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  1. Replies
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    View Post

    This article describes much of my life right now and I thought some of you guys could relate as well.
    Linda

    “For many people that live with a chronic illness like Multiple Sclerosis, everyday...
  2. The pregnancy and estrogen issue has always...

    The pregnancy and estrogen issue has always attracted my reading attention.
    I too like it when a researcher looks at a seemingly obvious situation (more MSers are women) and asks why.
  3. It is an interesting vein of investigation.

    It is an interesting vein of investigation.
  4. Why women get autoimmune diseases in greater numbers than men....from The Atlantic

    A Breakthrough in the Mystery of Why Women Get So Many Autoimmune Diseases
    Evolution might have played a trick on women’s immune systems.

    OLGA KHAZAN
    10:40 AM ET
    An illustration of a placenta...
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    I had one dangerous reaction in the 8 years I did...

    I had one dangerous reaction in the 8 years I did IVIg. My nurse had forgotten to give me any of the 3 premeds I take before the infusion. An hour into the 7 hour infusion I had trouble breathing,...
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    Thanks for the info.

    Thanks for the info.
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    That happened to me once but they found some for...

    That happened to me once but they found some for the infusion that day. I wonder if it is because of a shortage in the blood supply. It is a product made from blood from a thousand donors. (Used to...
  8. Great idea. If I see them again I will tell them...

    Great idea. If I see them again I will tell them your suggestion! It would be lovely to have a special way to celebrate each year that reminds you of how it all started.
  9. View Post

    Yesterday at a gloriously busy farmers’ market there was an early morning space of relative quiet. I noticed a young couple who stood out because they were handsomely dressed up. (I never understood...
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    I have MS and do not fit those criteria.

    I have MS and do not fit those criteria.
  11. Thread: June Chit Chat

    by Lazarus
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    I was outside at 6am....picking sugar snap peas...

    I was outside at 6am....picking sugar snap peas for the first time this season. Yum. One for me and one for the basket!
    John just discovered there were snow peas to pick also but I am done for the...
  12. Thread: Politics

    by Lazarus
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    I don’t think she had a prior good name. She and...

    I don’t think she had a prior good name. She and her father have followed the same philosophical path...and she will not disappear. She will run for governor of Arkansas. Trumpism lives on and on..
  13. Thread: June Chit Chat

    by Lazarus
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    Great to stand! Even for a few seconds it does...

    Great to stand! Even for a few seconds it does remind you of what you can do! Good luck Jeanie.
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    That’s why we need you so much....Catdancer!

    That’s why we need you so much....Catdancer!
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    Isn’t it amazing Virginia that suddenly you can...

    Isn’t it amazing Virginia that suddenly you can do something that was impossible the. Day before. That happens to me a lot and I am always happy when it happens. I have given up trying to figure out...
  16. Thread: June Chit Chat

    by Lazarus
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    I was thinking that the Apple iPad and Apple...

    I was thinking that the Apple iPad and Apple iPhone would work generally the same way....
    That was probably silly of me because john’s iPad works differently than mine....not a lot but just enough...
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    I think most of us on this board have a...

    I think most of us on this board have a remarkable talent for Anne’s approach. We have ways to take a break from “ dark thoughts and big worries. “ this is a big talent that keeps us from horribly...
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    Sorry you are having such a tough time. Try to...

    Sorry you are having such a tough time. Try to just describe what you are experiencing and do not interpret what you think is connected to what. Let your neurologist put the puzzle together and then...
  19. Thread: June Chit Chat

    by Lazarus
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    I know almost nothing about technology but I have...

    I know almost nothing about technology but I have an iPad and I put this page on it. All I ever do is click on this page which I put on the icon page. I have WiFi...no cellular...but no problem. On...
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    Big business growers have bred the flavor out of...

    Big business growers have bred the flavor out of the tomato in a constant effort to get long shelf life tomatoes...tomatoes that will not spoil with weeks of storing and shipping. Seek out local seed...
  21. Oh boy! It was a treat to see your name on a...

    Oh boy! It was a treat to see your name on a post. I was just thinking about you recently.
    Now I will do the homework you have given and read about your idea and experience. Interesting.
  22. In the article Agate posted it mentioned problems...

    In the article Agate posted it mentioned problems were linked to the dosage taken. 5mg used to give me 8 hours of total control. Now I use 10mg for the same affect. The maximum dosage allowed per day...
  23. Oh! Thank you for the link.

    Oh! Thank you for the link.
  24. Oxybutinin is saving my public life but...my neuro told me of this danger.

    I have had big troubles with bladder control. I took oxy for 25 years..one pill a day...and it was perfect. When things got worse I tried lots of alternatives, eventually Botox, and nothing worked....
  25. Thread: June Chit Chat

    by Lazarus
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    I had the first round of rituxan in this June...

    I had the first round of rituxan in this June course yesterday. I was full of energy last night but my neuro always reminded me that the immediate energy was probably coming from the pre med of...
  26. After my first MRI ( in 1990) with dozens of...

    After my first MRI ( in 1990) with dozens of bright shining lesions I have continued progressing. But there are rarely if ever any enhanced lesions. My neuro always told me not to make judgments of...
  27. Thread: June Chit Chat

    by Lazarus
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    I had a bad reaction to betaseron. A surgeon did...

    I had a bad reaction to betaseron. A surgeon did something to drain it even though there was nothing in it to drain. So the surgeon’s efforts turned an ugly reaction gangrenous. That put me in the...
  28. Thanks for the good wishes! As my sister wrote “...

    Thanks for the good wishes! As my sister wrote “ 51 years is a long time”. Funny, but it does not seem long...feels like it was just yesterday! John and I did separate farmers markets yesterday but...
  29. Thread: June Chit-Chat

    by Lazarus
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    June Chit-Chat

    I am leaving for farmers’ market and am up early today so I started this thread. Today is our 51st wedding Anniversary...
    Hard to believe!
  30. Thread: Peg

    by Lazarus
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    Oh, there is a huge hole in the world. Peg...

    Oh, there is a huge hole in the world. Peg touched so many of us that her death leaves us all huddled together in that hole.
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    Oh yes....all this praise. Is an understatement....

    Oh yes....all this praise. Is an understatement. We owe you so much for helping keep this home going.
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    Yes..yes..yes!

    Yes..yes..yes!
  33. Interesting.

    Interesting.
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    I have been a vegetarian for 51 years. So I do...

    I have been a vegetarian for 51 years. So I do not eat many processed foods and might be close to the diet you try. It will be interesting to see what you experience.

    As we all are I am weary of...
  35. Thanks. Interesting and useful.

    Thanks. Interesting and useful.
  36. Thread: Phones

    by Lazarus
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    Virginia, Yes.phones are new.. John and I...

    Virginia,
    Yes.phones are new..

    John and I have consumer cellular phones. Unlimited calling. I have texting on mine....anyway, we use them all day long. I use the alarm on mine to remind me what...
  37. Thread: Phones

    by Lazarus
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    I use a flip phone from consumer cellular. But I...

    I use a flip phone from consumer cellular. But I need to switch to smart phone also. No contracts. Good prices. Go to their website. I just looked. Apple iPhones for $400.00 and another for $500.00....
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    SuzE-Q... I love you for giving us this gift...

    SuzE-Q...
    I love you for giving us this gift article.
  39. Replies
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    Just what I was thinking about the...

    Just what I was thinking about the dizziness/allergy connection.....if I have congestion I take a swig od DayQuil...and I clear almost instantly. Unlike its partner NYQuil...it does not make us...
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    I know it is frustrating. I do not have kindle...

    I know it is frustrating. I do not have kindle but do have Amazon Prime. I just wanted to say that sometimes I have trouble remembering where I found the one darn right spot where I can click and...
  41. Thread: Speech

    by Lazarus
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    When I am at farmers market and trying to explain...

    When I am at farmers market and trying to explain something complicated to a customer I often make a small joke of it by saying that my eyes are so I can think more clearly. I often say something...
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    Thanks Agate. You are exactly right...it was...

    Thanks Agate. You are exactly right...it was sudden, abrupt and cold. I will take a ride there to locate the parking and where it is within the hospital campus.it will be a whole new set of nurses....
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    Thanks Virginia.

    Thanks Virginia.
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    I have been doing infusions at a cancer center...

    I have been doing infusions at a cancer center for 20 years. It is 20 minutes from my home. All my medical connections are connected to the same area so it is a blessing.

    Yesterday I got a phone...
  45. My nephew, who is an MD posted this on Facebook....

    My nephew, who is an MD posted this on Facebook. It does ring true.
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    This post is great. Thank you. Airplanes...

    This post is great. Thank you.

    Airplanes flying above
    All that pollution must be
    Killing fields and fowl.
  47. Interesting. My diagnosis and betaseron came...

    Interesting. My diagnosis and betaseron came together at almost identical times. I think that it was only months after my diagnosis that I won that lottery and got the drug as one of the first...
  48. Thanks in advance...now I will go read the post!

    Thanks in advance...now I will go read the post!
  49. Thread: Speech

    by Lazarus
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    Yes Virginia it does look strange. I always say...

    Yes Virginia it does look strange. I always say something such as I am shutting my eyes so that I can answer more coherently. I do it when trying to explain some complicated thing to a customer, my...
  50. Thread: Speech

    by Lazarus
    Replies
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    “have lots of gaps between words as I try to...

    “have lots of gaps between words as I try to speak. And if I'm interrupted, I'll lose track entirely......”. Cat Dancer

    This is exactly what I was doing when applying for disability to the state I...
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    I sleep best after nearly killing myself doing...

    I sleep best after nearly killing myself doing farm work. Just an idea but maybe planting vegetable gardens would work as well as pills!
  52. Thread: Speech

    by Lazarus
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    I didn’t remember the slurring until you...

    I didn’t remember the slurring until you mentioned it. But yes, that is part of my arsenal of speech difficulties.

    The other thought from your post is that if you think about it, you probably can...
  53. Thread: Speech

    by Lazarus
    Replies
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    I have had many speech problems with my MS. My...

    I have had many speech problems with my MS.
    My speech can be so halting, so slow, so interrupted with empty space that this issue more than any other got me instant acceptance of my disability...
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    The details in your explanation above are a gift....

    The details in your explanation above are a gift. If any of us needed to use the product your explanation shows the simplicity.you take away the fear factor thanks
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    Oh, you have had a time of it! I hope the...

    Oh, you have had a time of it! I hope the discomfort passes quickly
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    I have ended up in the hospital twice in re ent...

    I have ended up in the hospital twice in re ent years as a direct result of dehydration. Both times paramedics realized zed I was not thinking clearly and started hydrating me in the ambulance. When...
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    Hello, I liked your response probably because I...

    Hello,
    I liked your response probably because I agree with it! However, I am frustrated with MRIs that show no bright and shiny lesions when my progression is obvious. So I remember my very first...
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    It is very good to hear your voice. We all missed...

    It is very good to hear your voice. We all missed you a lot.
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    I will look more fully when I get home from...

    I will look more fully when I get home from farmers market! But I did notice those flimsy wheels. I answered you so I could mention that my puppy looks like the picture!
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    Hi Nuthatch, How have the hours been since the...

    Hi Nuthatch,
    How have the hours been since the first jolt.? The weather extremes we are having are humbling....earthquakes, heat, rain...all these extremes form the shadows that flicker through the...
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    It is amazing how 3 coyotes can sound like...

    It is amazing how 3 coyotes can sound like dozens! We too have lots and hear the yipping.
    It is bear season now so news reports are constantly reminding people to take down bird feeders.

    I am in...
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    Good luck to all! Sunshine...Peg needs you!...

    Good luck to all!
    Sunshine...Peg needs you! (Symbolically)
    Sunshine...I thought about that pool more than once.

    My farm too is getting a slow start...
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    Oh my goodness....don’t you wish we could all fly...

    Oh my goodness....don’t you wish we could all fly away and have a vacation where, even for a day, we are all well?
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    I read that book several years ago. A customer...

    I read that book several years ago. A customer brought it to me and said I HAD to read it! Great.
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    I never thought about what happened worldwide on...

    I never thought about what happened worldwide on 9/11....when all air flights into as well as within the country were stopped. This book shows the generosity and care of heroic everyday...
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    View Post

    I was being sarcastic about Barr’s summary!
  67. Replies
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    Ouch! John and I went to the first farmers’...

    Ouch!
    John and I went to the first farmers’ markets yesterday and the temp stayed between 46 and 48°. Brisk wind with gusts up to 30mph. As I was leaving the house I looked at my trailer and...
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    Welcome home. Let the healing begin!

    Welcome home. Let the healing begin!
  69. View Post

    Having trouble viewing this email? Click here
  70. View Post

    Dave Bexfield is the Active MSers guy! I copied this from his newsletter today.

    .”FDA Approves Two Oral MS Meds. Last month the U.S. Food and Drug Administration approved Mayzent (siponimod) and...
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    If you click on the link to the article it says...

    If you click on the link to the article it says MS: High-strength MRI may predict disease progression
    Published Sunday 21 April 2019
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    New MRI macnine .

    I copied this article from MSWorld...

    “Researchers used a powerful MRI scanner to monitor people with multiple sclerosis and found a link between the total volume of cortical lesions and...
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    Maybe you could give us all a quick summary! Oh...

    Maybe you could give us all a quick summary! Oh wait, Barr already did that...
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    Thanks. I have been researching mds. in 1965, I...

    Thanks. I have been researching mds. in 1965, I was out on a double date. I was with this friend and the other couple was my now husband and another girl. (We were all so young then). By the end of...
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    Just what I was thinking. You never know what is...

    Just what I was thinking. You never know what is going on in the lives of people, why they make the decisions they do....perhaps the best medicine some got was the freedom to be with others like...
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