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  1. Replies
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    Couldn't agree more about getting rid of...

    Couldn't agree more about getting rid of Sessions.

    The milligrams per dose varies depending on severity of specific spasm, pain at the time also if I am trying to get control or maintain once it...
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    I did not have any issues that I related to SPS...

    I did not have any issues that I related to SPS until the end of 2016 also. Prior I just chocked up the reflux, and spasms as a side effects of all the he meds I was on. When I started having the...
  3. Any suggestions for handling dental appointments with SPS

    My Spapsms from my SPS are having a secondary consequence on my teeth. For years I have worn a soft mouth guard at night religiously, but as my SPS progresses it has caused my teeth to crack and...
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    Good suggestion on the Velcro. Truly feel...

    Good suggestion on the Velcro.

    Truly feel bombarded now a days. I carry foam ear plugs with me to help tone down the noise. I refuse to give up everything. Hibernating which is what feels...
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    You are doing a great job.

    You are doing a great job.
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    Just finished my infusion and had to back off the...

    Just finished my infusion and had to back off the rate to 50, had horrible chills, shivering, leading to spasms but things have settled down. Rough day! Hoping it continues to help. This cold front...
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    I live part time in a state that allows it so I...

    I live part time in a state that allows it so I have also experienced great results with certain strains. It helps many of my issues. Some day they will approve it in my home state and I will be able...
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    This is all what I heard, not direct experience....

    This is all what I heard, not direct experience. My PCP has treated three, but my neither of my neuros have ever treated it.
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    Hi Rose, My name is Martha! Thanks for the...

    Hi Rose,
    My name is Martha!

    Thanks for the warm welcome. I am still stumbling around but feel very welcome. I have been impressed by all the info Sunshine has put up.

    I will let you know how...
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    I would also be interested in any tips funnylegs.

    I would also be interested in any tips funnylegs.
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    Just wildlife like deer, foxes, ring tails,...

    Just wildlife like deer, foxes, ring tails, turkeys, bobcats. I was in a wheelchair the first half of last year so I totally get the leg pain. That is why it is way more challenging for me and going...
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    People in support groups I belong to have nothing...

    People in support groups I belong to have nothing but positive things to say about the doctor who is part of it. His name is Dr Newsome and he supposedly is one of the top in the country. He treats...
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    I am on 20G starting at 25 and advancing to 75...

    I am on 20G starting at 25 and advancing to 75 every 30 min, max 75. Takes about 4 hrs. I take it every other week also. I am going to talk to my dr about increasing it to 30G when I see her in A few...
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    I don't know how you do the neoprene although I...

    I don't know how you do the neoprene although I totally understand the need for it. I just don't know how you do it without triggering a spasm. I barely get some of my socks off without having one. ...
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    I understand the shivering, since the spasms over...

    I understand the shivering, since the spasms over int myper trunk and neck shivering is almost a guarantee. I was getting cold when they do my IVIG treatments and would start shivering. I ow keep two...
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    Earth Mother 2Angels it is funny you say you have...

    Earth Mother 2Angels it is funny you say you have the two Qigong videos and have not watched them. I also have them am not quite as bad. I have watched them and they definitely did seem like they...
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    Funnylegs where do you get the phosphatidylserine...

    Funnylegs where do you get the phosphatidylserine if you don't mind me asking? Thabks for the above info
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    Hi Sunshine, sorry Took so long to respond. I...

    Hi Sunshine, sorry Took so long to respond.

    I am having trouble finding this site in my page. Anyway I hope you had positive news at the dr.

    Yes, going out to a restaurant can sure set things...
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    I am working on that this year myself. I realized...

    I am working on that this year myself. I realized I had shut myself off from everyone this past year. By Dec was beginning to get really down and discouraged as to what I was fighting for. Hoping for...
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