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  1. Replies
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    I'm slowly finding out what I can eat and it is...

    I'm slowly finding out what I can eat and it is not much as I can't hold much. Only certain foods as some make me nauseous especially sugar and fat such as cookies which are my favorite things. I...
  2. Replies
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    Sorry I have not been on the board since my...

    Sorry I have not been on the board since my surgery but it was not possible. I have been recovering at my oldest son's home in Columbia, S. C. and have not been up to doing anything but just what...
  3. Replies
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    Update

    I have made one trip to M.D. Anderson Cancer Center and had additional tests as well as meeting with all the doctors. My surgery is scheduled for the 1st of October and I will meet with the surgeon...
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    How about....You must be better.....you sound so...

    How about....You must be better.....you sound so good!

    Gabriella
  5. Replies
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    Update

    Hi fellow BrainTalkers, I thought I should let you all know what is happening. I've had 4 Friday afternoon appointments with the surgeon and one with the oncologist. They forwarded all my test...
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    The biopsy has confirmed a rare type of...

    The biopsy has confirmed a rare type of esophageal cancer. So the battle has begun. I have an appointment on Friday with the Thoraic Surgeon again as well as a pending appointment with an...
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    I would suggest you also tell your PCP about this...

    I would suggest you also tell your PCP about this as everything is not MS. My husband had similar attacks and he was having TIA's which are small strokes. Please be an advocate for yourself and...
  8. Replies
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    Survived the procedure

    Well it was a fast turn around as my procedure was today. They called yesterday to tell me I was scheduled for the endoscopy, biopsy, and ultrasound this morning at 8:00. My middle son who lives...
  9. Replies
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    My oldest son and his wife drove over to go with...

    My oldest son and his wife drove over to go with me to the surgeon yesterday. He was very very thorough in explaining all the possibilities which will come when a diagnosis is made. I will be going...
  10. Replies
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    Call Back

    At least the surgeon's staff was prompt in calling early this morning to schedule my appointment with him. It is this Friday afternoon at 4pm. I will know more about what he plans to do after I see...
  11. Replies
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    Update

    I was able to get an immediate appointment when I called in to tell the scheduler "I have an emergency situation as I am not able to swallow anything other than liquids." I had the C-scan last...
  12. Replies
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    Advocate

    Thanks to Cherie, Agate, Jeanne, and Linda for your replys. The c-scan is scheduled for July 30th unless they have a cancellation before. I am calling 3 times a day to see if someone has cancelled...
  13. Replies
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    Update

    I'm happy I had a week in the mountains to de-stress before returning to the problems which have been presented to me. The barium swallow test showed a mass located at the end of my esophagus and...
  14. Replies
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    I just got back home from the mountains of...

    I just got back home from the mountains of Butler, Tennessee where my youngest son has built a beautiful home on Lake Watauga. He has been telling me that the humidity is so low that I would be...
  15. Replies
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    Another Test

    I saw the gastrologist today and now have a full barium swallow test scheduled for the 9th of July the day before the bladder cystoscope and renal ultrasound of my kidneys. He does not want to do...
  16. Replies
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    Update

    I have stopped having the night sweats/chills since starting the Macrobid. So now I am just having the swallowing problem and I will be seeing a gastroenterologist this afternoon. My PCP just...
  17. Replies
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    Agate

    Hi, I just called the urologist office and spoke with his nurse. He is out of the office for the next two weeks but she said to take the Macrobid that the ER had called in. You would not believe...
  18. Replies
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    Answer

    The cardiologist in the ER called today to tell me that I still have the UTI infection and the antibiotic I was still taking is not working so he is changing it to another. I should call my...
  19. Replies
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    Gratitude

    I feel so fortunate to have a forum to come to and share the good and the bad that goes along with life. On Monday, as I was still having pain in my chest as well as additional symptoms of night...
  20. Replies
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    I finally got an answer from the nurse yesterday....

    I finally got an answer from the nurse yesterday. My neurologist does not want me to go to a gastroenterologist. Why? I don't know. The baclofen has not helped me yet and I am getting less and...
  21. Support Needed!

    Get in touch with your senator and ask they support this bill. You can e-mail or call their number to ask for support for the bill. It still has to pass the Senate.

    Blessings,
    Gabriella
  22. Thread: Protandim ?

    by Gabriella7
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    I took all the Protandim and did not reorder...

    I took all the Protandim and did not reorder simply because my husband became ill about that time and my whole focus for the next year was on trying to take care of his needs. I'm sure I did not take...
  23. Replies
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    I still have to followup with a...

    I still have to followup with a gastroenterologist since the other test just went down as far as the collarbone and the pain is lower down. I don't think worry is on their radar nor concern about...
  24. Replies
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    After 3 days of calling my neurologist office I...

    After 3 days of calling my neurologist office I finally got an answer this morning about the testing. I do have changes in my throat caused by the swallowing problem and they have called in...
  25. I understand the concept of trying to prove that...

    I understand the concept of trying to prove that one can still do certain activities or live out dreams while still in the early stages of MS. I have been dealing with the concept of reinventing...
  26. Whatever floats your boat as they say. It is...

    Whatever floats your boat as they say. It is fine if PWMS want to learn to sail, parasail, snowski, or whatever on their own time but this "Sclerosis Sailing" just doesn't prove anything. A...
  27. This is just a hoax paid for by Biogen and other...

    This is just a hoax paid for by Biogen and other sponsors who have donated money. Every time I go into the MS Center the Biogen representative is there talking with one of the neurologists. The...
  28. The stamp is appropriate and shows a man who is...

    The stamp is appropriate and shows a man who is in a wheelchair and can still function at his work. But......can you imagine the crew with MS using assistive devices such as canes, wheelchairs,...
  29. Unbelievable!

    I'm glad my reaction was shared by others here! Since I've been in a dark place lately.....my first thought was very cynical as I didn't see even a cane amongst the crew members. (Looked again and...
  30. Replies
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    Well, I passed the swallowing test today. The...

    Well, I passed the swallowing test today. The radiologist was just looking at the swallowing part of the throat above the collar bone. The pain is more in the rest of the esophagus which will need...
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    Swallowing Test Tomorrow

    I've had increasing difficulty with swallowing. My neuro ordered a "modified barium swallowing test" and I will be having it done tomorrow. This has been coming and going for years but in the past...
  32. Thanks Ann for the information about the...

    Thanks Ann for the information about the foundation the McCourt family has established to raise money for research. It appears all these neurological diseases have a familial or environmental link...
  33. Cherie, I am also glad to hear the "benign"...

    Cherie, I am also glad to hear the "benign" category of MS has been eliminated. I heard that from the neuro who just a few months after telling me my MRI showed multiple lesions in the...
  34. It takes so many years to finish all the clinical...

    It takes so many years to finish all the clinical trials that are ongoing now that we probably will not be around for the results. I saw the two studies mentioned.... one of which was the SYNERGY...
  35. Hopefully, these research efforts will be of...

    Hopefully, these research efforts will be of benefit to patients who are fortunate enough to be diagnosed early in the disease process. The only research which might benefit any of us who have...
  36. It does broaden the playing field of volunteers...

    It does broaden the playing field of volunteers (guinea pigs) if one of the classifications is eliminated so that more patients qualify for clinical trials. After over 25 years of trials and errors...
  37. I'm well aware that it takes a long time to even...

    I'm well aware that it takes a long time to even get a diagnosis. It took 25 years from my first symptom and a lot of wrong guesses before I was given a MRI and diagnosed as "definite MS" by a MS...
  38. The outcome is always the same in as much...

    The outcome is always the same in as much as......they don't know the cause of MS......hence they don't have a cure.....and all the talk about different types of MS is just that.....TALK!
    ...
  39. Yes, I totally agree about the fact that after...

    Yes, I totally agree about the fact that after all is said and done "more has been said than done". These big pharma researchers have come up with a multitude of pharmaceuticals to treat each...
  40. It seems to me that time would be better spent in...

    It seems to me that time would be better spent in other research into cause/treatments rather than the definitions of types of MS. Changing the name from Progressive/Relapsing (which is the type I...
  41. Replies
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    Why would I want to take something that is not...

    Why would I want to take something that is not going to help me feel better, only going to give me the same symptoms I already have, as well as risk getting a virus which could be fatal, is not a...
  42. Replies
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    Just a quick hello...I'm still so busy with...

    Just a quick hello...I'm still so busy with trying to "get my house in order", going to doctors, working on administration of Joe's estate, etc. I have to meet with an attorney tomorrow to draw up...
  43. Thanks

    Thanks Linda for the link up to Richard Cohen's blog. I didn't even know he had started a blog. I read both of his books and just finished "Strong at the Broken Places". I will certainly enjoy...
  44. Replies
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    I don't really care. I'm just thankful my...

    I don't really care. I'm just thankful my doctors still accept the medicare reimbursement and my secondary insurance picks up the rest. We all know because of the lack of reimbursement needed for...
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    Just checking in

    There is a "bug" making the rounds here. My son David brought it to me last week. He was over to replace the lights in my laundry room and was sneezing but, since I have not had a cold in years and...
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    I watched the last 45 minutes of the SCI report....

    I watched the last 45 minutes of the SCI report. The doctor who diagnosed Joe with ALS is already injecting some ALS patient's spinal column with stem cells. Joe was too advanced to even qualify...
  47. Replies
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    We have made the national news with the weather...

    We have made the national news with the weather here in Atlanta. It started snowing yesterday at 1:00 and everybody left work and school to go home at the same time. The interstate was a parking...
  48. Replies
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    The weather is nice and sunny today and the temps...

    The weather is nice and sunny today and the temps are warming up into the 40's for a nice change. In cleaning out I came across a very informative booklet on cognitive problems in MS. I think it...
  49. Replies
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    My oldest son did get in on Saturday from S....

    My oldest son did get in on Saturday from S. Carolina. He worked on cleaning up the junk on the computer that slips in while one is not looking. Saturday night my middle son David, Joe, Jr. and...
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    Ketchup

    Sorry I have been off the computer since it slowed down to a crawl. My oldest son, Joe, Jr. is coming this weekend and he will clean up the mess that is slowing it down. I'm still treating my back...
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    Well I got a late afternoon call from the...

    Well I got a late afternoon call from the urologist nurse to tell me the urine culture came back positive. I went out and picked up a 7 day supply of Macrobid and she canceled the appointment for...
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    Here in the deep south we are in a deep freeze...

    Here in the deep south we are in a deep freeze with snow flurries falling. I have an appointment tomorrow with the urologist to see if the UTI has cleared after 10 days of antibiotics. He has more...
  53. Replies
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    The doctors are trying to get a certain numbers...

    The doctors are trying to get a certain numbers of patients in and out in 15 minutes each. They don't take the time needed to read the patients history or medical chart. If there is anything that...
  54. Replies
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    Hi everybody, Well, just a quick update. I went...

    Hi everybody, Well, just a quick update. I went in on Friday to get the results of the MRI from the non-surgical orthopedic doc. It is not good. I have known for years that I have 4 degenerating...
  55. Replies
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    Hi Virginia and everyone, A quick update on the...

    Hi Virginia and everyone, A quick update on the continuing saga. Today I spent a hour in the open MRI machine getting a lumbar MRI as my back is a total disaster. The ortho said the pain...
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    Thanks Jeanne for your prayers. I really believe...

    Thanks Jeanne for your prayers. I really believe if I went to my neurologist....he would say the pain is caused by the MS. I just want to find the cause and hopefully find the right treatment so it...
  57. Replies
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    Hi Everyone, Yes Jeanie, you can send some...

    Hi Everyone, Yes Jeanie, you can send some sunshine my way. On top of this being the season of good cheer and merry making, it is a very lonely season for all of us who have lost loved ones this...
  58. Replies
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    Epidemics

    Here is more information on the outbreaks of MS in the Shetland-Orkney and Faroe Islands in 1940-1945. It manifested there as a newly introduced cause of acute infectious gastroenteritis and...
  59. Replies
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    I also have "cold sweats" and chronic UTI's. For...

    I also have "cold sweats" and chronic UTI's. For the past year, I have been on one antibiotic after another and when I go back a week after finishing the lastest the doc does a culture and...
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    Cynic

    Now I'm going to be cynical....Since we already have a lot of antibiotics and the docs at Vanderbilt are using 3 of the old ones in their research...BigPharma really doesn't stand to make billions on...
  61. Replies
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    Thank you for posting the article....I am always...

    Thank you for posting the article....I am always on the outlook for any research information. It is something I can take to the doctor and ask him "what do you think about this". There are some...
  62. Thread: a question

    by Gabriella7
    Replies
    10
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    2,851

    Herpes Virus?

    I think you're right Sally as I was looking thru some of my old medical tests, yesterday and way back in 2002 I had some tests which came back very high for cytomegalovirus. On the scale of positive...
  63. Be Blessed

    I am thankful to have the social security income on which to base a COLA increase even if it is just enough for a cola. We can thank FDR for that one.

    Blessings,
    Gabriella
  64. Replies
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    Explanation/Lyme

    Joan, so sorry for the loss of your father. We are never ready to let our loved ones go.

    Ann, the MG has gone into remission after I had IVIG infusions over the past 3 years. The last...
  65. Replies
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    I'm still here mostly reading posts and not...

    I'm still here mostly reading posts and not feeling up to posting anything. Sleeping a lot of the day but not sleeping at night. I do go out of the house every day to get breakfast and do some...
  66. Replies
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    11,517

    The ACA is not affecting the insurance we already...

    The ACA is not affecting the insurance we already have and will not effect our Medicare coverage. It's the people who are not doing their job. A friend of mine is having the same problem. I went...
  67. Replies
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    2,988

    It could be the MS "hug" or it could be heart...

    It could be the MS "hug" or it could be heart related.....To be certain a talk with your doc as others have said would maybe answer the question for you. I have the hug on a regular basis and for me...
  68. Replies
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    9,217

    Empathy

    Jeanne, I can relate to everything you have said...even to the back yard burial...as Joe had said he didn't care if I just buried him in the back yard. He didn't plan on dying....period. It was...
  69. Replies
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    Daily Life

    I'm pushing myself these days just to get out of bed and attend to the details of life. I decided I need to get new doctors before the old ones kick the bucket. It has been 2 1/2 years since my...
  70. Replies
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    11,134

    My thoughts are with everybody trying the new...

    My thoughts are with everybody trying the new medications and experiencing all the side effects. Sorry about your fall, Renee. I have a close friend with MS who has started falling more frequently....
  71. Replies
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    11,134

    I'm having a difficult time adjusting to life...

    I'm having a difficult time adjusting to life without my soulmate of 55 years. I've spent a lot of time in bed trying to regain strength and not take the pain medications (hydrocodone) that I've...
  72. Replies
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    I thought he was going to be my MG doc as his...

    I thought he was going to be my MG doc as his profile info on the office website indicated he is interested in MG and he is local. Another thing he said which I found to be unusual is that most of...
  73. Replies
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    18,616

    New Neuro's Explanation

    Here is what the new neuro said about age and MS. After one gets older MS tends to get less aggressive because our immune systems slow down and are not on overdrive. He was only interested in...
  74. Replies
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    Details

    Just a quick update as I am so busy getting all the last minute things done for Joe's memorial service which will be on Sunday July 14th. My middle son is coming over tomorrow to help me get the...
  75. Thread: Health Care

    by Gabriella7
    Replies
    39
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    8,877

    John Aman (Author)

    Oh yes, the author is John Aman and the cost is $1.50 which is $1.50 more than the information is worth! You can also buy it online for 1 cent. He has written numerous booklets that are negative...
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