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  1. Thread: Jim's Journey

    by SuzE-Q
    Replies
    188
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    6,127

    I'm so very sorry, Rose. A lot to take in. I...

    I'm so very sorry, Rose. A lot to take in.

    I hope the appointment goes well with Dr. K in the morning.
  2. Thread: Jim's Journey

    by SuzE-Q
    Replies
    188
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    6,127

    Sounds like the whole environment there and your...

    Sounds like the whole environment there and your experience exceeded any assumptions and expectations!

    I hope you'll think about giving positive feedback, it's important for the heads to know that...
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    I'm so relieved for you, Linda!

    I'm so relieved for you, Linda!
  4. Thread: RIP Catdancer

    by SuzE-Q
    Replies
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    1,622

    Thanks for bringing this up, jeannie. Here is...

    Thanks for bringing this up, jeannie.

    Here is the thread, it shows Cat's strength and resilience so well, and the spirit of this forum:
    ...
  5. Thread: RIP Catdancer

    by SuzE-Q
    Replies
    55
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    1,622

    Cat Dancer was the Queen of Curmudgeons. She may...

    Cat Dancer was the Queen of Curmudgeons. She may have been worn down at times, but she rallied and gave life the best run for its money. There will never be another like Cat Dancer. She set the bar...
  6. Replies
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    I hope everything goes smoothly, Linda. Does...

    I hope everything goes smoothly, Linda.

    Does this map help in any way?
  7. Thread: Jim's Journey

    by SuzE-Q
    Replies
    188
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    6,127

    I hope the infusion goes well, Rose. ...

    I hope the infusion goes well, Rose.

    Interesting that it's not permitted for home healthcare to do.

    Hugs to you and Jim, it will probably be an emotional time if hospital staff express their...
  8. Replies
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    Thank you. Ikoiko, I support you. I appreciate...

    Thank you.

    Ikoiko, I support you. I appreciate the caution about posting other people's business in a public venue, particularly when they are easily identifiable. Other people have no control...
  9. Thanks, Laz. Here is a link to this 2016 study: ...

    Thanks, Laz. Here is a link to this 2016 study:

    https://www.researchgate.net/publication/305038244_Low-fat_plant-based_diet_in_multiple_sclerosis_A_randomized_controlled_trial

    Even if it didn't...
  10. Replies
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    I really value your day, Linda and truly...

    I really value your day, Linda and truly understand how meaningful these serendipitous interactions were for you.

    They nourish the soul, don't they?

    Thank you for sharing your experiences with...
  11. Replies
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    Mine was a small needle too. The shot (skin...

    Mine was a small needle too. The shot (skin puncture) didn't hurt, but the solution really, really burned going in. I'm glad yours was easy and painless.

    Yours is such an unfortunate situation...
  12. Thread: July chit-chat

    by SuzE-Q
    Replies
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    6,325

    So glad the California peeps are doing okay, how...

    So glad the California peeps are doing okay, how terrifying!

    I echo Sunshine, so happy to have Cat and Jeanie back. *forgetmenot

    Sunshine, enjoy your visit, hope the IVIG accessibility issue is...
  13. Replies
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    Thanks, Virginia. I had my first shingrix...

    Thanks, Virginia. I had my first shingrix vaccination, and the side effects were far better than I was anticipating, just a low grade fever 24 hours after that was gone by morning.

    That, and my...
  14. Thread: June Chit Chat

    by SuzE-Q
    Replies
    302
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    8,514

    Good to see Jeanie and nuthatch here! Nuthatch, I...

    Good to see Jeanie and nuthatch here! Nuthatch, I hope you enjoy the visit and have a very happy anniversary!

    Jeanie, slow and steady, that's the way. You've actually come a long way in a short...
  15. Replies
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    You are a mom who lost her son, Rose. You will...

    You are a mom who lost her son, Rose. You will grieve as you need to, in whatever ways and for however long.

    I'm so sorry the sound of first responders is such a trigger for you.

    I've heard...
  16. Replies
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    Thanks for explaining the breathing treatment,...

    Thanks for explaining the breathing treatment, Rose. I'm new to the world of asthma and have been trying to figure my way through the best way to treat myself so your mentions interested me. Do you...
  17. Replies
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    Hi Rose, I couldn't sleep so I thought I'd...

    Hi Rose,

    I couldn't sleep so I thought I'd catch up on your life. Now I'm exhausted after reading about your day. <grin>

    Jim might have cherry angiomas all over. I've had them for many years,...
  18. Thread: June Chit Chat

    by SuzE-Q
    Replies
    302
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    8,514

    I understand, Virginia. I'd feel the exact same...

    I understand, Virginia. I'd feel the exact same way and wouldn't consider it an irrational boulder that I'd placed in my path. Every aspect of the undertaking would place a huge strain on my...
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    But you weren't early onset, I don't think,...

    But you weren't early onset, I don't think, right, Virginia?
  20. Replies
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    Yep, let's blame our moms!

    This isn't applicable to me even though I had early onset, but I was born naturally and was breastfed. What about you?

    https://www.ncbi.nlm.nih.gov/pubmed/31158806
  21. Good to see you again! Happy your MS is stable....

    Good to see you again! Happy your MS is stable. You adopted a child, I recall? How is that going, bringing much happiness, I'm sure?

    I tried this several years ago, but I couldn't get it covered...
  22. Replies
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    I celebrate your great day with you and Jim,...

    I celebrate your great day with you and Jim, Rose! *boogie
  23. Oops, I think we were posting at the same time. ...

    Oops, I think we were posting at the same time.

    Can you try a higher dose of that one, is there an acceptable range?
  24. Linda, Here is where you brought this up, and...

    Linda,

    Here is where you brought this up, and I replied to you about this back in March:

    http://www.braintalkcommunities.org/showthread.php/102954-OT-March-Chit-Chat
  25. Yes, we've discussed the anticholinergic burden...

    Yes, we've discussed the anticholinergic burden here, including bladder meds.

    That's why I recently switched to mirabegron for bladder control. I'm pretty sure I mentioned it here. It's a...
  26. Replies
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    Such a comforting dream, Rose, thank you for...

    Such a comforting dream, Rose, thank you for sharing it.

    It brings me comfort in the larger scheme of life too to hear of your dream.
  27. Replies
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    Dear Rose, You sound like you've come to a...

    Dear Rose,

    You sound like you've come to a place of peaceful acceptance, I was going to say because of your dream, but I see that this post of yours was written before your dream last night.
    ...
  28. Replies
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    I'm sure it was a difficult appointment, Rose....

    I'm sure it was a difficult appointment, Rose. I'm glad everything worked well to get Jim there. Dr. K sounds like a kind, sensitive doctor.

    I agree with Virginia, Rose. I don't think he'd be...
  29. Thread: June Chit Chat

    by SuzE-Q
    Replies
    302
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    8,514

    Howie, how did we ever survive using those piddly...

    Howie, how did we ever survive using those piddly coffee cups before the more generous coffee mugs were created?

    Parsi, it's so nice to see you. You must join our monthly exercise thread that...
  30. Replies
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    So happy to hear you had a very comfortable...

    So happy to hear you had a very comfortable treatment, Sunshine!
  31. Replies
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    That's great that you got that all set up,...

    That's great that you got that all set up, Virginia! In my mind, I could just imagine you encountering an emergency during one of those tests and them ignoring you because you'd been busy testing so...
  32. Replies
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    I remember when this was first news, that...

    I remember when this was first news, that cranberries, etc. have been found to be ineffective against UTIs:
    ...
  33. She didn't say that everyone with MS would...

    She didn't say that everyone with MS would benefit from a DMT, agate.
  34. Replies
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    Like you, I drink soy milk (haha, although you...

    Like you, I drink soy milk (haha, although you might be swearing off it after what Cherie just wrote!).

    I have a lot of nuts and beans though, some very occasional nonred meat animal sources, and...
  35. Replies
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    I always wondered how Terry Wahls could go from...

    I always wondered how Terry Wahls could go from being a vegetarian to a meat eater again.
    Maybe she is onto something...

    I haven't had red meat in decades, and I'd need to see more and no...
  36. Replies
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    Load up on those sirloin steaks, ladies!

    Sorry, Howie, just the women on this result!

    https://www.ncbi.nlm.nih.gov/pubmed/30837942
  37. Thread: News re jeanie

    by SuzE-Q
    Replies
    47
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    2,644

    Great update on Jeanie, thanks Virginia!

    Great update on Jeanie, thanks Virginia!
  38. Thread: Phones

    by SuzE-Q
    Replies
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    1,486

    Congrats, Virginia! If you see any 6 year olds...

    Congrats, Virginia!

    If you see any 6 year olds in your complex, you can always ask them for cellphone assistance.

    By that age, they're already experts! *biggrin
  39. Thanks very much, agate. Will be interesting to...

    Thanks very much, agate. Will be interesting to review.

    At my last appointment with my neuro, she told me that, in her experience, the new meds unequivocally benefit PwMS and delay disability...
  40. Replies
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    Chocolate for everyone!!

    Chocolate for everyone!!
  41. Replies
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    Virginia, the weather is nicer now, so maybe he...

    Virginia, the weather is nicer now, so maybe he enjoys the drives to pick/drop you off? A nice time to chit chat with his sis? They clearly want to include you for him to offer to pick you up! I'd...
  42. Replies
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    ANN, my neuro actually said she thought I might...

    ANN, my neuro actually said she thought I might be stable because copaxone isn't given out based on weight, so thinner people might be benefiting more because they are receiving more per pound than a...
  43. Replies
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    OT: Overweight is Healthiest

    Woohoo! *boogie

    ANN, start loading up on those carbs!



    https://www.sciencealert.com/the-healthiest-weight-could-actually-be-overweight-huge-study-finds
  44. Replies
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    I understand the loss, Linda. It is a valuable,...

    I understand the loss, Linda. It is a valuable, ongoing social connection when you've spent dozens of hours a month there and you've come to know and interact with staff and patients about your...
  45. Thread: Speech

    by SuzE-Q
    Replies
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    1,752

    This is such an interesting discussion, I'm...

    This is such an interesting discussion, I'm really glad it was brought up!

    Virginia, for years now, I just look down when I begin to speak until I feel the words come out smoothly and without...
  46. Thread: News re jeanie

    by SuzE-Q
    Replies
    47
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    2,644

    Oh no, I can see how easily something like that...

    Oh no, I can see how easily something like that could happen to any of us too. Such a good reminder that if we have that idle thought of a safety problem, we need to act immediately on it and not...
  47. Replies
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    No, I'm sure I left the old battery at the store...

    No, I'm sure I left the old battery at the store but will look online to see if I can find the proper battery #, I doubt I kept the booklet, but will look.

    Great info!
  48. Replies
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    I didn't realize those tiny batteries were...

    I didn't realize those tiny batteries were different from each other. I'm wondering if that's why my pedometer stopped working when I went to the store and they replaced it, if they put in the wrong...
  49. Thread: Speech

    by SuzE-Q
    Replies
    44
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    1,752

    I always thought that my recent difficulty with...

    I always thought that my recent difficulty with word finding was a normal memory issue, that because I don't use speech as often, the words are just more difficult to retrieve?

    Do you think that...
  50. Thread: News re jeanie

    by SuzE-Q
    Replies
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    2,644

    Thanks so much, Virginia! (Great ideas, Rose &...

    Thanks so much, Virginia! (Great ideas, Rose & Sunshine!) Wonder if she can try medi-honey on her heel sore?

    Good to hear from Jeanie, I am interested in hearing how the fall happened when she's...
  51. Replies
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    Are Sleeping Pills Safe?

    Interesting article, what with the latest increase in warnings on them:

    http://time.com/5584937/sleeping-pills-safe/
  52. Replies
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    In terms of life expectancy, under which nursing...

    In terms of life expectancy, under which nursing care standards might certainly be a factor contributing to a country's ranking, the US is #43 on the list of countries. The UK is #33.

    Monaco is...
  53. Replies
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    Good advice, Virginia, I better go have a look at...

    Good advice, Virginia, I better go have a look at when I replaced mine last, but I'm pretty sure it's more than 4 years ago.

    Very glad you met a nice neighborhood car detailer. I'd love to find a...
  54. Replies
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    Rest up, Sunshine. Hoping you'll see improvement...

    Rest up, Sunshine. Hoping you'll see improvement once the catheter is out and you're back to your old self again.

    Did you have any spasms during the procedure that they noticed?
  55. Replies
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    And then there was the "Cari Loder" cure of an...

    And then there was the "Cari Loder" cure of an antidepressant combined with Coke.

    Unfortunately, when Ms. Loder began to worsen despite her treatment, she ended up killing herself rather than try...
  56. Replies
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    Slowly getting back on track again. Steps: ...

    Slowly getting back on track again.

    Steps:

    Monday: I have no idea, I forgot to record anything. *grimace
    Tuesday: 1,000
    Wednesday: 1,950
    Thursday: 1,250
    Friday: 1,000
    Saturday: 2,250
  57. Replies
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    Sunshine, thanks for sharing your wonderful...

    Sunshine, thanks for sharing your wonderful experience today with us, sounds magical!

    Agate, I was looking at other pedometers, many don't register steps until you've reached more than 30 at a...
  58. Replies
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    Thanks, Agate! Lol, Howie, are you blaming...

    Thanks, Agate!

    Lol, Howie, are you blaming your pedometer for it showing a low step count? *veryhappy
  59. Replies
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    Agate, I may have asked before, but could you...

    Agate, I may have asked before, but could you remind me of your make/model of pedometer, please?

    Sunshine, I hope you were able to decompress and you're able to get a good night's sleep, and you...
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    There was a time when I would have been...

    There was a time when I would have been fascinated at the inner workings and status of my brain and would have relished the opportunity to get inside a 7.0 tesla magnet.

    Now...not so much. I just...
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    Thanks, agate! I'd say it's a little sparse on...

    Thanks, agate!

    I'd say it's a little sparse on particulars on which to be making specific mortality/health assessments.

    Its general proposal is sound: exercise, good food and sleep are probably...
  62. Replies
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    Cat!!! *veryhappy *sparkle *boogie *hug...

    Cat!!! *veryhappy

    *sparkle *boogie *hug *boogie *sparkle
  63. Replies
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    I looked it up and found a discussion about price...

    I looked it up and found a discussion about price on their FB page.

    Looks to be somewhere between $700 -$800, including shipping.

    Looks interesting!
  64. Replies
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    I'm very sorry that DH is experiencing...

    I'm very sorry that DH is experiencing personality issues, Cherie. Were they included in his latest study evaluation?

    ANN, glad mom is doing well. I'm sorry gyno had no brilliant ideas for what...
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    Beautiful. *heart I'm so glad you have John...

    Beautiful. *heart

    I'm so glad you have John for assistance and support. You take care of you now, Rose. It's important.
  66. Replies
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    Welcome home, Jeanie! *heart

    Welcome home, Jeanie! *heart
  67. Replies
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    Virginia, just did a Google search, they have...

    Virginia, just did a Google search, they have zippered, open toed ones, that might solve the heat problem, too.

    The reviews were pretty good and they seem to run somewhere around $20 or so.
  68. Replies
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    You and I must be on the same page, Rose. Before...

    You and I must be on the same page, Rose. Before knowing there was a second post, I was reading your first one right after mine and thinking you were actually REPLYING to mine, it was only after...
  69. Replies
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    You are doing a great job, Rose, you are far more...

    You are doing a great job, Rose, you are far more responsive than any other care he'd receive elsewhere; no one would check him as frequently as you do and respond so quickly.

    I so hope the...
  70. Replies
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    Isn't it amazing how far superior the eggs become...

    Isn't it amazing how far superior the eggs become just by feeding the chickens better food and giving them more space to run around and be chickens?
  71. Replies
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    I have this saved, but I didn't see MDS listed....

    I have this saved, but I didn't see MDS listed. But it may give an overview of its uses, at least from a 2009 perspective:

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2801038/
  72. Replies
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    That's why I decided to read it myself NOT his...

    That's why I decided to read it myself NOT his "principled conclusions".

    I don't want any slant, just the facts.
  73. Replies
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    Glad the store was good about it, Sunshine! Life...

    Glad the store was good about it, Sunshine! Life is full of these silly mishaps, easier to be able to laugh about them. That you were able to find assistance so quickly is amazing, I find store...
  74. Replies
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    You're right - too much of a good thing can be a...

    You're right - too much of a good thing can be a bad thing!

    So glad your van checked out! A good piece of news for you! Hopefully Nancy will have everything organized for you tomorrow and going...
  75. Replies
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    I'm reading The Mueller Report. I hear it's a...

    I'm reading The Mueller Report.

    I hear it's a very compelling read. *grimace
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