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  1. Thread: August chitchat

    by Cherie
    Replies
    212
    Views
    3,977

    I never log out so probably show up as logged in...

    I never log out so probably show up as logged in and viewing but not posting very often even when that is not the case. Just saying....
  2. Thread: Haiku

    by Cherie
    Replies
    48
    Views
    1,536

    Agate, "Cool Inside" Sounds like a wonderful...

    Agate, "Cool Inside"
    Sounds like a wonderful thing!
    Hoping work done soon.
  3. Replies
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    688

    Nuthatch is a couple weeks older than I am and I...

    Nuthatch is a couple weeks older than I am and I was diagnosed right after my 42nd birthday after 19 years of symptoms.
  4. Thread: Haiku

    by Cherie
    Replies
    48
    Views
    1,536

    Air Conditioning! Feels so good on days like...

    Air Conditioning!
    Feels so good on days like this.
    I am so grateful.
  5. Hair loss is almost a given with HSCT due to the...

    Hair loss is almost a given with HSCT due to the high dose chemo to wipe out the immune system. Significantly thinning hair happens. I had a friend who did this and she said 2 mornings in a row she...
  6. Thread: July chit-chat

    by Cherie
    Replies
    314
    Views
    5,180

    www.msfocus.org also has one time help for things...

    www.msfocus.org also has one time help for things like utilities or rent or gas. They also provide free Lyft transportation for medical appointments but not recreational appointments.
  7. Replies
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    308

    I think I was the initial person then Peg took it...

    I think I was the initial person then Peg took it over from me. I like it being loose and not on the shoulders of any one person. That way if one of us does not happen to be on the page at the...
  8. Thread: July chit-chat

    by Cherie
    Replies
    314
    Views
    5,180

    This link came about as a result of an interview...

    This link came about as a result of an interview I did at the end of May. It was posted (with corrections) today. ...
  9. Thread: July chit-chat

    by Cherie
    Replies
    314
    Views
    5,180

    Cat, I know that had to be SOOOO hard! I am...

    Cat,
    I know that had to be SOOOO hard! I am sorry.

    Jeanie,
    Good news on the progress.

    ANN,
    Been there. Not easy. Deep breaths.

    Much more comfortable here today. Fan in an open...
  10. Thread: July chit-chat

    by Cherie
    Replies
    314
    Views
    5,180

    It started raining last evening around 10 then...

    It started raining last evening around 10 then thunder and lightning and wind and heavy rain continued through the night. This morning dawned cool and I have had the window open to upper 60s for the...
  11. Thread: Haiku

    by Cherie
    Replies
    48
    Views
    1,536

    Just love this so much! I mixed boric acid last...

    Just love this so much!
    I mixed boric acid last week
    For the same problem.
  12. Thread: Haiku

    by Cherie
    Replies
    48
    Views
    1,536

    It is so hot today! "How hot is it?, you may...

    It is so hot today!
    "How hot is it?, you may say...
    It's blurred vision HOT!
  13. Thread: July chit-chat

    by Cherie
    Replies
    314
    Views
    5,180

    So uncomfortably hot today. 98 mid afternoon. ...

    So uncomfortably hot today. 98 mid afternoon. We have a couple of window A/Cs. The one in my office is nearly 40 years old and was "reconditioned " when we bought it in 1979. The one in our...
  14. Thread: July chit-chat

    by Cherie
    Replies
    314
    Views
    5,180

    Every 4 weeks for 20 doses (initially). The...

    Every 4 weeks for 20 doses (initially). The study has three arms: 1 placebo, one low dose and one high dose. He is one of those but we do not know which and he is having virtually NO side effects...
  15. Thread: July chit-chat

    by Cherie
    Replies
    314
    Views
    5,180

    The NP spent 40 minutes with me yesterday late...

    The NP spent 40 minutes with me yesterday late yesterday and I came away with a script for Diflucan to treat the yeast from the antibiotics and a low dose of an add on med to lower blood sugar. She...
  16. Thread: July chit-chat

    by Cherie
    Replies
    314
    Views
    5,180

    Just got a call from my Primary Care office. Can...

    Just got a call from my Primary Care office. Can I come in to see the Nurse Practitioner today at 6? They want to discuss my thyroid and diabetic care and not wait till my next appointment in...
  17. Thread: July chit-chat

    by Cherie
    Replies
    314
    Views
    5,180

    It was 92 when I left Milwaukee at 10 this...

    It was 92 when I left Milwaukee at 10 this morning and 94 in Philadelphia this afternoon and 88 in Rhode Island when I got home. So there you have it....it's hot in everyplace I have been today.
    ...
  18. Replies
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    567

    Blessings on your day and may you feel better...

    Blessings on your day and may you feel better than you have in the past few days.
  19. Thread: July chit-chat

    by Cherie
    Replies
    314
    Views
    5,180

    Jeanie, I love the bullet. Have used it for...

    Jeanie,
    I love the bullet. Have used it for years to make green smoothies from kale, parsley, pineapple, almonds and more plus yogurt and fruit smoothies. I've abandoned the smoothies for now...
  20. Replies
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    334

    Joan, I have gotten one answer to my inquiry...

    Joan,
    I have gotten one answer to my inquiry about the question you posed on finances just a few minutes ago. The word is that resources vary from State to State and within that from County to...
  21. Thread: Haiku

    by Cherie
    Replies
    48
    Views
    1,536

    It rained here last night. Hot and humid called...

    It rained here last night.
    Hot and humid called for it.
    Today is clear, nice!
  22. Replies
    8
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    334

    Thank you Joan. I will pass that information on...

    Thank you Joan. I will pass that information on to the powers that be. There are people doing talks and webinars on just that subject. It is not within the purview of a Nursing Talk, however. I...
  23. Thread: July chit-chat

    by Cherie
    Replies
    314
    Views
    5,180

    Yup! And no alcohol or Miralax or laxatives...

    Yup! And no alcohol or Miralax or laxatives while on Flagyl which is almost always used to treat it. They can all cause intractable vomiting and increase the risk for perforation. This is the...
  24. Replies
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    334

    Linda, I LIKE that!! Thank you.

    Linda,
    I LIKE that!! Thank you.
  25. Thread: July chit-chat

    by Cherie
    Replies
    314
    Views
    5,180

    Love it! And it's another pound since I posted...

    Love it! And it's another pound since I posted that. What a load off my mind!:crushed::hypnotysed::tennis::sneakiness:
  26. Replies
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    334

    I do touch on these things and will continue to. ...

    I do touch on these things and will continue to. I am also opening the floor briefly for discussions on Medical Cannabis and sharing concerns that I have heard from the Medical Community as well as...
  27. Replies
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    334

    What would you like to see...?

    What would draw you to a patient education program?
    What content in that program would send you home more satisfied?

    I have been doing programs for several years now on lifestyle changes that can...
  28. Thread: July chit-chat

    by Cherie
    Replies
    314
    Views
    5,180

    I appreciate all of you for your support and...

    I appreciate all of you for your support and suggestions. First of all , this is not dietary related constipation but infection related bowel stopping. With acute diverticulitis, it is not uncommon...
  29. Thread: July chit-chat

    by Cherie
    Replies
    314
    Views
    5,180

    Miralax cannot be taken while on Flagyl (another...

    Miralax cannot be taken while on Flagyl (another week of that). Going to try some good old fashioned Milk of Mag in a half dose and see if that helps. Thanks. It still seems too high for a...
  30. Thread: July chit-chat

    by Cherie
    Replies
    314
    Views
    5,180

    Home again. Pain is almost gone but meds are...

    Home again. Pain is almost gone but meds are hard on stomach. Eating small bits again. However, (TMI?) Things are still not moving for 10 days now. Getting concerned. Maybe my body, now that...
  31. Thread: July chit-chat

    by Cherie
    Replies
    314
    Views
    5,180

    In NH since Sunday afternoon. Still not well but...

    In NH since Sunday afternoon. Still not well but better than when I last posted. No demands on me here at all. I can truly rest. This afternoon was lovely...clear skies, low 70s, low humidity,...
  32. Thread: July chit-chat

    by Cherie
    Replies
    314
    Views
    5,180

    Wow Sunshine! You are blessed in so very many...

    Wow Sunshine! You are blessed in so very many ways and apparently are a living witness of those blessings to those who see you, such as your doc. Thank you.

    Rose,
    Grateful that the quake did...
  33. Thread: July chit-chat

    by Cherie
    Replies
    314
    Views
    5,180

    Still no better but no worse either. Perhaps...

    Still no better but no worse either. Perhaps tomorrow will show improvement. Poor Dave is having to fend for himself for meals without the forethought of food prepared in advance (as when I...
  34. Thread: Haiku

    by Cherie
    Replies
    48
    Views
    1,536

    It is hot today. Fireworks go "Pop, Pop, Pop....

    It is hot today.
    Fireworks go "Pop, Pop, Pop.
    Celebration Day!
  35. Thread: July chit-chat

    by Cherie
    Replies
    314
    Views
    5,180

    Saw Nurse Practitioner, not PA. She was...

    Saw Nurse Practitioner, not PA. She was wonderful. It is Diverticulitis. I am on two antibiotics and the next 48 hours should see whether or not the oral will do the job or whether I will need IV...
  36. Thread: July chit-chat

    by Cherie
    Replies
    314
    Views
    5,180

    Happy anniversary Nuthatch. I have spent the...

    Happy anniversary Nuthatch.

    I have spent the last several days with my Cousin Mary who drove down from Albany, NY for a several day visit and left yesterday. However, I have had signs for the...
  37. Thread: June Chit Chat

    by Cherie
    Replies
    302
    Views
    7,533

    Jeanie, Remember what they taught us in Nursing...

    Jeanie,
    Remember what they taught us in Nursing school about bladder retraining after long term catheter use. Clamp for an hour then open and gradually extend the clamped time so the bladder learns...
  38. Thread: June Chit Chat

    by Cherie
    Replies
    302
    Views
    7,533

    They actually got married the next afternoon for...

    They actually got married the next afternoon for real and in a more traditional ceremony at the same site. This was a fun way to rehearse for the ceremony and merge two theater families and their...
  39. Thread: Haiku

    by Cherie
    Replies
    48
    Views
    1,536

    A wedding today On the patio downtown For Chris...

    A wedding today
    On the patio downtown
    For Chris and Maggie.

    Fam-i-ly and friends
    Gathered to support the two.
    We all were quite blessed.

    Our Community
    Is richer by far for them.
  40. Thread: June Chit Chat

    by Cherie
    Replies
    302
    Views
    7,533

    https://www.facebook.com/jay.cady.9/videos/1021909...

    https://www.facebook.com/jay.cady.9/videos/10219093494718901/ has an 11 minute video of the clown wedding with the bride's father (a vaudevillian from Kansas) officiating. The groom's father is the...
  41. Thread: June Chit Chat

    by Cherie
    Replies
    302
    Views
    7,533

    Went to my first "clown wedding" tonight. We...

    Went to my first "clown wedding" tonight. We have a wonderful small community theater that does some very professional performances just two blocks from our house. For those of you who follow my...
  42. Thread: Haiku

    by Cherie
    Replies
    48
    Views
    1,536

    Raining all day long. This is the sixth day in a...

    Raining all day long.
    This is the sixth day in a row.
    Sun came out at 6.
  43. Thread: June Chit Chat

    by Cherie
    Replies
    302
    Views
    7,533

    It does entirely depend on the contract that the...

    It does entirely depend on the contract that the infusion center or the home infusion service has with the company that provides the IVIg or Gammagard. And it is true that the shortage of donors...
  44. Replies
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    289

    Steadily progressing with no MRI changes in 3-5...

    Steadily progressing with no MRI changes in 3-5 years. Inactive progressive. This is what we heard at the Consortium this year. They are advocating spinal taps now in all forms of mS to see if...
  45. Replies
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    FDA issued HUGE cautions last week. Not the hope...

    FDA issued HUGE cautions last week. Not the hope that it was thought to be and potentially life threatening. "Fa-Ged-A-Bod-it!"
  46. Thread: Haiku

    by Cherie
    Replies
    48
    Views
    1,536

    Instructions in the first post in this thread. ...

    Instructions in the first post in this thread.

    The rain falls softly.
    It's sixty degrees outside.
    Windows are open.
  47. Thread: Haiku

    by Cherie
    Replies
    48
    Views
    1,536

    Virginia, Love that you're here contributing. ...

    Virginia,
    Love that you're here contributing. Haiku has an exact format: Three lines only. 5 syllables in first and third line and 7 syllables in second line so 5/7/5.
  48. Thread: Haiku

    by Cherie
    Replies
    48
    Views
    1,536

    Monday laundry day Here too! Clean sheets on the...

    Monday laundry day
    Here too! Clean sheets on the bed.
    Rhubarb harvested.
  49. Replies
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    685

    I have seen this happen at least 6 or 7 times...

    I have seen this happen at least 6 or 7 times over the past 15 +/- years. Hoping this resolves for you quickly. People do not generally realize that IVIg is a human blood product. It is NOT a...
  50. Thread: Haiku

    by Cherie
    Replies
    48
    Views
    1,536

    Headache is now gone. Company has not yet come ...

    Headache is now gone.
    Company has not yet come
    and may not show up

    In some ways relieved
    This person's a lot of work
    Expectations gone!

    He's an old colleague
    Who comes and sleeps away time
  51. Thread: June Chit Chat

    by Cherie
    Replies
    302
    Views
    7,533

    The house they bought from us last summer is on...

    The house they bought from us last summer is on almost two acres and abuts university athletic fields. They have built bike trails all round the back of the property with planks over swampy areas...
  52. Thread: Haiku

    by Cherie
    Replies
    48
    Views
    1,536

    Feeling a bit down. I have a headache today....

    Feeling a bit down.
    I have a headache today.
    Company sick too.
  53. Thread: June Chit Chat

    by Cherie
    Replies
    302
    Views
    7,533

    I think the busy weekend is working on me today. ...

    I think the busy weekend is working on me today. I slept well and woke refreshed but am dragging now three hours after getting going for the day. Out of State company coming either today or...
  54. Thread: Haiku

    by Cherie
    Replies
    48
    Views
    1,536

    Father's Day it is! Took Dave to eat at UNOs....

    Father's Day it is!
    Took Dave to eat at UNOs.
    Happy guy is he!

    Lobster roll, chowder,
    Roasted veggies, coleslaw too.
    Brownie sundae, yay!

    I had a sirloin
    Mashed potato too.
  55. Thread: Haiku

    by Cherie
    Replies
    48
    Views
    1,536

    The wind brought some rain. Today everything is...

    The wind brought some rain.
    Today everything is green.
    Still cool and breezy.
  56. Thread: June Chit Chat

    by Cherie
    Replies
    302
    Views
    7,533

    You all certainly have been a chatty group today!...

    You all certainly have been a chatty group today!

    Nuthatch,
    What a lovely photo.

    Virginia,
    You should feel flattered but I am glad you are erring on the side of caution taking your own...
  57. Thread: Haiku

    by Cherie
    Replies
    48
    Views
    1,536

    A very long day. Research and wellness program...

    A very long day.
    Research and wellness program
    Dinner theater.

    Home now and resting.
    Comfortably cool, windy
    The air smells so good!
  58. Thread: Haiku

    by Cherie
    Replies
    48
    Views
    1,536

    Today I woke up. Got up. Got dressed. Smelled...

    Today I woke up.
    Got up. Got dressed. Smelled fresh air.
    Enjoying the sun.

    Not so much aching
    As when I was traveling.
    More comf-'terble now.
  59. Thread: June Chit Chat

    by Cherie
    Replies
    302
    Views
    7,533

    Haiku thread is now up here: ...

    Haiku thread is now up here: http://www.braintalkcommunities.org/showthread.php/103129-Haiku?p=89012#post89012
    Have fun!
  60. Thread: Haiku

    by Cherie
    Replies
    48
    Views
    1,536

    Haiku

    Several years ago, we had a Haiku thread here. Thought some of you might like to have some fun with it again. This is the starter writing from that old thread cut and pasted here:

    Haiku is a...
  61. Thread: June Chit Chat

    by Cherie
    Replies
    302
    Views
    7,533

    I am thinking now... We should start a Haiku...

    I am thinking now...
    We should start a Haiku Thread
    Like we did before.
  62. Thread: June Chit Chat

    by Cherie
    Replies
    302
    Views
    7,533

    Springtime Haiku... I knew Howie would answer....

    Springtime Haiku...
    I knew Howie would answer.
    It is a given.
  63. Thread: June Chit Chat

    by Cherie
    Replies
    302
    Views
    7,533

    Jeanie, Perhaps it's time to reach out to the...

    Jeanie,
    Perhaps it's time to reach out to the home care program at MSF to see if they can help you with aides. Probably would not be a 12 hour time block like you currently have but they do send...
  64. Replies
    33
    Views
    1,449

    Your description of the breathing problem with...

    Your description of the breathing problem with sleep certainly sounds like sleep apnea which can also cause high BP, elevated heart rate, fatigue and severe anxiety. It is possible with something...
  65. Thread: June Chit Chat

    by Cherie
    Replies
    302
    Views
    7,533

    You know, I think that what bit me and what they...

    You know, I think that what bit me and what they call No see 'ems in NH are the chiggers we grew up with on the farm. Tiny little black flying insects slightly larger than a flee but without the...
  66. Thread: June Chit Chat

    by Cherie
    Replies
    302
    Views
    7,533

    It is very breezy here and they are biting up a...

    It is very breezy here and they are biting up a storm. Rained last night and it seems to have slowed them down. David got back in the car yesterday afternoon after a hike and said there must've...
  67. Thread: Bad fall

    by Cherie
    Replies
    6
    Views
    434

    I agree. Sounds like a shoulder and possibly...

    I agree. Sounds like a shoulder and possibly writs fracture. Very common in those of us who have had steroids.
  68. Thread: June Chit Chat

    by Cherie
    Replies
    302
    Views
    7,533

    Getting eaten alive up here in the mountains. ...

    Getting eaten alive up here in the mountains. The No-See-'ems are out in force. I react so very strongly to insect bites. One bit me on the eyelid and eye swelled shut within an hour. By then ,...
  69. Thread: June Chit Chat

    by Cherie
    Replies
    302
    Views
    7,533

    Agate, I have no doubt you will be ready for...

    Agate,
    I have no doubt you will be ready for this. Afterall, unless they have changed protocols, this is something you have done before and should ace it again.

    77 and sunny here today. Nice...
  70. I've seen the InterStim demonstrated at several...

    I've seen the InterStim demonstrated at several conferences and it is amazing!
  71. Welcome home!

    Welcome home!
  72. Thread: June Chit Chat

    by Cherie
    Replies
    302
    Views
    7,533

    And the first installment article on what came...

    And the first installment article on what came out of the Consortium in Seattle has been sent to MS Focus magazine. Phew. Tomorrow we have a reception and dinner to go to after church then off to...
  73. Thanks for sharing.

    Thanks for sharing.
  74. Thread: June Chit Chat

    by Cherie
    Replies
    302
    Views
    7,533

    Slides are done and sent off for review and...

    Slides are done and sent off for review and loading! Not going to try and tackle more today as I have to go out for the evening in three hours so am going to just wash hair and rest till then.
    ...
  75. Replies
    5
    Views
    449

    I was so very, very tired by the time of this...

    I was so very, very tired by the time of this interview that I felt like my speaking was in slow motion and I sounded "blotto" but as we moved through it, I think I "woke up " a bit. I appreciate...
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