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    Every day over 1000 steps, Agate, and one 1700...

    Every day over 1000 steps, Agate, and one 1700 step!
    Congratulations.

    ANN
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    Good work, Jeanie. Sometimes you have to be the...

    Good work, Jeanie. Sometimes you have to be the squeaky wheel.

    ANN
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    We did go to a big grocery for Mom today,...

    We did go to a big grocery for Mom today, Virginia. Also the bank. And Thursday afternoon, we’ll go to get our hair done via her Uber and she can use it to get us home again.

    You all did well...
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    Sam, don’t forget to give Virginia credit too. ...

    Sam, don’t forget to give Virginia credit too.

    ANN
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    So sorry you are having problems with PT, Jeanie....

    So sorry you are having problems with PT, Jeanie. You need a Case Manager or someone like Cherie.

    ANN
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    Linda, that is so true! ANN

    Linda, that is so true!
    ANN
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    I want credit for double airport walking and...

    I want credit for double airport walking and finishing packing in the heat.

    Back wants to be flat.
    ANN
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    We arrived safely at Mom’s after an unexplained...

    We arrived safely at Mom’s after an unexplained flight delay. It’s was just as hot here in Western PA as at home but weather just broke w a thunderstorm. :-). Tomorrow will be in the mid 70’s. Ahhhh....
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    Hot, hot, hot! And muggy. Just dreadful. 98 and...

    Hot, hot, hot! And muggy. Just dreadful. 98 and humid. This is the second of three days. New Englanders are not used to this. I’ll take a snow storm any day (tomorrow, please).

    Peter and I got...
  10. I was thinking of you, Linda, wondering if the...

    I was thinking of you, Linda, wondering if the day would end with a bucket of water over your head.

    ANN
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    What good providers, Cherie. I hope you all come...

    What good providers, Cherie. I hope you all come up with a plan that gets you better.

    ANN
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    Glad this day has come, for Sunshine. Jeanie,...

    Glad this day has come, for Sunshine.

    Jeanie, slow and steady!

    Virginia, I am eating some bread now. The issue was that it was taking up to much space. That’s resolved a lot.

    My Tumbling...
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    I used to have those kinds of rides and days,...

    I used to have those kinds of rides and days, Agate. It’s very hard todo them on top of heat and MS. I use different transportation now but I do remember those long trips.

    ANN
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    Good work everyone! Jeanie. I am sorry you are...

    Good work everyone!

    Jeanie. I am sorry you are having a bad day and for the insurance problems. I think you have accomplished so much. I hope tomorrow is better.

    Virginia, great work! I’m glad...
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    I am not a farmer but enjoy my garden so very...

    I am not a farmer but enjoy my garden so very much. Last night half our plate was from the garden (salad). I just got seeds in the mail today including, “Wrinkled Crinkled Crumpled Cress.” Peter...
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    That’s a good day of work, Howie. Are you ready...

    That’s a good day of work, Howie. Are you ready for the baskets of kittens? See Virgina’s Birthday thread. >^..^<

    ANN
  17. Glad John is coming home. ANN

    Glad John is coming home.

    ANN
  18. Wishing you and John the best, Linda. Holding...

    Wishing you and John the best, Linda. Holding your hand.

    ANN
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    Happy, happy birthday, Virginia. I hope it is a...

    Happy, happy birthday, Virginia. I hope it is a good day with something tasty and maybe chocolate and flowers!

    ANN
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    Thank you, Linda. ANN

    Thank you, Linda.

    ANN
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    Great news, Sunshine. Happy you are getting IVIG...

    Great news, Sunshine. Happy you are getting IVIG this week.

    My first crop of spinach bolted (flowered). Not good. We were just starting to pick baby spinach then two days above 90 and it bolted...
  22. Sorry for both of you, Linda. Hoping for the best...

    Sorry for both of you, Linda. Hoping for the best outcome.

    ANN
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    She posted on the 10th in the Keep on Moving...

    She posted on the 10th in the Keep on Moving thread but still very worrisome. There was a time when we all made sure someone else here had our contact info, I think. Does someone have Virginia’s?
    ...
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    Cherie, would a glycerin suppository help get you...

    Cherie, would a glycerin suppository help get you going? My second choice would be Miralax.

    ANN
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    That’s not right that you have to pay so much for the IVIG infusion, Sunshine. I hope this gets resolved after just this one. Is it scheduled?

    I went to the Farmers’ Market today. We have them...
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    Peter took lessons in tai chi for years in...

    Peter took lessons in tai chi for years in Chinatown. One year the teacher asked for his help. They needed guys to be the dragon for the dragon dance and parade for the Chinese New Year. So that...
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    Virginia, I’ m glad you’re going out to eat so...

    Virginia, I’ m glad you’re going out to eat so you can report back.

    Linda, it was a really bad MS weather day. So hot and humid. Our car said 101 when we left trader Joe’s Just after 3 yesterday....
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    Glad Nuthatch, Rose and your daughter are OK,...

    Glad Nuthatch, Rose and your daughter are OK, Sunshine.

    It’s hot and humid here with full sun. Thinking about Linda at a Farmer’s Market all day. I,be got MIL’s grocery shopping and lunch today....
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    Virginia, thanks for reminding me of poached...

    Virginia, thanks for reminding me of poached pears. I had one in Chicago once, I think it was Pear Helene, poached pear w cake inside and chocolate drizzled over it. That was at the Bakery...
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    Sunshine, what your doc says is true and what you...

    Sunshine, what your doc says is true and what you said about your husband, too. I’m glad you have them both.

    We went to Legal Seafoods today and had roasted cod, potatoes and cauliflower. Very...
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    So happy that you are going out for fun, Jeanie!...

    So happy that you are going out for fun, Jeanie! Enjoy.

    Cherie, I’m glad you saw someone you liked and are on treatment.

    We are going out for salmon and a Bass Ale for the Fourth.
    ANN
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    Virginia, my nickname for Peter is Bunny. When I...

    Virginia, my nickname for Peter is Bunny. When I met him long ago, he ate so many carrots that his palms and soles turned orange. He still loves carrot juice.

    It was hot here today. Over 90!
    ...
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    Nuthatch, Happy Anniversary! Cherie, I’m...

    Nuthatch, Happy Anniversary!

    Cherie, I’m sending blessings your way.

    Sunshine, so sorry you are late getting the IVIG.

    All’s well here. Garden is full and we are eating baby greens and...
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    Howie, tomorrow is the Fourth of July. I don’t...

    Howie, tomorrow is the Fourth of July. I don’t think the utility office will be open.

    ANN
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    That is a lot of work and exercise, Virginia!...

    That is a lot of work and exercise, Virginia! Bravo!

    ANN
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    Svengoolie is a show on MeTV on Saturday nights. ...

    Svengoolie is a show on MeTV on Saturday nights.

    ANN
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    Nuthatch, I’m sorry that your brother is having worrisome vision problems.

    When I had Optic Neuritis, I had pain with any movement in that eye. Severe pain. That was the predominant symptom. I...
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    Peter and I say, “Rabbit, Rabbit” on the first of...

    Peter and I say, “Rabbit, Rabbit” on the first of each month. Who ever says it first gets the good luck. Early this morning Peter said it first though it’s usually me. We share the good luck.

    ANN
  39. So glad you wern’t hurt, Virginia. Bad, bad...

    So glad you wern’t hurt, Virginia.

    Bad, bad stool!

    ANN
  40. OK, thank you Mod # 7 and Agate. Maybe the woman...

    OK, thank you Mod # 7 and Agate. Maybe the woman I follow (YouTube) is on IG subcutaneous.

    Also, I would think that it would be cheaper to treat a room full of patients that go to one site than...
  41. Link does not work for me. Sunshine, I’ve...

    Link does not work for me.

    Sunshine, I’ve just started watching a woman w CF who does IVIG at home and gets it delivered to her house like we get ABC-R.

    ANN
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    Great to hear from you, Cat. ANN

    Great to hear from you, Cat.

    ANN
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    You are consistent. ANN

    You are consistent.

    ANN
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    Virginia, I am sorry your former husband is so...

    Virginia, I am sorry your former husband is so ill. Peter and I are thinking of you.

    Jeanie, bravo! You are doing well and I know it’s hard work. Bless you!

    ANN
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    “Slugs are plug-ugly.” Love it, Agate! ANN

    “Slugs are plug-ugly.”

    Love it, Agate!
    ANN
  46. Good news, Sunshine. Thanks for the ginger...

    Good news, Sunshine.

    Thanks for the ginger tip, Linda!
    ANN
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    Hi Jeanie! Hi Howie, I think you need a kitten...

    Hi Jeanie!

    Hi Howie, I think you need a kitten or a parrot or an emu.

    ANN
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    Hi Virginia. The City of Boston is divided into...

    Hi Virginia. The City of Boston is divided into neighborhoods. I went to what we call the “center of town” because it’s a business area on Centre Street. It is not the downtown business area.

    ANN
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    I walked to the corner and took the bus up to the...

    I walked to the corner and took the bus up to the center of town. I went to two shops and the hardware and drug store. Then I walked home.

    ANN
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    Great news, Jeanie. So happy you are home. ...

    Great news, Jeanie. So happy you are home.

    Sunshine, that is puzzling isn’t it? I do want you to get the IVIG but am a little worried about reactions. I’d feel better if you were at the infusion...
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    Neupogen. This is interesting. I don’t know why this would work unless your white cells were depressed?

    ANN
  52. Sunshine, sorry to hear about this. Since you...

    Sunshine, sorry to hear about this. Since you take IVIG for three conditions, I hope you will make tha amount of noise that you urged Jeanie to make. Still, if they don’t have it, they don’t have it....
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    Ohh, Virginia, I want you to go to lots of...

    Ohh, Virginia, I want you to go to lots of dinners, have fun and come home and tell us what you ate.

    ANN
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    Good luck with the IVIG, Sunshine. ANN

    Good luck with the IVIG, Sunshine.

    ANN
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    Howie, maybe that’s what caused MS! ANN

    Howie, maybe that’s what caused MS!

    ANN
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    Sorry you are hurt, petpuppy. We have...

    Sorry you are hurt, petpuppy.

    We have recently talked about plans to prevent falls and how to get up if we fall. Also, how to summon help and whether it’s time for a Lifeline -like device.
    ...
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    Virginia, Peter does like museums and libraries...

    Virginia, Peter does like museums and libraries and concerts.

    Because I am feeling improved, I can do more. I watched YouTubes on cooking and farming and gardening all winter when I was sick. It...
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    I have improved the flavor of store-bought...

    I have improved the flavor of store-bought tomatoes by cutting them in half and broiling them.

    I made a raised bed garden and am doing a version of Square Foot Gardening. I have 24 sq feet. I...
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    Wow! Sixty-two extra yards today! Great! I...

    Wow! Sixty-two extra yards today! Great!

    I am glad you have the Ativan as such a useful tool.

    ANN
  60. Hi dagaz (Connie?)! Happy to see you again....

    Hi dagaz (Connie?)!

    Happy to see you again. Glad MS is stable for you. Thanks for the information.

    ANN
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    Hallelujah! ANN

    Hallelujah!

    ANN
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    You added seven yards to your swim. Well done! ...

    You added seven yards to your swim. Well done! Also, you seem to be pacing yourself well.

    Good work, 99!

    ANN
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    So happy you have Lacy home and you’re graduating...

    So happy you have Lacy home and you’re graduating to three hours less help a day.

    ANN
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    So sorry to hear that your friend is dead,...

    So sorry to hear that your friend is dead, Virginia. And sorry that you missed that call.

    FYI, Mark has just posted in this thread:
    ...
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    I’m glad you are able to swim through those symptoms, Sunshine.

    ANN
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    How wonderful to hear from you, Mark. Glad to...

    How wonderful to hear from you, Mark. Glad to have the scientific papers and some details of your travel.

    My question is why do so many of us have low Vitamin D?

    ANN
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    Good Wednesday, everyone. Where are the East...

    Good Wednesday, everyone. Where are the East Coast early birds? Sunshine, Howie?

    It’s a beautiful day in Boston. A little warm, supposed to go to 81, but it’s time for that.

    I hope you day is...
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    So great that Michael and Jon revealed...

    So great that Michael and Jon revealed themselves.

    Lovely.

    ANN
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    Lily started sleeping on my head after her...

    Lily started sleeping on my head after her partner, Kofi, died. She had to be touching my face. Now she will settle for my hair. We got the younger cats because we thought she needed cat contact but...
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    Congratulations on the progress, Jeanie. ANN

    Congratulations on the progress, Jeanie.

    ANN
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    Virginia, I use my phone to read and post here at...

    Virginia, I use my phone to read and post here at BT.

    Sorry you still have the dizzy spells. Did you ever look into the inner ear thing with an ENT?

    Sunshine, that is da** long. Too long.
    ...
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    You are a trooper, Sunshine. Friday I walked...

    You are a trooper, Sunshine.

    Friday I walked 6 blocks in all to hair appointment and back and did laundry which required many trips on stairs.

    Saturday we went to MIL’s and took her to CVS, a...
  73. Happy Anniversary to the three couples! ANN

    Happy Anniversary to the three couples!

    ANN
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    Yes to Peg’s Chit Chat. ANN

    Yes to Peg’s Chit Chat.

    ANN
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    Hi Parsi, good to hear from you! ANN

    Hi Parsi, good to hear from you!

    ANN
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