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  1. Replies
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    Howdy Lor! How could I possibly forget you? ...

    Howdy Lor!

    How could I possibly forget you?

    I don't come here that often myself anymore.

    Dave
  2. If one is considering the monetary issues...

    If one is considering the monetary issues involved with after death expenses, one might want to consider becoming a body donor.

    As a body donor, the entire body goes to a facility -- usually a...
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    In my case, the only trigger that I am aware of...

    In my case, the only trigger that I am aware of is when my immune system kicks in.

    This can be anything from the first indications of a cold (about a day or two before any other symptoms), an...
  4. Thread: Vns #3

    by howdydave
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    The surgery went well and, I'm glad to say, this...

    The surgery went well and, I'm glad to say, this time they used glue rather than biodegradable thread to close the wound.
    When the biodegradable thread starts breaking apart, ends of it stick ya and...
  5. Thread: Vns #3

    by howdydave
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    I got the VNS because it was discovered that I...

    I got the VNS because it was discovered that I have activity and triggers in both temporal lobes when I was a candidate for epilepsy surgery.

    They can't amputate both halves of your brain don'cha...
  6. Thread: Vns #3

    by howdydave
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    For anybody considering having a VNS implant: ...

    For anybody considering having a VNS implant:

    I just got a "Heads Up" from my sister (who is an RN) that Medtronics now has one that allows you to have an MRI with the device inside of you.
    Look...
  7. I got tired of it and I was away for a long time....

    I got tired of it and I was away for a long time.

    (Don't let the number of my posts fool you, my number got reset to zero when they revamped the system.)

    Now I see that there are still people...
  8. Thread: Vns #3

    by howdydave
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    Vns #3

    Just got back from my epileptologists office and they are lining me up for the instillation of my third Vagus Nerve Stimulator.

    It works so well for me that they want to make sure I have a new one...
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    Howdy Whiskey Dune! The support system...

    Howdy Whiskey Dune!

    The support system required by you is not the same as the support system required by your BF.

    For you, other people who have to stand by and watch while a friend or family...
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    Howdy funnylegs! Different people have...

    Howdy funnylegs!

    Different people have different "triggers" that set off their seizures.
    To the best of my knowledge, my epileptic and diabetic incidents have nothing to do with each other.
    ...
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    I take quite a few pills (23 per day) and I take...

    I take quite a few pills (23 per day) and I take meds bid.

    I got a 1 week pill box with 4 containers per day (AM, NOON, PM, BED).

    I count out pills and put two weeks worth of pills in the box....
  12. Just directed a mom here who posted a video of her son having a tonic-clonic

    A woman posted a video on one of the "Ask a Priest" pages on FB and got TONS of sympathy, bad advise, and misinformation.

    I sent her a message directing her here if she would like to talk with...
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    Howdy Whiskey Dune! I don't know about your...

    Howdy Whiskey Dune!

    I don't know about your BF, but actions of others have very little effect on me when I have a CP.
    Seizures are much worse ​to witness than they are to experience.

    When I...
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    Many different sensations are involved with...

    Many different sensations are involved with simple partials.

    It all depend on which location in the brain the seizure activity occurs.
    It may be:
    Deja vu,
    Sounds,
    Smells,
    Tastes within the...
  15. Get tired of talking about epilepsy? Of...

    Get tired of talking about epilepsy?

    Of course!
    Why do you think I have been away for so long?
  16. Howdy Grimalkin! I also had an awakening, but...

    Howdy Grimalkin!

    I also had an awakening, but it was not light.

    Mine was more like being aware of an immense, dark space inside my head
    For me this was not an ongoing, continuous sensation;...
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    Howdy Sandy! At one time I had to make a...

    Howdy Sandy!

    At one time I had to make a decision for myself between safety and quality of life.
    I chose quality of life.

    At uncertain junctures my changes involve staying away from the stove....
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    With the Saints give rest, O Christ, to the soul...

    With the Saints give rest, O Christ, to the soul of Thy servant Phillis, where there is no pain, nor sorrow, nor suffering, but life everlasting.
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    Mine is like jingle's.

    Mine is like jingle's.
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    Howdy Tincatt! Good Luck!

    Howdy Tincatt!

    Good Luck!
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    I also carry 2 pieces of paper with me at all...

    I also carry 2 pieces of paper with me at all times...

    One has a list of all of my medications and quantities (I'm taking 18 different meds) on one side and all of my emergency contacts, doctors...
  22. Howdy Zep! Bus drivers encounter thousands of...

    Howdy Zep!

    Bus drivers encounter thousands of people every day. You can not expect a bus driver to remember what you told him the last time you rode on his bus.

    What got you nearly thrown off...
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    My doc prescribed Lorazapam for status seizures....

    My doc prescribed Lorazapam for status seizures.

    I always carry them around with me, just as a heart patient carries around nitroglycerine.
    Haven't had to use them for 3 or 4 years now... but...
  24. Howdy Zep! You may not want to hear it but......

    Howdy Zep!

    You may not want to hear it but...

    If you are going to use a service dog, you must face the fact that you will need to tell people that you have epilepsy -- especially if you get...
  25. Howdy Rabbit! Long time no see...

    Howdy Rabbit!

    Long time no see...
  26. Howdy FrenchBean! The thing about side effects...

    Howdy FrenchBean!

    The thing about side effects is...

    There are the side effects from Zonegran,
    There are the side effects from Depakine,
    Then there are the side effects of taking them both at...
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    Which drug is it?

    I was looking up information about the question on Depakine.

    I had recollections of it being excreted through the skin and making you stink...

    Turns out it wasn't depakine.
    Which drug am I...
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    Howdy oldhats! Yes it is plausable. It just...

    Howdy oldhats!

    Yes it is plausable.
    It just means that no clinical testing was done with low doses.

    BIG difference between: "no testing has been done" and "it won't work!"
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    Howdy Brainwaves! Welcome back... ...

    Howdy Brainwaves!

    Welcome back...

    Recommendation of medications is fairly pointless.

    Just because something works for one person does not mean that it will work for another person.

    With...
  30. Howdy Sissylou! I second Porkette's...

    Howdy Sissylou!

    I second Porkette's suggestion...
    Talk to your neurologist!
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    They are on my list!

    They are on my list!
  32. Thread: Sleep

    by howdydave
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    Absolutely! I never had much luck controlling...

    Absolutely!

    I never had much luck controlling my seizures.
    Then I was diagnosed with sleep apnea and got treatment for it (a CPAP machine.)

    Seizure control immediately improved once I started...
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    Congratulations! Gaudeamus igitur iuvenes dum...

    Congratulations!

    Gaudeamus igitur iuvenes dum sumus!

    tr.: Let us therefore rejoice while we are young
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    For any who may not have gotten it... "Revenge...

    For any who may not have gotten it...

    "Revenge of the 6th" is a hangover!

    Sometimes it pays to be explicit!
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    If today is: "May the 4th be with you" and...

    If today is: "May the 4th be with you"

    and tomorrow is: "Cinco de Mayo"

    does that make Monday: "Revenge of the 6th?"
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    May the 4th be with you!

    I've been waiting all year to say that! :highly_amused:
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    Howdy jingle! This happened about 10 years...

    Howdy jingle!

    This happened about 10 years ago.
    I still have regular follow-ups.
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    My method is simple brain calisthenics... I...

    My method is simple brain calisthenics...

    I answer questions on Yahoo! Answers.

    I keep myself in shape by regularly answering questions in the Physics, Martial Arts and Religion & Spirituality...
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    Don't automatically assume that problems are due...

    Don't automatically assume that problems are due to medications...

    During an annual checkup I was found to have kidney cancer!
    Luckily it was discovered and dealt with while it was still Stage...
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    Howdy Sue! I had undiagnosed sleep apnea for...

    Howdy Sue!

    I had undiagnosed sleep apnea for decades.
    Then they gave me a CPAP machine...

    It's amazing how the frequency of my seizures decreased once I started getting a full night's sleep!
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    You might want to have a glucose tolerance test....

    You might want to have a glucose tolerance test.

    It sounds suspiciously like low glucose blood levels to me!
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    Howdy Sue! Hmmm... Sounds a bit like modern...

    Howdy Sue!

    Hmmm...

    Sounds a bit like modern day snake oil!

    What do they do when the electrode runs out of it's load of medication?
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    Howdy Pete! I think that your parents and...

    Howdy Pete!

    I think that your parents and neurologist probably gave you sound advice given the stage of acceptance that you were in at that time!

    "This is who I am... deal with it!"
    Is...
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    From what I hear, medical marijuana can be a real...

    From what I hear, medical marijuana can be a real pain in NY State.

    The last I heard, you had to go to a medical facility and consume it on site.
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    Hopes dashed against a stone are a hard thing to...

    Hopes dashed against a stone are a hard thing to deal with...

    Eventually, we must all get up, lick our wounds and continue on in our own way.
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    Howdy Sue! I used to think quite a bit about...

    Howdy Sue!

    I used to think quite a bit about SUDEP (Sudden Unexplained Death in Epilepsy.)
    I stopped worrying about it due to the fact that everybody dies.

    The issue isn't how you die, but how...
  47. Thread: Keppra doses

    by howdydave
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    I take 2500 mg of generic Keppra (Levetiracetam)...

    I take 2500 mg of generic Keppra (Levetiracetam) per day.

    Levetiracetam, Oxcarbazepine, a Vagus Nerve Stimulator and a CPAP machine have done wonders for me!
  48. Generics have been working quite well for me,...

    Generics have been working quite well for me, especially Levetiracetam.
  49. Thread: My Obedience

    by howdydave
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    Annie I've got a big (700+ pp) book that you...

    Annie

    I've got a big (700+ pp) book that you might be interested in:

    For Hearing People Only
    Answers to some of the most commonly asked questions about the Deaf Community, its culture and the...
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    I'm taking my application down to NTID (National...

    I'm taking my application down to NTID (National Technical Institute for the Deaf) today.
    If accepted, I will start in September.

    In the meantime, I will be taking ASL 1 as a refresher course at...
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    Howdy David! My condolances on the loss of...

    Howdy David!

    My condolances on the loss of your father.
    I lost my father this year too.
  52. Thread: My Obedience

    by howdydave
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    Howdy Annie! Very much so. Not only that......

    Howdy Annie!

    Very much so.

    Not only that...
    Specific signs for specific concepts must come out of the deaf community itself rather than having the hearing community impose signs on the deaf.
    ...
  53. Thread: My Obedience

    by howdydave
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    4,077

    Just got back from the monastery (I went there...

    Just got back from the monastery (I went there for Christmas) and arrived home about an hour before the snow (8" in a day.)

    My instructions are now explicit: Become an ASL Interpreter while I am...
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    It's the old story... If at first you don't...

    It's the old story...

    If at first you don't succeed,
    Try playing second base!

    (For those not in North America -- that's a reference to baseball.)
  55. Thread: My Obedience

    by howdydave
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    4,077

    I've been networking for the last week or so... ...

    I've been networking for the last week or so...

    Establishing contacts on Long Island, Washington DC, Texas, California and Colorado who are currently using ASL in their churches...

    I'm trying...
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    Howdy Aurora! Reading your post just now a...

    Howdy Aurora!

    Reading your post just now a great truth just dawned on me...

    This "other people are worse off than I am" offers no solice.

    When we do this we are just turning our self pity...
  57. Ohhh... That's where "satman" comes from! I...

    Ohhh...

    That's where "satman" comes from!

    I always wondered.
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    May her memory be eternal!

    May her memory be eternal!
  59. Thread: My Obedience

    by howdydave
    Replies
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    4,077

    If anybody else is ever interested in learning...

    If anybody else is ever interested in learning ASL, I found a great site:

    Signing Savvy
    http://www.signingsavvy.com/
  60. Thread: My Obedience

    by howdydave
    Replies
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    4,077

    My Obedience

    Howdy!

    As most have probably figured out by now, I'm a monastic wanna' be...

    I went to the monastery (St. Tikhon's of Zardonsk, just NE of Scranton PA) for Thanksgiving.
    Just before I left, my...
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    Mission Impossible?

    Howdy!

    It's been a while so I thought that I would give you an update on my status...

    As you may or may not know, I am a monastic aspirant (an Eastern Orthodox Monastery in Pennsylvania.)

    I...
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    Howdy Jeff! The best place to have a seizure...

    Howdy Jeff!

    The best place to have a seizure is in front of your doctor!

    I just got back from having a Cardioversion this morning.

    I had atrial fibrolation (maybe due to the vagus nerve...
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    I'm back... 'Course... I was out of town (at a...

    I'm back...

    'Course... I was out of town (at a monastery) where access to the Internet was nearly impossible, so any withdrawal symptoms I might have felt were self-inflicted.
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    Howdy Jeff! Glad to see you back! Hang in...

    Howdy Jeff!

    Glad to see you back!

    Hang in there and take care of yourself.
    You are in my prayers.

    I'll put you on the prayer list when I go to the monastery on Tuesday.
  65. Replies
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    Sounds like a simple partial seizure to me... ...

    Sounds like a simple partial seizure to me...

    Just because a person has seizures does not automatically mean that the person has epilepsy!
    If the seizures can not be attributed to anything else,...
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    Howdy! The generic for Trileptal seems to work...

    Howdy!

    The generic for Trileptal seems to work for me!
  67. Replies
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    Howdy Jeff! That "howdy" was more than just my...

    Howdy Jeff!

    That "howdy" was more than just my standard opening!
    Don't say good bye!

    If you don't feel like posting for a while... fine!

    But don't sever all ties!!!

    Hang in there!
  68. Point taken... This is an issue that needs to...

    Point taken...

    This is an issue that needs to be brought to the surface more often!
  69. Sounds like "over the rainbow" reporting... ...

    Sounds like "over the rainbow" reporting...

    The same sort of things were said about the VNS when it first came out.

    It sounds as if this report is directed toward people with generalized...
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    Poll: I almost always go directly to my own special...

    I almost always go directly to my own special interest forum.

    Every once in a while I will take a look to see if there are any new forums that address general issues (such as cooking.)
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    You are in my prayers.

    You are in my prayers.
  72. Oh well... Your Mountain Dew (however many...

    Oh well...
    Your Mountain Dew (however many bottles it is) probably can't hold a candle to my gallon or so of iced coffee and iced tea that I drink every day.
  73. To answer your original question.... Does it...

    To answer your original question....

    Does it give you seizures?
    It might, then again, it might not.

    To the best of my knowledge, there is no such thing as a universal trigger for everybody.
    ...
  74. Personally, I like Diet Dr. Pepper when I drink...

    Personally, I like Diet Dr. Pepper when I drink carbonated beverages...

    I always liked Dr. Pepper and the diet version tastes exactly the same as the original.
    In every other brand of pop, the...
  75. Thread: Howdy Dave

    by howdydave
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    My sister had just gotten my father into the...

    My sister had just gotten my father into the Hospice program before she went home yesterday.
    (She had been a Hospice nurse for a year.)

    With Hospice he got all the medication that he needed to...
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