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  1. Replies
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    Rose, I'm thankful that you were able to do the...

    Rose, I'm thankful that you were able to do the signing more safely. It's so stressful to have to do anything that doesn't quite feel safe. I think you made a very good analogy about being at war. We...
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    Rose, I'm thankful that you were able to do the...

    Rose, I'm thankful that you were able to do the signing more safely. It's so stressful to have to do anything that doesn't quite feel safe. I think you made a very good analogy about being at war. We...
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    Rose, I hope you enjoyed your leftovers. We...

    Rose, I hope you enjoyed your leftovers. We finished the last of ours last night. We took Kathleen to her brothers house it was really nice out and sunny so she sat outside while we helped him put...
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    Rose, I hope you enjoyed your leftovers. We...

    Rose, I hope you enjoyed your leftovers. We finished the last of ours last night. We took Kathleen to her brothers house it was really nice out and sunny so she sat outside while we helped him put...
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    I hope everyone had a nice Thanksgiving here. So...

    I hope everyone had a nice Thanksgiving here. So different but ok. My son and daughter came for dinner and we enjoyed turkey, mashed, squash, greenbeans, and corn. Kathleen even had a small glass of...
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    Rose, No need to apologize! I loved reading your...

    Rose, No need to apologize! I loved reading your post. Happy Birthday to Jonathan! Your words never fail to paint me a vivid picture of your beautiful family. As Donna said we are all richer for...
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    55055506550755085509Donna, So nice to see an...

    55055506550755085509Donna, So nice to see an update. Sounds like you're keeping busy. I'm glad Jim is on the mends. It must be so hard to lose a caregiver. We had a person who provided community...
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    54995500550155025503 A few of our fall Sunday...

    54995500550155025503
    A few of our fall Sunday fun pictures!
    Mary Grace
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    54995500550155025503 A few of our fall Sunday...

    54995500550155025503
    A few of our fall Sunday fun pictures!
    Mary Grace
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    Donna, Nice to see you checking in with an...

    Donna, Nice to see you checking in with an update. Sounds like you''re keeping very busy.
    Funnylegs, Many prayers for your friend! I hope things are looking up. Keep us posted when you can. It's so...
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    Rose, Kathleen is very set in what she likes to...

    Rose, Kathleen is very set in what she likes to do and when so when that went wrong she just didn't want to do anything else. We used to be able to distract her and like you turned it into picnics...
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    54975498Great idea Rose! Your dinner sounds...

    54975498Great idea Rose! Your dinner sounds "scrumptious" (one of Kathleen's favorite words, she got it from the word of the day on sesame street LOL). I love when a meal can feed you for a couple...
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    Rose I may have posted that picture before it’s...

    Rose I may have posted that picture before it’s definitely one of my favorites. It’s a little bittersweet because it was before her strokes. We did find some leaves on our walk. They seem to be...
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    Rose I may have posted that picture before it’s...

    Rose I may have posted that picture before it’s definitely one of my favorites. It’s a little bittersweet because it was before her strokes. We did find some leaves on our walk. They seem to be...
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    Rose, I hope all is well with you. I'm always...

    Rose, I hope all is well with you. I'm always amazed at the intuition that animals have. Animals have always been drawn to Kathleen. They are gentle and snuggle up to her always. Even when she was...
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    5473Thank you rose you are too kind! I do have to...

    5473Thank you rose you are too kind! I do have to say that so far I don’t feell like in a few months I’ll be 60!!
    Kathleen has always loved music and it has been her best medicine as well. It...
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    Thanks Rose, We're trying to create as normal a...

    Thanks Rose, We're trying to create as normal a summer as we can. Even with all that's going on around us she's doing well and happy. Last night we had a campfire at her Aunts house, just us them...
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    Few more pictures...

    Few more pictures of us trying to stay busy lol

    5463546454655466546754685469
    Ok more than a few lol!
    We visited my sister outside kathleen had a good time sitting outside and chatting. She...
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    Rose, I am so very sorry for your loss. It's...

    Rose, I am so very sorry for your loss. It's wonderful that you were able to visit virtually. Can't believe it's been 4 months since Jim's passing. You've accomplished so much in that time.
    I hope...
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    Rose, So glad you had a nice visit with John....

    Rose, So glad you had a nice visit with John. Sounds like he left with full arms and a full heart. It's great that the weather allows these visits outside and safe. I've only visited with anyone...
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    Rose, So glad you got your computer up and...

    Rose, So glad you got your computer up and running! Tech problems really frustrate me. Luckily that's what my husband does for a living. That can be good and bad he does it all day so sometimes he...
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    Rose This made my day! What a lovely start to...

    Rose This made my day! What a lovely start to your day! Your guys are certainly watching over you and taking good care!
    Mary Grace
  23. Thank you ladies! It's so rewarding to pick and...

    Thank you ladies! It's so rewarding to pick and then cook fresh veggies. Luckily Kathleen loves them all as well. funnylegs, I've tried and failed at growing cucumbers. so I gave up but my neighbor...
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    Thanks Rose yes, Kathleen loves playing...

    Thanks Rose yes, Kathleen loves playing basketball, as well as football and baseball! And boxing with her brother. We will really miss doing her Challenger football games this fall. I'm pretty sure...
  25. A few more pictures of how we fill our time...

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    Trying our best to be outdoors when it’s not blistering hot. Kathleen and I started seeds back in May now we have lots of tomatoes, zucchini, peppers, and...
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    Thank you Rose! She's pretty happy just sitting...

    Thank you Rose! She's pretty happy just sitting around watching youtube LOL but I try to find activities to get some exercise everyday. We're going to purchase a basketball hoop to get outside and...
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    View Post

    5438543954405441544254435444. Trying to keep busy and be safe. Sheís pretty happy doing anything we come up with LOL!
    Mary Grace
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    Rose, I hope all is well. Keeping Donna and...

    Rose, I hope all is well.
    Keeping Donna and family in my prayers.
    I agree about following your gut it's proved to be a very good gauge. I'm not sure if my sister in law will even come now since...
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    Rose, Your Ta Done list made me tired! It's been...

    Rose, Your Ta Done list made me tired! It's been oppressively hot this past week. This makes everything more of a struggle. We have air conditioners in our bedrooms but not the rest of our house.
    ...
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    Rose, Amazing how far you've come! My motto is...

    Rose, Amazing how far you've come! My motto is "you have to keep moving to keep moving" I guess you've been thrown into that. You dig up energy when it's needed and just keep on going. The lights are...
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    Rose, I almost spit my coffee when I read that...

    Rose, I almost spit my coffee when I read that little story about the TP holder!! OMG! Thank for the laugh this morning. I really hope that the new bathroom bring you joy and replaces some of the...
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    Rose, I've been reading your updates. I was so...

    Rose, I've been reading your updates. I was so excited to see that it's done! The pictures are amazing! What a beautiful bathroom you have. It brought tears to my eyes reading the posts for your...
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    Rose, Your life is so different now for sure......

    Rose, Your life is so different now for sure... It's torn apart and in shreds as you said, but sometimes to make something totally new it has to be torn apart. After this storm you are weathering...
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    Rose, I've been reading every day. It exhausts me...

    Rose, I've been reading every day. It exhausts me just reading about what your life has become. Wow! BUT at least it's moving forward quickly. I pray that the process goes as quickly as possible for...
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    Rose, I'm so so sorry for this tremendous loss....

    Rose, I'm so so sorry for this tremendous loss. You have been a rock through this journey. I am blessed to have been a witness to such love and devotion you have shown for your family and anyone who...
  36. Thread: Jim's Journey

    by mg12061
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    Rose, This is truly heartbreaking news. You have...

    Rose, This is truly heartbreaking news. You have brought Jim so far in this journey with your love and your tender care. You will bring him through this next part of the journey with the same love...
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    funnylegs, I hope you had a nice holiday! Ours...

    funnylegs, I hope you had a nice holiday! Ours was very quiet. Kathleen didn't quite understand why we weren't with other family members. But in spite of that she did ok. We played lots of Uno, she...
  38. Thread: Jim's Journey

    by mg12061
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    Rose, Happy Easter to you and Jim. You are always...

    Rose, Happy Easter to you and Jim. You are always in my prayers. Always in my thoughts and my admiration of the life and love you have. I hope your day is filled with laughter and music and of course...
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    Funnylegs, Just getting back to this forum sorry...

    Funnylegs, Just getting back to this forum sorry I didn't answer sooner. Kathleen is good. She's no longer in school (although we never stop doing school work at home LOL she loves workbooks). She...
  40. Thread: Jim's Journey

    by mg12061
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    Fist I hope and pray that everyone here is safe...

    Fist I hope and pray that everyone here is safe and healthy. Our latest numbers here in NY as of yesterday April 1 were over 83,000. I never ever dreamed it would be that high. A couple of weeks ago...
  41. Thread: Jim's Journey

    by mg12061
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    Rose, So glad to hear some good news! So glad you...

    Rose, So glad to hear some good news! So glad you don't have to go to any medical facility for now.
    NY coronavirus numbers as of last night were 44,000. Mostly in NYC but growing around the state....
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    funnylegs, I don't usually come to this thread...

    funnylegs, I don't usually come to this thread but just happened to catch the label of it and figured I'd check it out. Thanks for the list. I knew Kathleen was at a high risk but not all the things...
  43. Thread: Jim's Journey

    by mg12061
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    Rose, Can't blame you for stocking up on all...

    Rose, Can't blame you for stocking up on all your's and Jims needs. You can't be without those things and you can't run out to get them. Life here in NY is kind of surreal... Empty shelves...
  44. Thread: Jim's Journey

    by mg12061
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    Rose, It's always reassuring to hear about the...

    Rose, It's always reassuring to hear about the wonderful people in your life who care so deeply and will always be there for you. Glad Nancy could bring some entertainment and smiles!

    The...
  45. Thread: Party

    by mg12061
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    Party

    538553845384538153815382g Zach5383. A few pictures from our superhero party. Sorry for the duplicates lol. Mary grace
  46. Thread: Jim's Journey

    by mg12061
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    Rose, I was very pleased to see a positive post...

    Rose, I was very pleased to see a positive post this morning. I'm not surprised that Jim is working at getting his strength up. Your home is filled with love and strength. When you mentioned going to...
  47. Thread: Jim's Journey

    by mg12061
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    Rose, I hope all is well with you and Jim. Always...

    Rose, I hope all is well with you and Jim. Always thinking about you both and keeping you in my prayers.
    Mary Grace
  48. Thread: Jim's Journey

    by mg12061
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    I agree Donna! He was so easy to listen to, and...

    I agree Donna! He was so easy to listen to, and understand... Made something kind of complicated a little easier. I'm excited to watch some of his Ted Talks.
    Mary Grace
  49. Thread: Jim's Journey

    by mg12061
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    Rose, YEAH for the BM! We celebrate BM's as well....

    Rose, YEAH for the BM! We celebrate BM's as well. We had so many yers of chronic and debilitating constipation for Kathleen up until she got her cecostomy. So we still celebrate a really good...
  50. Thread: Jim's Journey

    by mg12061
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    Rose, Rejoicing along with you and Jim for his...

    Rose, Rejoicing along with you and Jim for his appetite, determination, strength, and for all you do to facilitate these positive things. Rejoicing with you for every step forward and every day that...
  51. Thread: Jim's Journey

    by mg12061
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    52,370

    Rose, I'm so glad I came to read this today! It...

    Rose, I'm so glad I came to read this today! It made my day! I truly have happy tears for you and Jim. I'm so thankful that you both were treated so kindly and with the respect that you deserve. I'm...
  52. Thread: Night to shine

    by mg12061
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    Thank you everyone for your kind words. Kathleen...

    Thank you everyone for your kind words. Kathleen really loves this prom night (well any party with loud music). But it's very special and she always looks forward to it. I also get a night to enjoy...
  53. Thread: Jim's Journey

    by mg12061
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    Rose, My favorite baking apple is mac's BUT I...

    Rose, My favorite baking apple is mac's BUT I haven met an apple I don't like LOL. Honeycrisp and Fuji are both good choices. I hope it comes out great! I hope Jim likes the Hint. Kathleen hasn't had...
  54. Thread: Night to shine

    by mg12061
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    Night to shine

    53575357535853595360536153615362. Some pictures from Kathleen’s Night to Shine prom! Another fabulous night of loud music dancing and boys.all her favorite things!
    Mary Grace
  55. Thread: Jim's Journey

    by mg12061
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    52,370

    Rose, I'm glad you like my Apple pie recipe. I...

    Rose, I'm glad you like my Apple pie recipe. I have to warn you that I don't have an exact recipe. Something that kind of bothers my husband, he'll ask how long shoud I cook ****** My respons is...
  56. Thread: Jim's Journey

    by mg12061
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    Rose, So glad you got your TV all hooked up. I'm...

    Rose, So glad you got your TV all hooked up. I'm terrible and can't sleep unless I turn on the TV I know a bad habit but the sounds helps to turn off my mind a little. Glad Jim is wanting to eat...
  57. Thread: Jim's Journey

    by mg12061
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    52,370

    Rose, Wow what a huge step! I hope you slept well...

    Rose, Wow what a huge step! I hope you slept well after all that work and emotional stress. Just one more example of putting yourself and your feeling second. You really are a beautiful person and it...
  58. Thread: Jim's Journey

    by mg12061
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    Rose, I hope all is well... Praying all the...

    Rose, I hope all is well... Praying all the upcoming tests including todays blood draw goes smoothly.

    The news of Kobe's death was such a shock and just so very sad. I agree the more we heard...
  59. Thread: Jim's Journey

    by mg12061
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    Rose,Just catching up on posts. Please extend a...

    Rose,Just catching up on posts. Please extend a very happy birthday wishes to Jim!! Sounds like a lovely day! Kathleen LOVES birthday in fact every day here is "someone's birthday" if it's not a...
  60. Thread: Jim's Journey

    by mg12061
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    533
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    52,370

    Rose, I can't even begin to imagine all that's on...

    Rose, I can't even begin to imagine all that's on your plate. It kinda exhausts me LOL. All the ups and down, hurdles and hoops you jump through, all the unkowns you navigate through, and all the...
  61. Thread: Jim's Journey

    by mg12061
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    52,370

    Rose, I haven't posted in a long time but I read...

    Rose, I haven't posted in a long time but I read all your updates. I have to say you are a ROCK! I know at times you think you're not, but when I read your posts I see what you DO! Not what you think...
  62. Thread: Jim's Journey

    by mg12061
    Replies
    533
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    52,370

    Rose, always glad for any good news you can...

    Rose, always glad for any good news you can share. I do read more than respond but I'm always with you and sending prayers and positive thoughts your way. Your life inspires and touches so many...
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    Rose, Sending you love and hugs! Happy Birthday...

    Rose, Sending you love and hugs! Happy Birthday to your angel boys. You have honored their memory in so many ways. Crying in the shower can be very theraputic. I'm so glad you can share pictures...
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    Halloween party

    53195320 last nights Halloween party.so much fun!! MRy Grace
  66. I'm so so sorry for all the struggles you've had...

    I'm so so sorry for all the struggles you've had just getting appropriate care for your son. I think Rose said it all!! Your son really needs a Dr. who Is listening to your concerns and acting...
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    5303530453055306

    5303530453055306
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    Kathleens update

    Thought I would update with a few pictures. Kathleen has enjoyed the summer and now its already fall. The weather is great warm some days crips some days. She's been very busy concerts (Goo goo...
  69. Thread: Jim's Journey

    by mg12061
    Replies
    533
    Views
    52,370

    Rose, always thinking about you and Jim and...

    Rose, always thinking about you and Jim and prayers for you both. I'm very impressed at your ipad usage! New technology can be so frustrating. I have a very old phone and I'm scared to get a new one...
  70. Hello and welcome to braintalk. I'm so sorry you...

    Hello and welcome to braintalk. I'm so sorry you are feeling so lost and dealing with so much. I'm glad you found the support here. I have a daughter who has Down syndrome and several other health...
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    This made my day! What a lovely picture of your...

    This made my day! What a lovely picture of your boys! I'm quite certain they're your angels watching over you and Jim. Can't believe it's been 5 months. Thanks for sharing with us.

    Mary Grace
  72. Thread: Jim's Journey

    by mg12061
    Replies
    533
    Views
    52,370

    Rose great idea with the witch hazel. That I...

    Rose great idea with the witch hazel. That I think she'll tolerate. I've put neosporin on it but she will not tolerate a bandaid.
    Mary Grace
  73. Thread: Jim's Journey

    by mg12061
    Replies
    533
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    52,370

    Rose, So glad Jim's blood results were stable for...

    Rose, So glad Jim's blood results were stable for the most part.
    I don't know if it would be any easier but I make a really easy peanut butte cookie for Kathleen. I'm sure you could use any nut...
  74. Thread: Jim's Journey

    by mg12061
    Replies
    533
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    52,370

    Rose, so glad that things seem stable health...

    Rose, so glad that things seem stable health wise. But sorry there continue to be things thrown at you. John is such a gift in your life and it's comforting to know you have someone you can count on....
  75. Thread: Jim's Journey

    by mg12061
    Replies
    533
    Views
    52,370

    Rose, So sorry there's one more battle... You're...

    Rose, So sorry there's one more battle... You're so right if people would "just do their job" and maybe do it with a little pride and respect it would make so many lives easier. We've had an issue...
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