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  1. Replies
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    Thanks agate! Sorry about the tech issue.

    Thanks agate! Sorry about the tech issue.
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    Very Beautiful animal.

    Very Beautiful animal.
  3. Replies
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    Thanks so much Rose! The internet is indeed a...

    Thanks so much Rose! The internet is indeed a blessing for the disability rights movement in 2020.

    Keep doing your best and all my prayers to you. I had a nice thanksgiving and I hope you did too...
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    It was good considering the COVID, lots of...

    It was good considering the COVID, lots of eating, thankfulness and good movies! :) Thanks for asking!
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    Happy Belated Thanksgiving to everyone at BT!

    Happy Belated Thanksgiving to everyone at BT!
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    Hi Rose, Amen to “I have zero tolerance for...

    Hi Rose,

    Amen to “I have zero tolerance for injustice, inequality, and discrimination. Toward anyone for any reason. We are all human beings. We were placed here for a reason. We all have value,...
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    Yes I voted.

    Yes I voted.
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    Hi Rose, Thank you so much! Today my relative...

    Hi Rose,

    Thank you so much! Today my relative met another guy who has had kidney stones. This other guy said his pain was so bad he passed out, the poor dear. I hope I never get a kidney stone,...
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    Hi Rose, Thank you!!! I read my relative your...

    Hi Rose,

    Thank you!!! I read my relative your post and they said “Yes Jim was right, that was the worst pain!” . Yes follow up care has already started and is going well. We have also taken all...
  10. Replies
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    Happy Belated Birthday to wonderful Michael! I...

    Happy Belated Birthday to wonderful Michael! I had no idea he was premature. Did they ever link any of his health conditions to his prematurity? I never knew Michael in person and I joined the forum...
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    The vomiting pumpkin is hilarious.

    The vomiting pumpkin is hilarious.
  12. Replies
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    1,801

    Hi Rose, Happy Belated Birthday to Jon! It's so...

    Hi Rose,
    Happy Belated Birthday to Jon! It's so nice to hear the story of how he entered the world, I'm so sorry you had birth complications through. Jon blessed all of us with his presence on...
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    My friend has the "Go Go Elite" by "Pride...

    My friend has the "Go Go Elite" by "Pride Mobility" brand. I have "EZ Rider" brand. I hope this helps. "EZ Rider" has shorter battery life.
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    Yes, if the kid is hyper combine some kind of...

    Yes, if the kid is hyper combine some kind of physical movement with the task.
  15. Replies
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    Hi Rose, thanks so much for the info on diabetes...

    Hi Rose, thanks so much for the info on diabetes and urine. I knew diabetes could cause excessive thirst and kidney issues but I didn't know infections could also block the whole system up. My friend...
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    To my knowledge no it's painless.

    To my knowledge no it's painless.
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    Yes very glad she survived.

    Yes very glad she survived.
  18. Replies
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    Hi Rose, I rarely use WIFI so my understanding is...

    Hi Rose, I rarely use WIFI so my understanding is that WIFI will work during an outage based on where the WIFI source is coming from and whether or not the device is charged enough via it's battery....
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    Hi Rose, You're very welcome! I really appreciate...

    Hi Rose, You're very welcome! I really appreciate your compliments! Thanks so much! I promise I will check in regularly. Please know that I always read your posts even when I don't reply and I always...
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    Hi Rose, Great idea making this thread! The...

    Hi Rose,
    Great idea making this thread! The Field Roast sounds yummy!

    I'm so sorry I haven't been around much. I'm extremely busy. As it turns out working online has opened a TON of...
  21. You're very welcome! Are you distance learning...

    You're very welcome! Are you distance learning via an existing school curriculum that is sent to you? Or are you doing traditional homeschool? I did traditional homeschool and when I teach myself I...
  22. Right now I'm currently teaching young adults so...

    Right now I'm currently teaching young adults so it's a different dynamic, that being said if the student is overwhelmed break the lesson down into smaller bits, and take short breaks. Or turn the...
  23. I was homeschooled when I was young for a short...

    I was homeschooled when I was young for a short period and if my family needed a breather I was given an assignment that I could do independently and I had a schedule that clearly defined what were...
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    It's okay. Thanks so much! I really appreciate...

    It's okay. Thanks so much! I really appreciate it! I'm so thrilled you like my short films! You can click on the "Tumblr", "Blog" and "News" tabs on the website for updates from my film work. I also...
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    I have nothing against Clarke as a person, I like...

    I have nothing against Clarke as a person, I like her acting but I despise "Me Before You" because of it's ending. The ending SUCKS.
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    My website in my signature you mean??? Please...

    My website in my signature you mean??? Please clarify?? Thank you!
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    Thanks! My student has found short youtube videos...

    Thanks! My student has found short youtube videos that relate to what I'm teaching to be useful. Online has a lot of limitations especially when we experience tech issues but so far online seems to...
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    Agate, To be on audio-only on Zoom, go to the...

    Agate, To be on audio-only on Zoom, go to the bottom left of the Zoom screen and you'll see a button that looks like a microphone and a button that looks like a camcorder. To turn off the camera...
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    Hi Rose, Again I'm so sorry this is happening...

    Hi Rose,
    Again I'm so sorry this is happening to your friend. I know some people with ALS choose to be on a ventilator similar to the one Brooke Ellison had. Yes with these neuromuscular diseases...
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    Yikes Rose! Was the coughing a symptom of the...

    Yikes Rose! Was the coughing a symptom of the heart attack? Can ALS contribute to heart attack? Or is this just another disease? My prayers that your friend stays pain free and enjoys the time she...
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    Hi Rose, I heard wild fires are spreading in CA...

    Hi Rose,
    I heard wild fires are spreading in CA so I pray for your safety. I'm so sorry your friend's ALS is progressing quickly. Has she invested in adapted equipment for the computer typing or...
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    Hi Rose, no worries. I know you meant the cables,...

    Hi Rose, no worries. I know you meant the cables, I was just asking if the tech can give the new cables to you in a socially distanced manner and then describe to you how to plug them in yourself so...
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    Hi Rose, you're very welcome! This is going to...

    Hi Rose, you're very welcome! This is going to sound completely nuts but I swear I'm telling the truth. When I needed my modem replaced the tech put the modem in the mail slot in my door and then...
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    Thanks Rose! I hate WIFI so I'm totally with you...

    Thanks Rose! I hate WIFI so I'm totally with you on that! As to the SIM card error, that means your phone/iPad GB data is full. If you delete some photos or texts or any un needed junk the error...
  35. LOVELY PHOTOS! Kathleen is so beautiful! Yay for...

    LOVELY PHOTOS! Kathleen is so beautiful! Yay for home grown food!! My friend planted Cucumbers recently...
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    Welcome to the miracle of Video Call! One of the...

    Welcome to the miracle of Video Call! One of the only human connections we have during COVID19. SO glad you got to see your friends again with John's help! I'm so sorry one of them has ALS. My...
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    Teaching autistic adult?

    I used to teach some kids with autism who were very young in a tutoring session type job and someone with autism asked me to give him some lessons possibly. Do any of you have tips for teaching a...
  38. Replies
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    The story about the doctor and the phone had me...

    The story about the doctor and the phone had me ROFL just reading it LOL. My apologizes for not signing in recently. I had a lot of good things happen to me recently which required a lot of details...
  39. Happy 4th of July/USA Independence Day 2020 to...

    Happy 4th of July/USA Independence Day 2020 to everyone at Braintalk!
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    https://worldchannel.org/episode/america-reframed-...

    https://worldchannel.org/episode/america-reframed-enter-faun/
    Enter The Faun is airing on TV on PBS World Channel on July 7th 2020 at 8:00pm. The re airing of Enter The Faun is in honor of what is...
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    More info on Stroke and dizziness caused by...

    More info on Stroke and dizziness caused by COVID19 https://www.yahoo.com/lifestyle/strokes-delirium-and-dizziness-heres-what-we-know-about-how-coronavirus-can-affect-the-brain-193313864.html Hope...
  42. Baclofen can cause nystagmus?! Wow! Good to know!...

    Baclofen can cause nystagmus?! Wow! Good to know! I have seen nystagmus in Stroke, MS, Epilepsy, and I have some abnormal movement of my eyes from Cerebral Palsy.
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    Thanks so much Rose! Completely agree! I actually...

    Thanks so much Rose! Completely agree! I actually just learned about the Olmstead Act the other day believe it or not LOL. Like the ADA the Olmstead Act must be enforced/implemented properly. I'm so...
  44. Fascinating! Thanks! Abnormal eye movement seems...

    Fascinating! Thanks! Abnormal eye movement seems so common in Neuro conditions.
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    This is more about Intellectual Disability but...

    This is more about Intellectual Disability but since these issues overlap with Cerebral Palsy I'm posting here in case it helps...
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    Hi Rose, I’v seen some things in the media of...

    Hi Rose,

    I’v seen some things in the media of cops having to deal with drug emergency and birthing because they just happen to be the only person there at the moment and they did a Very decent...
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    Hi Rose, You’re very welcome! Thanks so much!...

    Hi Rose,

    You’re very welcome! Thanks so much! The incidents I described to you happened 12 years ago. So I hope and pray some things in regards to police and disability improved since then. I...
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    Hi Rose, Let me be clear that I completely...

    Hi Rose,

    Let me be clear that I completely agree that the cops involved in George Floyd's death, Breonna's death, and the young man in Atlanta’s death, whose name I can’t spell at the moment need...
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    Hi Rose, Jon and Michael sound so sweet...

    Hi Rose,

    Jon and Michael sound so sweet together. I’m sorry Michael lost the ability to walk and had to endure seizures starting at only 10 yrs old. Thanks so much for the thoughts and prayers...
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    Hi Rose, I love anytime you post a photo of...

    Hi Rose,

    I love anytime you post a photo of your boys! It makes me feel like they are still with us here on the forum. I love how Michael and Jon adored and helped each other. Is this when...
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    Hi Rose, Ah yes the dreaded spam. I also...

    Hi Rose,

    Ah yes the dreaded spam. I also leave most things to my voicemail like you, but the important thing is to check the voicemail regularly, at least once or twice per day if possible. I...
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    You're very welcome Rose! I'm so sorry I didn't...

    You're very welcome Rose! I'm so sorry I didn't notice the signature change sooner. I would suggest you answer your phone to allay people's fears when you can. Since COVID19 is still going on when I...
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    More information on the risks for COVID19 and...

    More information on the risks for COVID19 and Cerebral Palsy from a mother of a teenager with Intellectual Disability and Cerebral Palsy here...
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    Hi Rose, RE: Same with a lot of my college...

    Hi Rose,

    RE: Same with a lot of my college professors LOL. Like once they were off campus most stuff was a mystery to them hahahaha...I love and thank you too. I just noticed you updated your...
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    More info on Cerebral Palsy and other IDD/DD...

    More info on Cerebral Palsy and other IDD/DD people being high risk for COVID19...
  56. Wow! This is really pretty! I don't know Arabic...

    Wow! This is really pretty! I don't know Arabic either, nor am I Muslim but I enjoy the sound of the language. Thanks for sharing!
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    Hi Rose, I agree. More cases of COVID19 do...

    Hi Rose,

    I agree. More cases of COVID19 do seem inevitable. Thanks so much for the uplifting veteran story! Your bathroom looks fantastic! I’m jealous! :) I love that you have accessibility...
  58. Oh no! This is so sad! It's awful that nothing...

    Oh no! This is so sad! It's awful that nothing could be done medically to help her. We will miss her! :'(
  59. These links were fascinating and extremely...

    These links were fascinating and extremely informative. Thanks so much for posting!!
  60. Replies
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    Wonderful to hear you are making such progress on...

    Wonderful to hear you are making such progress on the house repair Rose! I completely agree. I'm deeply saddened by recent events and I'm extremely worried about COVID19 spreading and endangering my...
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    Happy Birthday agate!!!

    Happy Birthday agate!!!
  62. Very impressive to see a doctor with a...

    Very impressive to see a doctor with a disability. I don't often see many of them. He's good looking too!!! :) I agree patient wishes have to considered because some people just hate the idea of...
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    I think those are both reasonable estimates of...

    I think those are both reasonable estimates of why the systems are occurring. I'm guessing your son can understand you but cannot respond. I read stereotypies can be caused by vision problems or...
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    I had never heard of "Deep Seizures" before in my...

    I had never heard of "Deep Seizures" before in my life before reading your post, but guessed that it meant deep in the brain. This may help https://www.nature.com/articles/nrneurol.2016.121 as it...
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    Disability media representation in India as part...

    Disability media representation in India as part of disability rights in India https://feminisminindia.com/2019/10/03/divya-arora-indias-first-wheelchair-bound-actor-cerebral-palsy/
  66. Replies
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    Hi Rose, I completely relate to your...

    Hi Rose, I completely relate to your defensiveness because I had an experience back in February where a guy acted like I knew zero about a complicated process I actually knew a TON about as I deal...
  67. Thanks for the social distancing update. So glad...

    Thanks for the social distancing update. So glad you are all safe! Yes I also think it's unfair for so called "elective" procedures to have been cancelled because a ton of people need their medical...
  68. Replies
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    Wow Rose! I'm so glad the clothes will be...

    Wow Rose! I'm so glad the clothes will be donated. I'm so sorry your mind has to be flooded with memories during a pandemic so soon after Jim's death. I agree you can't do this every single day...
  69. So glad to get an update from you. How are you...

    So glad to get an update from you. How are you doing in social distancing?? I'm perfectly healthy. When a woman I worked with epilepsy, was first diagnosed, she showed me youtube videos of people...
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    View Post

    Hi Rose,

    I’m so sorry about the insurance. Thanks so much for the update on your plumbing crisis. The older "Dad" plumber sounds like an absolute sweetheart. I’m glad he hasn’t retired yet! 65...
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    Hi Rose, You're very very welcome!! You are...

    Hi Rose,
    You're very very welcome!! You are extremely smart to get your food and clothes together now in case you need to go to John's house. I always find it so useful to have food that is part of...
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    Hi Rose, I agree that staying with John would...

    Hi Rose,
    I agree that staying with John would be safer. I know some people were successfully able to leave states like FL and stay in hotels to get back to their main home but you are physically...
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    Hi Rose, I'm so so glad John is there with you so...

    Hi Rose, I'm so so glad John is there with you so you don't feel so alone in your grief. Lots of virus innovations even for end of life, wow! I pray for you! Keep in contact with people somehow, cry...
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    Thanks Mary Grace! I'm so so sorry for my delayed...

    Thanks Mary Grace! I'm so so sorry for my delayed reply. I had no internet for a week because my cable company had problems caused by the virus. I'm so glad Kathleen is doing well! That is a relief...
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    COVID19 itself may cause stroke...

    COVID19 itself may cause stroke https://www.cnn.com/2020/04/22/health/strokes-coronavirus-young-adults/index.html?fbclid=IwAR1hgsBneuxKGIESxelMkJkPCoW-muSIHYcFTu8BoUXI4HpLQljEyA9FfiU
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