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  1. Hi. I am glad your husband finally received a...

    Hi. I am glad your husband finally received a diagnosis after 10 years. As you know, getting to LA from Germany, with 2 small children and your husband feeling so bad will not be easy. I hope you get...
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    Here it is:...

    Here it is:
    http://www.dukehealth.org/physicians/linda_g_leithe

    Good luck!
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    Hi Bob! Good to hear from you. (This forum is...

    Hi Bob! Good to hear from you. (This forum is quiet now.) Wish you felt better.
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    I hope you get the patch soon Lisa! I am so glad...

    I hope you get the patch soon Lisa! I am so glad they finally figured it out. And I hope you can get some sedation too. Rob had the conscious sedation for his last patch .... it was definitely much...
  5. Hi - I am glad you are feeling better ......

    Hi - I am glad you are feeling better ... sometimes some symptoms do linger but I am not sure why. Many people often wonder if they are still leaking but to a lesser degree ... or if there was some...
  6. Sounds good so far! When Rob leaked, the ONLY...

    Sounds good so far! When Rob leaked, the ONLY thing that helped his headache was lying down. After he was patched, his headaches could get relief by being still. Ever since he leaked, car rides can...
  7. I am glad the headaches only last a few hours. I...

    I am glad the headaches only last a few hours. I am curious how they go away after a few hours. Do you need to lie down for a while? or they just go away on their own? After leaking for a while it...
  8. Thanks for the update. Do you know how much blood...

    Thanks for the update. Do you know how much blood was used? Sorry about the increase in vision problems - even though there are many different patch experiences, I've read experiences like yours ...
  9. You will need to ask if your husband can be with...

    You will need to ask if your husband can be with you. Some places do allow it. We were with my son for hist first patch since it was done in ER, but the second one was in a sterile environment and we...
  10. Everybody seems to have different responses to...

    Everybody seems to have different responses to blood patches. The pressure Rob felt when they were doing it (in which he stopped them when too much) did not last long. Some people get instant relief...
  11. conscious sedation

    Hi - Yes - Rob was awake for his patches too, but given a drug to make him relax and ease pain. (I think they called it a conscious sedation) He needed to tell them when pressure became to high in...
  12. Hi Mikau - Oh boy (if your neurologist is...

    Hi Mikau -
    Oh boy (if your neurologist is right) am I sorry for you not to have this diagnosed immediately!! Too much unecessary suffering. There is an article (somewhere?) where a man had dementia...
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    Hi heminspain - I think that's the idea ... but...

    Hi heminspain -
    I think that's the idea ... but I am no expert on this. (I did not say 'leaks form cysts', I said 'leaks from cysts' .... I think the cyst could be there first for some people, but...
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    Oh Cinda ... I am so sorry - I am at a loss of...

    Oh Cinda ... I am so sorry - I am at a loss of words. Too many stories like yours. I really hope they find a way soon to help spontaneous leakers strengthen their duras!!!
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    Hi Lisa ... I wish the process was simpler for...

    Hi Lisa ... I wish the process was simpler for you! Seems like you are at least chipping away at the leak issue. I hope you hear from a neurologist or nsg soon with a plan of action. I think I read...
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    Hi - Sorry this is so confusing. You are...

    Hi - Sorry this is so confusing. You are definitely not the first person that posted on these forums with similar doubt. Do you still get some headache relief by lying flat? Do you get the same...
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    I wish you luck and hope you can get some test...

    I wish you luck and hope you can get some test that figures this out for you. You are NOT wasting resources. That is what they are there for ... you deserve this testing.
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    Good luck Marianne! For ICP bolt monitoring, they...

    Good luck Marianne! For ICP bolt monitoring, they do need to drill through your skull to place the bolt on your dura ... it is invasive and thisis why you will be in ICU. As Laura said, it is...
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    I am happy for you Lisa (even though it does...

    I am happy for you Lisa (even though it does sound odd to be happy for a leak diagnosis ... but you knew it was a leak!) Would be great if a directed blood patch is all you need!
  20. Hi Marianne - The 2 days of imaging is done...

    Hi Marianne -
    The 2 days of imaging is done when nuclear imaging is ordered. This technique is considered good at diagnosing small leaks, but poor at locating the exact leak location. Rob was...
  21. Good luck - Do you know which 2 dyes you are...

    Good luck - Do you know which 2 dyes you are getting? I think there may actually be 3 different types. 1 for nuclear, 1 for CT, and one for MRIs. Will they be imaging your spine and head? (Or maybe...
  22. Thread: Help please

    by Robbysmom5
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    Hi Laura - I think this all sounds promising. I...

    Hi Laura -
    I think this all sounds promising. I think the patch could still be working. My son had odd headaches for 3 weeks after his patch that fixed his leak. I also think it may be worth trying...
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    Hi Lisa - I am glad something has been found too....

    Hi Lisa - I am glad something has been found too. Where was the site of your other back or blood vessel issue? (I cannot recall all of the details?) If you do have a leak in your thoracic area, that...
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    Hi -I am sorry, but I do not always know the...

    Hi -I am sorry, but I do not always know the terminology for the cranial leak imaging. It usually take the injection of some contrast dye and some imaging to see a leak. Usually the spinal fluid is...
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    What is Dr. S trying this time? I hope it works...

    What is Dr. S trying this time? I hope it works for you!!!
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    Good luck with blood patch!

    Hi Laura - Sorry you are leaking again. I really hope the local blood patch helps!! Have you ever considered going to Duke for fibrin patching? (much closer to you than LA) Good luck!
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    Sticky: The previous forum is a very useful link! You can...

    The previous forum is a very useful link! You can still search threads within the forum.
    http://74.220.207.183/~braintal/archives/06_11/forumdisplay.php?f=126
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    Sticky: Wiki article written by our bstone

    http://en.wikipedia.org/wiki/Spontaneous_cerebrospinal_fluid_leak
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    Sticky: Original Advice from other Leakers:...

    Original Advice from other Leakers:
    http://74.220.207.183/~braintal/archives/06_11/showthread.php?t=19959
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    Sticky: Old Leaker Roll Call:...

    Old Leaker Roll Call:
    http://74.220.207.183/~braintal/archives/06_11/showthread.php?t=14514
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    Sticky: Link to original Healed and Sealed

    This sticky thread should be used to post all leaker success stories.
    Please include type of leak, location, dates/duration, treatments, etc. Contact information for doctors who provided treatment...
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    Where is the Spine forum?

    The Spinal related forum was one of the most active. I could not find it.
  33. Can we please at least get our stickies back?

    Can PLEASE we get the Leaker Roll Call, Healed and Sealed, Useful Links, Advice from other Leakers back?
Results 1 to 33 of 33


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