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  1. Replies
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    What you said about taking a break from a drug to...

    What you said about taking a break from a drug to help it regain its effectiveness is something I do with a different drug. I too have found that it works for my situation. My neuro always thought I...
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    Oh what a difficult time you are having. All I...

    Oh what a difficult time you are having. All I know is that we come through these bad times and go on. I just hope this bad spell ends soon and becomes a memory and does not stay a reality too long.
  3. Thank you. John is home. They implanted a heart...

    Thank you. John is home. They implanted a heart monitor because they are not sure what is happening.
    .
  4. So, John is still in the Farr building. They are...

    So, John is still in the Farr building. They are doing lots of stress tests etc.....no decision on pacemaker yet. John heard them talk about discharging him. So it is 4:00 pm and we use a limo that I...
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    Super good advice. Exactly the information I have...

    Super good advice. Exactly the information I have been gathering. I use the same service for all long trips but need a service for local trips. Someone told me to call the senior center and ask
  6. View Post

    Sorry I twisted Obama’s name and made him Irish!


    It's August, so I wanted to let you know about a few books I've been reading this summer, in case you're looking for some suggestions. To start,...
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    View Post

    Fun, isn’t it?!
  8. Replies
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    I grow Persian cucumbers. They are Seedless and...

    I grow Persian cucumbers. They are Seedless and crisp. And as SSusan always told my customers: “in this case size really does not matter” the skin is thin. I like them best and often make a salad...
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    Sunshine, I hope you feel better soon. So sorry...

    Sunshine,
    I hope you feel better soon. So sorry you are suffering.
  10. Thank you again Ikoiko for the detailed...

    Thank you again Ikoiko for the detailed information. I followed your direction exactly and we got to the 7th floor easily. About an hour later they wanted us to go to the aptly named Farr building. I...
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    Oh my goodness. Advice given. Thanks for that. ...

    Oh my goodness. Advice given. Thanks for that. it is not an earthquake.
    I appreciated the reminder because I googled my name and was able to read posts I have made on Braintalk! No password...
  12. Thank you.

    Thank you.
  13. I feel so much better with the detailed...

    I feel so much better with the detailed explanation! I called several times but could not get people to understand that I would not be going into the garage. I use a livery service and the same...
  14. Thank you for the detail. Perfect.

    Thank you for the detail. Perfect.
  15. Thanks. That is helpful to see but I am still...

    Thanks. That is helpful to see but I am still trying to figure out where exactly the elevators are in the garage once we get dropped off. It doesn’t show that does it? I am sure all will be well....
  16. Beth Israel/Deaconess parking at Shapiro garage...98 binned st. Anyone from Boston?

    So, tomorrow John goes to cardiologist at Beth Israel/ Deaconess. Last time we went our driver dropped us off on 300 Brookline Ave. (I think)
    This time the nurse told me we should get dropped off...
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    Hi. I buy it at Trader Joe’s. Very...

    Hi. I buy it at Trader Joe’s. Very spreadable...like soft peanut butter. I do not know about this recipe but there were dozens of comments. This one might give some info you wanted:


    “ I live...
  18. Replies
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    Agate, I hope you can use your windows and patio...

    Agate, I hope you can use your windows and patio soon.

    Virginia, I hope you are more comfortable today.

    Susan left early this AM and I went to the hospital at 11 AM. I took clothes for Mom as...
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    Happy Happy Day! You are a treasure to all of us.

    Happy Happy Day! You are a treasure to all of us.
  20. Replies
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    I looked it up on Wikipedia and found this: “...

    I looked it up on Wikipedia and found this:


    Acquaviva Collecroce (also called Živavoda Kruč or, usually, just Kruč) is a small town and comune in the province of Campobasso, in the Molise...
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    My husband’s first spoken language is Croatian....

    My husband’s first spoken language is Croatian. His father was born in Italy and spoke Italian and Croatian. The story is that in the distant past john’s Relatives picked up their whole town and...
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    I was diagnosed 30 years ago at age 42. I am 72...

    I was diagnosed 30 years ago at age 42. I am 72 now.

    We should talk sometime about this custom of women to want to hide their ages. It sort of goes along with lots of customs that encourage women...
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    I never log out either. Not sure why I would. I...

    I never log out either. Not sure why I would. I just click on the icon I have for this site and I am here...on this page. Less than a second.
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    That dog died several years ago. They never got...

    That dog died several years ago. They never got another. Angelica lives in Boston.
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    View Post

    Yesterday at Market:
    I looked up from my world’s best cranberry beans at yesterday’s market and wondered if I was seeing correctly. There, standing in front of me, was my favorite of all times...
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    I had a great farmers market today. My friend...

    I had a great farmers market today. My friend brought me 5 more chapters of his book to review.

    I had a visit from one of my favorite students ever! She was on her way to visit her daughter at...
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    Your mother is getting better...that is just...

    Your mother is getting better...that is just great news.
  28. Replies
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    Maybe that will be my weekend’s...

    Maybe that will be my weekend’s entertainment.....blob, blob, blob.....and popcorn!
  29. Replies
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    Well, this memory woke him up! He can not stop...

    Well, this memory woke him up! He can not stop looking it up and finds pictures that reflect his strong memory of it. Thanks. You gave my curious child something to occupy him!
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    John found something once near our ponds. It was...

    John found something once near our ponds. It was a foot long and five inches wide and 4 inches tall. It had ruffles like crepe paper and bright orange sherbet. It was not a mushroom. He kept it for...
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    After working outside on the farm I could use a...

    After working outside on the farm I could use a good hose down like that before I drag all the sand and dirt into the house!
  32. So Howie, what was your before MS life? ( or does...

    So Howie, what was your before MS life? ( or does it make you sad to think about that time).
  33. Replies
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    Well, I am reading a book that one of my...

    Well, I am reading a book that one of my customers at market wrote! Is writing!
    This man is a lawyer, the father of a daughter now interning at MIT- a daughter I first saw in a carrier on her mom’s...
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    Sounds good to me

    Sounds good to me
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    Right. I did that once when I had not noticed...

    Right. I did that once when I had not noticed that you had already started a thread.
  36. Thread: July chit-chat

    by Lazarus
    Replies
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    4,966

    Well, time to take a deep breath. Doesn’t it feel...

    Well, time to take a deep breath. Doesn’t it feel like you can hardly breathe when you are so worried? Hope things continue to improve.
  37. Too many prescription drugs and they could be causing us more problems than you know.

    This physician wants her patients to use fewer medications
    Add to list

    (Jack Valley/Getty Images/iStockphoto)
    By Ranit Mishori
    January 28, 2017
    There was nothing unique about that patient...
  38. Well Virginia, that is quite the interesting...

    Well Virginia, that is quite the interesting story...you have had an adventurous family life!
  39. Thread: July chit-chat

    by Lazarus
    Replies
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    4,966

    As I get older I think of a house without a dog...

    As I get older I think of a house without a dog and it makes me sadder than any other loss I will face. I need a furry friend curled up against me at night. I am sad for your loss but you are a great...
  40. Interesting supreme Courts case testing the ADA

    A blind man couldn't order pizza from Domino's. The company wants the Supreme Court to say websites don't have to be accessible
    Tucker Higgins | @tuckerhiggins
    Published 7 Hours Ago Updated 2...
  41. Thread: July chit-chat

    by Lazarus
    Replies
    314
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    4,966

    The best MS advice I ever got when I was new at...

    The best MS advice I ever got when I was new at all this was from a fellow MSer who told me: “ Get it before you need it”
    I met her at my first support group and we were each other’s support for...
  42. Thread: Haiku

    by Lazarus
    Replies
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    1,475

    Really?...........

    Really?...........
  43. Thread: July chit-chat

    by Lazarus
    Replies
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    4,966

    Sorry you are having such a hard time. Maybe we...

    Sorry you are having such a hard time. Maybe we all need one of those back and forth lawn sprinklers. I could use my manual wheelchair and play in the water trying to dodge it? Ok, not such a great...
  44. Replies
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    View Post

    Thanks. Here it was 100° and very humid. I drank tons of water and was saved because there were overcast skies and a slight breeze. I was very lucky that the sun only blared down on me once in a...
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    I am in a situation like a construction...

    I am in a situation like a construction worker...these things are too weak to be useful. But the water baths are great! And my customers just love helping me out! I have wet towels too. I really did...
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    Yes, there was a customer who is a radiologist...

    Yes, there was a customer who is a radiologist and he stopped to buy some plants from me. I asked him to do me a favor...and yes, he happily poured water over my head!
  47. Replies
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    And I thank you for being here! I did a farmers’...

    And I thank you for being here! I did a farmers’ market today and lasted until the end! The stress of the heat made all of us more pliable? Lots of fun conversations...
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    Thanks Nuthatch.... We never say that he is...

    Thanks Nuthatch....
    We never say that he is allergic to beta blockers. That is not medically accurate but essentially correct. The beta blocker danger for John came when he had a failed quadruple...
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    Things are better today...the hospital admitted...

    Things are better today...the hospital admitted what a mess they had made of things and apologized many times over. They sent an Uber driver to pick John up this morning, cleared out a room at the...
  50. Thread: July chit-chat

    by Lazarus
    Replies
    314
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    4,966

    I hope this is a productive visit and you get to...

    I hope this is a productive visit and you get to feel better soon.
  51. Thread: July chit-chat

    by Lazarus
    Replies
    314
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    4,966

    I hope your day is perfect...

    I hope your day is perfect...
  52. Thread: July chit-chat

    by Lazarus
    Replies
    314
    Views
    4,966

    I have given up on sleep tonight!

    I have given up on sleep tonight!
  53. Replies
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    952

    Rose, I am so glad you are here, sharing...

    Rose,
    I am so glad you are here, sharing information and knowing so much that is very important . I wish we did not have to learn everything we know about illness...
    What you shared is extremely...
  54. Replies
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    John May come home with a heart monitor. He is...

    John May come home with a heart monitor. He is still having irregular heartbeats but I guess they are not severe enough so that I should panic.

    He’s trying to get a service to bring him home...I...
  55. Thread: July chit-chat

    by Lazarus
    Replies
    314
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    4,966

    Weather and danger are words that go together...

    Weather and danger are words that go together these days. In western Massachusetts the weather for Saturday and Sunday will be quite dangerous with predictions of high humidity and temps making the...
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    Thanks Agate. Me too!

    Thanks Agate. Me too!
  57. Replies
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    This morning John was very weak...could not...

    This morning John was very weak...could not stand...shaking arms and legs. Ambulance took him to hospital. He was alert and talking but so very weak.
    They have done lots of tests...high top number...
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    Have a lovely day...you are a very sweet lady

    Have a lovely day...you are a very sweet lady
  59. Thread: July chit-chat

    by Lazarus
    Replies
    314
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    4,966

    I understand what you mean about halting the...

    I understand what you mean about halting the trend....I have spasms as a regular part of life now and have realized that, like all my other symptoms, sometimes they will go to sleep for a period of...
  60. Thread: July chit-chat

    by Lazarus
    Replies
    314
    Views
    4,966

    I am very good at finding information ..from how...

    I am very good at finding information ..from how to diagnose and fix the garbage disposal to new ways to organically treat crops to info on book and writers...it is amazing to me how many people do...
  61. Thread: July chit-chat

    by Lazarus
    Replies
    314
    Views
    4,966

    Farmers around here are having trouble finding...

    Farmers around here are having trouble finding enough crop to bring to market. This growing season is the problem. Climate change, global warming! We are having lots of trouble and, thank goodness,...
  62. Thread: July chit-chat

    by Lazarus
    Replies
    314
    Views
    4,966

    Good luck. I always do infusions at the hospital...

    Good luck. I always do infusions at the hospital because my insurances always pick up the entire tab. I even do prednisone that way.
  63. Replies
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    We checked on her. Not on yelp but we checked.!...

    We checked on her. Not on yelp but we checked.! Thanks.
  64. Replies
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    Yup..that’s the drop schedule he has. He is a...

    Yup..that’s the drop schedule he has. He is a tough patient with me but does call, go to, and communicate well with his doctors. He is afraid he will lose all vision in that eye permanently. A...
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    View Post

    John’s cataract surgery was last Monday. It has been problematic. Within hours there was significant inflammation and pain and vision from that eye was totally blurry. All last week was a nightmare...
  66. Thread: July chit-chat

    by Lazarus
    Replies
    314
    Views
    4,966

    Wonderful program. I shared article with...

    Wonderful program. I shared article with friends/family. Thanks
  67. Replies
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    One thing I have thought about a lot. There are...

    One thing I have thought about a lot. There are many things we do that make life more complicated/difficult for our family, friends or caregivers. In vain and stupid efforts to not use a cane or...
  68. Thread: July chit-chat

    by Lazarus
    Replies
    314
    Views
    4,966

    Hope you get relief soon....remember when we were...

    Hope you get relief soon....remember when we were younger and nothing could touch us? You must be weary of new hurdles to climb...
  69. Thread: July chit-chat

    by Lazarus
    Replies
    314
    Views
    4,966

    I am eating a lot of our own veggies....funny how...

    I am eating a lot of our own veggies....funny how when you grow them it is hard to find time to cook and eat them! I am making large dishes mixing everything in sort of stew things.....I have a...
  70. Thread: July chit-chat

    by Lazarus
    Replies
    314
    Views
    4,966

    For over 20 years I had lots of difficulties but...

    For over 20 years I had lots of difficulties but nothing that was pain that shut me down.

    Now I regularly have that MS Hug thing that is really painful. I am hoping to adjust to it and manage it...
  71. Thread: July chit-chat

    by Lazarus
    Replies
    314
    Views
    4,966

    Thanks. It is not half a day. Farmers get to...

    Thanks. It is not half a day. Farmers get to market around 6 am and leave at 1:30. I left at 12:17 because I have a spot that lets me leave the market without killing anyone! Actually the day before...
  72. Thread: July chit-chat

    by Lazarus
    Replies
    314
    Views
    4,966

    Thanks for thinking of me at the farmers’ Market....

    Thanks for thinking of me at the farmers’ Market. It really was brutal. The forecast had been for clouds early and storms late so I thought I would be ok. By 7 am the sun was fiercely shining and...
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    Thank you so much. John opted to have better...

    Thank you so much. John opted to have better distance vision and reading glasses for closeup. I keep teasing him about not recognizing me since he has not seen clearly in years.
  74. Thread: Instacart

    by Lazarus
    Replies
    28
    Views
    1,266

    Sounds great. Glad you are using it.

    Sounds great. Glad you are using it.
  75. Thread: Instacart

    by Lazarus
    Replies
    28
    Views
    1,266

    I have been using Peapod for years. It really is...

    I have been using Peapod for years. It really is fantastic. I pay $6.95 for delivery. Have never gotten a less than good item..fruit/veggies etc.i order what I want and select the day and time I want...
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