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  1. Replies
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    All narcotics can depress respiratory status,...

    All narcotics can depress respiratory status, especially if not taken appropriately. Vicodin is a very good drug. It is what Iíve used for all 4 of my cancer surgeries, my foot surgery, etc. I have...
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    Hmmm, that is disappointing about the pain meds....

    Hmmm, that is disappointing about the pain meds. Morphine does improve the breathing. Mom used nebulized morphine every 4 hours and it helped her to breathe more comfortably and when the CHF took...
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    Seems that the lasix boost did its job. Yay! The...

    Seems that the lasix boost did its job. Yay! The pain could be so many things...even referred pain from somewhere else.

    As upsetting as it is for you to hear Jim’s attitude about his current lot...
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    Don’t discount the fentanyl patch. It is applied...

    Don’t discount the fentanyl patch. It is applied once every three days, so there will be little chance for the pain to get ahead of him. If there is breakthrough pain, other meds can be used and...
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    Hmmmm, not sure about compression tubes. My worry...

    Hmmmm, not sure about compression tubes. My worry is that edema may pool in the area where the tube ends. The last thing you’d want is any impairment to free flowing fluid. Maybe ask Nancy her...
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    TED hose might be a good idea, especially since...

    TED hose might be a good idea, especially since Jim is sedentary. However, they are a bear to get on even with normal healthy strength. I would suggest getting a home health aide in to do bathing and...
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    Rose, I would suggest you start the increased...

    Rose, I would suggest you start the increased lasix right away. In my opinion, the socks are not the cause. If you can get the fluid off, you may be able to back off on the lasix again. Take the...
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    Rose, I just read this. Thought you might...

    Rose,

    I just read this. Thought you might relate.
    ...
  9. Replies
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    I have been veggie for about 10 years now. The...

    I have been veggie for about 10 years now. The Beyond Meat will not be a staple in my diet, but rather an occasional treat...junk food. I usually have portobello mushroom burgers.

    I absolutely...
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    Try and get the Guinness with the little nitrogen...

    Try and get the Guinness with the little nitrogen ball inside the can. It releases when the can is opened and it will pour and taste like a beer right out of the pub. My husband recently discovered...
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    Rose, it sounds like Jim has begun a “life...

    Rose, it sounds like Jim has begun a “life review” of sorts, but with food. He is wanting to enjoy some old favorites, and is probably reflecting on memories associated with them. This is really a...
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    Rose, do you think Jim would do better with his...

    Rose, do you think Jim would do better with his meds if you put them in a med organizer? You could set it up with him once a week and then it would be easy to casually check on him, too.

    Jim is...
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    Rose, it is not unheard of to need paracentesis...

    Rose, it is not unheard of to need paracentesis on a weekly basis. Each case is unique, of course.

    I respectfully disagree with Nancy’s statement. Yes, we all have small amounts of fluid in our...
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    Rose, Leaving the ascites unchecked puts Jim at...

    Rose, Leaving the ascites unchecked puts Jim at risk for spontaneous bacterial peritonitis, which is exactly as it sounds. It is absolutely typical for people with ascites to have paracentesis...
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    Compromises will need to be made. The home health...

    Compromises will need to be made. The home health agency should be able to send an aide to do Jim’s personal care. The compromise would be that you two would need to be more flexible with your...
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    You’re on your way. Stock up on super moisturizer...

    You’re on your way. Stock up on super moisturizer like Aquafor, look into some aloe Vera leaves to apply to the skin afterward (groceries sell them), and remember to hydrate. You may want to...
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    A RAV4? Fentanyl patches? Wow! What a...

    A RAV4? Fentanyl patches? Wow! What a difference a few days makes.

    I’m on my second RAV4. I forgot about “Pearl” that I drove from 2002-2013. It was so great that’s why I got another and I...
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    My mom had a Corolla and loved it. I drove it...

    My mom had a Corolla and loved it. I drove it until someone rear ended me and destroyed it. At least that made the decision of whether or not to sell it.

    I had a 4 speed Corolla that I bought in...
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    That’s good to know, Jeanie. It never really made...

    That’s good to know, Jeanie. It never really made sense that the tiny dose of naltrexone could block a dose of opioids. Glad to know you put it into practice!

    C
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    Rose, what Jim was doing earlier was precise,...

    Rose, what Jim was doing earlier was precise, tumor targeted, extended radiation. 25 minutes per treatment is a long time. Radiation to address the “tumor bed” in general is less targeted, and gives...
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    Rose, I strongly suggest you contact your nurse....

    Rose, I strongly suggest you contact your nurse. Taking pain meds when only in agonizing pain is a game no one wins as the pain will return. It may be time to start regular pain control to stay ahead...
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    The only thing about frequent blood draws is just...

    The only thing about frequent blood draws is just that...you are removing precious blood. When I was hospitalized with neutropenia, they agonized about drawing even the smallest amount. Just a...
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    Well crap! Please know that you can bother the...

    Well crap! Please know that you can bother the dickens out of Dr K whenever you have questions. He works for you and his orders for today are not set in stone.

    Neupogen is very easy to give at...
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    It doesn’t matter what the dose. Steroids are...

    It doesn’t matter what the dose. Steroids are rough on the stomach.
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    View Post

    Nexium isnít just for reflex. Itís commonly given with steroids or other meds that may cause stomach irritation. It was recommended I use one while on steroids all those years.

    Sorry itís a...
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    View Post

    Rose, I donít think you need to worry too much about the Nexium. It is only a problem because it reduces the acidity in the stomach and acid is what allows us to absorb iron from our food. Since Jim...
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    My daughter and I went to Denver a few weeks ago....

    My daughter and I went to Denver a few weeks ago. Fave photo. 5293
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    Chiming in on the iPhone. I would say a big nope...

    Chiming in on the iPhone. I would say a big nope to the iphone6. It is a very old model and will soon be obsolete. I am new to the iPhone world (from BlackBerry) and got a XR six weeks ago,...
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    The skull is Sheepie's. My parents' neighbor had...

    The skull is Sheepie's. My parents' neighbor had two barbado sheep that would not stay home, and kept escaping to live with my parents' cows. Eventually the neighbor quit trying to keep them home,...
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    Rose, Just use white vinegar for soaking...

    Rose,

    Just use white vinegar for soaking berries. 1 tablespoon or so per quart of water. Let them soak about 5-10 minutes and then drain and let them dry. This works for any berry.

    I have...
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    Rose, Yes, go for the veggies and fruit. I...

    Rose, Yes, go for the veggies and fruit. I would think ANYTHING would be OK if soaked in either a vinegar solution or a veggie wash solution and then rinsed well. I do my strawberries in a bowl of...
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    Rose, I think you should contact Dr K and ask him...

    Rose, I think you should contact Dr K and ask him what, if any, precautions you need to be taking. Of course any peeled fruit or veg is safe. Cooked restaurant food would be fine as well. I ate...
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    Rose, No, I have never had purpura, but plenty...

    Rose, No, I have never had purpura, but plenty of my patients, and Mom did. Treatment involves solving the reason it occurred in the first place. In Jim's case it will be difficult as the steroids...
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    I think Jim has purpura, which wouldn't be...

    I think Jim has purpura, which wouldn't be unexpected due to his low platelets and history of steroid use.
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    I am deeply sorry for your loss. Hugs to you and...

    I am deeply sorry for your loss. Hugs to you and Jim. Be easy on yourselves, as grief is very hard work.

    C
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    Platelets are no big deal, and can be life...

    Platelets are no big deal, and can be life saving. Jim is prone to bleeding if platelets get too low. My nose was spontaneously bleeding when I went into ER with neutropenia and a platelet count of...
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    ..........

    ..........
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    Rose, Thanks for checking on me. I am doing...

    Rose,
    Thanks for checking on me. I am doing great. I was discharged by the podiatrist about 11 days ago. I am slowly regaining function. Today I walked 1.7 miles at 3.5 mph...the longest and...
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    Funnylegs, As therapists, we ask questions and...

    Funnylegs, As therapists, we ask questions and observe patients doing various ADL's. Often we can suggest things to help make things "easier" or to not expend as much energy. It may involve...
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    I do wish you'd reconsider. Jim's services would...

    I do wish you'd reconsider. Jim's services would be vastly different than Jon's, simply because he is on Medicare. Having someone come and do labs from the home would just be wonderful. PT and OT...
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    Rose, please consider having Jim's doc write an...

    Rose, please consider having Jim's doc write an order for home health for Jim. He could qualify for nursing, home health aides, and OT and PT for home safety evaluations, ADL assessments and energy...
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    I'm doing great! Thanks for checking.

    I'm doing great! Thanks for checking.
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    Rose, I am doing great. Lots less pain and...

    Rose, I am doing great. Lots less pain and swelling, I am off pain meds, ROM of my toe is coming along. I also did a one hour workout on the weight machines at the gym today. I worked everything that...
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    Rose, I am on the mend. The wound looks much...

    Rose, I am on the mend. The wound looks much happier today. I simply cleaned the incisions with sterile saline, applied steri strips and covered with gauze. I think there was more irritation and...
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    ................

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    Propofol is a wonderful, very safe drug. You just...

    Propofol is a wonderful, very safe drug. You just don't want to be doing it at home without proper supervision. Propofol and versed would be considered "sedation" rather than "anesthesia" so maybe...
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    Rose, they may not have used the port even if...

    Rose, they may not have used the port even if you'd known. Sometimes the available staff is not comfortable with using ports or it goes against policy. You SURE don't want some amateur screwing with...
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    There is a sweet lady on my BC group who recently...

    There is a sweet lady on my BC group who recently had a bone marrow biopsy. She made it through OK. Was sedated, and needed a few days of rest/ice after. Hers came out OK as well. Fingers crossed...
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    I also have Felix, a bicolor domestic short hair....

    I also have Felix, a bicolor domestic short hair. He was a rescue from 14 years ago, and was a former feral. He's a real special boy. 5144
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    I love talking about my cats! Both Ziggy and...

    I love talking about my cats! Both Ziggy and Brillo are American Wirehairs. My neighbor breeds them and they are quite expensive, but I got them as gifts as Ziggy has a defect on his tail and Brillo...
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    ...........

    ...........
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    Rose, so sorry Jim is not rallying this time....

    Rose, so sorry Jim is not rallying this time. He's had such a good run, that I think that makes it harder to comprehend that alas, he is human.

    I am wondering why the bone marrow test is...
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    So sorry Kathleen has issues as well. I have a...

    So sorry Kathleen has issues as well. I have a teeny tiny one on the right as well, but it isn't bothersome.

    I was on prednisone for the better part of 20 years and it masked a lot of issues....
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    Today was a better day. Last night I covered my...

    Today was a better day. Last night I covered my incisions and re-wrapped my foot, iced behind my knee, used my squeeze machine and slept elevated. This morning I put on the boot to see how long I...
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    Rose, all those decisions are tough ones, but...

    Rose, all those decisions are tough ones, but necessary. My father wrote a handwritten note with his specifications and took a copy to the funeral home the day before he took his life. In his case he...
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    I had a lapidus bunionectomy. There are minimally...

    I had a lapidus bunionectomy. There are minimally invasive bunion surgeries around but my foot has problems further up and would render a regular surgery ineffective. The change in my gait was also...
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    Hi Rose, Thanks for the offer of help. I am kind...

    Hi Rose, Thanks for the offer of help. I am kind of like an old cow though (I grew up on a small ranch) and would just as soon hide out in the brush and recover alone. That said, my PT husband and...
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    Somehow I can't get this posted right. Must be...

    Somehow I can't get this posted right. Must be the pain meds.
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    I had the "unveiling" today. I am also a new...

    I had the "unveiling" today. I am also a new convert to the Orgain shakes. I need extra protein for bone healing. I love the vanilla blended with frozen banana or mango.5139
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    Thank you, Rose! Surgery went well and I am...

    Thank you, Rose!

    Surgery went well and I am recovering with the help of my "kitty nursing team" who couldn't be happier to share bed rest with me.

    It's so sweet for you to take time to check...
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    Hi Rose, I'm glad he's finally been admitted. ...

    Hi Rose,

    I'm glad he's finally been admitted. When I had neutropenic fever, I would also feel OK, but weak, in between the episodes of shivering. The way I understand it, the shivering is the...
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    Don't sweat the small stuff. The van, my friend,...

    Don't sweat the small stuff. The van, my friend, is miniscule. It will get sorted.

    Thanks for the well wishes for me. I really dread it. Two weeks in bed 23/7 await me. Sounds wonderful, until...
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    Big hugs. Chin up.

    Big hugs. Chin up.
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    Rose, I think I would demand that a wound care...

    Rose, I think I would demand that a wound care nurse come out. She needs to see the drainage in all its glory and not depend on photos and the word of the regular nurse.

    I also worry about the...
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    Whew! You dodged a bullet. See, I had...

    Whew! You dodged a bullet. See, I had neutropenic fever, and my fever of 100.6 soared to 104.3 in a matter of minutes accompanied by uncontrollable shaking chills. Thank goodness I had gone to ER....
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    https://chemocare.com/chemotherapy/side-effects/fe...

    https://chemocare.com/chemotherapy/side-effects/fever-neutropenic-fever-and-their-relationship-to-chemotherapy.aspx
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    Darling! You need to call and call NOW!!!!!!! I...

    Darling! You need to call and call NOW!!!!!!! I don't mean to scare you, but he could have neutropenic fever and that is a life threatening emergency. Please call now! There is an on-call doc, I...
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    Rose, just give the Claritin 3 days in a row....

    Rose, just give the Claritin 3 days in a row. That's the best you can do.

    Wish I could take your greens. I just got a new cold press juicer and I would grind them right up in it! Tomorrow I am...
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    Rose, I am so sorry you are upset. Perhaps I can...

    Rose, I am so sorry you are upset. Perhaps I can help.

    When I did the immune system reboot in 2010 to fight the MG, the goal was to get to ZERO WBC. When I hit that point I injected neupogen...
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    No worries, Rose. It didn't upset me in the...

    No worries, Rose. It didn't upset me in the least!

    Those phone calls are tough! I think all of us remember "the call."
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    Today was the day three years ago that I got my...

    Today was the day three years ago that I got my diagnosis. I was anticipating it, and had told no one about the testing. I was lying in bed, paralyzed with fear, and at 9:12 am the radiologist called...
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    Rose, I hope the decaf will help. It's worth a...

    Rose, I hope the decaf will help. It's worth a try at least.

    My daughter got her first job! She interviewed at the university bookstore on Thursday and started on Friday. She even told her boss...
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    Decaf espresso (there IS such a thing) may...

    Decaf espresso (there IS such a thing) may decrease the peeing a bit while still letting him enjoy the coffee experience.
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    Get the wound care nurse regardless. I think it...

    Get the wound care nurse regardless. I think it will be a constant battle to get your regular nurse to do her job adequately as far as the wounds go.

    With pseudomonas in his urine and open...
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    Definitely wait to turn so the nurse can help as...

    Definitely wait to turn so the nurse can help as well as evaluate his wounds.

    Hang in there.
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