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  1. Happy 4th of July/USA Independence Day 2020 to...

    Happy 4th of July/USA Independence Day 2020 to everyone at Braintalk!
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    https://worldchannel.org/episode/america-reframed-...

    https://worldchannel.org/episode/america-reframed-enter-faun/
    Enter The Faun is airing on TV on PBS World Channel on July 7th 2020 at 8:00pm. The re airing of Enter The Faun is in honor of what is...
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    More info on Stroke and dizziness caused by...

    More info on Stroke and dizziness caused by COVID19 https://www.yahoo.com/lifestyle/strokes-delirium-and-dizziness-heres-what-we-know-about-how-coronavirus-can-affect-the-brain-193313864.html Hope...
  4. Baclofen can cause nystagmus?! Wow! Good to know!...

    Baclofen can cause nystagmus?! Wow! Good to know! I have seen nystagmus in Stroke, MS, Epilepsy, and I have some abnormal movement of my eyes from Cerebral Palsy.
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    Thanks so much Rose! Completely agree! I actually...

    Thanks so much Rose! Completely agree! I actually just learned about the Olmstead Act the other day believe it or not LOL. Like the ADA the Olmstead Act must be enforced/implemented properly. I'm so...
  6. Fascinating! Thanks! Abnormal eye movement seems...

    Fascinating! Thanks! Abnormal eye movement seems so common in Neuro conditions.
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    This is more about Intellectual Disability but...

    This is more about Intellectual Disability but since these issues overlap with Cerebral Palsy I'm posting here in case it helps...
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    Hi Rose, I’v seen some things in the media of...

    Hi Rose,

    I’v seen some things in the media of cops having to deal with drug emergency and birthing because they just happen to be the only person there at the moment and they did a Very decent...
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    Hi Rose, You’re very welcome! Thanks so much!...

    Hi Rose,

    You’re very welcome! Thanks so much! The incidents I described to you happened 12 years ago. So I hope and pray some things in regards to police and disability improved since then. I...
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    Hi Rose, Let me be clear that I completely...

    Hi Rose,

    Let me be clear that I completely agree that the cops involved in George Floyd's death, Breonna's death, and the young man in Atlanta’s death, whose name I can’t spell at the moment need...
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    Hi Rose, Jon and Michael sound so sweet...

    Hi Rose,

    Jon and Michael sound so sweet together. I’m sorry Michael lost the ability to walk and had to endure seizures starting at only 10 yrs old. Thanks so much for the thoughts and prayers...
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    Hi Rose, I love anytime you post a photo of...

    Hi Rose,

    I love anytime you post a photo of your boys! It makes me feel like they are still with us here on the forum. I love how Michael and Jon adored and helped each other. Is this when...
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    Hi Rose, Ah yes the dreaded spam. I also...

    Hi Rose,

    Ah yes the dreaded spam. I also leave most things to my voicemail like you, but the important thing is to check the voicemail regularly, at least once or twice per day if possible. I...
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    You're very welcome Rose! I'm so sorry I didn't...

    You're very welcome Rose! I'm so sorry I didn't notice the signature change sooner. I would suggest you answer your phone to allay people's fears when you can. Since COVID19 is still going on when I...
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    More information on the risks for COVID19 and...

    More information on the risks for COVID19 and Cerebral Palsy from a mother of a teenager with Intellectual Disability and Cerebral Palsy here...
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    Hi Rose, RE: Same with a lot of my college...

    Hi Rose,

    RE: Same with a lot of my college professors LOL. Like once they were off campus most stuff was a mystery to them hahahaha...I love and thank you too. I just noticed you updated your...
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    More info on Cerebral Palsy and other IDD/DD...

    More info on Cerebral Palsy and other IDD/DD people being high risk for COVID19...
  18. Wow! This is really pretty! I don't know Arabic...

    Wow! This is really pretty! I don't know Arabic either, nor am I Muslim but I enjoy the sound of the language. Thanks for sharing!
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    Hi Rose, I agree. More cases of COVID19 do...

    Hi Rose,

    I agree. More cases of COVID19 do seem inevitable. Thanks so much for the uplifting veteran story! Your bathroom looks fantastic! I’m jealous! :) I love that you have accessibility...
  20. Oh no! This is so sad! It's awful that nothing...

    Oh no! This is so sad! It's awful that nothing could be done medically to help her. We will miss her! :'(
  21. These links were fascinating and extremely...

    These links were fascinating and extremely informative. Thanks so much for posting!!
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    Wonderful to hear you are making such progress on...

    Wonderful to hear you are making such progress on the house repair Rose! I completely agree. I'm deeply saddened by recent events and I'm extremely worried about COVID19 spreading and endangering my...
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    Happy Birthday agate!!!

    Happy Birthday agate!!!
  24. Very impressive to see a doctor with a...

    Very impressive to see a doctor with a disability. I don't often see many of them. He's good looking too!!! :) I agree patient wishes have to considered because some people just hate the idea of...
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    I think those are both reasonable estimates of...

    I think those are both reasonable estimates of why the systems are occurring. I'm guessing your son can understand you but cannot respond. I read stereotypies can be caused by vision problems or...
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    I had never heard of "Deep Seizures" before in my...

    I had never heard of "Deep Seizures" before in my life before reading your post, but guessed that it meant deep in the brain. This may help https://www.nature.com/articles/nrneurol.2016.121 as it...
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    Disability media representation in India as part...

    Disability media representation in India as part of disability rights in India https://feminisminindia.com/2019/10/03/divya-arora-indias-first-wheelchair-bound-actor-cerebral-palsy/
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    Hi Rose, I completely relate to your...

    Hi Rose, I completely relate to your defensiveness because I had an experience back in February where a guy acted like I knew zero about a complicated process I actually knew a TON about as I deal...
  29. Thanks for the social distancing update. So glad...

    Thanks for the social distancing update. So glad you are all safe! Yes I also think it's unfair for so called "elective" procedures to have been cancelled because a ton of people need their medical...
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    Wow Rose! I'm so glad the clothes will be...

    Wow Rose! I'm so glad the clothes will be donated. I'm so sorry your mind has to be flooded with memories during a pandemic so soon after Jim's death. I agree you can't do this every single day...
  31. So glad to get an update from you. How are you...

    So glad to get an update from you. How are you doing in social distancing?? I'm perfectly healthy. When a woman I worked with epilepsy, was first diagnosed, she showed me youtube videos of people...
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    View Post

    Hi Rose,

    I’m so sorry about the insurance. Thanks so much for the update on your plumbing crisis. The older "Dad" plumber sounds like an absolute sweetheart. I’m glad he hasn’t retired yet! 65...
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    Hi Rose, You're very very welcome!! You are...

    Hi Rose,
    You're very very welcome!! You are extremely smart to get your food and clothes together now in case you need to go to John's house. I always find it so useful to have food that is part of...
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    Hi Rose, I agree that staying with John would...

    Hi Rose,
    I agree that staying with John would be safer. I know some people were successfully able to leave states like FL and stay in hotels to get back to their main home but you are physically...
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    Hi Rose, I'm so so glad John is there with you so...

    Hi Rose, I'm so so glad John is there with you so you don't feel so alone in your grief. Lots of virus innovations even for end of life, wow! I pray for you! Keep in contact with people somehow, cry...
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    Thanks Mary Grace! I'm so so sorry for my delayed...

    Thanks Mary Grace! I'm so so sorry for my delayed reply. I had no internet for a week because my cable company had problems caused by the virus. I'm so glad Kathleen is doing well! That is a relief...
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    COVID19 itself may cause stroke...

    COVID19 itself may cause stroke https://www.cnn.com/2020/04/22/health/strokes-coronavirus-young-adults/index.html?fbclid=IwAR1hgsBneuxKGIESxelMkJkPCoW-muSIHYcFTu8BoUXI4HpLQljEyA9FfiU
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    RIP Jim. His spirit journey has begun. He's not...

    RIP Jim. His spirit journey has begun. He's not far away. Keep us updated on you, PLEASE???!!!
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    I follow Rose's posts but my internet failed...

    I follow Rose's posts but my internet failed because of service problems related to the virus so I appreciate the heads up.

    RIP Jim. I will certainly never forget the amazing Jim and his story. I...
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    Hi Rose, I’M SO SORRY! OMG!!! I’m so so...

    Hi Rose,

    I’M SO SORRY! OMG!!! I’m so so sorry! My deepest apologies for my delay in responding to these posts of Jim’s passing. I’m okay! My internet is finally back after what felt like...
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    Hi Mary Grace, I’m so glad Kathleen is doing...

    Hi Mary Grace,

    I’m so glad Kathleen is doing well and loves her workbook! She sounds like me with academics! :) Yes the idea of any child, especially a child with a disability being separated...
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    $219,000 WOW. That's not right.

    $219,000 WOW. That's not right.
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    Yes Rose, I'm crying and also fuming! Nobody...

    Yes Rose, I'm crying and also fuming! Nobody should be working without gloves and masks now. Especially someone who is disabled and around other high risk populations. I was informed by my teacher...
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    Woman with Cerebral Palsy dies of COVID19 due to...

    Woman with Cerebral Palsy dies of COVID19 due to improper protection...
  45. So true. I love this! I like how he brings up the...

    So true. I love this! I like how he brings up the all important rationing concern. Reminds me of how I just did work online as before and people were freaking out over how different it was for them...
  46. Hi Rose, I saw those ads and as somebody who...

    Hi Rose,
    I saw those ads and as somebody who makes media I felt those ads were bizarre. I certainly wouldn't have made ads like that. Ultimately I think people are smarter than these ads.
  47. It is my understanding Stiff man was the accepted...

    It is my understanding Stiff man was the accepted term at one point. I have an exaggerated startle reflex as part of my Cerebral Palsy. In CP they are trying to figure out if it's a retained Moro...
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    Hi Rose, No worries! To answer your...

    Hi Rose,

    No worries! To answer your questions, yes Apple should totally be able to help you. You may have to order a small white attachment to connect the ethernet to the laptop but it can be...
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    Hi Rose, Thanks for the COVID19 info. Re:...

    Hi Rose,

    Thanks for the COVID19 info. Re: Chicken. Chicken when it is by itself is one of the blandest, easiest meats to have digested which is why vets put dogs on chicken and rice diets when...
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    Hi Rose, I ABSOLUTELY ADORED “A Beautiful Day...

    Hi Rose,

    I ABSOLUTELY ADORED “A Beautiful Day In The Neighborhood” when I saw it in theaters! Fred Rogers has the compassion and patience I wish I had! Watching the film brought back so many...
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    Hi Rose, Thanks for the update! I just saw this...

    Hi Rose,
    Thanks for the update! I just saw this "lockdown" news on TV and immediately thought of you and Jim and your friends. I would think some deliveries will continue. Perhaps just delivered...
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    Hi Rose, Thanks so so much for your concern!...

    Hi Rose,

    Thanks so so much for your concern! I really appreciate it! I think I have been on this forum since 2009 but I’m not even sure anymore LOL. You are right. It depends on the Cerebral...
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    Hi Rose, I’m so sorry if this article scared...

    Hi Rose,

    I’m so sorry if this article scared you for my safety. I’m perfectly healthy aside from the CP itself. It is my understanding that folks with CP are not that super super high risk...
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    Hi Mary Grace, Yes, stroke is one of the risks...

    Hi Mary Grace,
    Yes, stroke is one of the risks so I posted this same link on the stroke forum here. The virus is much more dangerous to my teacher friend with the stroke, as he is somewhat...
  55. Ableist murderer in Japan sentenced to death...

    Ableist murderer in Japan sentenced to death penalty https://www.japantimes.co.jp/news/2020/03/16/national/crime-legal/japan-verdict-sagamihara-murder-disabled/#.XnAzYS2ZNmA May this evil (bleep) rot...
  56. Thanks for the heads up! What do I do if I have...

    Thanks for the heads up! What do I do if I have trouble signing in to the new version of BT??? Let me know???
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    Stroke is major risk for COVID19

    Stroke Survivors at major risk of contracting and having complications of Coronavirus particularly if they are already diabetic...
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    Cerebral Palsy is COVID19 risk

    Cerebral Palsy listed as CDC risk for Coronavirus...
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    Hi Rose, I agree with everything you wrote....

    Hi Rose,

    I agree with everything you wrote. Disney in CA is closed now last time I checked. As for Tom Hanks, I believe one of my local news outlets mentioned that Tom Hanks is immune compromised...
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    My guess is people think we will end up like...

    My guess is people think we will end up like Italy and stuck inside without any way to wipe our bums. Colleges in NYC are shut down now too...
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    Yes this is the story about CUNY and SUNY....

    Yes this is the story about CUNY and SUNY. https://www.nydailynews.com/new-york/education/ny-cuny-suny-classes-coronavirus-20200311-f65rooi5vrflphblcun5y7yuym-story.html All my work is either online...
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    Thanks so much!!! I wear a watch too but use the...

    Thanks so much!!! I wear a watch too but use the time on my phone to reset it. iPads should reset like computers do but I do not own an iPad so I have no idea for sure.
  63. You're very welcome!! Um swallowing issues would...

    You're very welcome!! Um swallowing issues would show up during eating so I don't know why they would say its rare. Does he stutter, stammer, slur words or drool? Those can be signs of physical...
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    On which day? Sunday? Luckily my phone changes...

    On which day? Sunday? Luckily my phone changes automatically so I just re set everything to the time my phone is on LOL.
  65. Sorry it took me so long to respond to this....

    Sorry it took me so long to respond to this. Looks to me like there's something in his field of vision. It looks like what my friend who has a stroke and glaucoma does right before he starts to feel...
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    I had never heard of this film and will recommend...

    I had never heard of this film and will recommend to a friend who loves French movies.
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    I generally think ending political discussion...

    I generally think ending political discussion here is the better option. I think the people who discussed politics here did it very respectfully though so well done to us. My apologies if anything I...
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    The corona Virus spreading made me worry for you...

    The corona Virus spreading made me worry for you and Jim so much too. I would have to basically stay home all the time if it hits here.
  69. Old Neuro is so annoying. So Sorry old Neuro...

    Old Neuro is so annoying. So Sorry old Neuro refuses to explain anything of value. Glad EEG was normal though.
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    I don't mean to scare you but this definitely...

    I don't mean to scare you but this definitely sounds like a nervous system problem, and honestly it sounds like your son may be having strokes or mini strokes. All I could think of when I read this...
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    Awesome! So pretty!!!

    Awesome! So pretty!!!
  72. Hi Lost Parent, How are you? How are the boys?...

    Hi Lost Parent,

    How are you? How are the boys? I’m glad he’s only had one seizure, that seems like a big improvement! The wording of that is extremely confusing. It would seem to me that they mean...
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    BEAUTIFUL! Glad Kathleen had such a blast!

    BEAUTIFUL! Glad Kathleen had such a blast!
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    Happy Valentines Day BT!

    Happy Valentines Day BT!
  75. Replies
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    Thank you so much for your prayers Rose! He's...

    Thank you so much for your prayers Rose! He's doing okay but I'm still paranoid about his health. So sorry for the set back with Jim. Perhaps something about Jon's bed is causing gas. Can Jim sit in...
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