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  1. Thanks LAZ! I look forward to pursuing this...

    Thanks LAZ! I look forward to pursuing this article when I get back from todays doc appt :)
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    All I can say is that I am very sorry Agate. ...

    All I can say is that I am very sorry Agate.
    LIke you said, stress is harder as we age and our disabilities mount.
    If you decide that its too stressful, I hope you do lurk, and occasionally chime...
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    My non-neuro doc RXd the Gabapentin compound...

    My non-neuro doc RXd the Gabapentin compound lotion. You just put a thin layer on the area 1-6x daily. The Base is determined by what type of tissue the gabapentin has to penetrate to. I think maybe...
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    Virginia, I do use a compounded prescription...

    Virginia, I do use a compounded prescription Gabapentin. Its in a base that starts with a V, i couldnt tolerate the NSAID they originally added to the base: it burned!

    I use it to control...
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    I tried the MMJ lotion, 1:1 ratio, and it did...

    I tried the MMJ lotion, 1:1 ratio, and it did nothing. The 1/1 sublingual liquid helps a lot with pain.

    The ratio is key... the 9:1 helps with spasticity, pain and sleep. The 4:1 made me very...
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    I got back from the doc appt about an hour ago....

    I got back from the doc appt about an hour ago. This is a doc who sometimes makes you wait,...forever. Its due to scheduling too many patients: keeping the eye on gold rather than souls.

    Taking...
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    What a sad state of affairs. This board has...

    What a sad state of affairs. This board has become a lifeline for several of us. We endure each other’s quirks because we basically believe in the goodness of others here, even if we disagree with...
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    Sadly, this board was thin before primaries and...

    Sadly, this board was thin before primaries and election 2016. Just as thin as now.
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    Swam 1/2 mile in 25 minutes after waking up with...

    Swam 1/2 mile in 25 minutes after waking up with very bad pain in bladder, in legs, dizziness, headache, lower back pain and hip pain...at least no nausea or lightheadiness now that I am farther away...
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    Swam 1/2 mile in 25 minutes after waking up with...

    Swam 1/2 mile in 25 minutes after waking up with very bad pain in bladder, in legs, dizziness, headache, lower back pain and hip pain...at least no nausea or lightheadiness now that I am farther away...
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    I have compassion for Cherie. And, I also have...

    I have compassion for Cherie.
    And, I also have compassion for Ikoiko.

    A person stops posting for complex reasons.

    I doubt it was Ikoikoís intent to cause Cherie to stop posting.

    We mourn...
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    This is the third day in a row that I swam 1/2...

    This is the third day in a row that I swam 1/2 mile in 25 minutes with no spasticity problems afterwards.
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    I swam 1/2 mile in 25 minutes today as the...

    I swam 1/2 mile in 25 minutes today as the Harvest Moon was ending its day :)
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    View Post

    Whoa, you guys are cold! If it werenít for swimming, I would wish for colder weather too :)

    The storm went out to sea, thankfully :)

    Thanks for the reminder about the anonymity or lack thereof...
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    Tomorrow starts a tropical storm locally and it...

    Tomorrow starts a tropical storm locally and it shouldnít be bad. Hopefully the power stays on, and if not, the generator works. Instead of going up the spine of Florida, it is going well offshore...
  16. My understanding is that it is shutting down...

    My understanding is that it is shutting down immediately.
  17. I am sad for Selma Blair.

    I am sad for Selma Blair.
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    Yesterday and today I swam 1/2 mile in 25...

    Yesterday and today I swam 1/2 mile in 25 minutes. Next week, doc appts will ground me three days...
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    Happy Birthday Renee! Walk right in, set a spell,...

    Happy Birthday Renee! Walk right in, set a spell, and celebrate :)
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    Yesterday was IVIG day. Armed with three...

    Yesterday was IVIG day.

    Armed with three consecutive ativans and zofran, i breezed through the 8 hours of restful infusion. Didnít even get to read, just vegged out, staring off, thinking of who...
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    Yesterday was IVIG day. Was thinking about...

    Yesterday was IVIG day. Was thinking about ďpattygailĒ and hoping her day went well.

    Armed with three consecutive ativans and zofran, i breezed through the 8 hours of restful infusion. Didnít even...
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    Jeanie, You are a force to contend with and...

    Jeanie,
    You are a force to contend with and what you are doing is heroic! I recall your telling us your history pre-MS and even then you were living a large adventure!
    And now, beaten up with an...
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    Agate: You are an inspiration Virginia,...

    Agate: You are an inspiration

    Virginia, applaud yourself! You are more active than I am, you are less active than you used to be, but you have more disease burden now. You are doing as much as...
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    IVIG all day today. Yesterday had morning doc...

    IVIG all day today. Yesterday had morning doc visit, so no opportunity to swim, as I swim before DH goes to work in the mornings.
    My cooktop blew a burner yesterday: freaky and a bit scary, waiting...
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    Virginia, My neuro said that it’s okay to take...

    Virginia, My neuro said that it’s okay to take the gabapentin with the other drowsy side effect medications I am on (muscle relaxants etc) . He said to expect to have some sluggishness and...
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    I hope it goes well Jeanie!

    I hope it goes well Jeanie!
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    I swam yesterday and today 23 minutes, 800...

    I swam yesterday and today 23 minutes, 800 yards...despite being so debilitated....
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    Hello Robert, Nice to see you here. Living...

    Hello Robert,
    Nice to see you here.
    Living rural is peaceful and beautiful
    But you canít beat the services and accessibility
    Of living in a big city

    Welcome back!
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    Yesterday I swam 22 minutes 800 yards...

    Yesterday I swam 22 minutes 800 yards...
  30. This is very cool. Sound is hard on SPSers, so I...

    This is very cool.
    Sound is hard on SPSers, so I often mute things and read the subtitles instead of doing both. ... and I watch at least twice. Try that? My meds also make it hard to understand and...
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    Maybe a trip to the doctor is a good idea...

    Maybe a trip to the doctor is a good idea Virginia?
    Ask doc about the pros and cons?
    I coincidentally PMd my neuro about Neurontin yesterday in the event that I have to be without MMJ for a week...
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    That is so incredible Jeanie!

    That is so incredible Jeanie!
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    5282Yes, all of those things have happened to me,...

    5282Yes, all of those things have happened to me, except the wheelchair incident was an almost. DH let me go on a ramp, thinking he wasnt needed for that part. Gravity sent me zooming down the ramp....
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    Today I swam 20.5 minutes: 666 yards.

    Today I swam 20.5 minutes: 666 yards.
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    https://www.networknewswire.com/terminally-ill-san...

    https://www.networknewswire.com/terminally-ill-san-antonio-firefighter-returns-to-work-thanks-to-last-ditch-treatment/

    It is hard to know exactly what helped this man. Reading the article, I think...
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    Ah, That makes sense Virginia, more comforting to...

    Ah, That makes sense Virginia, more comforting to know someone can get a rescue troop to him if he is out of touch and surrounded by water.
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    Today I swam 16 minutes over a 1/4 mile. Then...

    Today I swam 16 minutes over a 1/4 mile. Then Took ativan which let me cook a lentil soup homemade, delish. Easy recipe.
    Thinking of Va and Howie.
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    Virginia, is there a way to alert your local...

    Virginia, is there a way to alert your local authorities about needing to rescue him after the storm passes and why? Ask them if there is a way for them to alert his local authorities about his...
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    Sweet Virginia :) I forgot to add, buy cans of...

    Sweet Virginia :)

    I forgot to add, buy cans of shelled walnuts. Mix with Raisins and a pinch of salt: Makes a filling snack, lots of good calories.
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    THere are some good canned goods. Canned tuna,...

    THere are some good canned goods. Canned tuna, canned chicken, canned minced clams, ... Progresso makes a good chowder like soup that requires no water added, has beans, chicken, beef, whatever you...
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    I swam 14 minutes today, 1/4 mile plus 60 yards....

    I swam 14 minutes today, 1/4 mile plus 60 yards. Did fine...Dorian was far enough away to take the plunge. Windy, but no rain and no Tstorms at that time. Last of the storm should be in an hour today.
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    Def dodged the bullet here. We will evacuate well...

    Def dodged the bullet here. We will evacuate well before next predicted Cat 3/4 or above. Will either go inland to Orlando/Tampa and take everything with us, or go on plane to oldest child in major...
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    Def dodged the bullet here. We will evacuate well...

    Def dodged the bullet here. We will evacuate well before next predicted Cat 3/4 or above. Will either go inland to Orlando/Tampa and take everything with us, or go on plane to oldest child in major...
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    I swam 14 minutes today, 1/4 mile plus 60 yards.

    I swam 14 minutes today, 1/4 mile plus 60 yards.
  45. Thank you very much Laz!!!

    Thank you very much Laz!!!
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    Happy Birthday Cherie! We miss you and think...

    Happy Birthday Cherie! We miss you and think about you and hope you and David are okay. Come back when you feel ready...Sunshine
    *birthday*birthday*sparkle
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    WPB was really spared a tremendous heartbreak...

    WPB was really spared a tremendous heartbreak when the storm stayed just offshore. But, the heavy rains there are going on and will all night.

    I think FPL is on it and repairs will be done within...
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    The heavy rains and wind are beginning and end by...

    The heavy rains and wind are beginning and end by noon tomorrow. I found a very cool FPL map where you can see where the outages are, how many homes, and est time to repair. You can also report an...
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    I just swam 15 minutes, 1/4 mile plus 80 yards....

    I just swam 15 minutes, 1/4 mile plus 80 yards. It did feel good to move in teh water, hoping all holds well. It was partly sunny and breezy out, despite looming Dorian.
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    I just swam 15 minutes, 1/4 mile plus 80 yards....

    I just swam 15 minutes, 1/4 mile plus 80 yards. It did feel good to move in teh water, hoping all holds well. It was partly sunny and breezy out, despite looming Dorian.
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    Whole town is boarded up and ghost like. ...still...

    Whole town is boarded up and ghost like. ...still relatively calm here. Still have power and internet....
    People out walking according to cam. No one is driving, no cars in sight. Must be people who...
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    We still plan to stay for Dorian. Very scared in...

    We still plan to stay for Dorian. Very scared in that I am so lame to start with. Will take ativan today so I can do final prep of storing water in all empty vessels for extra water besides the water...
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    Looks like WPB will be okay. That means Mar a...

    Looks like WPB will be okay. That means Mar a Lago will likely survive, meaning the feds might be less interested in sending aid to Florida...I heard that on the radio per a friend today.

    First...
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    Rabbit, Rabbit fellow board members. It is now...

    Rabbit, Rabbit fellow board members. It is now September and we are staring into the jaws of Dorian.

    This is one horrid storm for the Bahamas. And a nail biter for my region. I hope we are not...
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    Keep on Moving Thread: Sept. 2019

    MS creates some real challenges to keep on moving. It helps to inspire each other on how to find ways to move.

    Did you stretch in your bed, swing your arms, roll side to side today? Or perhaps...
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    Virginia, lately I have many days, such as today,...

    Virginia, lately I have many days, such as today, I barely walk. And I do no exercise to speak of . I do what you can. Itís frustrating, but I donít criticize myself. Its my body, not myself that is...
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    Do you have a neighbor Virginia. Strangers and...

    Do you have a neighbor Virginia. Strangers and neighbors will help older women, especially handicap ones. IT makes them feel good to help. Reach out. Call your meditation group and see if they have...
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    Continuing to prepare. Just paid cc by phone in...

    Continuing to prepare. Just paid cc by phone in case lost in storm mail. Making some food. Doing the last minute laundry. Resting. My legs are terrible from the disc extrusion. I hope \it doesnt turn...
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    That is amazing Virginia. We all do something......

    That is amazing Virginia. We all do something... just not like we used to do. We do what our body allows us to do, I think.
  60. Maybe soak it in cotton ball or q tip, and then...

    Maybe soak it in cotton ball or q tip, and then reach it there by hand or with a grabber and put in sock? Or soak top of sock in it, at least one time and see if it works?
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    The urology appt went well and I will transfer...

    The urology appt went well and I will transfer care to the urologist. The med recommended is to start after the hurricane when I can report side effects if a bad problem. See back in 3 weeks.

    At...
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    Great job AgATE!!!

    Great job AgATE!!!
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    Today I swam for 1/4 mile in 15 minutes: half...

    Today I swam for 1/4 mile in 15 minutes: half freestyle and 1/2 modified breast stroke, mainly using arms and trunk. I was nauseous and dizzy before . But figured I would be no worse off in the pool....
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    Virginia, Depression can be so painful. And...

    Virginia, Depression can be so painful. And loneliness. I am so sorry you are suffering... I know that
    When I suffer from disease and the emotional stuff that comes with it, I push away people,...
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    We are expecting a major hurricane. Scary to...

    We are expecting a major hurricane.
    Scary to think of being cut off from hospital help if become too spastic.
    And hard not to be able to help out with preparations. Sigh,,,,if we do get the...
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    NOAA now predicts a Category 3 hurricane will hit...

    NOAA now predicts a Category 3 hurricane will hit Florida Monday, not Sunday. they moved it farther north of Jeanie, and she may just see a breezy day, hopefully.

    The models, though, talk about...
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    Great story Linda and a most excellent day, so...

    Great story Linda and a most excellent day, so alive, so engaged and engaging :)
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    Jeanie, that sounds miserable. Those symptoms...

    Jeanie, that sounds miserable. Those symptoms sound like possibly sinus infex. I am also worried there could be other type of infection ... donít be shy to get to the doctor. I know, that is an...
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    Watching Dorian. So far, it looks like WPB is in...

    Watching Dorian. So far, it looks like WPB is in the crosshairs for tropical storm Dorian. Jeanie, what is your plan? Donít be a big shot. Let Andy take care of you .
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    I cut back Tizanidine by 2mg per day, 4 days ago....

    I cut back Tizanidine by 2mg per day, 4 days ago. So far so good, but no difference in side effects. Plan to do it for 2 weeks, and then another 2mg for two weeks to see the impact on side effects...
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    Today I did water exercise in the pool, a form of...

    Today I did water exercise in the pool, a form of breast stroke that doesnt seem to tweak my back or legs. For 14 minutes. That is the 3rd time since this latest chiro debacle a week or two ago, I Am...
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    Today I did water exercise in teh pool, a form of...

    Today I did water exercise in teh pool, a form of breast stroke that doesnt seem to tweak my back or legs. For 14 minutes. That is the 3rd time since this latest chiro debacle. Am assuming itís...
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    I hear you about the hurry up and wait My least...

    I hear you about the hurry up and wait
    My least favorite waiting is for call backs from doctor offices. You have to have clean hands to answer the cell to swipe it on my droid. So, It risky handling...
  74. I have this in my feet, toes, ankles. The...

    I have this in my feet, toes, ankles. The stiffness is painful. For me it is spasticity; the muscles stiffen painfully, 24/7 with some relief here and there.
    It is part of Stiff Person Syndrome. But...
  75. THese problems are medication caused. The muscle...

    THese problems are medication caused. The muscle relaxant causes severe constipation. So I take meds that cause the bowel to empty, but unexpectedly. I can stop the med, but sometimes the action is...
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