivalent to 17 pounds! Yikes!

    The EMTs allowed me to sit in the back with Jim. One of them commented that we...
  19. ((((((Hugs to All)))))) ~ Jim and I have...

    ((((((Hugs to All)))))) ~

    Jim and I have received these promotions from UHC, and I'm always suspicious. For Seniors, who are unable to get out to see a doctor or have exams, this might be an...
  20. Replies
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    Gut Drainage Tomorrow

    ((((((Hugs to All)))))) ~

    Jim had a better night using the condom catheter. He slept for a few hours, after several naps yesterday.

    I slept on the futon nest in the living room, so that I...
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    ((((((ANN)))))) ~ As a divinity student, it...

    ((((((ANN)))))) ~

    As a divinity student, it would seem only right that he tend to your bluefish illness, and call you the next day to ask you how you were feeling. And apologize for taking you to...
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    ((((((Hugs to All)))))) ~ Virginia ~ ...

    ((((((Hugs to All)))))) ~

    Virginia ~

    Currently, Jim has 7 meds, and we use only one pharmacy. It is close to our house, less than 2 miles, and it has a drive thru. I'm always amazed at how...
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    Sunday Update

    ((((((Hugs to All)))))) ~

    Donna ~

    What a beautiful photo of your brother in law and the sweet children. You are all such a blessing to Cat Island, and I know you feel they are all blessings to...
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    Saturday's Update

    ((((((Hugs to All)))))) ~

    This is yesterday's (Saturday) update, which I forgot to post. I will post today's update later. Jim didn't have a good night, after this pleasant day.

    jeanie ~
    ...
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    ((((((Valentine's Day Hugs to All)))))) ~ ...

    ((((((Valentine's Day Hugs to All)))))) ~

    agate ~

    Thank you for your suggestions. I have heard of both techniques, however, I haven't tried the handkerchief over the glass of water.
    ...
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    5365 nuthatch ~ Tula is so precious! She...

    5365

    nuthatch ~

    Tula is so precious! She is a wonderful messenger for Love!

    jeanie ~

    I'm so sorry that your property was vandalized. That was so cruel.
  27. Replies
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    On the Roller Coaster

    ((((((Hugs to All)))))) ~

    Unfortunately, Jim's improvement didn't last. During the night, every time he woke up, he began hiccuping. He had indigestion. Tums didn't help. He slept for an hour...
  28. ((((((funnylegs4)))))) ~ The last part of the...

    ((((((funnylegs4)))))) ~

    The last part of the article says it all:



    Love & Light,

    *heart
  29. Replies
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    Joyful!

    ((((((Mary Grace & Kathleen)))))) ~

    How beautiful you are Ms. Kathleen, with your tiara and fashionable black and white gown! Your radiant smile out-sparkles your attire, Princess Kathleen. Your...
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    A New Day, A New Jim!

    ((((((Hugs to All)))))) ~

    funnylegs4 ~

    I am praying for your friend and for you, and all of those, who you love. What a frightening ordeal your friend has endured. God Bless You Both.

    ...
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    Apple Pie and a UTI

    ((((((Hugs to All)))))) ~

    Thank you all for sharing your recipes, thoughts and great advice!

    Mary Grace ~

    I can't recall a time, when I saw McIntosh apples in any of the stores, where I...
  32. Happy Birthday Linda!

    5363

    HAPPY BIRTHDAY LINDA!

    Wishing you a beautiful day
    And a healthy year!

    Love & Light,

    *heart
  33. Replies
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    ((((((Mary Grace)))))) ~ Thank you! I...

    ((((((Mary Grace)))))) ~

    Thank you! I searched my Instacart stores for McIntosh apples, but none of them carry them. We'll have to go with Fuji or Honey Crisp apples. I might add some...
  34. ((((((Hugs to All)))))) ~ Jim and I have now...

    ((((((Hugs to All)))))) ~

    Jim and I have now watched "The Upside" twice. We think that it is an excellent film, and it is certainly a departure from Kevin Hart's usual roles. He was absolutely...
  35. Thank You!

    ((((((Hugs to All)))))) ~

    Thank you so much agate, Sunshine, Lazarus, Jeanie, and Virginia!! Very helpful information. I really appreciate your input.

    Today, I ordered a Drive Rollator from...
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    Equipment Needs; Balancing Sleep with Nutrition, Fluids and Exercise

    ((((((Mary Grace)))))) ~

    That sounds perfect and easy! Would you mind giving me the exact recipe? At what temperature and for how long do you bake the pie?

    I found this recipe:
    ...
  37. Walker/Rollator Advice Please

    ((((((Hugs to All)))))) ~

    Jim needs a walker for short distances around the house.

    For years, we had Jonathan's walker in the garage, but I can't find it. We may have donated it, and I...
  38. Happy Birthday Parsi!

    5355

    HAPPY BIRTHDAY PARSI!

    Wishing you a wonderful day
    And a Healthy, Happy Year!

    Love & Light,

    *heart
  39. Replies
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    ((((((Hugs to All)))))) ~ Jeannie, agate,...

    ((((((Hugs to All)))))) ~

    Jeannie, agate, funnylegs4, and Jeanie ~

    Thank you so very much for your love, prayers, and kindness. We are truly grateful and feel blessed, knowing you are...
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    Adjustments

    ((((((Hugs to All)))))) ~

    Mary Grace ~

    Oh, how I hope your weather is holding out! I can't wait to see the prom photos! Always a highlight of the year for me! Kathleen and her joyful radiant...
  41. Replies
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    The Move

    ((((((Hugs to All)))))) ~

    It's midnight, and I just spent 2 hours cleaning Jonathan's bed, removing all of his memorials, and setting up Jon's room for Jim. I brought in his nebulizer, O2...
  42. ((((((Sunshine)))))) ~ Wishing you a lovely...

    ((((((Sunshine)))))) ~

    Wishing you a lovely visit with your family this weekend to celebrate YOU!

    Happy Birthday!

    Love & Light,

    *heart
  43. Replies
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    A Better Day

    ((((((Hugs to All)))))) ~

    funnylegs4 ~

    We do have accessible w/c transportation in our County. We could dust off one of Jon's wheelchairs in the garage for Jim. Of course, we also have a...
  44. Happy Birthday Sunshine!

    5354

    HAPPY BIRTHDAY SUNSHINE!

    Wishing you a healthy year
    And many surfing opportunities!

    Love & Light,

    *heart
  45. ((((((Hugs to All)))))) ~ We were gifted a...

    ((((((Hugs to All)))))) ~

    We were gifted a Roomba a couple of years ago. It didn't work for us, because we have too many obstacles on the floor, and I had to remove them from the floor, before I...
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    ((((((Hugs to All)))))) ~ Virginia ~ Thank...

    ((((((Hugs to All)))))) ~

    Virginia ~

    Thank you for your prayers and for understanding what I'm experiencing now. I'm so very sorry you lost your beloved husband. He clearly adored you, as I...
  47. Replies
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    These Days ...

    ((((((Hugs to All)))))) ~

    Donna ~

    So good to hear from you! I'm glad that you and Jim are settled and that Nick is enjoying his life with those, who love and care for him. It's great that he...
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    ((((((Hugs to All)))))) ~ ANN ~ Thank you...

    ((((((Hugs to All)))))) ~

    ANN ~

    Thank you for your prayers and for thinking of us. Jim has had a few difficult days, and I will update his thread this evening. I started an update last night,...
  49. Replies
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    ((((((Hugs to All)))))) ~ Mary Grace ~ ...

    ((((((Hugs to All)))))) ~

    Mary Grace ~

    Thank you so much for your prayers. We truly appreciate your care and concern for us.

    Being quite familiar with California fog, I feel strongly that...
  50. ((((((Linda)))))) ~ When is your next doctor's...

    ((((((Linda)))))) ~

    When is your next doctor's appointment? I hope that you are sharing your thoughts and concerns about Rituxan, your leaky heart valve, and Lyme Disease with your doctor now. ...
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    Thank You, Mike, David, and Dan

    ((((((Mike, David, & Dan)))))) ~

    I re-read David's #7 post above, and I think I may have the gist of it now.

    Using the vB format, which is familiar to all BT members, especially those, who post...
  52. Replies
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    ((((((Hugs to All)))))) ~ Thank you, Jeannie,...

    ((((((Hugs to All)))))) ~

    Thank you, Jeannie, for posting the article. I'm curious how hospice can "improve or eliminate" "profound fatigue." Dr. S told us that radiation would cause profound...
  53. Replies
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    ((((((callyflower)))))) ~ Thank you for the...

    ((((((callyflower)))))) ~

    Thank you for the link, however, I don't subscribe to the Washington Post, so I can't read the article. I did see the headline, so I got your point.

    As I explained...
  54. Replies
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    Kobe

    ((((((Hugs to All)))))) ~

    Mary Grace ~

    Thank you so much for your prayers. You know we pray for you and your family too.

    Kathleen has two fun events waiting for her, Prom and her birthday. ...
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    Thank You!

    5353

    The World's Most Wonderful Dad and His Sons


    ((((((Hugs to All)))))) ~

    THANK YOU SO MUCH Jeanie, nuthatch, Donna, funnylegs4, and Virginia for your birthday wishes for Jim.

    On the...
  56. Replies
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    Happy Birthday Jim!

    ((((((funnylegs4)))))) ~

    How is your friend today? I've been sending healing prayers for his full recovery and for an explanation as to why he fainted. Prayers for you too, as I know you are...
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    ((((((Hugs to All)))))) ~ agate ~ Our...

    ((((((Hugs to All)))))) ~

    agate ~

    Our entire neighborhood has problems with ants. Many residents have exterminators spray around the outside of their homes periodically. We don't, because we...
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    ((((((Hugs to All)))))) ~ funnylegs4 ~ ...

    ((((((Hugs to All)))))) ~

    funnylegs4 ~

    Prayers going up that the new option will work out perfectly for you. You're a strong, determined woman, so hold your head high and persevere!

    Donna...
  59. ((((((Linda)))))) ~ Jim uses an Albuterol...

    ((((((Linda)))))) ~

    Jim uses an Albuterol inhaler, and it's very easy, which I hope you've now discovered. He also has a nebulizer for Albuterol breathing treatments as needed. He uses the...
  60. ((((((Hugs to All)))))) ~ nuthatch ~ I saw...

    ((((((Hugs to All)))))) ~

    nuthatch ~

    I saw that story too. It is scary, and mountain lions are prevalent in California wilderness areas and parks. As far as I know, we don't have any mountain...
  61. ((((((Jeanie)))))) ~ We're sending prayers for...

    ((((((Jeanie)))))) ~

    We're sending prayers for peace and comfort for you and for your dear friend's family and loved ones.

    *forgetmenot

    Love & Light,

    *heart
  62. Replies
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    Transfusion Tomorrow at Ten, Film at Eleven

    ((((((Hugs to All)))))) ~

    Donna ~

    Prayers that all goes well with Nick's caregivers, while you and Jim are on Cat Island. I'm happy that his caregiver has returned, and I'll keep praying that...
  63. Replies
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    ((((((jingle)))))) ~ Jim and I are sending...

    ((((((jingle)))))) ~

    Jim and I are sending healing prayers your way and are here to support you. You're not alone, as you know, from your BT friends.

    If you have any questions about chemo,...
  64. ((((((Lazarus)))))) ~ The steroids are...

    ((((((Lazarus)))))) ~

    The steroids are probably keeping you alert and happy, so please be prepared for a possible let down in energy. I'm sorry to tell you this, but it can happen.

    I know...
  65. ((((((Hugs to All)))))) ~ Having vast...

    ((((((Hugs to All)))))) ~

    Having vast experiences with various styles of wheelchairs (we have 4 of Jon's in our garage waiting to donate), I would not consider this thing a "wheelchair." If it's...
  66. Replies
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    ((((((Donna)))))) ~ One of the first things in...

    ((((((Donna)))))) ~

    One of the first things in the "Mom's Manual" is "you will worry all of the time about everything related to your child. Everything. All the time."

    Of course, you want Nick...
  67. ((((((Hugs to All)))))) ~ We have lots of...

    ((((((Hugs to All)))))) ~

    We have lots of coyotes in our area, and I suspect a couple of the stray cats I adopted in the late 1980s were snatched by them. In the late '90s, Jim was walking our...
  68. ((((((Hugs to All)))))) ~ Is MS more prevalent...

    ((((((Hugs to All)))))) ~

    Is MS more prevalent in areas, where there is less sun, than where there is abundant sunshine? Could that be a factor, along with avoiding the sun due to heat...
  69. Replies
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    Plans Interrupted

    ((((((Hugs to All)))))) ~

    Because we just can't have enough things go awry this week, Nancy texted last night that her Sister in Law is in the hospital in Nevada, where they went for a few days on...
  70. Replies
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    ((((((Donna)))))) ~ Thank you so much. ...

    ((((((Donna)))))) ~

    Thank you so much. Perfect.

    The author, Angela Miller, beautifully and articulately discusses and addresses every topic I covered in my on line column for grieving...
  71. Replies
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    ((((((Hugs to All)))))) ~ Chris ~ Thank you...

    ((((((Hugs to All)))))) ~

    Chris ~

    Thank you for your prayers, and please know that you are in our prayers.

    When Jim started his radiation treatments, he took a Tylenol with Codeine an hour...
  72. Replies
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    No Transfusion Today

    ((((((Hugs to All)))))) ~

    Jeannie ~

    Thank you for sharing your momís experience with Fentanyl and morphine. How wonderful that it worked so well for her and reduced her paranoia.

    Jimís...
  73. Replies
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    Transfusion Confusion

    ((((((Hugs to All)))))) ~

    callyflower ~

    My mom was addicted to Vicodin for diabetic pain. At that time, patients required a Compassionate Use waiver, as it was restricted. She had renal...
  74. Replies
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    Lab Results

    ((((((Hugs to All))))) ~

    I emailed Dr. K on the health portal today that we haven't received the results of Jim's blood work on 1/7/20, a week ago tomorrow.

    By the end of the day, the results...
  75. Replies
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    Thank You

    ((((((Donna)))))) ~

    Thank you so much, dear friend.

    So often, people may think, "Well, it's been 9 months, she should be over it by now." Yes, people do think that, as many grieving parents...
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