Search:

Type: Posts; User: agent107; Keyword(s):

Search: Search took 0.06 seconds.

  1. Replies
    180
    Views
    43,272

    Hi Agate, I found that actually taking Motrin...

    Hi Agate,

    I found that actually taking Motrin before the injection like well before -- kind of an hour when the Motrin kicks in and then the following morning. That seems to work for me. And I...
  2. Replies
    180
    Views
    43,272

    View Post

    Good morning all,

    Yes, good morning I'm in PST (although fairly close to noon!).

    I'm thinking BigParma's ABC and R drugs are the old reliable ones and I think big Pharma's oral meds were...
  3. Replies
    180
    Views
    43,272

    Hi all, First, I must totally apologize for...

    Hi all,

    First, I must totally apologize for being so absent from the list.

    I decided ultimately and reluctantly to get off Tysabri (I really liked it) because my risk of getting PML was one 1...
  4. Replies
    18
    Views
    3,138

    folks, just after i logged on here the nice folks...

    folks, just after i logged on here the nice folks from biogeny called to "check in" -- probably because i haven't had an infusion since august -- what timing!

    seeing neuro on 22nd --

    question...
  5. Replies
    18
    Views
    3,138

    folks, just after i logged on here the nice folks...

    folks, just after i logged on here the nice folks from biogeny called to "check in" -- probably because i haven't had an infusion since august -- what timing!

    seeing neuro on 22nd --

    question...
  6. Replies
    18
    Views
    3,138

    was taken by neuro from MS research center to...

    was taken by neuro from MS research center to another fancy Research Center which had (for then) the state of the art machine before home center's order for same had arrive

    i observed my...
  7. Replies
    12
    Views
    2,927

    p.s. glad you're all well, sally!

    p.s. glad you're all well, sally!
  8. Replies
    12
    Views
    2,927

    good god, finally returned to brain talk to say...

    good god, finally returned to brain talk to say thanks to all who shared knowledge re tecfidera (p.s. decided to return to avonex with its tried and true history)

    so i log on immediately and...
  9. Replies
    180
    Views
    43,272

    hi all, ignorance here. small thing: don't...

    hi all,

    ignorance here. small thing: don't always find the "thanks" button --

    big thing: agate, are the PML numbers cumulative for one year? more?

    big thing: sally, i couldn't agree more...
  10. Replies
    84
    Views
    18,390

    agate and SuzE-Q, i think i'm not...

    agate and SuzE-Q,

    i think i'm not understanding how this all works -- so i hope i'm doing this correctly.

    SuZe-Q,

    A fresh air to hear what you say -- a relief to read your message -- many...
  11. Replies
    84
    Views
    18,390

    agate, i will chew on these stats -- maybe...

    agate,

    i will chew on these stats -- maybe oatmeal (breakfast here) -- and reread a few of these -- thank you for this post --

    well, this past week i have been considering returning to avonex...
  12. Replies
    84
    Views
    18,390

    hi cherie, "Index value of 2.8 is as high a...

    hi cherie,

    "Index value of 2.8 is as high a risk for PML as any I have seen." -- I have to admit that I'm clueless as to what "index value" means . . .

    agent107
  13. Thread: Plegridy

    by agent107
    Replies
    9
    Views
    3,015

    Plegridy

    hello everyone,

    Any thoughts about this new drug? [a chunk of quick goole search below]

    agent 107



    http://www.pharmatimes.com/Article/13-05-22/Biogen_submits_MS_drug_Plegridy_to_FDA.aspx
  14. Replies
    84
    Views
    18,390

    i couldn't agree with you more, sally

    i couldn't agree with you more, sally
  15. Replies
    84
    Views
    18,390

    you read my mind, dear sally -- totally --...

    you read my mind, dear sally -- totally -- exhausted -- must shut my eyes!
  16. Replies
    84
    Views
    18,390

    cherie, thanks for commenting on the 2.8 figure...

    cherie, thanks for commenting on the 2.8 figure -- very helpful indeed -- are you seeing any fluctuation in the rash? i hope it disappears soon -- what treatment did the 3 PML cases receive?

    it's...
  17. Replies
    84
    Views
    18,390

    nailbiting

    gang,

    doc keeps pushing tec. -- told him still cogitating -- next (last?) tysabri infusion on the 18th --

    heard something about weakened gait and walking -- has anyone heard of this? does it...
  18. Replies
    84
    Views
    18,390

    positive experiences on tecfidera? or any of the oral drugs?

    hi all,

    i'm wondering if anyone has had a positive experience (e.g., no unpleasant side effects) with tecifera -- cherie, i shiver when i hear your experience with the drug -- as well as cat's...
  19. Replies
    84
    Views
    18,390

    Tecferda, Tecferda, who and what are you?

    hi all,

    it has been my bad hand -- that has kept me from joining this thread earlier -- the hand and then guilt for not doing so.

    i was in that front line of tysabri users (i think i like the...
  20. am heading out, ann -- thanks for the start and...

    am heading out, ann -- thanks for the start and recommendation to start with nms -- will report to all on progress -- would not have gotten this ssdi app w/out you all --

    agent orange
  21. Hi Sally, I didn't have an attorney. Am...

    Hi Sally,

    I didn't have an attorney. Am wondering if there is an association or organization advocating the repeal this horrifying regulation.

    This 2-year rule is mean, and more . .

    Still...
  22. SSDI --" But the big problem is no insurance for 2 years" (to quote one of us MSers!

    Hello all,

    I am blessed to have succeeded in my application to the SSA the first time around. It's enough that they make disability application insurmountable. It's cruel and insulting. What...
  23. You have no idea

    Greetings folks,

    You have no idea of how grateful I am to all of you. Your support helped me along the grueling process.

    But, unbelievably, I got my SSDI even before all my documents had been...
  24. agate, thanks for the tip re pull up lost text...

    agate,

    thanks for the tip re pull up lost text -- i'm dead exhausted -- wretched ssdi day -- if i'm not comatose tomorrow i'll try to report back -- sweet dreams to those in PST --

    agent107
  25. all, wrote a very long [for me] which has not...

    all,

    wrote a very long [for me] which has not appeared -- i type one fingered --

    because of time my reply did not come through -- can't repeat it now -- damn -- will try again later . . .
    ...
  26. folks, i am that glad my innocuous message...

    folks,

    i am that glad my innocuous message brought back posts -- many weekly if not daily -- not bad!

    agent107
  27. hi virginia, et. al., a social sec. atty...

    hi virginia, et. al.,

    a social sec. atty (friend of a friend's atty. husband) said i should apply and then deal with a atty. if denied -- i described my situation and he thought i should be fine...
  28. Wow!

    hi all,

    what an interesting and informative thread -- i could generally out-lurk any lurker -- hey, if i can be here -- so can you other lurkers . . . .

    agent107
  29. furniture cleaner/ms land

    hello all,

    i see my neuro in early july and know he is crazy mad about discussing new drugs so i'm glad to hear/see these posts -- am JC positive, have been on tysabri since it's inception --
    ...
  30. my god jeani, i just wrote you and my draft...

    my god jeani,

    i just wrote you and my draft was deleted and now my hand is really bugging me to let me put it short: my heart goes out to you and your bravery and ability to hold onto your...
  31. Call me crazy -- but think i saw only one visitor online now (me) -- is this true?

    greetings all,

    i've recently gained so much from this forum -- correct me i I'm wrong -- but i see i'm the only one online now -- it is such a busy list -- thoughts?


    agent107
  32. thanks, agate, for your thoughtful and very...

    thanks, agate, for your thoughtful and very helpful comments -- i'm sure many others on the list can find your info useful --

    my neuro has been very supportive -- yours?

    hopefully the SSDI...
  33. oh, yes, morning in america -- what do you think...

    oh, yes, morning in america -- what do you think brought the ssa to review you? i would like to think that i'm of no interest to them -- the wording is so critical -- the ALL gainful employment --...
  34. gosh agate, that's a nail-biting tale . . . ....

    gosh agate,

    that's a nail-biting tale . . . . at least you have the cash now -- i'll have to assume that they're way too overwhelmed to mess with a minor player like me . . . .on what ground did...
  35. SSDI -- does anyone during the initial app. retain a lawyer?

    hi folks,

    am in process of applying for ssdi --

    it looks like everyone retains an attorney for appeal of a denial --

    what about heading off the posse by having an atty. before a possible...
  36. multiple sclerosis -- has anyone used legal assistance prior to denial?

    hi all,

    am in the process of applying for ssdi -- i understand that those appealing a denial of app. (quite frequent) most often have retained legal assistance --

    i'm wondering if anyone calls...
  37. Replies
    1
    Views
    1,369

    i just replied to a post re long term tysabri...

    i just replied to a post re long term tysabri patients with jc virus -- and mentioned that my doc said something about spectrum of jc virus -- he may have been referring to this paper -- i will give...
  38. Long Term Tysabri Patient with JC Virus

    I too have been on Tysabri since 2002 (part of clinical trial). I've tested positive for the JC Virus. Most Tysabri patients I know with the JC Virus have stuck with Tysabri. And I have too. My...
Results 1 to 38 of 38


BTC Inc's Disclaimer and Privacy Policy

The material on this site is for information & support purposes only, and is not a substitute for medical advice provided by a licensed health care provider. Always consult your doctor before trying anything that you find online.