Search:

Type: Posts; User: Sunshine; Keyword(s):

Page 1 of 75 1 2 3 4

Search: Search took 0.23 seconds.

  1. Replies
    16
    Views
    206

    Kittyanne: I am intrigued by the pump. What are...

    Kittyanne:
    I am intrigued by the pump. What are the downsides to it?
    Any concern about infection.
    Can you swim in a pool with it?
    Could I surf in the ocean with it, lying down on the board.
    What...
  2. Replies
    16
    Views
    206

    Baclofen is longer acting, and you cannot just...

    Baclofen is longer acting, and you cannot just stop it once you are on higher doses. You have to gradually reduce it.

    I started on low doses of each one when I first began to have spasms 2 years...
  3. Replies
    16
    Views
    206

    Welcome bburk64... My friend had to use the pump...

    Welcome bburk64...
    My friend had to use the pump due to very very high Baclofen levels created bad side effects. It was better than using the pills, but he had issues: when they did the procedure ,...
  4. Replies
    184
    Views
    3,270

    I am not doing so well, at all. Continued pain...

    I am not doing so well, at all.
    Continued pain in the urogenitary tract (sp) whether urinating or not. Trying all kinds of remedies.
    Thats the easy part.
    Awoke last week unable to stand at all on...
  5. So glad you both made it home...very glad.

    So glad you both made it home...very glad.
  6. Laz, this is very upsetting. Are you too far away...

    Laz, this is very upsetting. Are you too far away to go back to where John is?..Will they talk with you on the phone?
  7. Replies
    5
    Views
    149

    View Post

    Thank you for your ideas. If the VNA doesn’t work out, theses are other things to try. My area is rural, so the options are not going to be too vast.
  8. Replies
    5
    Views
    149

    How do you get a driver

    I need another source for a driver on days I cannot drive, or I can drive, but the parking is way too far from the building’s wehhlchairs. I am unable to lift my chair out of my small car...

    I...
  9. Bless you Ikoiko for helping Laz out!! I hope you...

    Bless you Ikoiko for helping Laz out!! I hope you stay and post more— !
  10. Replies
    184
    Views
    3,270

    The IVIG went very well. As we approached the...

    The IVIG went very well. As we approached the only access to the highway to go, the entire highway was blocked off. WE thought maybe due to flooding but at night we found out it was shut down becasue...
  11. Replies
    192
    Views
    22,283

    I am having a significant health event. I might...

    I am having a significant health event. I might be thin around here for several days...not to worry. Could end up in a health care facility. Or not. Also, supposed to get IVIG all day tomorrow and...
  12. Replies
    184
    Views
    3,270

    I am having a significant health event. I might...

    I am having a significant health event. I might be thin around here for several days...not to worry. Could end up in a health care facility. Or not. Also, supposed to get IVIG all day tomorrow and...
  13. Replies
    184
    Views
    3,270

    I think we all have different levels of comfort...

    I think we all have different levels of comfort in terms of what we put on the forum. I tend to be more worried about what is in the digital world than someone else might feel. So worried about cyber...
  14. Replies
    415
    Views
    35,042

    Today I swam 800 yards, 23 minutes. Felt pretty...

    Today I swam 800 yards, 23 minutes. Felt pretty good. ... cooking and resting today...
  15. Replies
    38
    Views
    570

    Today I swam 800 yards, 23 minutes. Felt pretty...

    Today I swam 800 yards, 23 minutes. Felt pretty good. ... cooking and resting today...
  16. Replies
    38
    Views
    570

    Here is an article today from NYT on Surfing,...

    Here is an article today from NYT on Surfing, written by a severely disabled woman , could be anyone of us actually:


    The Surfer’s Secret to Happiness
    They don’t seem to regret all that time...
  17. Replies
    38
    Views
    570

    meant to post this link on Surfing with MS...

    meant to post this link on Surfing with MS virtual reality. Trusty Scout Agate saw link wsn’t there...OOPS

    https://m.youtube.com/watch?v=T_VUJUBIpQ4
  18. Replies
    415
    Views
    35,042

    Today I swam 800 yards in 23 minutes. Lots of...

    Today I swam 800 yards in 23 minutes. Lots of pain before the swim, but swam anyway...
  19. Replies
    38
    Views
    570

    Today I swam 800 yards in 23 minutes. Lots of...

    Today I swam 800 yards in 23 minutes. Lots of pain before the swim, but swam anyway...
  20. Replies
    38
    Views
    570

    Love dis 2 minute clip of surfing with virtual...

    Love dis 2 minute clip of surfing with virtual reality. Both men in the video haveMS. The younger one, Robert weaver, aka WIngnut, no longer can compete, but he still can surf and teach surfing etc.
  21. Replies
    701
    Views
    89,499

    I am making my favorite and easy dish today: It...

    I am making my favorite and easy dish today: It is walnut encrusted fish. So easy to make, so delicious. Living in Florida, we can get fresh fish right off the boat at the fish market.

    Today will...
  22. Replies
    184
    Views
    3,270

    In many states, someone can call the DMV and ask...

    In many states, someone can call the DMV and ask them to recall the driver for a driver exam. They keep it an anonymous. My sister had to do that for my father. He wasn’t driving much anyway. But it...
  23. Replies
    38
    Views
    570

    You def got in some walking today Virginia....

    You def got in some walking today Virginia.
    Today I took an ativan for pain and spasm relief after a tough several days of spasticity. It’s nice to be able to walk, despite, the drugged up feeling—...
  24. Replies
    415
    Views
    35,042

    I swam 800 yards in 24 minutes today. About to...

    I swam 800 yards in 24 minutes today. About to cook dinner. Resting a lot..
  25. Replies
    38
    Views
    570

    I swam 800 yards in 24 minutes today. About to...

    I swam 800 yards in 24 minutes today. About to cook dinner. Resting a lot...
  26. Happy Birthday...

    Happy Birthday Nuthatch!*boogie*gift*mm1*mm2*sparkle
  27. Replies
    184
    Views
    3,270

    Howie, I am really glad to hear you will be able...

    Howie, I am really glad to hear you will be able to get out and live a little.
  28. Replies
    38
    Views
    570

    Wish I could wake up later. The disease makes it...

    Wish I could wake up later. The disease makes it hard to stay asleep past about 3:30am ish....
  29. Replies
    184
    Views
    3,270

    Such interesting family posts. Glad Howie is...

    Such interesting family posts.
    Glad Howie is okay.
    Glad Agate found a way out of her building
    Virginia, that sounds miserable. Hoping restarting the neurotin will help.
    Hello Rose..I read your...
  30. Replies
    415
    Views
    35,042

    Today I swam 22 minutes 800 yards, right after...

    Today I swam 22 minutes 800 yards, right after watching the space launch around 6:30am from my back yard. So much of Florida can see these launches. You can see it north of WPB, in Orlando, in...
  31. Replies
    38
    Views
    570

    Today I swam 22 minutes 800 yards, right after...

    Today I swam 22 minutes 800 yards, right after watching the space launch around 6:30am from my back yard. So much of Florida can see these launches. I bet Jeanie can in WPB: they arc to the south as...
  32. Replies
    38
    Views
    570

    Good Job Ann. The problem will be that if you...

    Good Job Ann.
    The problem will be that if you plant food for self, there will be gangs of hungry people at your home. So, either be ready to lose all your stores of food, or arm yourself (which it...
  33. Replies
    26
    Views
    2,001

    https://wwl.radio.com/articles/louis...l-pot-produ...

    https://wwl.radio.com/articles/louis...l-pot-products

    https://www.nola.com/news/healthcare...996ca6444.html

    These are articles about MMJ and its use for medicinal reasons. They use the example...
  34. Replies
    77
    Views
    14,960

    https://wwl.radio.com/articles/louisiana-patients-...

    https://wwl.radio.com/articles/louisiana-patients-hopeful-about-legal-pot-products

    https://www.nola.com/news/healthcare_hospitals/article_c3286750-b890-11e9-b600-c36996ca6444.html

    These are...
  35. Replies
    184
    Views
    3,270

    Jeanie, that is so fantastic!!! And,...

    Jeanie, that is so fantastic!!! And, inspirational :)

    We had that storm too. It was unreal!
    I read an article in the paper that said lightning exploded a Florida Woman’s toilet— it struck the...
  36. Replies
    415
    Views
    35,042

    Today I swam 22 minutes, 800 yards in a cold 79F...

    Today I swam 22 minutes, 800 yards in a cold 79F pool— all that rain chilled down the pool. I had a brief spasm at 3 am, 4 hours before the swim. I just wanted to get into the pool, so I put aside...
  37. Replies
    38
    Views
    570

    Today I swam 22 minutes, 800 yards in a cold 79F...

    Today I swam 22 minutes, 800 yards in a cold 79F pool— all that rain chilled down the pool. I had a brief spasm at 3 am, 4 hours before the swim. I just wanted to get into the pool, so I put aside...
  38. Replies
    184
    Views
    3,270

    So glad all is well Cat. Better than well! Two...

    So glad all is well Cat. Better than well!
    Two new cats for you and TC— double trouble, double blessings!
  39. Replies
    38
    Views
    570

    That sounds like a great goal Jeanie :) Would...

    That sounds like a great goal Jeanie :) Would Andy be able to take you?
  40. Replies
    184
    Views
    3,270

    But 10 days is a long time...

    But 10 days is a long time...
  41. Replies
    6
    Views
    212

    Oh Laz, Thank you so much for sharing this....

    Oh Laz,
    Thank you so much for sharing this.
    More than a witness are you...
    You are a central figure in so many of the lives you touch...
  42. Replies
    184
    Views
    3,270

    View Post

    Where is Cat?
    Did I miss something?
    Haven’t seen her for about 10 days...
  43. Replies
    192
    Views
    22,283

    So, as I said before, I had a most excellent surf...

    So, as I said before, I had a most excellent surf adventure Saturday. Came home, still on ativan, so I was walking without a problem and zero pain. Like before SPS came to live in me. So, I was...
  44. Replies
    184
    Views
    3,270

    There is so much hate right now. And I see it...

    There is so much hate right now. And I see it spilling over in to people who usually were not hateful. ...

    So, as I said before, I had a most excellent surf adventure Saturday. Came home, still on...
  45. Replies
    77
    Views
    14,960

    https://www.dailymail.co.uk/news/article-7321053/I...

    https://www.dailymail.co.uk/news/article-7321053/It-saved-life-Calls-cannabis-legalised-Australia.html
  46. Replies
    26
    Views
    2,001

    https://www.dailymail.co.uk/news/article-7321053/I...

    https://www.dailymail.co.uk/news/article-7321053/It-saved-life-Calls-cannabis-legalised-Australia.html
  47. Replies
    26
    Views
    2,001

    https://7news.com.au/sunday-night/medical-cannabis...

    https://7news.com.au/sunday-night/medical-cannabis-debate-australians-left-in-pain-by-expensive-and-limited-access-to-drug-c-378990
  48. Replies
    184
    Views
    3,270

    Ok. That makes sense. So there is some light at...

    Ok. That makes sense. So there is some light at the end of the tunnel? How many more days?
  49. Replies
    184
    Views
    3,270

    Oh man ANN. How demoralizing for your mom. And...

    Oh man ANN. How demoralizing for your mom. And scary. Was it a premature release, or did she indeed seem stable enough?
  50. Replies
    50
    Views
    1,999

    Hi Helen, Welcome home :) Doctors are often a...

    Hi Helen,
    Welcome home :) Doctors are often a source of stress in their dismissiveness, lack of curiosity etc.
  51. Replies
    415
    Views
    35,042

    An hour after taking an Ativan early morning, I...

    An hour after taking an Ativan early morning, I went surfing with my crew. The Wheelchair was there as planed for!
    I lasted two hours surfing until the stiffening began to creep in. So, I got plenty...
  52. Replies
    38
    Views
    570

    An hour after taking an Ativan early morning, I...

    An hour after taking an Ativan early morning, I went surfing with my crew. The Wheelchair was there as planed for!
    I lasted two hours surfing until the stiffening began to creep in. So, I got...
  53. Replies
    415
    Views
    35,042

    Today I swam 800 yards in 22 minutes. Then the...

    Today I swam 800 yards in 22 minutes. Then the skies opened up anyway. I checked my raised porch planters as they have a water well underneath it at the bottom of the box. (From SAMs CLub) The gauge...
  54. Replies
    38
    Views
    570

    View Post

    That’s amazing ANN— how are you able to do so much walking?

    Today I swam 800 yards in 22 minutes. Then the skies opened up anyway. I checked my raised porch planters as they have a water well...
  55. Replies
    415
    Views
    35,042

    Today i swam 22 minutes, 800 yards. Rested....

    Today i swam 22 minutes, 800 yards. Rested. Cooked supper. Resting.

    Might surf Sat depending on lightning and wheelchair availability.
  56. Replies
    184
    Views
    3,270

    View Post

    That fungus and John’s sound amazing!

    Agate, can you wear ear plugs or headphones? I wear headphones at public places as certain noises like radios trigger spasticity, It doesnt eliminate the...
  57. Replies
    38
    Views
    570

    Today i swam 22 minutes, 800 yards. Rested....

    Today i swam 22 minutes, 800 yards. Rested. Cooked supper. Resting.

    Might surf Sat depending on lightning and wheelchair availability.
  58. Replies
    99
    Views
    1,774

    Nice job agate! TY Ann. I want to try the ones...

    Nice job agate!

    TY Ann. I want to try the ones tat wont trigger shin spasms.

    Today i swam 22 minutes, 800 yards. Rested. Cooked supper. Resting.

    Might surf Sat depending on lightning and...
  59. Replies
    314
    Views
    4,864

    That is excellent news ANN! Virginia, I hope...

    That is excellent news ANN!

    Virginia, I hope you feel better soon. If you have ginger it settles the stomach...My doc also said Red Bell Pepper does the same. Ginger works fast: you just chew on...
  60. Replies
    38
    Views
    570

    I plan to go surfing Saturday if there is no...

    I plan to go surfing Saturday if there is no lightning. If we get skunked by lightning, will go out for a beachside brunch with DH instead....I Have started the packing: The car seats are...
  61. Replies
    38
    Views
    570

    Keep on Moving Thread: August 2019

    MS creates some real challenges to keep on moving. It helps to inspire each other on how to find ways to move.

    Did you stretch in your bed, swing your arms, roll side to side today? Or perhaps...
  62. Replies
    99
    Views
    1,774

    What type of exercise do you do to build up your...

    What type of exercise do you do to build up your seat muscles?
  63. Replies
    415
    Views
    35,042

    Today I swam 1/2 mile in 25 minutes. That last...

    Today I swam 1/2 mile in 25 minutes. That last minute was unwise. Will be more careful. And forgot to take my asthma rescue inhaler, another mistake, but no consequences. Went to grocery store, baked...
  64. Replies
    99
    Views
    1,774

    Today I swam 1/2 mile in 25 minutes. That last...

    Today I swam 1/2 mile in 25 minutes. That last minute was unwise. Will be more careful. And forgot to take my asthma rescue inhaler, another mistake, but no consequences. Went to grocery store, baked...
  65. Replies
    415
    Views
    35,042

    Today I swam 1/2 mile 24 minutes, went to Quest,...

    Today I swam 1/2 mile 24 minutes, went to Quest, home, and will relax the rest of the day. Finally a day of no appointments other than quest, no shopping for food, no need to cook as it is day two of...
  66. Replies
    192
    Views
    22,283

    Went to quest today and their grab bars are up....

    Went to quest today and their grab bars are up. So glad I called corporate on this.
  67. I have a serious list of meds I take and the side...

    I have a serious list of meds I take and the side effects are potent.

    When I went to Mayo @ a year ago, I saw a pharmacologist. The consult was not able to come up with any med reduction. She...
  68. Replies
    334
    Views
    36,567

    Wow! Let us know when its published if you find...

    Wow! Let us know when its published if you find out :)
  69. Replies
    99
    Views
    1,774

    Today I swam 1/2 mile 24 minutes, went to Quest,...

    Today I swam 1/2 mile 24 minutes, went to Quest, home, and will relax the rest of the day. Finally a day of no appointments other than quest, no shopping for food, no need to cook as it is day two of...
  70. Replies
    314
    Views
    4,864

    View Post

    Nuthatch— TY! That is an amazing article, amazing man, amazing program. I will pass it on to my surfing crew etc.
  71. Replies
    415
    Views
    35,042

    I had a brief spasm at 2 am on the right foot. ...

    I had a brief spasm at 2 am on the right foot.

    Then, at 6 am Today I swam 800 yards in 22 minutes. Then, a doc visit, a grocery visit, and then cook a Thai Curry meal, and get the weeks pills...
  72. Replies
    99
    Views
    1,774

    Today I swam 800 yards in 22 minutes. Then, a doc...

    Today I swam 800 yards in 22 minutes. Then, a doc visit, a grocery visit, and then cook a Thai Curry meal, and get the weeks pills together.

    Bit off a little too much. Tomorrow will be quieter.
    ...
  73. Replies
    10
    Views
    275

    I say, if you wake up, and no one already started...

    I say, if you wake up, and no one already started it, and you want to start it, start it.
  74. Replies
    314
    Views
    4,864

    My MS acquaintance that I met at the beach a few...

    My MS acquaintance that I met at the beach a few years ago, she walks the beach: Its what got her out of her wheelchair. She emailed me she couldnt meet up today becasue she is broke and cannot...
  75. Replies
    415
    Views
    35,042

    I went surfing today! I packed everything up over...

    I went surfing today! I packed everything up over two days, so the morning of, there was little to secure. I took the Ativan at 6:30am since we were arriving at the beach at around 7:40.

    I was...
Results 1 to 75 of 5602
Page 1 of 75 1 2 3 4


BTC Inc's Disclaimer and Privacy Policy

The material on this site is for information & support purposes only, and is not a substitute for medical advice provided by a licensed health care provider. Always consult your doctor before trying anything that you find online.