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  1. Replies
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    You are both great. I know what it feels like to...

    You are both great. I know what it feels like to accomplish movement.
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    I did not do anything to make sure John had...

    I did not do anything to make sure John had attention today while I go to market. Just so overwhelmed and John is very stubborn...so, should I aggravate him or not. Big decision. I went to bed. Also...
  3. Thread: RIP Catdancer

    by Lazarus
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    Perfect...thank you so much. Nicely done.

    Perfect...thank you so much. Nicely done.
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    I thought of this but John will be very upset and...

    I thought of this but John will be very upset and put up a fight. I was worried about tomorrow because I leave at 5 am to go to market. Again, John would be upset if I did not go. So I wondered if I...
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    John is coming Home tomorrow. We have been...

    John is coming Home tomorrow. We have been talking on cell phone throughout the night. I have been reading about recovery...John was in pain last night from the incision I guess. I can see that this...
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    Wow! John’s doctor just called. All went well....

    Wow! John’s doctor just called. All went well. They will tweak things tomorrow and send him home. My limo driver called me to day and promised he would go to Boston and get John tomorrow. Whew!
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    Food! Good idea! I made soup yesterday....

    Food! Good idea!
    I made soup yesterday. Parboiled and then sautéed small pieces of potatoes, carrots, onion, garlic,celery (mostly leaves)... When starting to turn brown while sautéing I added 4...
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    I have been coloring and can, like you, get lost...

    I have been coloring and can, like you, get lost in it.
    There is too much to take care of today on the farm and I can get lost doing those chores. Nice to have activity that keeps one busy in...
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    Thanks. He did. We communicated every hour until...

    Thanks. He did. We communicated every hour until sleep told us both it was time to shut up! They must be doing the implant this morning.
    The building is exactly where he stayed last time. I...
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    Back to Beth Israel in Boston

    So, that heart monitor they implanted in John a few weeks ago sent off alarms today and Beth Israel wants John to go there right away. I assume they are implanting a pace maker.

    What a nightmare....
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    I am a member of Richard Cohen’s site. His MS is...

    I am a member of Richard Cohen’s site. His MS is progressing and it frustrates him but, today’s politics frustrates him even more! And he does not hesitate to spell it out.
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    My docs know that I tolerate a lot before I even...

    My docs know that I tolerate a lot before I even take the drug they have prescribed so I don’t get much warning anymore. My neuro gave me 5 mg pills and I am crushing them and taking half a pill...
  13. I remember Agate posting this thought so went...

    I remember Agate posting this thought so went back to find it when, it suddenly occurred to me, that if something went wrong with the treatment, Selma Blair is high profile enough to have prompted...
  14. Orthostasis...a quick definition I found and it is funny in a way

    Standing, also referred to as orthostasis, is a human position in which the body is held in an upright ("orthostatic") position and supported only by the feet. Although seemingly static, the body...
  15. Ha! I am 72 now...and John is 82! How did that...

    Ha! I am 72 now...and John is 82! How did that happen? I just blinked and went from 35 to 72!

    I saw my relatively new neurologist yesterday...I have been seeing her for about 2 years as my old one...
  16. Something interesting to read about inflammation inhibiting myelin repair

    Inflammation Can Hijack Brain Repair Cells to Ramp Up Immune Attacks in MS, Researchers Report
    September 4, 2019

    SUMMARY
    Johns Hopkins researchers and collaborators have traced abnormal activity...
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    Thanks everyone. Interesting reading. I deal with...

    Thanks everyone. Interesting reading. I deal with spasms in my chest, esophagus and now in my legs. The leg cramps are as painful as my chest ones. (MS hug). Anyway, like Snack I used to be able to...
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    Thank you sweetheart!

    Thank you sweetheart!
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    Then your decision is a good one. Best of luck to...

    Then your decision is a good one. Best of luck to you.

    Anyone looking for a better MS site could try MS World and/or Active MSers...Dave Bexfield’s site. Both of them have lots of information.
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    Agate, you are doing what Cherie did. Picking up...

    Agate, you are doing what Cherie did. Picking up my marbles and going home. Maybe it is time for this board to die.
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    KAs I posted to the board and therefore to Cherie...

    KAs I posted to the board and therefore to Cherie before she again exited the board....Ikoiko made a simple statement reminding us all of an important warning about our internet posts. Many people...
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    View Post

    It was 49° an hour ago but 51° now...at 4:03. I am up...checking wether I need to start our cars to keep stuff warm...we leave for farmers’ markets in an hour. Temp is ok but it will be cold for the...
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    Thank you again for reminding us of this...

    Thank you again for reminding us of this important information.
  24. HSCT ...Clinic that treated Selma Blair...abruptly shuts down...stem cell

    Richard Burt, MD, the chief of Northwestern Medicine’s immunotherapy for autoimmune diseases division, is taking a sabbatical, and the stem cell program he has headed for many years, which treated a...
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    “Whatever it was do not call the police or even...

    “Whatever it was do not call the police or even worry about it. Go back to sleep although we know that you are now fully awake and probably can’t sleep anymore tonight. You might as well read your...
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    Oh gosh...kudos to everyone doing anything!...

    Oh gosh...kudos to everyone doing anything! Especially Jeanie.

    I have spent the week and especially the last 2 days trying to get the business iPads we each use for a Saturday farmers’ market...
  27. View Post

    This article was a good description of troubles as I experience them when I have active MS times.

    “Thinking Compromised”

    My roommate walks through the living room and asks me if I want to join...
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    Farmer Linda here! I am in western MA. And have a...

    Farmer Linda here! I am in western MA. And have a small organic farm.
  29. I watched it...I think it was clever but had...

    I watched it...I think it was clever but had trouble reading the subtitles and watching the video! It moved a bit too fast. Sort of ironic..
  30. Exactly!!!!!

    Exactly!!!!!
  31. Diet and MS... study report I copied from Active MSers site.

    Finally, a randomized, serious diet study in MS! What happened when patients with multiple sclerosis ate a very low-fat, plant-based diet--no meat, fish, eggs, dairy products, or vegetable oils--for...
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    I get cans of beans that have pull top lids ....

    I get cans of beans that have pull top lids . There are more and more like this. Kidney beans, butter beans, chick peas......so many.
  33. sunshine...and others...i copied this about UTI's that is really interesting...

    CHIP SIMONS / GETTY
    Nanell Mann began getting urinary tract infections in 1971, when she got a hysterectomy following the birth of her sixth child. She would take antibiotics and get better. Get...
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    Been a tough growing year...almost no eggplant...

    Been a tough growing year...almost no eggplant anyway. And this is the first time we had really perfect haricot verts.
    John has just gone back to markets after weeks and weeks of illness. He is in...
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    Haricot verts...green beans. They are thin French...

    Haricot verts...green beans. They are thin French green beans. Nothing like average solid beans that I also grow. These are sometimes called Filet beans.
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    Great to see the September thread. It is a...

    Great to see the September thread. It is a wonderful reminder of Peg.

    I was thinking of our sort of lost members. In the beginning it was such a primary source of information. Now, of course,...
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    What is interesting around here is that my...

    What is interesting around here is that my friends who do have cable only get one Pbs channel. They are unaware of the 3 other channels that even the local public television station runs.
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    I also use only an antenna to get television. A...

    I also use only an antenna to get television. A couple of years ago we replaced a barn roof and so they took down the antenna. We pounded a steel pole in the ground and placed the antenna on it. That...
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    Thanks for the article/alert. I have started...

    Thanks for the article/alert. I have started thanking people who tell me about some new cure they have just read about and I tell them I will be sure to share the news with my neurologist.
  40. Excellent explanation of a workable routine.

    Excellent explanation of a workable routine.
  41. Every Saturday morning I get up at 3am and take...

    Every Saturday morning I get up at 3am and take one Imodium pill. Then I get up at 4 to get ready to go to work. At that time I take a second Imodium and oxybutinin and Ampyra. The Imodium has...
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    OT. The story of my very good day....

    Last Saturday was a very good day. In my old life it probably would have seemed a very fair day but now I realize.....a lot.

    So, my very good day started in the days before the farmers’ market. I...
  43. You reminded me...I consulted with women neuros...

    You reminded me...I consulted with women neuros at UMass Worcester ms clinic.
  44. my wonderful neuro retired a couple of years ago....

    my wonderful neuro retired a couple of years ago. My new neuro is a woman. I like her a lot.
  45. Yes! I now understand several incidents from 6th...

    Yes! I now understand several incidents from 6th grade, 10th grade and probably more. I wonder sometimes how those incidents which I did not share with anyone shaped the person I am. I must have...
  46. Thanks for the post. I will read with interest.

    Thanks for the post. I will read with interest.
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    What you said about taking a break from a drug to...

    What you said about taking a break from a drug to help it regain its effectiveness is something I do with a different drug. I too have found that it works for my situation. My neuro always thought I...
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    Oh what a difficult time you are having. All I...

    Oh what a difficult time you are having. All I know is that we come through these bad times and go on. I just hope this bad spell ends soon and becomes a memory and does not stay a reality too long.
  49. Thank you. John is home. They implanted a heart...

    Thank you. John is home. They implanted a heart monitor because they are not sure what is happening.
    .
  50. So, John is still in the Farr building. They are...

    So, John is still in the Farr building. They are doing lots of stress tests etc.....no decision on pacemaker yet. John heard them talk about discharging him. So it is 4:00 pm and we use a limo that I...
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    Super good advice. Exactly the information I have...

    Super good advice. Exactly the information I have been gathering. I use the same service for all long trips but need a service for local trips. Someone told me to call the senior center and ask
  52. View Post

    Sorry I twisted Obama’s name and made him Irish!


    It's August, so I wanted to let you know about a few books I've been reading this summer, in case you're looking for some suggestions. To start,...
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    View Post

    Fun, isn’t it?!
  54. Replies
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    I grow Persian cucumbers. They are Seedless and...

    I grow Persian cucumbers. They are Seedless and crisp. And as SSusan always told my customers: “in this case size really does not matter” the skin is thin. I like them best and often make a salad...
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    Sunshine, I hope you feel better soon. So sorry...

    Sunshine,
    I hope you feel better soon. So sorry you are suffering.
  56. Thank you again Ikoiko for the detailed...

    Thank you again Ikoiko for the detailed information. I followed your direction exactly and we got to the 7th floor easily. About an hour later they wanted us to go to the aptly named Farr building. I...
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    Oh my goodness. Advice given. Thanks for that. ...

    Oh my goodness. Advice given. Thanks for that. it is not an earthquake.
    I appreciated the reminder because I googled my name and was able to read posts I have made on Braintalk! No password...
  58. Thank you.

    Thank you.
  59. I feel so much better with the detailed...

    I feel so much better with the detailed explanation! I called several times but could not get people to understand that I would not be going into the garage. I use a livery service and the same...
  60. Thank you for the detail. Perfect.

    Thank you for the detail. Perfect.
  61. Thanks. That is helpful to see but I am still...

    Thanks. That is helpful to see but I am still trying to figure out where exactly the elevators are in the garage once we get dropped off. It doesn’t show that does it? I am sure all will be well....
  62. Beth Israel/Deaconess parking at Shapiro garage...98 binned st. Anyone from Boston?

    So, tomorrow John goes to cardiologist at Beth Israel/ Deaconess. Last time we went our driver dropped us off on 300 Brookline Ave. (I think)
    This time the nurse told me we should get dropped off...
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    Hi. I buy it at Trader Joe’s. Very...

    Hi. I buy it at Trader Joe’s. Very spreadable...like soft peanut butter. I do not know about this recipe but there were dozens of comments. This one might give some info you wanted:


    “ I live...
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    Agate, I hope you can use your windows and patio...

    Agate, I hope you can use your windows and patio soon.

    Virginia, I hope you are more comfortable today.

    Susan left early this AM and I went to the hospital at 11 AM. I took clothes for Mom as...
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    Happy Happy Day! You are a treasure to all of us.

    Happy Happy Day! You are a treasure to all of us.
  66. Replies
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    I looked it up on Wikipedia and found this: “...

    I looked it up on Wikipedia and found this:


    Acquaviva Collecroce (also called Živavoda Kruč or, usually, just Kruč) is a small town and comune in the province of Campobasso, in the Molise...
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    My husband’s first spoken language is Croatian....

    My husband’s first spoken language is Croatian. His father was born in Italy and spoke Italian and Croatian. The story is that in the distant past john’s Relatives picked up their whole town and...
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    I was diagnosed 30 years ago at age 42. I am 72...

    I was diagnosed 30 years ago at age 42. I am 72 now.

    We should talk sometime about this custom of women to want to hide their ages. It sort of goes along with lots of customs that encourage women...
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    I never log out either. Not sure why I would. I...

    I never log out either. Not sure why I would. I just click on the icon I have for this site and I am here...on this page. Less than a second.
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    That dog died several years ago. They never got...

    That dog died several years ago. They never got another. Angelica lives in Boston.
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    View Post

    Yesterday at Market:
    I looked up from my world’s best cranberry beans at yesterday’s market and wondered if I was seeing correctly. There, standing in front of me, was my favorite of all times...
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    I had a great farmers market today. My friend...

    I had a great farmers market today. My friend brought me 5 more chapters of his book to review.

    I had a visit from one of my favorite students ever! She was on her way to visit her daughter at...
  73. Replies
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    Your mother is getting better...that is just...

    Your mother is getting better...that is just great news.
  74. Replies
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    Maybe that will be my weekend’s...

    Maybe that will be my weekend’s entertainment.....blob, blob, blob.....and popcorn!
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    Well, this memory woke him up! He can not stop...

    Well, this memory woke him up! He can not stop looking it up and finds pictures that reflect his strong memory of it. Thanks. You gave my curious child something to occupy him!
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