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  1. Memory deficits?

    Hi xavitus1316:

    Thanks for sharing your experience! Are you back to driving yet? Is remembering where you parked the car a problem? Have you noticed any residual memory deficits or behavioral...
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    Welcome to the group!

    Iwas34:

    Hi! Welcome to the group. I was 30 and can relate to some of what you said. We used to have an old thread located at...
  3. Smallest cyst size to have caused sudden death less than 1cm

    Hi all:

    I've read that sudden death has not been reported as having been caused by colloid cysts measuring less than 1 cm. For instance, the article at the following states:

    Since the majority...
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    Colloid cyst 101

    Hi Joan:

    I'm sorry that you're now a member of the club. At that size, you may be advised to have serial imaging for observation to check for growth and hydrocephalus. Some centers have a...
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    Lumbar puncture and colloid cyst

    Hi Andrea:

    I'm sorry that you're now a member of the club... How did the lumbar puncture go? I had one after my surgery too. But as I was reading a lumbar puncture is contra indicated in...
  6. Knowing is half the battle!

    Hski88:

    Knowing that you have a colloid cyst is a good thing considering the alternative! Did they give dimensions on its growth? Some centers will operate on any cyst over 1 cm regardless of...
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    psychiatric, asymptomatic versus symptomatic, hydrocephalus

    CCSurvivor:

    Personally, I believe all colloid cysts should be removed and not just those that are symptomatic or have reached a certain size. The reality is that some centers will only consider...
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    Where are the standards for when to operate?

    Bill:

    Thanks! That was a good link. I was pleased to read:


    ... we usually recommend cyst removal, including in the case of asymptomatic cysts that have already led to disturbance of...
  9. Thread: Memory techniques

    by Levi
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    Appreciation!

    Bill:

    Please don't. But if you must, I understand. I often peruse your posted links and find them interesting. I often do repeated google searches and google news searches on "colloid cyst". I...
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    "small, asymptomatic cists may result in sudden death"

    Hi all:

    I've read that sudden death has not been reported for cysts smaller than 1cm and that some centers mandatorily operate on cysts >= 1cm. However, that doesn't mean that it hasn't happened....
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    studies often talk of positional headaches associated with colloid cysts

    Hi James:

    The first couple of headaches that I remember lasted hours but later they would sometimes subside after a few minutes. The literature talks often of colloid cyst headaches as having a...
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    Full Scope of Options

    Thanks Bill. That last footnote provided a link to a good goto document that I wished was there for me when I first got my diagnosis. See it at:

    Full Scope of Options
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    Opinion on when to operate...

    Hi all:

    I've seen it mentioned that some centers have a policy of operating on all cysts > 1cm, but I found a book "Pediatric Hydrocephalus" that states:


    In the opinion of Kondziloka and...
  14. Thread: Dreams

    by Levi
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    Dreams...

    Hi all,

    I've noticed that if I repeat in my head upon sleeping that "I remember my dreams easily" I will remember them more often than if I repeat in my head that "I will remember my dreams upon...
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    "a decision not to have this lesion removed is a flirtation with death"

    Hi:

    I thought the following quote was an eye opener:


    "Nevertheless, in our opinion, A DECISION NOT TO HAVE THIS LESION REMOVED IS A FLIRTATION WITH DEATH." --...
  16. Thread: Your thoughts

    by Levi
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    Hi ydiablo: I'm no expert, just a survivor....

    Hi ydiablo:

    I'm no expert, just a survivor. I would say that you're right at the threshold for surgery. I've read that surgery is generally recommended for cysts over 1cm.

    9mm would seem...
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    neuropsychological evaluation and psychiatrist

    Hi earthnsky26:

    Iím sorry that I donít have time to say more presently... Did you have whatís known as an interhemispheric transcallosal resection? This approach to removing the colloid cyst is...
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    Hi Tris: A colloid cyst almost always occurs...

    Hi Tris:

    A colloid cyst almost always occurs in the third ventricle near the foramina of Monro. A good summary of the cyst and your options can be found at...
  19. Psychiatric disturbances and behavioural manifestations post surgery

    Hi all:

    I have a new diagnosis of schizoaffective disorder. Evidently, it can be precipitated by life stress and may go away on its own eventually. I have good results with meds. I don't think...
  20. Thread: Surgery question

    by Levi
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    Hi dana2050: I'm sorry to hear about your...

    Hi dana2050:

    I'm sorry to hear about your mother. I did find these 2 articles that you might be interested in reading. I don't have the full source but here they are as follows:

    Hypothesis...
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