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  1. Replies
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    My dear Rose, I am so glad that Jim is feeling a...

    My dear Rose, I am so glad that Jim is feeling a bit better. And I hope that he can get a 2nd opinion very quickly (what does that mean anyway in today's system?). I'm disappointed that he feels the...
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    Agree! Great advice on language, Mary Grace....

    Agree! Great advice on language, Mary Grace. Happy New Year to you and Kathleen!
  3. Replies
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    Oh gosh, Rose, I'm so so sorry that Jim (and you)...

    Oh gosh, Rose, I'm so so sorry that Jim (and you) are having to deal with this crap. That's what it is, because if only the doctors would talk to you both and explain what's going on, the plan, what...
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    Merry Christmas and Happy Hanukkah to one and all...

    Merry Christmas and Happy Hanukkah to one and all here at CN2! Rose, I'm reading your updates and thinking about the radiation. Callyflower's comment explains a lot, doesn't it? I hope the steroids...
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    My dearest Rose, has the baclofen worked? It's a...

    My dearest Rose, has the baclofen worked? It's a drug that Nick cannot live without - I hope Jon has no side effects! Nick has never had side effects - it has been his life saver. There are some...
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    Thanks for sharing!!!! These are wonderful!!!

    Thanks for sharing!!!! These are wonderful!!!
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    Hi Rose, that's so weird that you had a different...

    Hi Rose, that's so weird that you had a different screen! Oh well, you have a flavour. One of the big questions asked was, does it make a difference to you to have a genetic diagnosis? I would love...
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    Hi guys! Here's a garbled copied and pasted...

    Hi guys! Here's a garbled copied and pasted lineup from the conference - but you'll get the idea. It's all interesting and this is one of three days of presentations. Day 2
    LISTENING TO CHILDREN’S...
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    Hi Everyone, I've been away at a childhood...

    Hi Everyone,
    I've been away at a childhood disability research conference which was really interesting and fun. https://www.brainchildpartners.ca/ If you are interested in seeing the program, click...
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    Hallelujah Rose!!!!! I'm so relieved to hear that...

    Hallelujah Rose!!!!! I'm so relieved to hear that the trache and catheter got changed without trauma. What a blessing. And that Jim is doing so well this week. Yay!!! You taking a day off today is...
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    Praying praying praying for a new trache and...

    Praying praying praying for a new trache and catheter! It was such a long time ago we used silver nitrate, Rose, I can't remember if we needed a prescription, but you could call your pharmacist and...
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    Hmmm, reading all this (many of which you've sent...

    Hmmm, reading all this (many of which you've sent me in emails) and worrying and wondering. How is Jim tonight? Any progress on Jon's trache? Thinking of you always and praying, always. Love you,...
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    Hi Rose, thank you for your emailed response -...

    Hi Rose, thank you for your emailed response - I'll answer here and get back into the habit of checking in with my dear friends at CN2. In our experience, silver nitrate is fine in small doses -...
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    Hello dear Rose and dear friends, old and new....

    Hello dear Rose and dear friends, old and new. Rose, I wanted to check in to see any latest news on Jon's trache - hoping for the best and praying. Rose, I was thinking that maybe silver nitrate...
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    Hi Guys! Here is what Erin posted on facebook -...

    Hi Guys! Here is what Erin posted on facebook - some small victories. I can't even imagine.

    So much this. It's hard not to feel drained by the last week's events.
    In positive news, last Friday I...
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    Hi Everyone, I am sorry that I have been MIA here...

    Hi Everyone, I am sorry that I have been MIA here on CN! But I'm glad to catch up. Nick is doing well - he had a lesson in blackjack in preparation for his BIG TRIP (staying one night) to the casino...
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    Hi Rose! I was looking for an online support...

    Hi Rose! I was looking for an online support group for parents of adult children with disabilities and I just checked in here to see my old friends - sorry I haven't been online here for a long time!...
  18. Ahh, thank you Rose and Funnylegs! Rose, you are...

    Ahh, thank you Rose and Funnylegs! Rose, you are so right and I agree. We are uncivilized. It's so distressing. Racists are emboldened - it's now open season on immigrants. So scary. And the poor and...
  19. Some reflections on Brexit and Caregiving

    Hi Everyone! In case you've been following the Brexit referendum in the UK and wondering what it might mean for caregivers, here are my reflections:...
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    Hi Rose and everyone! We are just home from 10...

    Hi Rose and everyone! We are just home from 10 days away in the UK (what a mess there now with Brexit!). Nick was over this afternoon to watch the european cup soccer and I made sausage rolls (his...
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    Hi again everyone! Funnylegs, check this out:...

    Hi again everyone! Funnylegs, check this out: With so much news generated by ME BEFORE YOU and other important disability events and issues, here is an opportunity for budding journalists with...
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    Hi Everyone! Sorry I'm late to this update...

    Hi Everyone!
    Sorry I'm late to this update thread. I'm quite busy recently - selling our house and moving to the country but still close to Nick, travelling abroad later today, writing a new book,...
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    Hi Mercado, I am the mother of a young man with...

    Hi Mercado, I am the mother of a young man with CP living in Ottawa, Canada. I'm also a disability and family caregiving activist. In which province do you live? If you are in Ontario, there is a...
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    Mary Grace, I am so sorry for the passing of your...

    Mary Grace, I am so sorry for the passing of your brother in law. I do hope that your family will still have some joy in the Easter celebrations this weekend. Tamie, I'm so glad that the doctors have...
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    What a TREASURE! Thank you so much for sharing -...

    What a TREASURE! Thank you so much for sharing - your girl is just the best! Happy Birthday, Kathleen!!! And congratulations to a wonderful mother. You've done an amazing job to date, Mary Grace. xox
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    Oh Tamie, this is awful... unimaginable. What is...

    Oh Tamie, this is awful... unimaginable. What is your gut feeling about the pain source? Can't they give Tyler some morphine or something very strong to calm the pain and give the poor guy some rest...
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    Hi Rose, I'm going to Kate's memorial service...

    Hi Rose, I'm going to Kate's memorial service tomorrow. I will tell you all about it. It will be a celebration of her rich, but short life. xo
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    I remember many of these children, Rose. Thank...

    I remember many of these children, Rose. Thank you so very much for being our memory keeper. I will be lighting a candle on Sunday after coming home from Kate's memorial service. I'll be remembering...
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    Hi Rose, How is Jon today? Sending healing...

    Hi Rose, How is Jon today? Sending healing prayers xox
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    Happy 21st to Tyler! It's hard to believe your...

    Happy 21st to Tyler! It's hard to believe your little boy is now a young man. So glad you are having a lovely day! Please give a gentle hug to Tyler from me and my family. May his next year be a...
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    Hi Everyone, Rose, I hope Jim passes the eye...

    Hi Everyone,
    Rose, I hope Jim passes the eye test and that Jon does one of his magical turnarounds and begins to sleep and poop again! Funnylegs4, I hope your professor is being kind to himself as...
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    Oh Rose. I am so sorry that you had to endure...

    Oh Rose. I am so sorry that you had to endure such traumatic and life threatening events. I'm so glad that you are all okay. I have been awake a lot the last few nights. Natalie lives in Philadelphia...
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    Terrific blog post, Erin!

    Terrific blog post, Erin!
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    Thank you, Rose, for your eloquent comments. Like...

    Thank you, Rose, for your eloquent comments. Like the image of the toddler refugee on the beach, this shooting really really bothered me. I know it's in the US and I live in Canada. But maybe because...
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    Absolutely, Tamie! I agree 100%. We need a...

    Absolutely, Tamie! I agree 100%. We need a balance.
  36. Replies
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    Wow! Amazing blog post! There are so many layers...

    Wow! Amazing blog post! There are so many layers here, I hardly know where to start. The concept of otherness and social comfort is so complex. It's fascinating all that you went through with your...
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    I posted on facebook a sad message about the...

    I posted on facebook a sad message about the shooting a message expressing that I am mystified how anyone could value their right to carry all sorts of weapons over the lives of innocent people who...
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    Something to Reflect On

    Hi Everyone,
    For this day of Disability in the World, I published an interesting guest post on my blog. http://www.donnathomson.com/2015/12/in-pursuit-of-childs-potential-parents.html. It's the...
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    This is so awful. I simply cannot believe how...

    This is so awful. I simply cannot believe how evil this act was. Just terrible. Today, the International Day for Disabled People is a day of mourning in California. When will people stop believing...
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    WOW, Rose, I can't believe Jon is 46! I'm shaking...

    WOW, Rose, I can't believe Jon is 46! I'm shaking my head - I just don't think of him being 'middle aged' at all. But then again, Nick is 27 now and I still think of him as my baby lol. All is well...
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    My dear Tamie, I am so sad to hear that poor...

    My dear Tamie,
    I am so sad to hear that poor Tyler is having such a terrible time (and you too). I can't imagine how he must be suffering and you must feel so helpless because he never seems to...
  42. Thread: Kathleen

    by Donna Thomson
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    I'm so happy to hear that the surgery went well...

    I'm so happy to hear that the surgery went well and thank you so much for posting the photos! Glad you got great treatment at the Shriner's too. Hopefully everything will continue on the up and up....
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    Hi Everyone, I saw your note Rose that Jon is...

    Hi Everyone,
    I saw your note Rose that Jon is doing much better, thank goodness! Mary Grace, I'll be thinking of you and Kathleen as her surgery draws near. Good luck! I love the autumn too. We...
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    How is Jon now, Rose? Oh, what a time you've all...

    How is Jon now, Rose? Oh, what a time you've all had recently!
  45. I am so sorry you and your little girl have...

    I am so sorry you and your little girl have endured this nightmare. You all must be exhausted. I hope you both are able to get some really deep rest at home now. Our son Nicholas has severe CP and...
  46. Thread: senior

    by Donna Thomson
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    PS: Mary Grace, I am sending you a Private...

    PS: Mary Grace, I am sending you a Private Message. A friend who is local to me has a daughter with Down Syndrome who has just recently suffered a stroke and has been diagnosed with Moya Moya. ...
  47. Thread: senior

    by Donna Thomson
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    Oh, her photo is just precious Mary Grace! She...

    Oh, her photo is just precious Mary Grace! She is a wonderful young woman :)
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    Hi Rose! I'm sorry I can't watch it here in the...

    Hi Rose!
    I'm sorry I can't watch it here in the north woods, but I heard that it was on from friends and that it was wonderful! I'm so glad that everyone has the chance to see the joy and...
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    Wow, amazing what they can do now in terms of...

    Wow, amazing what they can do now in terms of analysis using technology. Nick had his heel cord lengthened, but then just cast and he never walked so the immobility wasn't an issue. Keep us posted...
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    Hi Everyone, I'm sorry I'm late to the party -...

    Hi Everyone,
    I'm sorry I'm late to the party - Happy Belated 4th to all my friends in the US! Rose, I am so relieved that Jim is cancer free and so upset that you have to endure not only endless...
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    Hi Everyone! I am late to check in - apologies! ...

    Hi Everyone! I am late to check in - apologies! Jim and I came home from our Natalie's graduation in Delaware early because we both had the flu (caught from Nick who was really sick with it for...
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    Hey Erin, So relieved you are not going to be a...

    Hey Erin,
    So relieved you are not going to be a scumbag lawyer, phew! Now I can sleep LOL. Go girl and pick your battles - those you will win in great style. The current accessibility challenges...
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    Hi Everyone, Rose, I am so sorry that Jim isn't...

    Hi Everyone,
    Rose, I am so sorry that Jim isn't well and is struggling with so many issues - you must be so worried on so so many levels! I wonder if you could get him a C=pap machine just to try...
  54. Replies
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    Hi Everyone, I am so sorry that I am late to...

    Hi Everyone,
    I am so sorry that I am late to this party! Happy belated Mother's Day everyone - all dear friends!!!! Nick has been sick and my Mom has needed me a lot too. Nicholas has a chest...
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    Hi Mary Grace! Ohhh I LOVED seeing those photos!...

    Hi Mary Grace!
    Ohhh I LOVED seeing those photos! You all look gorgeous and so happy. I'm just like Kathleen, I LOVE to dance! You must be so proud of Kelly too - I really happy for you all that...
  56. New Initiative to Help Grieving Mothers on Mother's Day

    Hi Everyone,
    Thought I would share this in case you or anyone you know needs this: http://comingsoon.motheringyourheart.com/mothers/

    Love to you all,
    Donna
  57. A New Mother's Day Initiative for those grieving loss on that day

    I thought I would share this wonderful initiative to help grieving mothers on Mother's Day.

    http://comingsoon.motheringyourheart.com/mothers/
  58. Replies
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    Hi Tamie, I'm so sorry that Tyler and you are...

    Hi Tamie,
    I'm so sorry that Tyler and you are still struggling so hard with this awful problem. Prayers going up. xo Donna
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    Hi Everyone and Happy Easter! 4243 We had a...

    Hi Everyone and Happy Easter!
    4243

    We had a lovely Easter day today - church in the morning and this afternoon Nick and Tom, his helper came for an early dinner of roast chicken with all the...
  60. Replies
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    Hi Lisa! Oh gosh, it's exhausting reading your...

    Hi Lisa! Oh gosh, it's exhausting reading your posts - you are such a firecracker and so are your boys and Caitlin AND Ranger! Brian too! lol Did you get to have Logy's birthday? I hope the boys...
  61. Hi Everyone, We're home now and tonight Nick is...

    Hi Everyone,
    We're home now and tonight Nick is out with Jim at a hockey game. Nick is doing fine except for increased seizures at night. His PRN ativan just doesn't seem to be working anymore....
  62. It's About Time I Caught Up With My Oldest Friends!!!

    Hi Everyone!
    I've been reading all your news - everyone is so busy and hopefully life will slow down a bit and the Gods of aches and pains will be kind this spring (to us, I mean) - the Gods of...
  63. Hi dear Erin! I was just about post here with...

    Hi dear Erin!
    I was just about post here with an intro something like "It's about time I caught up here with all my best old pals!" when I saw your post. Yes, I saw your First Class Honours on...
  64. Replies
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    Hi Mary Grace, My blood pressure is low and...

    Hi Mary Grace, My blood pressure is low and sometimes it's positional (lower lying down and I get real drops when I stand up from lying), lowers if I'm dehydrated and also if I've just eaten a big...
  65. Great film! I really liked the two leads - you...

    Great film! I really liked the two leads - you have some great actors. Like Rose, I think the city scape worked well as background and incidental shots. Great story!
    Thanks for sharing :)
    Donna
  66. Excellent. Rose, my post accomplished its...

    Excellent. Rose, my post accomplished its mission, which is to show the nobility and very honourable nature of our caregiving work. You are Princess for today, Rose! Sending much love, Donna xo
  67. Thread: Home

    by Donna Thomson
    Replies
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    Thank goodness! So happy you're home and OK!...

    Thank goodness! So happy you're home and OK! Hugs, Donna
  68. Surviving a power outage with your medically complex child

    Hi Everyone,
    I know Rose is prepared, but I wasn't in 1998 when had the biggest ice storm in history and we lost power for 3 days!

    This is a good article to share :)...
  69. Replies
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    Wow, that is so cool, Mary Grace!!!! Awesome...

    Wow, that is so cool, Mary Grace!!!! Awesome photo! I have never seen Gotham though lol
    Glad that you all enjoyed a day meeting the stars!
  70. Celebrating the Royalty and Nobility in Everyday Caregiving

    Hi Everyone!
    Here's a blog post that I wrote today - too bad the photos didn't show but you can see them on my site at http://www.donnathomson.com/2015/01/celebrating-royalty-and-nobility-in.html
    ...
  71. Replies
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    Hi Dear Rose, I just felt like a smoothie or a...

    Hi Dear Rose, I just felt like a smoothie or a pina colada and your company!!! :) We had a good holiday even though Nick's pain was not so good. The great news though is that he is much better! The...
  72. Replies
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    Ohhhh Bless you, Mary Grace!!! I am so glad that...

    Ohhhh Bless you, Mary Grace!!! I am so glad that Rose and her beach and lounge chair kept you from coughing!!! I am so happy that our Rose inspired you to feel peaceful at such a stressful time. We...
  73. Replies
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    Hi Mary Grace, Oh I am sorry that the MRI was...

    Hi Mary Grace, Oh I am sorry that the MRI was rescheduled - what a pain! It's so complicated and so much work for you. I think you need TWO secretarial positions and I volunteer to be the other...
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    Rose, thank you once again for your generous and...

    Rose, thank you once again for your generous and kind words of wisdom. You are right of course, I am out of practice and had I kept caring for Nick at home, I would still be doing it without much of...
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    Hi Everyone! I'm a little late to the party -...

    Hi Everyone! I'm a little late to the party - our daughter Natalie has been visiting with her boyfriend and it's been absolutely wonderful having them here. I've been cooking a lot and visiting...
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