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Webinar tonight on emerging treatments...I copied the email I got

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    Webinar tonight on emerging treatments...I copied the email I got

    EFor the 2.5 million people worldwide living with MS, new research is providing exciting prospects for slowing disease progression, improving symptom management, and enhancing quality of life. Join renowned neurologist Ben Thrower as he summarizes the latest clinical trials and offers insights into potential new treatment options and emerging therapies. Dr. Thrower will also answer your questions in an interactive Q&A session.

    PLEASE NOTE, THERE IS A MAX CAPACITY OF 1,000 ONLINE PARTICIPANTS. PLEASE JOIN IN THE WEBINAR EARLY TO MAKE SURE YOU ARE ABLE TO ACCESS THE LIVE BROADCAST.

    IF WE REACH CAPACITY, YOU CAN STILL HEAR THE AUDIO BY USING THE PHONE NUMBER AND ACCESS CODE. YOU WILL RECEIVE AN EMAIL 24 HOURS AFTER THE WEBINAR WITH A LINK TO VIEW THE RECORDING IN OUR WEBINAR ARCHIVES.

    8:00pm ET/ 7:00pm CT/ 6:00pm MT/ 5:00pm PT

    If you have questions that you would like addressed in this webinar, please email info@cando-ms.org.

    If you need registration support, please call 970-926-1290

    If you need technical support, please call 1-877-582-7011
    How to Join the Webinar
    1. Click the link to join the webinar at the specified time and date:
    Join Webinar
    Note: This link should not be shared with others; it is unique to you.
    Before joining, be sure to check system requirements to avoid any connection issues.
    2. Choose one of the following audio options:
    TO USE YOUR COMPUTER'S AUDIO:
    When the webinar begins, you will be connected to audio using your computer's microphone and speakers (VoIP). A headset is recommended.
    --OR--
    TO USE YOUR TELEPHONE:
    If you prefer to use your phone, you must select "Use Telephone" after joining the webinar and call in using the numbers below.
    United States: +1 (951) 384-3421
    Access Code: 341-128-860
    Audio PIN: Shown after joining the webinar
    Webinar ID: 330-492-043
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"..

    #2
    This link might make it easier to register for the Webinar:

    Only registered and activated users can see links., Click Here To Register...
    SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.

    Comment


      #3
      Thanks Agate. I signed up and it says it is at 4pm today. I'll see if it informs me it's starting.
      "Given the millions of billions of Earth-like planets, life elsewhere in the Universe without a doubt, does exist."

      Albert Einstein

      Comment


        #4
        Hmm. It starts at 5 PM for me, or at least that's what it says, and yet I think Howie is in a part of the world that is 3 hours ahead of where I am.
        SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.

        Comment


          #5
          I'm in Virginia, the birthplace of America!

          .................................................. ..

          I just checked, and now it says it will be at 8:00.
          Last edited by Howie; 06-12-2018, 11:59 AM.
          "Given the millions of billions of Earth-like planets, life elsewhere in the Universe without a doubt, does exist."

          Albert Einstein

          Comment


            #6
            I tried to start the Webinar but when there was a message telling me "This type of file could harm your computer," I chickened out. It was a download of something called GoToWebinar. Computer problems are hard to deal with--I didn't feel like taking the risk. Maybe the Webinar will have a transcript available later.
            SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.

            Comment


              #7
              Well, I registered earlier, and the webinar started at 8. I didn't get a notice, and don't know how to get in, so I just deleted the whole site. Humpf!!!
              "Given the millions of billions of Earth-like planets, life elsewhere in the Universe without a doubt, does exist."

              Albert Einstein

              Comment


                #8
                Looks as if most of it, maybe all of it, will be available later in archived form. I'll be on the lookout for it.
                SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.

                Comment


                  #9
                  I listened to the CanDo-MS.org part. The part where Dr. Ben Thrower was on. When the Natl. Multiple Sclerosis Soc came on with their part I quit. I was so tired. I think I have been sitting here at the computer for close to 1 1/2 hours.

                  Dr. Thrower talked mostly on the drugs that are out there. He spent quite a bit of time on Stem Cell Therapies and the difference in them, etc. It was worth listening to because the first two questions that were asked pertained to me. Someone asked about older people being on DMTs and his answer was that if their immune system was good then there was no reason for them not to be. He didn't say which ones might be better for older people. He did advocate if a person was older and had been doing well on their DMT, if they came off it they might begin to show decline. There was another question, but I can't remember what it was. If there is a print-out I would like to see it.

                  Thanks for letting me know about this webinar.
                  Virginia

                  Comment


                    #10
                    Virginia, thank you for the summary of the webinar. Most of us tried, but couldn't get in to hear it.
                    "Given the millions of billions of Earth-like planets, life elsewhere in the Universe without a doubt, does exist."

                    Albert Einstein

                    Comment


                      #11
                      There are probably others who will come along with more information on it, and maybe we will get a transcript.

                      There is not much out there for fatigue. That is another thing I picked up. They are trying to come up with an extended release form of Amantadine, and recommending exercise and good healthy lifestyle.

                      They are also thinking they might recommend going to 5 to 6 weeks on Tysabri infusions instead of 4. People could then stay on it longer before there was any danger to them.

                      I am more concerned about the possibility of giving up my DMT than I was before, after hearing him say that people who have been on long term therapy and come off it are more likely to go down hill.
                      Virginia

                      Comment


                        #12
                        How long does it take before transcripts usually come out? There are some things I want to review before I see my Neurologist next month. Some parts of it went a little fast for me last night. One thing was that I was not prepared because I didn't think I had registered properly.
                        Virginia

                        Comment


                          #13
                          I don't know how long it will be but I sent them a message asking. I'll let you know if I have a reply.
                          SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.

                          Comment


                            #14
                            This is a link so you can watch last night’s presentation. At least I could view it...just have not had time.

                            Only registered and activated users can see links., Click Here To Register...
                            Linda~~~~

                            Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"..

                            Comment


                              #15
                              I watched the presentation, and special thanks to Linda for providing a link.

                              I thought it was a very clear and balanced presentation. What I saw was the slides with accompanying commentary by Dr. Thrower. Well worth it, and with the archived version I could pause it as needed and return later.
                              SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.

                              Comment

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