Search:

Type: Posts; User: ACC_gal; Keyword(s):

Search: Search took 0.07 seconds.

  1. I also have Severe GI issues such as constant...

    I also have Severe GI issues such as constant diarhea,stomach emtyping too slow or too fast, never ending hunger,nausea,heartburn/GERD,abdominal pains severe enough to warrent percocet and lomotil...
  2. Severe dysautonomia.. pure failure.. cannot find help :(

    I was diagnosed with dysautonomia and have such severe symptms such as excessive sweating, feeling too hot or too cold, constant fainting spells, my breathing is either shallow,labored or stops at...
  3. Replies
    8
    Views
    2,337

    my nuerologist reported this doc.. and is sending...

    my nuerologist reported this doc.. and is sending me to one that deals with autonomic disturbances.. an electrophisiologist(sp?). They are more then happy to "deal with me"
  4. Replies
    8
    Views
    2,337

    WOW Donna! thats super cool! I have had some docs...

    WOW Donna! thats super cool! I have had some docs that refuse to even see me due to my "brain defects", yesterday a cardiologist told me to just 'deal with being sick" and go off ALL my meds. My...
  5. Replies
    7
    Views
    2,934

    discrimnatiing doctors.. GRR

    I saw a cardiologist yesterday due to these weird heart symptoms I am having ( Recently diagnosed as Dysautonomia by my nuero) And she more or less shrugged me off and said WITH ALL YOUR BRAIN...
  6. they are made of a thick, medical grade silicone...

    they are made of a thick, medical grade silicone and filled with SALINE.. the amount varies. For me it's this or surgery. diet does not work.. neither does starving myself or excersise. All my docs...
  7. I too have Agenesis of the corpus callosum.. And...

    I too have Agenesis of the corpus callosum.. And have a freinds freinds with the condition as well. Currently I am working on a social media for other ACCers. if it's OK with the Moderators here... I...
  8. Thread: Funny pics

    by ACC_gal
    Replies
    4
    Views
    3,621

    scratch that.. you have to Click the icon that...

    scratch that.. you have to Click the icon that says " insert image" then pick one from your computer ( within their Kilobyte limits) to upload.
  9. 3921 THIS is the one being tried in my state.

    3921 THIS is the one being tried in my state.
  10. Thread: Funny pics

    by ACC_gal
    Replies
    4
    Views
    3,621

    Right click the mouse.. Copy..( the pic you want)...

    Right click the mouse.. Copy..( the pic you want) the right click again where you want it posted.. paste. I am pretty good with computers.. Despite having No corpus callosum :) hope this helps.
  11. Replies
    7
    Views
    3,560

    No this was in another forum with chat. if they...

    No this was in another forum with chat. if they do have chat here.. I have never been in it. Not sure i'd want to considering bad experiences in other sites.
  12. Thread: urology

    by ACC_gal
    Replies
    6
    Views
    1,448

    have they mentioned anything about Interstim? I...

    have they mentioned anything about Interstim? I have this for the very same issues. it's a neurostimulator that stimulates the sacral nerves to the bladder and is used for.. incontinence and urinary...
  13. Obesity and gastric balloon for weight loss trials?

    I got an interesting email from a university I go to often becz I was diagnosed there. Anyhow the email was asking me if I would like to participate in this new study involving a " dual gastric...
  14. Replies
    12
    Views
    5,050

    Sorry to hear about Cailou, I am fairly new here...

    Sorry to hear about Cailou, I am fairly new here but Do know how heartbreaking it is to loose a wonderful and true freind. last yr I lost my Service Dog ( a Rottie) Hera to Mast Cell cancer. She has...
  15. Replies
    0
    Views
    867

    Agenesis of corpus callosum

    This is where the brain's corpus callosum is missing.. it never developed in fetal development of the brain. the corpus callosum is the bundle of nerve fibers that connects the right and left brain...
  16. OK I just reread that link the third time.....

    OK I just reread that link the third time.. STUPID ACC :( thats my brain disorder. But I have recnetly been diagnosed with dysuatonomia and a 'failing central nervous system" so if they want me in a...
  17. not sure what this is about since my condition is...

    not sure what this is about since my condition is slowly becoming worse.. but I am now on "special needs" medicaide insurance due to a development brain defect. I get better care with this then...
  18. Replies
    6
    Views
    7,019

    Delayed sleep phase syndrome

    Anyone else have this? Apparently the frontal cortical areas of my brain like to keep me up at night and make me sleep during the day ( a misfire of the neurons). melatonin has been tried as well as...
  19. Replies
    7
    Views
    3,560

    unwelcome feeling in chat rooms :(

    I started chatting in a site for those with emotional conditions and got an extreme unwelcome from others there... They simply classified me as a FREAK becuz I have ACC ( agenesis of corpus callosum)...
  20. Replies
    2
    Views
    2,117

    Septo optic Dysplasia

    This one seems pretty rare and not many doctors know what to do for me despite my nureous neuro and endocrine issues. I am very sickly most of the time. Septo optic dysplasia is a "triad disorder"...
Results 1 to 20 of 20


BTC Inc's Disclaimer and Privacy Policy

The material on this site is for information & support purposes only, and is not a substitute for medical advice provided by a licensed health care provider. Always consult your doctor before trying anything that you find online.