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    I have to say this, again!! Nothing, replaces, ...

    I have to say this, again!! Nothing, replaces, friendsbip!!!

    Phyllis
  2. Thanks, Sue, things *have*, to get better!!!;) ...

    Thanks, Sue, things *have*, to get better!!!;)

    Phyllis
  3. Thanks so much, Linnie, your thoughts & prayers...

    Thanks so much, Linnie, your thoughts & prayers are truly appreciated!!!:)

    Phyllis
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    Friends really offer glowing sunshine!:) ...

    Friends really offer glowing sunshine!:)

    Phyllis

    New word: shake
  5. Replies
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    I hope this got deleted, 'cause, I screwed up! ...

    I hope this got deleted, 'cause, I screwed up!

    Phyllis
  6. My Neuro. just changed my med. dosages.............................

    Some of you know, I've been having some pretty miserable issues of not feeling well, lately.
    Please, pray, this takes care of the issues?????? :(

    Thanks!!!

    Phyllis
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    Oh, well! I have more, important things to worry...

    Oh, well! I have more, important things to worry about, soooo,.....................................................................

    Thanks, Jan!!:)

    Phyllis
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    Thanks, Mike, but, this was hours, ago, so, the...

    Thanks, Mike, but, this was hours, ago, so, the number's not even, in my phone, anymore!;)
    Oh, well! If, it was important, apparently, they know my number, so, they'll call, again!:) Or...
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    What do you mean, Jan??? Phyllis

    What do you mean, Jan???

    Phyllis
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    It was a personal phone number, Jan. ...

    It was a personal phone number, Jan.

    Phyllis
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    Thank you for your reply, UTC12!:) Yes, my...

    Thank you for your reply, UTC12!:) Yes, my shunt's been checked and that's definitely, not it.
    I have Spina Bifida and siezures are just part of that, sometimes.

    Phyllis
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    I don't know why, I'm asking this, here???

    I know, it can't involve, anyone, at B.T., but, it's weird! I just picked up my phone to see whether
    I had any messages. I didn't have messages, *but*, I *did*, see, I'd gotten a...
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    I really need to get mine checked, Joy! She's...

    I really need to get mine checked, Joy! She's made sooo many changes and I've made sooo
    many screw ups with my meds., lately, I *know*, I need my blood levels checked,...
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    "WTF?!?" Phyllis

    "WTF?!?"

    Phyllis
  15. Replies
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    I got up late, today, so, I only took my meds., once and feel fine!!

    At the beginning of this whole nightmare, I told her, I wasn't understanding *any* of her
    directions, so, I was taking my meds. *every*, which, way! I did that for quite, a while!
    ...
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    I *hate* my Neurologist!!

    I haven't been feeling great for some, time, now. But, it was manageable.
    Last couple of days, *death*, would be, *welcomed*!!! I'm soooo aggravated because, I have
    ...
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    Sally, I don't have MS, but, I just had to say,...

    Sally, I don't have MS, but, I just had to say, "Amen"!!:)

    Phyllis
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    Well, I'll just have to keep calling and calling!...

    Well, I'll just have to keep calling and calling! Otherwise, she could be getting a surprise visit!
    It won't be a real pretty one, either! I don't think, she can stop me from...
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    Yeah! What she, said!!...lmao!!...:D:D:D ...

    Yeah! What she, said!!...lmao!!...:D:D:D

    Phyllis
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    Okay, Chris, so, I'm, *lazy*!!...lol That's a...

    Okay, Chris, so, I'm, *lazy*!!...lol That's a pain in in the ***!! lol I just want *1* name*,
    I can get an appt., with!!...Lol

    Phyllis

    P.S. Seriously, I feel like,...
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    I know, Chris, but, I was asking at BT, since, I...

    I know, Chris, but, I was asking at BT, since, I *really* trust everyone here.

    Phyllis
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    Are any of you here from the Boston area???

    If so, I'm trying to reach my neurologist, because, I'm really having med. issues and I really
    want to be seen by an Epilepsy specialist. (Can't spell it.) I'm wondering, does...
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    **But*, this has only been happening, since, I've...

    **But*, this has only been happening, since, I've been on *all* of these meds.! . Should I start
    taking only, half, until, I can get in touch with this air-head?

    ...
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    Okay! I should've posted this, before, but, let...

    Okay! I should've posted this, before, but, let me throw yet, *another*, monkey-wrench into the works
    for you, guys!...Lol One, of the the things, these meds. are doing is, they're...
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    Sue, Perhaps, I didn't make...

    Sue,

    Perhaps, I didn't make myself, clear? I meant, she has me on, 4 pills, 2 times, a, day. So, a total of
    8 pills, a day.

    Phyllis
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    Zonisi/amaide???

    They have me on 4 of those, 2 times, a day.! It makes me feel like, I'm going to have seizures!!
    Personally, I think, 8 pills a, day, is a little, much, but, I haven't said,...
  27. It wouldn't be so bad, *but*,............................................ ............

    Something tells me, it's the *amount*, of meds., I'm on! For one,, Med., she has me taking *8* pills a,
    day!!! Seems, a bit much for me, but, hey! She's, the Dr.! So, I didn't...
  28. Tattoo,........................................... ...................................

    If they could give me something for siezures *and* anxiety, I'd love it!! No, I don't think,
    they'd have to do any drug test??? They never, have???

    ...
  29. Well, *maybe*, we're on the road to, getting...

    Well, *maybe*, we're on the road to, getting *something*, accomplished?!? I have an Appt.on July 2nd.

    Phyllis
  30. I know, I'm going to need to do this, but,..................................

    I *really* *don't* want to be on anymore meds., because, I *don't* want to increase the risk of more
    seizures! But, I have a really obnoxious anxiety issue which, I know, will only, be...
  31. I know, Sue, it's 100 degrees in the shade, here,...

    I know, Sue, it's 100 degrees in the shade, here, too!!:(

    Phyllis
  32. Listen! I'll do *anything*, keeps me...

    Listen! I'll do *anything*, keeps me seizure-free!!!
    To me, that, is worth anything!!!

    Phyllis
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    Coffeelover, I don't know how bad it got for...

    Coffeelover, I don't know how bad it got for *you*, but, *I*, mean, *I*, really, screwed things up
    to the point, I took *lots*, more of *some, things, than, I should, have!!!...
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    Hey, Miss Piggy!!

    I'm telling you, *IF*, I* had a brain, I*'d be dangerous!! I *thought*, I understood what she told me
    *but*, I *didn't! I just, hung up with her. She had to go over *everything*,...
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    I tried to delete this post,

    but, I guess, too much time had passed. Anyhow, I just spoke with my neuro. and she
    dealt with my medications. Damn, did I have everything messed up!! No wonder, I was...
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    Tattoo, see my latest post. Phyllis

    Tattoo, see my latest post.

    Phyllis
  37. Barque, I don't know know *how*, you do it!? ...

    Barque, I don't know know *how*, you do it!?

    Phyllis
  38. I know, Sue, it's a pain in the back-side!! ...

    I know, Sue, it's a pain in the back-side!!

    Phyllis
  39. *Now*, I'm on enough, freakin', meds., to open my own, flippin', pharmacy!!

    Lamictal - 1 and a half, twice, daily.
    zonisamide - 4 tablets, daily!

    Phyllis
  40. *Now*, I'm on enough, freakin' meds.', to open my own, plippin', pharmacy!!

    Lamictal - 1 and a half, twice, daily.
    zonisamide - 4 tablets, daily!

    Phyllis
  41. Okay! I know, this thread was started a while, back,.................................

    but, I just found it. Anyhow, I've just started having seizures and one of my mother's distant
    cousins' daughter has schizophrenia! (sp??) Also, depression definitely, runs in my...
  42. Replies
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    Sue, They only added one med....

    Sue,

    They only added one med. to what I was already taking. For whatever, reason, she felt, I needed it.
    I just didn't understand how I was supposed to take it with my...
  43. Probably not, Dave, as, I only drink one or two...

    Probably not, Dave, as, I only drink one or two cans, a day!...Lol

    Phyllis
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    Guys, I'm *not* kidding!!! I heard it on the news...

    Guys, I'm *not* kidding!!! I heard it on the news on TV!! *And* I *saw* the "little" guy!

    Phyllis
  45. Whoa, guys, put on the brakes!!...Lol

    I can't remember the last time I got sooo many replies to *anything*!...Lol
    As much as I don't like it, I get the picture! Which, I got even, before, posting this, unfortunately!

    Phyllis
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    "Smokey, the bear", sighting in Maryland!!

    Hopefully, no one lives there?!? Just, an FYI for those who, may not have, heard about it!!

    Phyllis
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    Understood, Sue!

    *But*, I'm on *2*, different meds. and she wants me to take different doses of *both* of them every
    week. With 2 meds. it's just too confusing. My brain doesn't work like that.

    ...
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    That's the problem, Chris............................................. ...............

    I screwed up what my doctor wanted me to do, because, she made go through an entire week
    of taking it *one* amount, then, when I got used to *that*, she'd increase it to a...
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    Sue, The dose she started me on was...

    Sue,

    The dose she started me on was working just fine, which, is why, I can't understand why, she had to go
    and fool with something that worked, without, checking with me first!?...
  50. I don't do diet stuff, but,.............................................. ............

    it'd be interesting to find out how I'd be affected??

    Phyllis
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    Well, you know, it's going to be phone-tag for a while, now,.........................

    before, I can get in touch with my DING-BAT Dr.! Anyhow, my question is, do you guys think, I should
    go back to the nice, easy, simple schedule, she had me on, before, she started pulling...
  52. I can *easily*, give up *anything", else, *but*,...

    I can *easily*, give up *anything", else, *but*, I *have* to have my Mountain Dew!!

    Phyllis
  53. Dave, I just didn't think,...

    Dave,

    I just didn't think, caffeine would be good, because, it can affect the brain and so, do, seizures.

    Phyllis
  54. Replies
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    Chris, I'm just going to go to the...

    Chris,

    I'm just going to go to the E.R. and they can figure it out.

    Phyllis
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    Everything was fine, until,............................................ ..............

    she put me on a screwy schedule with the second medication.
    That's when she threw me off.

    Phyllis
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    Okay! I'm going to *try*, not, to screw this up!!

    Lamotrigine: 1 and 1/2, twice, per, day.
    Okay! This, is what's confusing!
    Zonisamide: week 1: 1, daily
    week...
  57. Replies
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    Ted, I, have one of those pill...

    Ted,

    I, have one of those pill organizers, too. Problem is, some, weeks, I forget to fill it when I'm supposed,
    to!:(
    Phyllis
  58. Replies
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    Hey, Porky!!........................................... ...........................Lol

    Sue, she's had me on a couple of different things. What I think, I did is, I took too many of one,
    but, not, enough of the other, taken one, but, forgot the other, some days, etc. ...
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    Chris, I screwed up days, meds, dosages, I was...

    Chris, I screwed up days, meds, dosages, I was supposed to take certain dosages of one for a while, then, stop and take a different dose of another for a certain amount of time, etc.
    It was just too...
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    No problem!:) Phyllis

    No problem!:)

    Phyllis
  61. Replies
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    "Mountain Dew"??? What do you mean??? ...

    "Mountain Dew"??? What do you mean???

    Phyllis
  62. Replies
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    I think, the E.R. would need to contact my Dr.,...

    I think, the E.R. would need to contact my Dr., though??? Also, again, I'm o.d.'ing on water, to try and flush
    all of this crap out of my system, hoping, it will be enough???

    ...
  63. Pati, I know, you can add stuff to water to make...

    Pati, I know, you can add stuff to water to make stuff like lemon-ade and stuff, but, I mean, having to give
    stuff like, soda. Not much, you can substitute for that!! lol

    Phyllis
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    Mal, I could call My Dr. or go to the E.R. right,...

    Mal, I could call My Dr. or go to the E.R. right, now, and it wouldn't be a problem for anyone. Not sure why,
    you'd get that sort of response?? Dr.'s/ E..R.'s *aren't* supposed, to do that!!...
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    Barque,

    I really don't feel bad, considering, the idiotic thing, I pulled, ya know?
    Also, I'm drinking lots of water to try and flush all of this crap out of my system.
    What...
  66. "Water", Pati?!?...lmao!!!!!! You *don't*...

    "Water", Pati?!?...lmao!!!!!! You *don't* understand!! I *need* my Mountain Dew!!!...Lol
    Yes, I know, I need to give it up, unless, I want more seizures, which, is what this thread started out to be...
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    Completely, screwed up my meds.!!!

    My Dr. has me on 2 meds. and a really screwy schedule for each, of them! Any, I I know, I've
    messed up, big-time! What do I do? It's Sat. night, so, Mon. is right, around the...
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    Sue, thank you for clearing up, how this joke started, between, you and I II

    I think, some people looking at this thread are thinking, I started it
    just, because, I wanted to be rude to you??? Little, do they know,
    You, yourself, are in, on...
  69. Pati, I'd love ice water *if*, I didn't want...

    Pati, I'd love ice water *if*, I didn't want *flavor*!!...Lol

    Phyllis
  70. Now! *How*, did I know it?!?...Once, again, Miss Piggy to the rescue!!...lmao

    "Ginger ale"?!? Ack!!!!!!...Lol As I said, I knew the answer. I guess, I was hoping, I was
    wrong!!:(

    Phyllis:)
  71. I think, I know the answer to this, already, but,...................

    Mountain Dew is bad for seizures, right?

    Phyllis
  72. Replies
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    Chris, Eventually, other forums...

    Chris,

    Eventually, other forums fill up. This one has been slow forever. As for my friend, I asked him if he minded what I was doing and he said he appreciated it, because, he knew...
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    Love him, bunches!:) That's why, I'm worried for...

    Love him, bunches!:) That's why, I'm worried for him.

    Phyllis
  74. Replies
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    What is it, with, this forum??????

    Why, in the world, is this forum sooo quiet??????
    Oh, well! I have an issue which, came up just, a couple of days, ago,
    I'm really hoping, someone can help me with. A couple of days,...
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    Lor, Mass. is far from *everyone*, here. That's...

    Lor, Mass. is far from *everyone*, here. That's what I mean, about only being able to be phone friends.
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